Kasia Patynowska @KPatynowska
Research Nurse at Marie Curie linking research and clinical practice. Vizsla lover, trail runner, mum to 2 amazing girls! Views my own. Belfast, Northern Ireland Joined February 2017-
Tweets372
-
Followers238
-
Following310
-
Likes1K
This is one the ways #happiness and #joy looks for me. Love the beauty and the challenge of #MourneMountains! #trailrunning
Jasmin Paris first woman to complete gruelling Barkley Marathons race Absolute legend!! bbc.co.uk/news/uk-scotla…
He made us laugh and cry in one session. #pcc2024 Yes, wonderfully perfect is a fab description @katemaitland
He made us laugh and cry in one session. #pcc2024 Yes, wonderfully perfect is a fab description @katemaitland
I did a thing! 🗣️Obviously sticking a needle in someone’s bladder shouldn’t be the 1st method in alleviating urinary retention in the dying patient BUT can be used when all else fails #PCC2024 #symptommanagement #palliativecare 💉👩🏼⚕️
Going to be sharing this far and wide - Platinum Rule - "Do unto patients as they would want done unto themselves" #PCC2024 #dignity #platinumrule #personhood
Going to be sharing this far and wide - Platinum Rule - "Do unto patients as they would want done unto themselves" #PCC2024 #dignity #platinumrule #personhood
Discussion of evidence by @HMChochinov that the using “elderspeak” (inappropriate, simplified, infantilising language) whilst talking to our older patients increases agitation #PCC2024
Afternoon Plenary Dignity in Care: The Human Side of Medicine - @HMChochinov @PCCongress #PCC2024
#PCC2024 Including information about the patient as a person promotes dignity - evidence supports the inclusion of this in medical records with striking feedback from patients and their families. You matter because you are you…… @HMChochinov
Considering social determinants around death and dying. The thought of families not using hospital beds at home because they can’t afford to plug them in brought me up short. #PCC2024
Importance of rehabilitative palliative care - restore patient to a person - support with compassion, in partnership, throught connection, in a risk confident way! stchristophers.org.uk/rehabilitative… #pcc2024
Great first session on carer administration of sc meds in NZ. Thought provoking esp if you practice in a rural area. Much less of a biological risk than we assume. Risks lie around impact on carers, mitigated by the support and education of both carers / staff. #PCC2024
At yesterday’s #RCPEGM, a senior officer presented the results of a survey of MRCPs on their views about Physician Associates (PAs). They unwittingly supplied some good teaching material about how NOT to go about doing a questionnaire survey and how NOT to report the results.
Reflexive Thematic analysis: Methodological coherence can be facilitated by striving to be knowing – thoughtful, deliberative, reflexive and theoretically aware – practitioners and appraisers of reflexive thematic analysis. #research #phdchat #hpm #hapc buff.ly/43hzVSe
Available to book here eventbrite.co.uk/e/cancer-and-s…
Available to book here eventbrite.co.uk/e/cancer-and-s…
Healthcare assistants workforce in #hospice at home is predominantly female. Our study shown they feel undervalued and unrecognised. As as society we need to value hidden caring work of women more! #InternationalWomensDay MC research conference: vimeo.com/914826698/fad5…
Support the proposed bill to enshrine the right to palliative care. A critical step towards addressing inequities in end-of-life care across Scotland. Have your say in the consultation: bit.ly/49GTlCC #PalliativeCare
Support the proposed bill to enshrine the right to palliative care. A critical step towards addressing inequities in end-of-life care across Scotland. Have your say in the consultation: bit.ly/49GTlCC #PalliativeCare
We had so much fun recreating this book cover with my 10y old! Thanks @BranielPS for a great World Book Day activity! #climbing at @BoulderWorld
If I was a PhD student in medical humanities - and not a crust-laden has-been - I would 100% be applying for this incredible summer school in SWEDEN run by our friends at @DurhamImh and the Centre for Medical Humanities at Linköping. Bursaries available! durham.ac.uk/research/insti…
My Grief My Way: a development study of an online support package for coping with bereavement. Registered at #ISRCTN by @MyGriefMyWay @mariecurieuk @GrowingYourIdea @EdinUniHealth @A_Finucane @davidgillander isrctn.com/ISRCTN18357870 #ClinicalTrials
It was a fascinating conference last year and very well organised! Highly recommend attending this one. #RCNresearch24
It was a fascinating conference last year and very well organised! Highly recommend attending this one. #RCNresearch24
Chris Lewis @christheeagle1
39K Followers 37K Following Award winning speaker/writer. Stage 4 patient #BMT. Working for global change within #cancer. COO @yoursimpal, Tech4Good. Let's smile together! #CPFC ⚽️
JohnBradley! American.. @JohnBil59427249
176 Followers 3K Following #history #ConspiracyTheories #Patriots #GroundZero #Iraq #Afganistan #war #Bush #Chaney https://t.co/W6ZQDKjmxl #StandWithUkraine🇺🇦
Sarah Price @SarahPrice101
1K Followers 2K Following Consultant in Palliative Medicine @UHMBT - Lancaster, Kendal, Barrow and in-between. Mother of 3, enthusiastic but slow runner, cake-baker. Views my own.
Peaceful End of Life @Die_withDignity
75 Followers 640 Following Live with Dignity - Die with Dignity • Peaceful End of Life is Everyone's Right • It's neither Suicide nor Sin • YES to EOL Choices • इच्छा मृत्यु - एक वरदान
Joe Hawkins @JoeHawk75825077
824 Followers 1K Following Palliative Medicine Doc, occasional writer and prolific reader when my children allow me to, with a passion for heart failure and good care. all views my own.
Luna @Lunarpl66130
5 Followers 789 Following
Luna @Celestine965135
8 Followers 775 Following
Fiona Porter @Porter_F0922
8 Followers 94 Following Clinical Nurse Specialist (Palliative Care). MSc Student. Wife & Mum ❤.
Luna @us_madison77162
5 Followers 787 Following
National Association .. @UkNAHH
308 Followers 292 Following NAHH are a UK Charitable Incorporated Organisation (CIO), representative body and membership organisation working for hospice at home services
EOLinPLACE Project @EOLinPLACE
165 Followers 221 Following Research on choice and diversity in end of life pathways, led by @B_Gomes_ funded by @ERC_Research @UnivdeCoimbra #ERCStG #palliative
Stephen Mason @Dr_Maceo
1K Followers 1K Following R&D Lead for the Palliative Care Unit @ the University of Liverpool. Also son, brother, husband, father, and paternal optimist...
Natalie Clough🦢 @natily04
199 Followers 596 Following Lead Nurse for Bereavement and Tissue Donation
Bethan Edwards @bethanedwards_
424 Followers 571 Following External Affairs Consultant, National Trust Cymru @NTWales. Cymraes, she/her/hi 🏴
Emma Maun @EmmaMaun
116 Followers 227 Following Quantitative Research Manager at Marie Curie. Views my own.
Naomi Hare @NaomiCHare
741 Followers 890 Following RN. #NIHR PCAF. Interests #IBD #advice lines. Research Matron @GSTTresearch Gastro & ACORN team (@GSTT_NMresearch). #NIHR70at70 alumni. All views my own.
MainEvent @MainEvent24
80 Followers 104 Following MAIN is a research and knowledge exchange network focused on mental health and wellbeing for people impacted by serious life-limiting illness.
Jacqueline @rook50jacquelin
218 Followers 3K Following
Mary @bailey71mary
220 Followers 3K Following
Maria Betts RN DN QN @MariaBe19750692
196 Followers 187 Following Working in district nursing is as fulfilling as it gets. All views are my own.
Narmadha K @NarmadhaK12
195 Followers 2K Following
General David G. Perk.. @GenDavePerkins
147 Followers 300 Following David Gerard Perkins is a retired United States Army Four-star general, trying to make the World a Better Place.
Michalina Kędzia-Kę.. @KedziaMichalina
25 Followers 143 Following
Clinical Nurse Educat.. @CNENetworkUK
7K Followers 6K Following National network for Clinical Nurse Educators - connecting CNEs across the UK. #CNEnet Sign up the network & connect with us here: https://t.co/GuUoQo8
Erica Borgstrom @EricaBorgstrom
3K Followers 2K Following Prof of Medical Anthropology: end of life care & death studies. Ed @Mortality_TandF @deathinageofco1 @formsofcare @openthanatology she/her
Lucy Selman @Lucy_Selman
6K Followers 5K Following Associate Prof. Palliative & End-of-Life Care. Communication, ACP, bereavement, community. Founding Director @GoodGriefFest. she/her
Sonia McKenna @soniaskehugan
85 Followers 243 Following
Catherine Gavin @missbikerni
937 Followers 1K Following Registered Nurse. Lecturer in Nursing. PhD Researcher.
Cristina Savage @CristinaSa88210
85 Followers 3K Following
Thomas Mulvey @ThomasMulvey90
631 Followers 1K Following Policy and Public Affairs Manager @MarieCurieSco | 🍀| Views my own - not those of my employer
Robin Kanarek @Rbennk
6K Followers 6K Following President, Kanarek Family Foundation, RN, Palliative Care Advocate - Foundation website: https://t.co/oUhKzPZeq5
#HellomynameislizFors.. @lizweldon
1K Followers 3K Following Proud Mental Health Nurse @wearelscft Practice Educator for HCSWs Freedom to speak up Ambassador Stay Advocate ❤️ 💛💚all opinions are my own
Jeff K.O @jeff_k_o
133 Followers 257 Following Palliative Care Social Worker @mariecurieUK 🌼 *views own #palliativecare #socialwork
Gareth Jones 💙 @gso_jones
612 Followers 1K Following Proud dad and husband. CYP palliative care senior manager @NHSEngland | RNChild and CCN. Music 🎶 | Rowing | Views own.
Jessica Bush @JessicaMBush
149 Followers 129 Following Public Involvement and Engagement Manager at Marie Curie. All views my own.
Medic @Medic11358726
487 Followers 866 Following Claud Regnard (Pall. Med. doc & bodhran player): constantly curious, pleasurably puzzled and enthusiastically energetic (except for exercise).
Fiona Taylor @Fionataymutant
2 Followers 73 Following
Matt Williams @MattWilliamsMJW
4K Followers 4K Following Associate Director, Information & Support @MarieCurieUK. Past Chair @NeathRoundTable. All views my own
clare finnegan 🇪�.. @pandaclare
876 Followers 2K Following mum, wife, palliative care physician, proud of the NHS, end of life care, medical education, views are my own, she/her
Cathryn Pinto 💙 @CathrynPinto
951 Followers 1K Following Researcher in emotional wellbeing for people with neurological diseases Mental health | Digital health| Health Psychology trainee | Views are my own.
Dr Helen Findlay @helenfindlay
6K Followers 6K Following PhD service user involvement in palliative care (Brunel U) MSc Politics (Strathclyde U) 'Fighting for Life' play re mum (dementia), dad (MND) & older life
Alice Green-Smith RN @DNURsAliceG
443 Followers 405 Following 🎓Studying - Doctorate @OxInAHR. Discourse in Nursing Leadership ❤ Head of Clinical Services @sue_ryder St John's Hospice. 🐈
Prof. Mark Taubert @ProfMarkTaubert
17K Followers 5K Following NHS Palliative Care Consultant @VelindreCC @CardiffUni ★ Vice-President @EAPCvzw ★Chair Advance Care Planning NHS Wales Exec ★edits @BMJ_SPCare #TalkCPR ⚡🇩🇪
Vicki @vicki57levitt
110 Followers 3K Following
Kerrie McLarnon HSCNI.. @mclarnon_kerrie
616 Followers 640 Following PhD Fellow @QUBSONM. LLM Medical Law. Practice Tutor @OpenUniversity. ORECNI. #OlderPeople #SharedDecisionMaking #Co-Design #HospitalDischarge. Views my own
Cherith Semple @semple_cherith
833 Followers 565 Following Prof Cherith Semple, Prof in Clinical Cancer Nursing,Ulster University/SET. Research interests:QOL head&neck cancer, Family-centred Ca Care. Christian John3:16
Michelle Hope @guccichelle
3K Followers 918 Following Deputy Director of Nursing Quality & Safety/ Double Masters graduate/ professional Doctorate student /CQC SPA/ward accreditation/🌻/ hearing loss
Sarah Price @SarahPrice101
1K Followers 2K Following Consultant in Palliative Medicine @UHMBT - Lancaster, Kendal, Barrow and in-between. Mother of 3, enthusiastic but slow runner, cake-baker. Views my own.
Mark Jackson @_MarkJackson_
180 Followers 132 Following Director of Policy & Influencing @PSPAssociation | formerly @mariecurieuk | Views my own |
Dr Caroline Mogan @carolinemogan
460 Followers 614 Following Researcher @LJMU & @cwpnhs interested in health inequalities, particularly in palliative care, mental health & learning disabilities.
PalCaReNWC @PalCaReNWC
287 Followers 303 Following NIHR Palliative Care Research Partnership North West Coast UK, promoting and supporting research through networking, connections, mentoring and more. #hpm #hapc
Nancy Preston @NancyPreston16
1K Followers 505 Following Professor of Supportive and Palliative Care @IOELC at Lancaster University. Section Editor @BioMedCentral Palliative Care. All views my own.
Stephen Mason @Dr_Maceo
1K Followers 1K Following R&D Lead for the Palliative Care Unit @ the University of Liverpool. Also son, brother, husband, father, and paternal optimist...
Natalie Clough🦢 @natily04
199 Followers 596 Following Lead Nurse for Bereavement and Tissue Donation
Matt Smith @InnovationMatt
25K Followers 21K Following Managing Director @ThinkCS | Trustee @EdinDogCatHome | Future of work, fundraising, digital & pop culture | DHFC | Butler to Shelby the rescue cat
David Oliver @mancunianmedic
72K Followers 27K Following NHS Dr 35 y. Covid wards++ Gov, policy, academic, officer roles. Byline: @BMJ_latest. Columns: health press, papers. @mjauk. Manc-in-South. MCFC. Craic. Schlock
Simon Noble @SimonNoble
4K Followers 1K Following Marie Curie Professor in Supportive and Palliative Medicine. Director Division of Population Medicine, Cardiff University.
Bethan Edwards @bethanedwards_
424 Followers 571 Following External Affairs Consultant, National Trust Cymru @NTWales. Cymraes, she/her/hi 🏴
Naomi Hare @NaomiCHare
741 Followers 890 Following RN. #NIHR PCAF. Interests #IBD #advice lines. Research Matron @GSTTresearch Gastro & ACORN team (@GSTT_NMresearch). #NIHR70at70 alumni. All views my own.
PivotalPPF @PivotalPPF
3K Followers 1K Following The future facing, evidence based, independent public policy forum for Northern Ireland
MainEvent @MainEvent24
80 Followers 104 Following MAIN is a research and knowledge exchange network focused on mental health and wellbeing for people impacted by serious life-limiting illness.
Barbara Gomes @B_Gomes_
2K Followers 710 Following Researcher in Palliative Care @UnivdeCoimbra Tweets are my own #hpm #palliative #pallonc
Maria Betts RN DN QN @MariaBe19750692
196 Followers 187 Following Working in district nursing is as fulfilling as it gets. All views are my own.
Michalina Kędzia-Kę.. @KedziaMichalina
25 Followers 143 Following
Emma Maun @EmmaMaun
116 Followers 227 Following Quantitative Research Manager at Marie Curie. Views my own.
Lucy Selman @Lucy_Selman
6K Followers 5K Following Associate Prof. Palliative & End-of-Life Care. Communication, ACP, bereavement, community. Founding Director @GoodGriefFest. she/her
TEDx @TEDx
553K Followers 2K Following Official feed for TEDx: Independently organized TED-like events around the world.
Sarah Wells 🌈 @SARAH15261002
385 Followers 324 Following Consultant in Palliative Medicine, Medical Director at Marie Curie Hospice, West Midlands. Business owner S1 and Emis, Marie Curie. All views are my own
Cathy @catypayne
562 Followers 323 Following Dietitian, educator & researcher working for the European Association for Palliative Care (EAPC) as the Research and Project Manager. Views are my own. #EMTReK
EOLinPLACE Project @EOLinPLACE
165 Followers 221 Following Research on choice and diversity in end of life pathways, led by @B_Gomes_ funded by @ERC_Research @UnivdeCoimbra #ERCStG #palliative
Energy Hardship in Pa.. @EHPCHproject
34 Followers 28 Following EHPCH is a new research project that seeks to examine energy hardship for people with a life limiting cancer diagnosis receiving palliative care at home.
PeolcPSP @PeolcPSP
943 Followers 614 Following Palliative & end of life care Priority Setting Partnership. Bringing people affected by dying, death and bereavement together to identify research priorities.
Catherine Gavin @missbikerni
937 Followers 1K Following Registered Nurse. Lecturer in Nursing. PhD Researcher.
Sonia McKenna @soniaskehugan
85 Followers 243 Following
Libby Sallnow @libby_sallnow
3K Followers 483 Following Associate Professor at Marie Curie Palliative Care Research Department, UCL. Lead author of The Lancet Commission on the Value of Death. All views my own.
Robin Kanarek @Rbennk
6K Followers 6K Following President, Kanarek Family Foundation, RN, Palliative Care Advocate - Foundation website: https://t.co/oUhKzPZeq5
Thomas Mulvey @ThomasMulvey90
631 Followers 1K Following Policy and Public Affairs Manager @MarieCurieSco | 🍀| Views my own - not those of my employer
James A Wong @Botanygeek
178K Followers 4K Following Botanist | Science writer and broadcaster | Lives with 500 houseplants | ‘Weird plant dude’, apparently
Matt Williams @MattWilliamsMJW
4K Followers 4K Following Associate Director, Information & Support @MarieCurieUK. Past Chair @NeathRoundTable. All views my own
Jessica Bush @JessicaMBush
149 Followers 129 Following Public Involvement and Engagement Manager at Marie Curie. All views my own.
Cathryn Pinto 💙 @CathrynPinto
951 Followers 1K Following Researcher in emotional wellbeing for people with neurological diseases Mental health | Digital health| Health Psychology trainee | Views are my own.
clare finnegan 🇪�.. @pandaclare
876 Followers 2K Following mum, wife, palliative care physician, proud of the NHS, end of life care, medical education, views are my own, she/her
Dr Helen Findlay @helenfindlay
6K Followers 6K Following PhD service user involvement in palliative care (Brunel U) MSc Politics (Strathclyde U) 'Fighting for Life' play re mum (dementia), dad (MND) & older life
Dignity in Dying @dignityindying
57K Followers 9K Following We believe in choice at the end of life. Including the option of #AssistedDying for terminally ill, mentally competent adults. #YesToDignity
Kerrie McLarnon HSCNI.. @mclarnon_kerrie
616 Followers 640 Following PhD Fellow @QUBSONM. LLM Medical Law. Practice Tutor @OpenUniversity. ORECNI. #OlderPeople #SharedDecisionMaking #Co-Design #HospitalDischarge. Views my own
Advance HE @AdvanceHE
24K Followers 676 Following We are a charity dedicated to helping higher education institutions worldwide to be the best they can be for students, staff and society.
Sally-Anne Francis @sally_anne_fran
646 Followers 1K Following Postdoctoral Research Fellow @MCPCRD @UCL. Learning about palliative care. Health services researcher. Pharmacist. All views are my own.
Ryan Hoey @RyanPHoey
570 Followers 956 Following Communications Officer | QUB Politics Graduate | QUB Literific Trustee | NI Emerging Leaders Program 2023-24 | Policy wonk | All views my own
tracy barrett 💛 �.. @tracydbarrett1
367 Followers 331 Following Arsenal season ticket holder, pug owner and Head of PR, Media & Campaigns @mariecurieuk, views definitely my own (she/her)
Rachel @CampbellRachP
265 Followers 723 Following Palliative Med Consultant. Aspiring to world’s largest library 📚 Views expressed my own.
Yvonne Millerick @YvonneMillerick
18 Followers 1 Following
The Guardian Long Rea.. @gdnlongread
107K Followers 258 Following In-depth reporting, essays and profiles
Anne Harper @_f_i_l_i
1K Followers 4K Following Mum | Musician | Storyteller | Facilitator | Stone Botherer | Omnivert | Chicken Rehab | Uibh Aodh | Bean Ultach |
Delighted that our work on the diagnosis and management of cancer in prisons was reported in the Guardian today @EDavies72 @rachmareehunter @jenniehuynhh theguardian.com/society/2024/a…
Are you a healthcare support worker looking to develop your professional skills? Grants of up to £500 are available to encourage and support healthcare support workers in furthering their career. Then the RCN Foundation Kershaw Grant is for you, apply here bit.ly/3J2xslr
This video hit me hard... Legendary basketball coach John Wooden shares his personal definition of success: "Success is peace of mind attained only through self-satisfaction in knowing you made the effort to do the best of which you're capable." The most important part is how…
"The report outlines clear economic reasoning to bring this legislation forward but this is first and foremost about doing the right thing for carers." Thanks to @SorchaEastwood for backing the proposals @CarersNI published for paid carer's leave in NI. allianceparty.org/paid_carer_s_l…
In 2001 Dame Cicely Saunders wrote in @PalliativeMedJ 'Care must reach the most hidden places'. Is it?
New paper from @Dying_Margins on dying at home when living with financial deprivation: - high costs of dying at home - materially poor social housing - insufficient support for dying at home Important insights highlighting unacceptable end of life experiences
This month, we are taking part in the #Run60MilesinMay to raise money for @mariecurieuk Between us, we will be aiming to reach almost 1,000 miles; similar to walking from London to Italy! Link to donate, if you can: justgiving.com/page/mcpcrd
Our next @MainEvent24 webinar is on Family centred approaches to supporting wellbeing in advanced illness. With @LizForbat and Louise Allen, chaired by @LissetteAvilesR 14.05.24 at 12pm. Register here for free: events.teams.microsoft.com/event/0f2e9154… Pls RT!
@NursEduPal invite you to take part in a study to describe nurses' perceptions of self-efficacy and leadership competence in palliative care. The short survey can be completed in 10 different languages. link.webropolsurveys.com/S/5F2ED69BFA97…
This is excellent work! Equal parts inspiring and emotional to read. I hope it can make a real impact to the sector. "The sense of uncertainty and vulnerability that this position can bring might even stop us from seeking medical help at all."
Do you work at individual, organisational or leadership level, provide care or commission services? Do you want to provide safer, more equitable #PalliativeCare? Take a look at our new co-produced resource ‘It’s more than rainbows in receptions’ 🌈 rb.gy/khfhgt
I’m a leftist teacher. If I were actually capable of indoctrinating your kids, they’d wear deodorant, stay off their phones in class, and stop answering every question with “bruh” #Indoctrination
🙌🏽 Delighted and proud to join the Editorial Advisory Board @PalliativeMedJ @UlsterINHR @UlsterUniSoNP @semple_cherith @NealFCook @DebbieGoode5 @SMcilfatrick
We've been busy refreshing our Editorial Advisory Board following our open, competitive, call. We are delighted to have an increasingly international team of editors and editorial advisory board to guide us. buff.ly/3vPHTWq #hpm #hapc #research
Humbling experience visiting Marie Curie hospice in Belfast today to hear of their work and the need for an end of life strategy embedded in the programme for government. @SDLPlive @MarieCurieNI
We are delighted that Elizabeth King will join us at the NAHH Annual Conference in June #NAHHConf24. She will be speaking about the Value of Touch at End of Life. Check out the session description below and visit our website for further details nahh.org.uk/about/nahh-eve…
#Funding is available to improve the understanding, design and practice of #PublicInvolvement in non-clinical health and biomedical research. ukri.org/opportunity/un…
Launched today! Pleased to share this new (free) resource written with @DrJulie_H to help those working with PPI partners be more trauma informed. Pls RT, share and discuss! @https://www.imperial.ac.uk/clinical-trials-unit/ppi/trauma-informed-guidance/ @agordonICU @drdhruvparekh
@JohnJDowney Congratulations @JohnJDowney! Excellent paper. I especially appreciated the 'researcher standpoint' section.
.@hospiceuk is facilitating a focus group @FoyleHospice on Thursday 11th April, 9.30–10.30am Booking Required 📩 [email protected]
Confidence doesn't always come from believing in yourself today. It often stems from recalling the obstacles you overcame yesterday. A history of resilience can silence self-doubt. Challenges conquered are clues to hidden strengths. Past progress is proof of future potential.
Recommended paper - 'What works' about volunteer companionship at the end of life? My take home message: "Companions do not deliver standardised care and most benefits are achieved by “being with” rather than “doing for” people." tandfonline.com/doi/full/10.10… @JohnJDowney
I haven’t talked much on the Barkley Marathons as I’m still trying to process it all. I may do a blog in the coming weeks but I do believe the years of commitment all led to this moment and I’m really not sure if it can be beaten because (for me) it’s the absolute pinnacle of the…
Trends for United States
You might like
