Dying in the Margins @Dying_Margins
ESRC-funded project about experiences of poverty, socio-economic deprivation & dying at home. Team: @DrNaomiRichards @SamQuinn91 @MerrynGott @DrEmmaCarduff gla.ac.uk/research/az/en… Dumfries & Galloway Joined June 2020-
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2/ This is Donna👉bit.ly/3SYL45O Unmet palliative care need leads to poorer physical and mental health, and financial outcomes when people should be focusing on the time they have left, not fighting against the system for support they need. Photo: Margaret Mitchell
Thanks for having me this morning @howell_annabel @Palliative_Scot lots of food for thought and great questions- grounded in how this could support terminally people at the sharpest end of society @Dying_Margins
Thanks for having me this morning @howell_annabel @Palliative_Scot lots of food for thought and great questions- grounded in how this could support terminally people at the sharpest end of society @Dying_Margins
Interesting Guardian picture essay where the photographer gave cameras to people as we did in @Dying_Margins - “At a food bank, I met people who jumped at the opportunity to pick up a camera and be creative.” theguardian.com/artanddesign/2…
“Unfortunately, although travelling to hospital is likely to be among the biggest costs of cancer, there are no benefits geared towards paying for it.” theguardian.com/money/2024/feb…
Joost's experience of grief is one of the stories shared for the #CostofDying exhibition - led by @UofGDumfries @MarieCurieSCO and funded by @ESRC. A reminder on #NGAW2023 that both life and death are unequal - and we should be talking about it.
Joost's experience of grief is one of the stories shared for the #CostofDying exhibition - led by @UofGDumfries @MarieCurieSCO and funded by @ESRC. A reminder on #NGAW2023 that both life and death are unequal - and we should be talking about it.
📢Don't miss out! This week's #SocSciHub bulletin is out! Featuring: @j_p_albuquerque's project which won top prize at the @ESRC Celebrating Impact Awards and the @Dying_Margins #CostofDying exhibition displayed at the @ScotParl! Read this and more: tinyurl.com/ya3af9nf.
@guardian reporting here matches findings from our @ESRC funded @Dying_Margins study about lack of responsiveness in the housing sector for tenants at end of life @EndofLifeStudy @MarieCurieSCO @UofGSocSci theguardian.com/uk-news/2023/n…
Terminally ill Dimitrios Triantafyllidis, 73, faces his last days in a mouldy flat. Despite a 3-month prognosis, efforts to relocate him have failed. Struggles include inadequate heating, costly travel for treatment, and unsuccessful housing offers. bit.ly/40YxaEs
It's great to see a cross-party debate at @ScotParl on the @Dying_Margins #CostofDying exhibition. Thanks all for your comments - and for taking the time to visit this important display on poverty at the end of life. Watch @PFOKane @Sandeshgulhane @jenni_minto below @UofGGovRel
Grateful to speak with the loved ones of participants in the @Dying_Margins project from @UofGlasgow & @mariecurieuk in @ScotParl this morning. Was pleased @JoeFitzSNP & @BobDorisSNP could join us. The meeting was ahead of the debate on the report later today led by @PFOKane.
#CostofDying exhibition from @Dying_Margins is displayed to MSPs @ScotParl this week. Read Joost ten Wolde's blog about his wife Stacey O’Brien’s end-of-life experience: bit.ly/3SK9HEP @heraldscotland article about study: bit.ly/40IevfH © Margaret Mitchell.
Powerful session about poverty at end of life, and the reluctance of many to talk about it. Very powerful case studies given by @HOTVFundraising, detailing the amazing work they do in Blaenau Gwent. #HUKConf23 @Dying_Margins
The ‘P’ Word. Difficulties Talking about Poverty at the End of Life - New blog by @SamQuinn91 launching our free online resource for H&SC professionals to support open conversations about financial hardship at the end of life. Read here➡️ bit.ly/3EtcD0p
Visited The Mitchell Library this morning to take in @Dying_Margins #costofdying exhibition. @margmitch's photos captured the ordinary moments of these extraordinary people so well. I felt privileged to be able to get a snap shot of their lives. #deathandying #endoflifecare
Kate Woodthorpe @KateWoodyBath
2K Followers 2K Following Sociologist | Director @cendeathsociety | Knowledge Exhange Director @uniofbathDonna Wakefield @DonnaWakefield_
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3K Followers 2K Following Prof of Medical Anthropology: end of life care & death studies. Ed @Mortality_TandF @deathinageofco1 @formsofcare @openthanatology she/heremma carduff @DrEmmaCarduff
1K Followers 595 Following Head of Research/Innovation Marie Curie-supports evidence-informed policy to improve end of life care. Loves Leith, Gaelic, Port Isaac, art, dogs. Views my ownMarie Curie EOLC @MarieCurieEOLC
7K Followers 4K Following News from @mariecurieuk for health professionals and those caring for people with terminal illness. Together we’ll ensure a better end of life for all.Laura Green @heblau
5K Followers 4K Following Senior Lecturer & Programme Director Nursing at @FBMH_UoM #PalliativeCare #TBL Impermanent & imperfect humanMark Hazelwood @Palliative_Scot
4K Followers 1K Following CEO of Scottish Partnership for Palliative Care (SPPC). Mostly about palliative care (but not SPPC official). RT ≠ endorsementNo Barriers Here©️ @NoBarriersHere
2K Followers 3K Following A multiple award winning, equity-oriented, arts-based approach to advance care planning. Working in co-production to tackle inequity. Research. Education.Jamilla Hussain @JamillaHussain1
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791 Followers 1K Following She/her. Chats about research, caring, grief. Talks in GIFs. Research manager for evidence synthesis and engagement @mariecurieUK. Opinions are my own😀Dr Renske Visser @Renske_Visser
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209 Followers 359 Following Sample size of one, not statistically significant, nor representative. All opinions my own.Sarah Coan @afrontlinenurse
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763 Followers 2K Following Palliative care researcher @UniversityLeedsRussell Jones @JonesDRussell
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515 Followers 393 Following Official Account for the Palliative Care Program @UCLAHealth. Support our work here: https://t.co/jhv2Zi1tAF…SANDRA JOHNSTON @sandra04850184
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22 Followers 244 FollowingJorgeRamos_Gro @jorgeramos_gro
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183 Followers 700 Following she/her 🦉 PhD candidate @UofGInfoStudies • practice-based research on curating contemporary art in historic houses • writer, rambler, honorary bookwormThe Death Reader @themrityu
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341 Followers 831 Following Developing evidence-informed programmes at Hospice UK. Also running, and looking at my cats. Views all mineSam Hooker @samantha_may9
285 Followers 489 Following ESRC funded MRes/PhD candidate @UniofBath @cendeathsociety | All views my ownSarah H. Cross, PhD, .. @Sarah_H_Cross
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950 Followers 434 Following Social scientist and researcher in palliative & end of life careMadeleine Bev @madeleine_bev
239 Followers 398 Following Interdisciplinary Research Development at UGlasgow. Assorted funding opps, textiles, dog in garden. Usual caveats: Views own, heat death of universe inevitableCommunity Development.. @cdascotland
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443 Followers 437 Following Independent bereavement researcher and consultant. Every day in Scotland 600 more people face the grief which follows the death of someone close. Views my own.Veronica Currie @veebeegeecee
62 Followers 183 Followingdebbie horsfall @DebbHorsfall
193 Followers 150 Following Prof in sociology, social justice researcher working to include the voices of people often silenced and marginalised. #caring #EOL #research #deathliteracy;Lucas Chih-Peng Kao @cplkao
537 Followers 790 Following Taiwanese Filmmaker & Artist based in Edinburgh. Contact me on Instagram @cplkaoCraig Gurney @CraigTweeted
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3K Followers 2K Following Policy updates, news and campaigns from the UK’s leading end of life charity. Together we’ll ensure a better end of life for all.Angela Gregory (she/h.. @angelagregory28
600 Followers 2K Following Artist, singer, OT & PhD student researching meaning in activities & interactions with people living with advanced dementia @AlzScotCPP Views are my own.Alison Bravington @AlBravington
274 Followers 813 Following Research Fellow, Wolfson Centre for Palliative Care Research @HullYorkMed. Critical realist approaches, qual and mixed methods, implementation science.2/ This is Donna👉bit.ly/3SYL45O Unmet palliative care need leads to poorer physical and mental health, and financial outcomes when people should be focusing on the time they have left, not fighting against the system for support they need. Photo: Margaret Mitchell
1/📢In Scotland a large proportion of people die without some or all of the palliative support they need, despite the fact 90% would benefit from it. That's why we're launching a campaign for a right to palliative care for everyone living with terminal illness in Scotland 🧵👇
@wagstaff_ellie @ScotGovFM @Ivan_McKee @Dying_Margins @ScotParl Amazing work Ellie 👏👏👏👏👏
Delighted to highlight the @Dying_Margins research project by @UofGlasgow @MarieCurieSCO Built around the stories of people’s end of life experiences, this project makes the simple case that everyone should have the chance to die with dignity and without the worries of poverty
Grateful to speak with the loved ones of participants in the @Dying_Margins project from @UofGlasgow & @mariecurieuk in @ScotParl this morning. Was pleased @JoeFitzSNP & @BobDorisSNP could join us. The meeting was ahead of the debate on the report later today led by @PFOKane.
Thanks to MSPs @PFOKane and @EvelynTweedSNP who have supported UofG colleagues @EndofLifeStudy @DrNaomiRichards and @MarieCurieSCO @ESRC to showcase the @Dying_Margins exhibition in the Scottish Parliament this week. Read more: gla.ac/40BL6Eb
The #CostofDying exhibition from @Dying_Margins is on display to MSPs @ScotParl this week. Thank you @EvelynTweedMSP and @PFOKane for your support. Great to see this important work continuing to make an impact on policy and thinking. More info: gla.ac/40BL6Eb
The #CostofDying exhibition from @Dying_Margins is on display to MSPs @ScotParl this week. Thank you @EvelynTweedMSP and @PFOKane for your support. Great to see this important work continuing to make an impact on policy and thinking. More info: gla.ac/40BL6Eb
Powerful session about poverty at end of life, and the reluctance of many to talk about it. Very powerful case studies given by @HOTVFundraising, detailing the amazing work they do in Blaenau Gwent. #HUKConf23 @Dying_Margins
Visited The Mitchell Library this morning to take in @Dying_Margins #costofdying exhibition. @margmitch's photos captured the ordinary moments of these extraordinary people so well. I felt privileged to be able to get a snap shot of their lives. #deathandying #endoflifecare
Thanks to @MarieCurieSCO for inviting me to the Cost of Dying exhibition detailing the research of @Dying_Margins. It’s a very moving display that you can view at the Mitchell Library in Glasgow detailing the lived experience of poverty and serious advanced illness
The #CostOfDying exhibition shares stories of people facing financial hardship at the end of life in Scotland - based on research by UofG's @EndofLifeStudy @Dying_Margins with @MarieCurieSCO & funded by @UKRI_News. On display at the Mitchell Library ➡️ bit.ly/3pxkiGU
@DrNaomiRichards did a fantastic job highlighting key findings from @Dying_Margins - her determination and commitment to lead this highly challenging project through a pandemic was truly inspirational 👏👏#EAPC2023
We found out we got our @Dying_Margins project funded at #EAPC2019 - it’s so exciting to be presenting findings here at #EAPC2023
The “Cost of Dying” exhibition exposes the impact of poverty at end of life for people experiencing financial hardship. Join us 19/06/23 1-3pm for a panel discussion with experts on issues relating to housing, local government & advocacy at end of life. Sign up >
@Dying_Margins photographer @margmitch has a new photography exhibition about the lives of people affected by homelessness theguardian.com/artanddesign/g…
Please join me today 2pm at @StreetLevel_ for the opening of my show ‘An Ordinary Eden’. This work considers homelessness. It considers the need to belong. It considers how we treat our fellow humans. #AnOrdinaryEden
Extremely well deserved nomination for @Dying_Margins 🤞 You can see the #CostofDying exhibition in the @UofGARC until 5 May.
Dying in the Margins is shortlisted for the Demystifying Death Award for Creative Innovation. Congratulations @Dying_Margins! Read more about their work to #DemystifyDeath and inequality here: goodlifedeathgrief.org.uk/content/creati…
Our Board Member, John Birrell paid a visit to the Dying in the Margins exhibition, currently at @UofGlasgow He shares his thoughts on this powerful exhibition in this blog. @Dying_Margins #poverty #funerals #death #dying funerals.scot/2023/05/03/blo…
Dying in the Margins is shortlisted for the Demystifying Death Award for Creative Innovation. Congratulations @Dying_Margins! Read more about their work to #DemystifyDeath and inequality here: goodlifedeathgrief.org.uk/content/creati…
Thanks @jenni_minto for coming to @Dying_Margins exhibition to discuss barriers to& experiences of dying at home for people affected by terminal illness living with deprivation& financial hardship. We need collective action to ensure equity-informed palliative support @UofGlasgow