You work hard to champion a cause in health/policy. Reach YOUR advocacy goals quicker & stop shouting into the void. I’ll share our ethical & PROVEN methods.mailchi.mp/impact2heal/si… Elite Network|Strategy|CreatorJoined June 2018
@purplemamabear Exactly what this is trying to capture. There’s been so much focus on how patients react, feel, say, behave. But there’s very little been on the systems that create anxiety, stress, fear, anger, etc. this survey aims to capture & demonstrate those elements to be considered also.
Participate in a Stanford University survey study to understand the stress of navigating the healthcare system among individuals with chronic pain.
Start by completing the brief eligibility survey:
redcap.stanford.edu/surveys/?s=F3X…
(US participants only)
@Impact2HEAL I remember asking: “When does it matter how much the healthcare system puts stress on us, or creates anxiety, fear, or trauma?”
Out of patient experiences, such as that, the idea for this tool was born. 2/2
So many in our community - myself included - have been mistreated, judged, verbally abused and denied proper care that it affects us in myriad ways. It's horrible. It affects some people more than others - esp the ones who don't want to 'rock the boat'
So sad for this person
So many in our community - myself included - have been mistreated, judged, verbally abused and denied proper care that it affects us in myriad ways. It's horrible. It affects some people more than others - esp the ones who don't want to 'rock the boat'
So sad for this person
@Impact2HEAL Stress and anxiety about using medical services is so prevalent for people with pain. It can lead to so many people delaying accessing necessary care until their conditions have worsened so much. Hoping this tool will help us communicate with our clinicians better. 🙏🏻
I have another horror story about this, I wish it was the only one of its kind…
A pain patient and vet lives across from me and even though it has been obvious to everyone - him, his friends, and family - that he was deteriorating cognitively and physically, he was unwilling to…
I have another horror story about this, I wish it was the only one of its kind…
A pain patient and vet lives across from me and even though it has been obvious to everyone - him, his friends, and family - that he was deteriorating cognitively and physically, he was unwilling to…
“It’s one thing if a rushed server forgets the fries with your burger. It’s another entirely if the pressure to act fast leads to wrongful denials of payment for vital care.”
Report shows Cigna allotted 4 min for prior auth, 2-5 min for most drug requests propublica.org/article/cigna-…
Words feel inadequate, but I join many who are praying for those who suffered tragic loss of life and community devastation in Sulphur, Ardmore, Holdenville and others affected by the storms, tornadoes and flooding overnight.
Words feel inadequate, but I join many who are praying for those who suffered tragic loss of life and community devastation in Sulphur, Ardmore, Holdenville and others affected by the storms, tornadoes and flooding overnight.
10K Followers 4K FollowingWife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPP
8K Followers 1K FollowingA Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPP
5K Followers 4K FollowingAdvocate 4 Drs - #ChronicPain - #SUD - #EndTheDrugWar - Repeal the 70s Substance Abuse Act
Lo💘e's the only 🏠 big enough for all the pain in this 🌎
4K Followers 5K Following■STOP•WEALTH•HOARDING: MORE Money, in fewer hands than ANY TIME IN HISTORY is à threat to all! Rich $idiots$ need food, h2O, Oxygen, TOO. https://t.co/Ta0925IdHc
6K Followers 3K FollowingArtist, Harper, and EDS patient w/a focus on pain, personal autonomy, drug legalization, COIs, and exposing #DEACenteredCare. Researcher. *non omnis moriar*
7K Followers 3K FollowingAdvocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.
3K Followers 4K FollowingGive me Liberty or Give me Death. Patrick Henry...1775. Wowren polymath multi-Cultural. (Intractable Pain Patient) Convert to Catholicism in 2020.🙏
28K Followers 27K FollowingChronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
3K Followers 4K FollowingBilateral Total Joint Replacement of Tmj, Trigeminal Neuralgia, Crps Type 2 of Face, Severe Chronic Intractable Pain Sufferer Fighting Through The Opioid Crisis
3K Followers 2K FollowingStaunch Independent. Once informed of the benefits & risks allow the chronically ill to choose the treatment that works best for them. #NHPolitics
33K Followers 3K FollowingContributing Opinion Writer, New York Times. OUT NOW IN PAPERBACK: Undoing Drugs. Award winning neuroscience journalist. Quit cocaine & heroin in 1988.
1K Followers 652 Followingdisabled cis man. (intersex) chronic intractable pain pt on long term opioid therapy to live a QOL & function. 29. Pro Pain Medication
2K Followers 2K FollowingBassist, Vocalist, Chess Instructor, Activist
founder of Earthdriver, Leader of Narco-Bourgeoise 💎, host of The Bassline a medical freedom dedicated radio show
3K Followers 3K FollowingDocumenting wild weather🌪️⛈️| OU Meteorologists & an MPA, passionate about severe weather education 🎓 | https://t.co/EnomelxtIL
1K Followers 6K FollowingIt’s the truth that will set you free, not what you wish the truth to be. Sorta conflicted about the pardon for my cousin Lil Wayne.
4K Followers 895 FollowingMom was an Angel/Dad was a BattleBot.modified in 04, genetically given NF2 to control mutant abilities and relate to humans I have no enemies,safe to follow
882 Followers 551 FollowingSpine surgeon, dual boarded in addiction medicine and orthopedics. passionate about health policy. AAOS Council on Advocacy Chair
936 Followers 3K FollowingAdministrative Assistant at Airbus
Airliners Live Executive
Whatsapp: +49 177 7095556
Opinions are my own
#HashtagNinjaNatascha
6K Followers 6K FollowingArtist, stone carver. Art, stone, lego, politics
https://t.co/BPz4oEMgx6 venmo: @JamieSBowen
Liberal af, 🏳️🌈🏳️⚧️ she/they/he NB #KHive #DropOutDean
14K Followers 13K FollowingOrvillian/Trekkie, Rebel Scum, Mom of 6 including twins, Momo to 7 grands, M. Ed, former social worker, lifelong Democrat, Bigots suck, Be kind. She/Her 🖖
442 Followers 2K FollowingWent to St. Als Boise and they gave me a brain injury. No accountability for their actions. See my video. https://t.co/Mpm2XjkIUb
4K Followers 6K FollowingTrying like hell to be relevant. Dad to the 2 best kids + George, Elaine, Mabel, and Tucker. He/Him #yeg Find me @allantaylor everywhere - Free Palestine 🇵🇸
160 Followers 516 FollowingDiscover the most effective strategies and tools for your online business with “obidea” comprehensive reviews and recommendations.
348 Followers 918 Followinghedonist fucking witch & non-binary bitch 😘 abolition, @hipsdc harm redux outreach, @decrimpovertydc organizing. I use drugs & so does someone you love 🖤🌹🖤
76 Followers 634 FollowingPeople cannot change reality, but they can change their attitude towards reality. If you feel like you are nothing, then think of yourself as unique and ubiquit
10K Followers 4K FollowingWife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPP
8K Followers 1K FollowingA Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPP
5K Followers 4K FollowingAdvocate 4 Drs - #ChronicPain - #SUD - #EndTheDrugWar - Repeal the 70s Substance Abuse Act
Lo💘e's the only 🏠 big enough for all the pain in this 🌎
4K Followers 5K Following■STOP•WEALTH•HOARDING: MORE Money, in fewer hands than ANY TIME IN HISTORY is à threat to all! Rich $idiots$ need food, h2O, Oxygen, TOO. https://t.co/Ta0925IdHc
6K Followers 3K FollowingArtist, Harper, and EDS patient w/a focus on pain, personal autonomy, drug legalization, COIs, and exposing #DEACenteredCare. Researcher. *non omnis moriar*
7K Followers 3K FollowingAdvocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.
3K Followers 4K FollowingGive me Liberty or Give me Death. Patrick Henry...1775. Wowren polymath multi-Cultural. (Intractable Pain Patient) Convert to Catholicism in 2020.🙏
102K Followers 3K FollowingHuman Doctor • Toxicology • Addiction • Emergency • #WTFentanyl & more often just WTF • drugs are misunderstood but people are misunderstood more • he/him
28K Followers 27K FollowingChronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
3K Followers 4K FollowingBilateral Total Joint Replacement of Tmj, Trigeminal Neuralgia, Crps Type 2 of Face, Severe Chronic Intractable Pain Sufferer Fighting Through The Opioid Crisis
3K Followers 2K FollowingStaunch Independent. Once informed of the benefits & risks allow the chronically ill to choose the treatment that works best for them. #NHPolitics
33K Followers 3K FollowingContributing Opinion Writer, New York Times. OUT NOW IN PAPERBACK: Undoing Drugs. Award winning neuroscience journalist. Quit cocaine & heroin in 1988.
3K Followers 3K FollowingDocumenting wild weather🌪️⛈️| OU Meteorologists & an MPA, passionate about severe weather education 🎓 | https://t.co/EnomelxtIL
486 Followers 221 FollowingWriting about growing up not fitting in with girls, allowed to grow and mature and by God’s Grace became a grateful wife and Mom of 6. It’s ok to be different.
880 Followers 307 FollowingMomma to 6 sweet angels and 2 beautiful rainbow boys! 08/06/20 and 08/01/22 Documenting motherhood and life with infertility and loss
882 Followers 551 FollowingSpine surgeon, dual boarded in addiction medicine and orthopedics. passionate about health policy. AAOS Council on Advocacy Chair
323 Followers 412 Followingcommunity organizer, advocacy facilitator - available for training and consult.
talks about drugs a lot.
https://t.co/y4XkUL9FYq
6K Followers 6K FollowingArtist, stone carver. Art, stone, lego, politics
https://t.co/BPz4oEMgx6 venmo: @JamieSBowen
Liberal af, 🏳️🌈🏳️⚧️ she/they/he NB #KHive #DropOutDean
8K Followers 2K FollowingFree-Market PhD Economist | Let People Prosper Show Host | Ginn Economic Consulting Prez | Think Tank Work | Fmr White House OMB Chief Economist | Joyful Texan
3K Followers 4K FollowingGranny with a cause , clinging to my gun and religion ! Father lifetime Deputy sheriff 3 cousins deputies 1 FBI one fine World Cup shooting son !
14K Followers 13K FollowingOrvillian/Trekkie, Rebel Scum, Mom of 6 including twins, Momo to 7 grands, M. Ed, former social worker, lifelong Democrat, Bigots suck, Be kind. She/Her 🖖
980 Followers 3K FollowingDisciple of Sufi SAM Lewis.Trained as a Sufi teacher. Survivor of childhood abuse. Chronic pain warrior. Kratom user. NO One True Way. Vote Blue. She/her.
4K Followers 6K FollowingTrying like hell to be relevant. Dad to the 2 best kids + George, Elaine, Mabel, and Tucker. He/Him #yeg Find me @allantaylor everywhere - Free Palestine 🇵🇸
16K Followers 18K Following☮Grandma of 7 great kids
love learning and love life #Resists#HanianEmpire🔄#FactsMatter ❌#TraitorTrump#UnionStrong#ACLU#SaveOurPlanet#LoveNotWar#BLM#Metoo
404 Followers 2K FollowingJust an Oklahoma girl finally home. My bi-regional family (OK to DC & back) includes my hubby, two perfect lil girls & our yellow labs, Grace & Maggie.
348 Followers 918 Followinghedonist fucking witch & non-binary bitch 😘 abolition, @hipsdc harm redux outreach, @decrimpovertydc organizing. I use drugs & so does someone you love 🖤🌹🖤
3K Followers 1K FollowingFamily & Children’s Services is a nonprofit, Certified Community Behavioral Health Clinic serving adults, children, and families in metro Tulsa.
7K Followers 7K FollowingWinding MD path: worked 10 years & DIY postbac for 4. 6 years to MHS&MD. EM PGY-0. Gay agenda: #unions #singlePayer #harmReduction (he/any) 🏳️🌈 #firstGen
2K Followers 1K FollowingGenesis 1:26. MD student. Future Orthopod. Interests in Health Policy and Global Heath. Formerly, @GeorgiaStateU @NIMHgov @UNCpublichealth. Views are my own.
39 Followers 131 FollowingBought 1st biz at 20, believe we should do more to make self-investment attainable. Patient advocate & National MS Ambassador, candidate for OKHD 79.
8K Followers 6K FollowingTrophy dog mum, professional napper, snarky and cute. Triplet sister to Kelly-Ann and Else. Don’t DM me, I am not available 🌻 🌻
1K Followers 2K FollowingDirector, Primary Health Care @PATHtweets. Passionate about #healthequity & rights, PHC/SRH/HIV/TB/viral hep. #LongCOVID. Tweets my own. She/her
1K Followers 3K FollowingSatisfaction is not guaranteed. Proceed at your own risk. Individual results may vary.
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Born at 329 PPM CO2. 13,000+ Ebike miles since 2019.
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