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The CoLab Partnership @Col_Partnership

Working to improve the healthcare of children with medical complexity and their families, and provide support for the professionals looking after them colabpartnership.org.uk Joined October 2019
  • Tweets
    377
  • Followers
    391
  • Following
    114
  • Likes
    61
The CoLab Partnership retweeted
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British Academy of Childhood Disability @BACD_tweets

4 days ago

We’re pleased to share @Newlifecharity’s new report, Fight For Our Future, which paints a bleak picture, revealing that only 2 in 5 families feel their child has all the equipment they need. We're urging our followers to read & share the report: newlife.support/fight-for-futu…

The CoLab Partnership retweeted
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Alex Mancini (Smith)💙 @mancini_smith

2 weeks ago

Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk

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Tim van Hasselt @Tim_van_Hasselt

2 weeks ago

Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk

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The CoLab Partnership @Col_Partnership

3 weeks ago

If you attended our workshop at the RCPCH conference last week we would really appreciate if you could take 2 minutes to provide us with your feedback - good or bad - which will help us plan future sessions! forms.office.com/e/4gbgvzhTbD

The CoLab Partnership retweeted
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British Academy of Childhood Disability @BACD_tweets

a month ago

To give you a few extra days over the Easter weekend, we have extended the deadline for abstract submission to 9am, Weds 3 April Undergrad medical, AHP + nursing students & foundation drs selected to present their poster receive free registration For info bacdis.org.uk/pages/abstracts

The CoLab Partnership retweeted
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mando watson @mandowatson

a month ago

Parent presentation powerfully teaches how to better-manage children with medical complexity. Well done @Col_Partnership #RCPCH24

The CoLab Partnership retweeted
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Dr Bethan Page @BethanPage21

a month ago

"I don't know but let's figure it out together". Top tip from parent Gabriella for clinicians who are looking after children with medical complexity. @Col_Partnership #RCPCH24

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The CoLab Partnership @Col_Partnership

a month ago

Full house for CoLab #rcpch24 workshop on improving care for children with medical complexity

Col_Partnership Profile Picture

The CoLab Partnership @Col_Partnership

a month ago

Join us in Hall 8A from 10.45 for our workshop on improving care for children with medical complexity! There will also be cake! #RCPCH24

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Hannah Nicholson @4littlelovelies

a month ago

Join us in Hall 8A from 10.45 for our workshop on improving care for children with medical complexity! There will also be cake! #RCPCH24

The CoLab Partnership retweeted
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Hannah Nicholson @4littlelovelies

a month ago

Please help us understand how to support breastfeeding infants and toddlers with palliative care needs. Thank you to Dr Laura Thomas for raising such an important subject for so many families. @Tog4ShortLives @Col_Partnership @FeedSleepBond @BACD_tweets @CommChildHealth

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The CoLab Partnership @Col_Partnership

2 months ago

Colab has two online study afternoons coming up - register at: colabpartnership.org.uk/pages/22-events 9 May - Managing sleep difficulties in children with complexity - @DrMikeFarquhar 4 June - Long Term Ventilation - children's long-term ventilation service at the Royal Brompton Hospital

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The CoLab Partnership @Col_Partnership

2 months ago

Attending the @RCPCHtweets conference? Come along to the CoLab workshop on Tues 26 March and hear about what matters to parents, share ideas about local and system change and help us refine the educational work that we are doing to better meet your needs. colabpartnership.org.uk/events/improvi…

The CoLab Partnership retweeted
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British Academy of Childhood Disability @BACD_tweets

2 months ago

Deadline to apply to Round 3 of the BACD-Castang Fellowship Programme is this FRIDAY 1st MARCH! @BACD_Trainees @CommChildHealth @bacch_trainees @tweets_TNC @BPNA_org @BPNATrainees @TheAPCP @RCOT_CYPF @RCSLT @RCSLTResearch @Pen_CRU @RCPCHtweets @rcpch_trainees @Col_Partnership

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British Academy of Childhood Disability @BACD_tweets

5 months ago

Deadline to apply to Round 3 of the BACD-Castang Fellowship Programme is this FRIDAY 1st MARCH! @BACD_Trainees @CommChildHealth @bacch_trainees @tweets_TNC @BPNA_org @BPNATrainees @TheAPCP @RCOT_CYPF @RCSLT @RCSLTResearch @Pen_CRU @RCPCHtweets @rcpch_trainees @Col_Partnership

The CoLab Partnership retweeted
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Mary Salama @whosalama

2 months ago

Super excited to be at the @WellChild annual nurses meeting and meet some amazing people. Looking forward to sharing some thoughts on #HFE #Complexity later this afternoon @Col_Partnership @BCHCMICTEAM

The CoLab Partnership retweeted
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Lorna Fraser @lornafraser10

4 months ago

animations for this study from the fantastic @NiftyFoxCreativ For children/young people vimeo.com/896747231 For parents and professionals vimeo.com/896747139 @BDA_Dietitians @ESPGHANSociety @RCPCHtweets @Col_Partnership @Tog4ShortLives @NIHRresearch

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ADC @ADC_BMJ

4 months ago

animations for this study from the fantastic @NiftyFoxCreativ For children/young people vimeo.com/896747231 For parents and professionals vimeo.com/896747139 @BDA_Dietitians @ESPGHANSociety @RCPCHtweets @Col_Partnership @Tog4ShortLives @NIHRresearch

The CoLab Partnership retweeted
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ADC @ADC_BMJ

4 months ago

Safety, resource use and nutritional content of home-blended diets in children who are gastrostomy fed Home-blended diets associated with: - living in less deprived areas - lower burden of GI symptoms Prospective cohort study YourTube 🇬🇧 @lornafraser10 adc.bmj.com/content/early/…

The CoLab Partnership retweeted
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Dr Bethan Page @BethanPage21

4 months ago

Can anybody help my colleague Rachel find some young people with life-limiting conditions who might like to help with her research? Rachel is conducting research on transitions & how services can better meet young people's needs @Col_Partnership @HelenAndDouglas @WeCYPnurses

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Rachel Chambers @RachelLouCripps

5 months ago

Can anybody help my colleague Rachel find some young people with life-limiting conditions who might like to help with her research? Rachel is conducting research on transitions & how services can better meet young people's needs @Col_Partnership @HelenAndDouglas @WeCYPnurses

The CoLab Partnership retweeted
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Together for Short Lives @Tog4ShortLives

5 months ago

🆕📢 We have found deep disparity in @NHSEngland funding for children who need hospice care. New report, based on FOI requests of all 42 integrated care boards, released today reveals. togetherforshortlives.org.uk/postcode-lotte…

The CoLab Partnership retweeted
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British Academy of Childhood Disability @BACD_tweets

5 months ago

BACD is pleased to announce Round 3 of the BACD-Castang Fellowship Programme which aims to identify, support, and develop childhood neurodisability research leaders. Deadline to apply 1 March 2024 - full guidance and application form available at: bacdis.org.uk/pages/fellowsh… /1

The CoLab Partnership retweeted
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Lorna Fraser @lornafraser10

6 months ago

Home-blended diets- a safe option for children who are gastrostomy-fed unless clinically contraindicated. Equality of access so important ⁦⁦@NIHRresearch⁩ ⁦@KarenHorridge⁩ ⁦@BDA_Dietitians⁩ ⁦@ESPGHANSociety⁩ ⁦@RMBeattie50⁩ onlinelibrary.wiley.com/doi/10.1111/dm…

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