Larsen's Pride @Larsens_Pride
Inspired by the brilliance & bravery of 5 Yr old Larsen & his love for big cats. Improving lives of children with #braintumours. #childhoodcancer Reg No 1197746 tinyurl.com/yhu7fma2 United Kingdom Joined October 2021-
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We’ve created a set of posters to display in your #radiotherapy centre aimed at empowering families to ask questions and supporting the healthcare team to centre the child in their treatment and care! Get in touch for a downloadable set or to order an A3 hard copy!
Really excited to be sharing our work and strategies for working with children and families at a number of conferences this year including BOPA (Oncology Pharmacy) and the Society of Health Play Specialists 🥰💪❤️
Andrea is tireless in her work to improve early diagnosis of cancer for all children and young people. Please, read her update below and sign the petition so that in the future, our children will have a future after cancer ❤️
Andrea is tireless in her work to improve early diagnosis of cancer for all children and young people. Please, read her update below and sign the petition so that in the future, our children will have a future after cancer ❤️
Dedicated to: Charlotte, Larsen, DD, Ruby, Daniel, Izzy, Fred, Laura, Millie, Frank, Charlotte, Laura, Joe, Callum, Eddie, Milly, Jemma, Kylie, Ben & Henry. Each & every one of them was full of vitality & deeply loved. Keep on running #Cancer chng.it/ygsPDx5s9M
Let’s talk about childhood cancer pain! Professionals suggest a mix of medical treatments and DIY methods for your child's pain. But, as parents, you may stumble upon your own tricks. So, what's been advised by experts, and what solutions have you found on your own? Comment 👇
How much contact did you have with the oncology pharmacist during your child’s treatment? Could you chat to our researcher and share your experience? We want to interview parents/carers of children <12 with ANY cancer diagnosis (not just brain tumours) Please get in touch!
Have you received one of our #radiotherapy resource bags? Or given one to a patient? We’d love to hear how you’ve used them!
To date, The Telegraph’s account of what happened to Jess and their explanation and support of #Jesslaw has reached 27million people. Thank you @eleanorsteafel. @VictoriaAtkins now let’s make this a reality. #earlydiagnosis #nevertooyoung
Jesse is completing his Slideathon over the Easter holidays- if you’d like to donate a few pounds here’s the link: justgiving.com/page/lyndon-ro… All of the money raised will go to support children, just like his big brother, with a brain tumour via @Larsens_Pride
Calling all sliders! We need you! Take on 26 slides in a day & raise a few pounds to improve the lives of children with a brain tumour diagnosis. On your own or in a team, the same slide or 26 different ones, sign up below via ‘Start Fundraising’ justgiving.com/campaign/slide… #BTAM
Jesse is completing a slide marathon - Slideathon - in memory of his big brother. If you can spare some small change and words of encouragement this Easter, that would be just wonderful. Link in the post below ⬇️ #braintumourawarenessmonth #btam #childhoodcancer
Jesse is completing a slide marathon - Slideathon - in memory of his big brother. If you can spare some small change and words of encouragement this Easter, that would be just wonderful. Link in the post below ⬇️ #braintumourawarenessmonth #btam #childhoodcancer
It’s the #Easterholidays! Looking for an activity that will keep the children busy? Take on our Slideathon (26 slides in one day) and your sponsorship will go directly to improving the lives of children with a brain tumour diagnosis. justgiving.com/campaign/slide… #SchoolHolidays
Please sign- it takes two minutes and Government need to know a National brain tumour strategy is a no brainier 👇 #ItsANoBrainer
Please sign- it takes two minutes and Government need to know a National brain tumour strategy is a no brainier 👇 #ItsANoBrainer
Sometimes we forget what a different a soft toy can make. But our charity exists to centre the child and their experience in the support we provide during treatment. And in doing that, we recognise that having a soft cuddle on hand can be just the medicine 🥰 #braintumour
@Larsens_Pride I've heard first-hand from a family what a difference this beautiful and thoughtful gesture can make... it's so much more than 'just' a soft toy. Your work and support is really important. Thanks for everything that you do Larsen's Pride x
What an amazing day consulting with over 50 young people from @seftoncouncil about our @lSUPP0RTrights resources and what good health care looks like for young people with @AlderHey Thank you 🙏 😊
Stefan Moore 🎗 @2StefanMoore
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771 Followers 966 Following Larsen❤️Jesse ❤️ Trustee @larsens_pride 🦁 Bereaved mum ✨ #ChildhoodCancer #braintumour🎗T&L Consultant & English teacher 📚 MA Literary Linguistics 📕Alison Caplan🎗 @alisoncaplan
5K Followers 2K Following Childhood cancer & brain tumour research campaigner at Doing it for Daniel Foundation. My son Daniel died of a DMG brain tumour in 2020 aged 17Phil #ForNate 🇸�.. @Gidsentinel
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492 Followers 563 Following Trustee @Larsens_Pride. Also tweets about #bereavement #grief #childhoodcancer #poverty #inclusion. Views 100% mine. Obviously.Pass The Smile For Be.. @PassTheSmileOrg
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304 Followers 325 FollowingLove these! Please do share with all radiotherapy departments. @BCCRadiotherapy @ULH_RadTherapy @danielphutton @lobke_marsden @NuhRadiotherapy @RM_Radiotherapy @SCoRMembers
We’ve created a set of posters to display in your #radiotherapy centre aimed at empowering families to ask questions and supporting the healthcare team to centre the child in their treatment and care! Get in touch for a downloadable set or to order an A3 hard copy!
Parents Can Lead QI Too. Grateful to team @QIClearn @NikkiDQIC @richa_ajitsaria @QualityForum @BobKlaber @DrDominiqueAllw @RHardingCSI @HannahM_Scott20 @abc_parents @AmyCEdmondson Emily Tammam thedaniellalogunfoundation.org/What-We-Do#QI #DanniesLegacy #familywellbeingmatters #quality2024
Thank you to the parents who joined Anna from @childreninhosp and myself to share their views as we continue to improve the accessible version of the ISupport standards and prep sheet!
Flossie, my 13 year old, died one year & one week ago 💔 I still change her sheets every month or so. Just because my child no longer lives in the world, doesn’t mean my love for her has gone too. I have all this mother’s love for her and need somewhere to put it 🐝 💛 #grief
⏰Time is running out, apply for #PROS2024 Scholarships,LMIC countries,until 28th April 2024. Our scholarships pave the way! Don't miss the chance to immerse yourself in a cutting-edge event. Apply now through the form bit.ly/4aCoNlO and let your potential shine!
My heart ❤️ my beautiful 90 y.o. Scottish Mum, a former nurse and midwife, Mum of 6 kids, including twins - taking care of her babies in her LTC Home. This is respectful care of those living with dementia - everyone asks her about her ‘babies’ ❤️ may you all have such love today
So good to hear health play specialist work in PBT featuring in our multi-professional conference. This profession is a critical component of good cancer care. I have so much respect for their work. @PenHartSpencer #CCLG2024
Life moves pretty fast. If you don't stop and look around once in a while, you could miss it. ✅ dominos ✅ allowed to eat on the sofa ✅ Bueller … Bueller Son2 assures me this is what Fred would have wanted and I’m inclined to agree.
✨️So excited to be attending & presenting at the CCLG 2024 conference tomorrow representing @TheChristieNHS & the Health Play Specialist profession @nahpsofficial ... 650+ delegates! Eek!!
We're excited to welcome members & delegates to our biggest-ever Annual Conference next week at @Stadium_MK in Milton Keynes. Packed with news & discoveries in children’s & young people’s cancer. Check out our most ambitious programme yet! 🌟See you there! bit.ly/3W4c6f4
Today we’re @TwycrossZoo In the rain. Happy Birthday small bean. justgiving.com/page/buy-fred-…
It’s difficult to know what to do to mark Fred’s 18th birthday, so we’re off to the zoo. Fred loved animals, the wilder the better, and we were regular visitors to all our local ones.
Dedicated to: Charlotte, Larsen, DD, Ruby, Daniel, Izzy, Fred, Laura, Millie, Frank, Charlotte, Laura, Joe, Callum, Eddie, Milly, Jemma, Kylie, Ben & Henry. Each & every one of them was full of vitality & deeply loved. Keep on running #Cancer chng.it/ygsPDx5s9M
Seeing all these names of our children lost to #cancer is 💔… to my old school friend, Caroline running 4 children w cancer today, to #bereaved families running, @shitscaredmum & all those like @4myJessBrady forging the way to create change for so many, TY & #keeprunning ❤️💛
Dedicated to: Charlotte, Larsen, DD, Ruby, Daniel, Izzy, Fred, Laura, Millie, Frank, Charlotte, Laura, Joe, Callum, Eddie, Milly, Jemma, Kylie, Ben & Henry. Each & every one of them was full of vitality & deeply loved. Keep on running #Cancer chng.it/ygsPDx5s9M
Let’s talk about childhood cancer pain! Professionals suggest a mix of medical treatments and DIY methods for your child's pain. But, as parents, you may stumble upon your own tricks. So, what's been advised by experts, and what solutions have you found on your own? Comment 👇
Best of luck to Gail and Liz who are running the #londonmarathon2024 for Pass The Smile. Enjoy the day and the experience - and thank you 🖤❤️🖤❤️ To sponsor Gail: justgiving.com/page/gail-emme… To sponsor Liz: justgiving.com/campaign/pass-… #childhoodcancer
We often talk about finding kinder treatments for childhood cancer. What do we mean by that? How about treatments that don’t come with ‘common’ side effects of heart attacks & acute leukaemia? Etoposide is commonly prescribed for children with cancer. #childhoodcancer
What a fantastic day on the @TheChristieNHS 'Oncology Pathways' Digital Clinical Placement ✨️ We shared how we care for children with cancer & use the latest technologies in VR in our practice in Proton Beam Therapy, with around 100 learners💥 @RescapeVR