CYP Research in Palliative Care @CYP_CSI
@CSI_KCL research on the needs of CYP with life-limiting conditions (C-POS); family experiences of newborn screening (ReSPoND); & CYP facing bereavement (SCYP) kcl.ac.uk/cicelysaunders London, England Joined September 2018-
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@lornafraser10 @cpcconf2024 talks about reconizing clinical decline and movement between phases in Wales. #Cpcc2024
Prof @lornafraser10 speaking on the importance of data to ensure access to quality children's palliative care. Accessing emotional and physical supports is so important for parents supporting children with life-limiting conditions. #cpcc2024
Prof Loran Fraser @lornafraser10 @KingsCollegeLon is highlighting the paediatric palliative care services and diagnostic group in the #UK @cpcconf2024 @rare_trial @RareDiseasesIE @RAiNAllIreland @UCD_Research
Development and psychometric evaluation of Children’s Palliative Care Outcome Scale (C-POS)- Prof Lorna Fraser, from @KingsCollegeLon
New C-POS study paper - 'Achieving consensus on priority items for paediatric palliative care outcome measurement.' We found important differences in priority outcomes between children and young people, parents and health professionals. journals.sagepub.com/doi/10.1177/02…. @PalliativeMedJ
Attending the 6th All Island Children's Palliative Care Conference 2024? Don't miss @lornafraser10 presenting on behalf of @DaneyHardar today on the development and psychometric evaluation of the novel C-POS in the oral abstract presentation session at 12:10pm IST #cpcc2024
Attending the 18th National Current Issues in Palliative Care Conference 2024? Join @LucyCoombes7 in the Paediatric Palliative Care break-out session to find out about outcome measurement in paediatric palliative care #pedpc
Following development of the first C-POS for children with life-limiting conditions in sub-Saharan Africa, @julia_downing, @EveNamisango & @RHardingCSI discuss lessons learned & future developments for outcome measurement in paediatric palliative care: doi.org/10.21037/apm.2…
Join us for our next Event... Paediatric Palliative Care Research: Working with families 🗓️30 April 2024 ⏰13:00 - 14:00 Speakers: Dr Lucy Coombes and Dr Julia Hackett Session Chairs: Prof Lorna Fraser and Prof Julia Downing Book your place 👇 pcrs.org.uk/events/paediat…
Following development of the first C-POS for #children with #LifeLimiting conditions in #SubSaharan #Africa, @EveNamisango led a study to determine the face & content validity, acceptability, feasibility & implementability of the new tool. Full paper: doi.org/10.1177/026921…
Over 400 people have now participated in the C-POS questionnaire study! This makes us one of the largest primary data #pedpc studies ever! Thank you to everyone who has taken part and to the 76 UK sites who continue to recruit to the study to reach our target of 600 participants!
Paper of the week!🌟New #qualitative work from @HannahM_Scott20 & @CYP_CSI identifies anticipated benefits, risks, barriers & facilitators to #implementing person-centred outcome measures (#PCOMs) into #PaediatricPalliativeCare #pedpc. Full paper: doi.org/10.1177/026921…
How do #children and #YoungPeople with #LifeLimiting conditions want to participate in self-reporting on their own #health outcomes? @LucyCoombes7 led a qualitative interview study to find out #pedpc. Full article: doi.org/10.1007/s40271…
We would like to speak to parents of child(ren) who have received a negative (normal) newborn screening result in the last 12 months. If you would like more info, see: mumsnet.com/talk/nonmember… or contact: [email protected] or [email protected]
Paper of the week🌟! This @CSI_KCL @CYP_CSI paper led by @CSI_Linguist advances understandings of how children describe and make sense of their own conditions. Using discourse methods enabled us to identify ways to help clinicians to 'do' child centredness journals.sagepub.com/doi/10.1177/02…
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study frontiersin.org/journals/oncol… @SabahBoufkhed @OmarSHAMIEH @RHardingCSI @GhadeerAlarjeh #PalliativeCare
📢 NEW C-POS PAPER: ‘What are the anticipated benefits, risks, barriers & facilitators to implementing #PCOMs into routine care for CYP with life-limiting/life-threatening conditions? Published in @PalliativeMedJ doi.org/10.1177/026921… 1/13 🧵
EAPC VZW @EAPCvzw
10K Followers 1K Following The European Association for Palliative Care (EAPC) aims to promote palliative care and to act as a focus for all those involved in the field.
Lorna Fraser @lornafraser10
2K Followers 2K Following Professor of Palliative Care and Child Health at Kings College London
CSI Palliative Care @CSI_KCL
13K Followers 985 Following The Cicely Saunders Institute (CSI), King's College London, is the 1st purpose built palliative care research institute offering courses & other resources
Lucy Selman @Lucy_Selman
6K Followers 5K Following Associate Prof. Palliative & End-of-Life Care. Communication, ACP, bereavement, community. Founding Director @GoodGriefFest. she/her
ChildhoodBereavement @CBNtweets
7K Followers 2K Following The Childhood Bereavement Network (CBN): the UK hub for people working with bereaved children & their families. Hosted by @ncbtweets See http://t.co/h2nUSKAutK
IAHPC @IAHPC
12K Followers 12K Following The IAHPC is a global membership organization whose vision is a world free from health related suffering.
Catherine Walshe @cewalshe
5K Followers 2K Following Palliative care researcher @IOELC, Editor @palliativemedj. Nurse. 4 (adult) kids, 1 husband, slow runner. @[email protected]
Wendy Ashton @wendsashton67
203 Followers 130 Following Palliative Care Social Worker & Family Support Team Lead, views are my own. Social worker of the year (2018). member of #apcsw1 she/her
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30K Followers 7K Following Official Twitter account for Hospice UK. We are the national charity for hospice and end of life care. Parent charity of @dyingmatters.
Kate Heaps @heapy25
2K Followers 4K Following Hospice CEO, Share Community Chair. SE London PEoLC Clinical Lead,Mum,Nurse, Londoner. Trying to build communities & challenge inequality. All views my own.
Prof Alison Leary �.. @alisonleary1
44K Followers 24K Following Safety thru maths. Professor of healthcare & workforce modelling. Director ICNO @theQNI Consultant @WHO HRH MBE modelling safety in football Ex @MillwallFC
Child Bereavement UK @cbukhelp
21K Followers 4K Following We help children and young people (up to the age of 25) and families, to rebuild their lives when a child grieves or when a child dies.
Michael Tatterton PhD.. @MJTatterton
2K Followers 2K Following Dad | Chief Nurse @BluebellWoodCH | Assoc Prof (Reader) Children's Palliative Care @UoB_nursing | Editor @JournalofCHC & @EBNursingBMJ | | Trustee @ICPCN
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Cruse Bereavement Sup.. @CruseSupport
20K Followers 3K Following We're the UK's leading bereavement charity. 💜 Bereavement support, information and campaigning. 📞 Helpline: 0808 8081677 🕑 Twitter monitored Mon-Fri 9am-5pm
RichardHarding @RHardingCSI
2K Followers 618 Following Herbert Dunhill Professor Palliative Care & Rehabilitation; Director of the Cicely Saunders Institute,King's College London
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1K Followers 559 Following Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull
Jessica Lewis @Jessica93142242
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Stephen Mason @Dr_Maceo
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Regina Kirby @ReginaKirb3069
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RAJKUMAR GANEASEN,PT,.. @RGaneasen
152 Followers 2K Following ONCOLOGY & RESPIRATORY SPECIALIST PHYSIOTHERAPIST
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iriewataru🎗 @iriewataru
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Nazihah @NazihahU
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Jessika Boles, PhD, C.. @JessikaBoles
247 Followers 239 Following CCLS, Researcher, Professor, Advocate. Leaving a legacy of legacy work, #childlife, and #research. Views are mine.
UoYppcrg @UoYppcrg
705 Followers 482 Following Researching the care and support of children and young people with life-limiting conditions, their families and health and social care professionals.
Zetao @zetao
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Miauricio 🐈 @HeineVillanueva
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Rebecca Daniels 💙�.. @BecksBDaniels
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Kate Jay @KateJay81
7 Followers 13 Following
Katie Burbridge @Katie_Acorns
236 Followers 393 Following Director of Care ##palliativecare #Hospice #endoflifecare. #yourlifematters. mad about Daschunds and cycling. #livelifetothefull
Luna @7a2jA74309
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alice @alicehurco
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Ashleigh Butler @AshleighEButler
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Doraftr50 @doralovelife1
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Anne-Marie Carroll @AnneMar78729179
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Marie Price @Marie24Price
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Dr Heidi Singleton @blueprintteach
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janiine @janiine_stdN
79 Followers 221 Following 👩⚕️CYP nursing student👶👧👣 2nd year📚|| Class Rep📝|| 🫂Student Wellbeing Ambassador 🌟 📍QUB
yu @yu31812692
5 Followers 74 Following
Márcia Monteiro @MrciaMo61599917
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Katherine @potter30katheri
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Paliativos SF @PaliativosS
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Gemma Serradell Asens.. @gemma_serradell
275 Followers 683 Following Entre mis dos pasiones: la psicología y la literatura. Eterna aprendiz. Autora de 4 libros, los más personales: Cartas al vacío y Con los pies en las nubes.
Frederick Nyaho @frederick_nyaho
94 Followers 483 Following RN, BSN, PCNS. I work in Palliative Care & am interested in providing care that relieves pain & other distressing symptoms among patients with chronic illness.
Klus @KlusIFU
72 Followers 160 Following
Ignacio Borque Roda @i_borque
617 Followers 2K Following Palliative Care Physician - MD Palliative Care and Supportive Care for Cancer Patients - MD Emergency Medicine - Specialist in Family and Community Medicine
Ru8LkC @lk_ru8
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Dani Ramos @PaliativosTeam
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Moreno Crotti Partel @Inf_MorenoCP
200 Followers 743 Following Infermiere. Director of Nursing Degree to University of Brescia (Italy). MSC #PedPC and Medical Humanities, https://t.co/qSifYqQBwe @SIN_neonati @FCurePalliative
Cheryl @cheryl55chisolm
185 Followers 3K Following
Donna Gallagher @dmg243
1K Followers 997 Following Retired Senior Lecturer Nursing. The Open University Ireland. Professional Nursing Committee lead for Northern Ireland and RCN Northern Ireland board member.
Namwhanchanika @namwhanchanika
640 Followers 268 Following A crazy pediatrician who fall for psychiatry.
Eleanor Willis RNC QN @EleanorWillisE
368 Followers 479 Following @RoaldDahlFund CNS @enherts, CMC, Queen’s Nurse, @FNightingaleF Scholar 23, Clinical Ethics, CCNSPQ, PNA👂 Views my own
Kathryn Mannix @drkathrynmannix
41K Followers 1K Following Retired palliative care doctor. Writer: 'With the End in Mind', 'Listen.' Wants us to understanding dying more, fear it less, listen better. Rep: @DHAbooks
EAPC VZW @EAPCvzw
10K Followers 1K Following The European Association for Palliative Care (EAPC) aims to promote palliative care and to act as a focus for all those involved in the field.
Lorna Fraser @lornafraser10
2K Followers 2K Following Professor of Palliative Care and Child Health at Kings College London
Donna Wakefield @DonnaWakefield_
4K Followers 2K Following Palliative Med Consultant 🏥🩺 & @NIHRresearch Doctoral Fellow #Research on #Inequalities & lung disease incl #Mesothelioma 🫁 Personal views 🏳️🌈
Dr Rachel Clarke @doctor_oxford
284K Followers 4K Following Palliative care doctor 👩🏻⚕️ Writer DEAR LIFE, BREATHTAKING 📚 Rep: @AitkenAlexander 📝 Founder: @hospiceukraine 🇺🇦 THE STORY OF A HEART out 5.9.24 🫀
Prof Katherine Sleema.. @kesleeman
8K Followers 523 Following Laing Galazka Chair in Palliative Care @CSI_KCL @KingsCollegeLon, Honorary Consultant Palliative Medicine @KingsCollegeNHS
CSI Palliative Care @CSI_KCL
13K Followers 985 Following The Cicely Saunders Institute (CSI), King's College London, is the 1st purpose built palliative care research institute offering courses & other resources
Prof. Mark Taubert @ProfMarkTaubert
17K Followers 5K Following NHS Palliative Care Consultant @VelindreCC @CardiffUni ★ Vice-President @EAPCvzw ★Chair Advance Care Planning NHS Wales Exec ★edits @BMJ_SPCare #TalkCPR ⚡🇩🇪
Lucy Selman @Lucy_Selman
6K Followers 5K Following Associate Prof. Palliative & End-of-Life Care. Communication, ACP, bereavement, community. Founding Director @GoodGriefFest. she/her
ChildhoodBereavement @CBNtweets
7K Followers 2K Following The Childhood Bereavement Network (CBN): the UK hub for people working with bereaved children & their families. Hosted by @ncbtweets See http://t.co/h2nUSKAutK
IAHPC @IAHPC
12K Followers 12K Following The IAHPC is a global membership organization whose vision is a world free from health related suffering.
Palliative Medicine @PalliativeMedJ
20K Followers 937 Following A high impact peer reviewed multi-disciplinary palliative care journal. Research journal of the EAPC. Find us on FB, Instagram, LinkedIn, Mastodon, Bluesky.
Catherine Walshe @cewalshe
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Gemma Allen (she/her) @gemma_allen1
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Dr Liz O'Riordan @Liz_ORiordan
67K Followers 9K Following Writer - 'Under The Knife' 'The Complete Guide to Breast Cancer' | Motivational Speaker | Podcast - So Now I've Got Breast Cancer | Trusted Information Creator
Wendy Ashton @wendsashton67
203 Followers 130 Following Palliative Care Social Worker & Family Support Team Lead, views are my own. Social worker of the year (2018). member of #apcsw1 she/her
Hospice UK @hospiceuk
30K Followers 7K Following Official Twitter account for Hospice UK. We are the national charity for hospice and end of life care. Parent charity of @dyingmatters.
Toby Porter @tobyhporter
3K Followers 1K Following CEO @hospiceuk Associate Fellow @greentempleton @uniofoxford . Formerly CEO of @acornshospice after 23 years of humanitarian stuff. (he / his)
Dr Ros Taylor 💜 @hospicedoctor
17K Followers 3K Following Palliative physician. Former Clinical Director @hospiceuk Med Director @harlhospice Founder of #HPAL @hpal_medindex info site #rememberPhoebe💜
Kate Heaps @heapy25
2K Followers 4K Following Hospice CEO, Share Community Chair. SE London PEoLC Clinical Lead,Mum,Nurse, Londoner. Trying to build communities & challenge inequality. All views my own.
Nazihah @NazihahU
131 Followers 178 Following Radiotherapy and MRes graduate|Research Assistant. My research interests lie in optimising patients’ psychological and radiotherapy outcomes. All views my own
Dr Bethan Page @BethanPage21
501 Followers 998 Following Lecturer at King's College London. Working to improve health and care services for patients and families.
The Hospital for Sick.. @SickKidsNews
58K Followers 2K Following Official Twitter account for The Hospital for Sick Children (SickKids). Our vision: Healthier Children. A Better World.™ Account not monitored 24/7.
SickKids Foundation @sickkids
55K Followers 7K Following We support The Hospital for Sick Children @sickkidsnews in Toronto, Canada. #PrecisionChildHealth is here. 🔮 #SKHealTheFuture #SickKidsVS
ABPN_ChildNursing @ABPN_ChildNurse
1K Followers 304 Following Association of British Paediatric Nurses. A UK-based network of children's nurses with a wide membership of experts in clinical practice, education & research
Carly Punter @misscarlymay27
220 Followers 645 Following Specialist Practitioner Community Children’s Nursing. Independent Nurse Prescriber. Safeguarding Nurse. RGN/RCN. All views are my own.
Paed Research @ Leeds @LTHTPaedRes
659 Followers 300 Following Tweets from the Paediatric Research team @ Leeds Children's Hospital. 🪁
Heather Rostron @RostronHeather
1K Followers 3K Following NIHR Doctoral Fellow; #PPIE Leeds Young #Research🦉; Snr Research Nurse @Leeds_Childrens #paedrheum #healthtechnology #NIHR70at70 2019-22 🏃♂️🎶🏊♀️
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720 Followers 325 Following Supporting children and young people with cancer and related illnesses and their families. Creating smiles, easing the journey.
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Wayne de Leeuw (he/hi.. @waynedeleeuw
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PedPallCarePA @PPCC_PA
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Gareth Jones 💙 @gso_jones
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Bluebell Wood @BluebellWoodCH
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Eve Holroyd @_EveMalam_
562 Followers 1K Following HEE Leadership Fellow~Children’s Palliative Care CNS @BTHFT~Interested in pathway development/workforce transformation/inequalities~Mum~CrossFitter~My opinions
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Dravet Syndrome UK @DravetUK
3K Followers 1K Following We are dedicated to improving the lives of children and adults living with Dravet Syndrome, a rare epilepsy, through medical research, education and support.
NIHR CRN West of Engl.. @crnwestengland
2K Followers 2K Following We support high-quality health and social care research in the West of England. We are part of @NIHRresearch and hosted by @uhbwNHS.
NIHR CRN Kent, Surrey.. @NIHRCRN_kss
2K Followers 2K Following We are part of @NIHRresearch supporting high-quality health and social care research across Kent, Surrey and Sussex.
NIHR CRN North East a.. @NIHRCRN_NENCumb
5K Followers 3K Following We are NIHR Clinical Research Network North East and North Cumbria - part of @NIHRresearch Tweet us using #ResearchNENC
NIHR CRN West Midland.. @CRN_WMid
3K Followers 2K Following Clinical Research Network West Midlands - Improving the Health & Wealth of the Nation Through Research. We are part of @NIHRresearch. #BePartOfResearch
NIHR CRN East Midland.. @NIHRCRNEastMids
3K Followers 2K Following The Clinical Research Network East Midlands is part of @NIHRResearch - our purpose is to deliver research. We are hosted by @Leic_hospital
NIHR CRN Wessex @NIHRCRNWessex
2K Followers 1K Following The Clinical Research Network Wessex supports high quality health & social care research for the benefit of patients & the public. We are part of @NIHRresearch.
NIHR CRN South West P.. @NIHRSW
4K Followers 3K Following National Institute for Health and Care Research Clinical Research Network South West Peninsula. @DHSCgovuk funded For more news and information: @NIHRresearch
NIHR CRN North Thames @NIHRCRN_nthames
2K Followers 1K Following NIHR Clinical Research Network North Thames - supporting research delivery. Latest NIHR information: @NIHRresearch. To get involved in research: @NIHRtakepart
NIHR Clinical Researc.. @NIHRCRN_nwcoast
7K Followers 4K Following We are part of @NIHRResearch, the Clinical Research Network that delivers studies across the North West Coast
RCHT @RCHTWeCare
8K Followers 801 Following Royal Cornwall Hospitals NHS Trust, Cornwall Account monitored Monday to Friday from 9am to 5pm
RCHT Palliative & End.. @rchtpallandeol
992 Followers 784 Following We are the Palliative and End of Life Care Team at the Royal Cornwall Hospital Trust. #ButterflyCornwall
T&G Integrated Care @tandgicft
6K Followers 205 Following The official Twitter account for Tameside & Glossop IC NHS FT.
Southern Trust @SouthernHSCT
15K Followers 719 Following We provide health and social care services to around 365,712 people across the Southern Trust Area. Account not monitored 24/7. #teamSHSCT
NIHR CRN North West L.. @NIHRCRN_NWLdn
2K Followers 945 Following We are the @NIHRresearch Clinical Research Network North West London. We provide the support needed to allow effective research to take place in our region.
RFH Paediatric OTs @RFHPaediatricOT
2K Followers 567 Following Twitter channel of the Paediatric (Children and Young People) Occupational Therapy Team at the Royal Free Hospital, London.
CLCH NHS Trust @CLCHNHSTrust
5K Followers 840 Following Central London Community Healthcare NHS Trust. We work across 11 London boroughs & Hertfordshire. This account is only monitored 9am-5.30pm, Mon-Fri.
Southampton Children'.. @SotonChildHosp
4K Followers 753 Following Official Twitter for Southampton Children's Hospital. Sharing the stories, successes and opportunities at Southampton Children's Hospital. Part of @UHSFT.
Maidstone and Tunbrid.. @MTWnhs
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Oxford Health NHS FT @OxfordHealthNHS
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Dougie Mac @DougieMacStoke
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Helen & Douglas House @HelenAndDouglas
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Paediatrics @LancsHospPaeds
1K Followers 696 Following We are the Paediatrics team at Lancashire Teaching Hospitals NHS Foundation Trust @LancsHospitals. Follow us for good news updates & service information.
Chorley & Royal Prest.. @LancsHospitals
13K Followers 2K Following Lancashire Teaching Hospitals NHS Foundation Trust. Excellent care with compassion. Monitored by Communications, Mon-Fri, 9am-5pm. Contact PALS 01772 522972
Manchester Local Care.. @mcrlco
5K Followers 2K Following We provide your NHS community health & adult social care services in Manchester. Working together as one team to give better care to you #WeAreCommunity
RMCHosp @RMCHosp
8K Followers 525 Following Official account for Royal Manchester Children's Hospital. Helping children since 1829. UK's largest children's hospital.
LCH NHS Trust @LCHNHSTrust
10K Followers 1K Following Providing community healthcare services to adults and children in Leeds. Posts by the LCH Communications Team. This account is monitored Mon - Fri, 8am - 5pm.
Leeds Children's Hosp.. @Leeds_Childrens
6K Followers 904 Following Leading the way in healthcare for children, young people and their families. Proud to be part of @LeedsHospitals. Supported by @LdsHospCharity
The Kentown Wizard Fo.. @KentownWizard
199 Followers 132 Following We exist solely to have a positive and enduring impact on the lives of children and young adults with life-threatening conditions and serious disabilities.
North Tees and Hartle.. @NTeesHpoolNHSFT
11K Followers 956 Following We provide hospital and community based health care. To comment on our services: https://t.co/spXWbmP5Ut…
Teapot Trust @TeapotTrust
2K Followers 722 Following Teapot Trust is at the forefront of mental health support for children and young people living with chronic conditions Registered SCIO: Charity number SC041885@lornafraser10 @cpcconf2024 talks about reconizing clinical decline and movement between phases in Wales. #Cpcc2024
Prof @lornafraser10 speaking on the importance of data to ensure access to quality children's palliative care. Accessing emotional and physical supports is so important for parents supporting children with life-limiting conditions. #cpcc2024
Prof Loran Fraser @lornafraser10 @KingsCollegeLon is highlighting the paediatric palliative care services and diagnostic group in the #UK @cpcconf2024 @rare_trial @RareDiseasesIE @RAiNAllIreland @UCD_Research
@CYP_CSI @LucyCoombes7 Really informative and interesting talk on the importance of measurable paediatric palliative care outcomes
Development and psychometric evaluation of Children’s Palliative Care Outcome Scale (C-POS)- Prof Lorna Fraser, from @KingsCollegeLon
Delighted to share that I passed my PhD viva yesterday. Massive thank you to my wonderful supervisors @RHardingCSI @CSI_Linguist and @ClareEllisSmith. And to my examiners @WolfePPC and Professor Richard Hain for the enjoyable discussion.
With the support of 76 UK sites, and over 400 participants (and counting!), awesome that @lornafraser10 is sharing this timely update on behalf of @DaneyHardar today 🥳
Attending the 6th All Island Children's Palliative Care Conference 2024? Don't miss @lornafraser10 presenting on behalf of @DaneyHardar today on the development and psychometric evaluation of the novel C-POS in the oral abstract presentation session at 12:10pm IST #cpcc2024
@CYP_CSI @LucyCoombes7 Such a wealth of information to be shared by Dr @LucyCoombes7 today. Certain to be an insightful talk!
Join us for our next Event... Paediatric Palliative Care Research: Working with families 🗓️30 April 2024 ⏰13:00 - 14:00 Speakers: Dr Lucy Coombes and Dr Julia Hackett Session Chairs: Prof Lorna Fraser and Prof Julia Downing Book your place 👇 pcrs.org.uk/events/paediat…
Following development of the first C-POS for children with life-limiting conditions in sub-Saharan Africa, @julia_downing, @EveNamisango & @RHardingCSI discuss lessons learned & future developments for outcome measurement in paediatric palliative care: doi.org/10.21037/apm.2…
📢 NEW C-POS PAPER: '‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition'. Published #OpenAccess 🔓 in @PalliativeMedJ: doi.org/10.1177/026921… #pedpc 1/6 🧵
Paper of the week!🌟New #qualitative work from @HannahM_Scott20 & @CYP_CSI identifies anticipated benefits, risks, barriers & facilitators to #implementing person-centred outcome measures (#PCOMs) into #PaediatricPalliativeCare #pedpc. Full paper: doi.org/10.1177/026921…
We would like to speak to parents of child(ren) who have received a negative (normal) newborn screening result in the last 12 months. If you would like more info, see: mumsnet.com/talk/nonmember… or contact: [email protected] or [email protected]
@CSI_KCL @CYP_CSI So grateful for the opportunity to work with the fantastic CPOS team on this work: @DEBraybrook @HannahM_Scott20 @LucyCoombes7 @DaneyHardar @anna_roach_ @ClareEllisSmith Prof Myra Bluebond-Langner (@LDCentre1) @lornafraser10 @julia_downing @DrFlissMurtagh @RHardingCSI @CSI_KCL
Paper of the week🌟! This @CSI_KCL @CYP_CSI paper led by @CSI_Linguist advances understandings of how children describe and make sense of their own conditions. Using discourse methods enabled us to identify ways to help clinicians to 'do' child centredness journals.sagepub.com/doi/10.1177/02…
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study frontiersin.org/journals/oncol… @SabahBoufkhed @OmarSHAMIEH @RHardingCSI @GhadeerAlarjeh #PalliativeCare
REGISTER NOW for the Palliative Outcome Scale (#POS + IPOS) Training Days on 1 & 2 May 2024: tinyurl.com/POSDay2024 Spaces are limited, so sign up early! Visit pos-pal.org for more information. #POS2024 #PalliativeCare #Outcomes
Congrats all! @HannahM_Scott20 @LucyCoombes7 @DEBraybrook @DrFlissMurtagh @RHardingCSI @lornafraser10 @ClareEllisSmith @CYP_CSI @CSI_KCL
Great to see the latest from the @CSI_KCL @CYP_CSI CPOS team, led by the fantastic @HannahM_Scott20. Successful implementation of outcome measures needs explanation, collaboration and familiarity (introduced by someone the child knows and trusts). journals.sagepub.com/doi/10.1177/02…
Read the full paper in @PalliativeMedJ: doi.org/10.1177/026921… @LucyCoombes7 @DEBraybrook @DaneyHardar @anna_roach_ @CSI_Linguist Prof Bluebond-Langner (@LDCentre1) @lornafraser10 @julia_downing @Ethixbird @DrFlissMurtagh @ClareEllisSmith @RHardingCSI @CYP_CSI @CSI_KCL 13/13 🧵
Excited to share the second paper from my #PhD: ‘What are the anticipated benefits, risks, barriers & facilitators to implementing #PCOMs into routine care for CYP with life-limiting/life-threatening conditions? Published in @PalliativeMedJ doi.org/10.1177/026921… 1/13 🧵
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