CaringVoiceCoalition @CVCinc
CVC is dedicated to improving the lives of people with chronic illness—our programs include disability and travel assistance, and health insurance counseling. caringvoice.org Richmond, VA Joined September 2011-
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A great piece on Huntington's disease in the Observer. Includes an interview with Prof Sarah Tabrizi, HD Centre Director. theguardian.com/science/2019/m…
Medicare Advantage—the private plan add-on option in the Medicare program also know as Part C—has new flexibility to cover expenses such as transportation or caregiver support. caringvoice.org/medicare-advan…
It's World #RareDiseaseDay. Here's our staff sharing why they #careaboutrare #WRDD2019
“#Need. But I’m terrible at it 🤨”: buff.ly/2Ss2d6r #sleep #selfcare #painsomnia #chroniclife
From Shaun who's living with Huntington's disease: "All the time I’m awake and speaking and fighting, they’re working on cures and learning things and that could mean a lot more time. I think as long as I remember that I’m good for the fight." caringvoice.org/good-for-the-f…
Still looking for ways to get involved in Rare Disease Day this year? Check out all the different things you can do to be a part of the campaign>> rarediseaseday.org/article/get-in… #RareDiseaseDay #ShowYourRare
Note to self #chiarimalformation #chronicillness #chronicpain
"Modest Needs provides small, no-strings-attached, #financialgrants for short-term immediate crisis situations for working #families": buff.ly/2HAtyhE @CVCinc #HealthCareForAll #chronicillness #medical
Do you understand balance billing? Learn a little about when it is and isn't legal to help you navigate #SurpriseMedicalBills caringvoice.org/understanding-…
Nearly one third of Americans received medical bills they didn’t expect in 2014. We collected five tips for avoiding and navigating surprise medical bills. #healthinsurance caringvoice.org/navigating-sur…
Have you made a plan for your financial future? Save yourself heartache later by thinking through a few things today: caringvoice.org/planning-for-y…
#HDWorkoutTips with #ShanaVerstegen. For more info about #HuntingtonsDisease & the #HDSAFamily please visit HDSA.org 📺youtube.com/watch?v=goA-WZ… #WednesdayWorkout #LetsTalkAboutHD @shanamartin
Before you consider a short-term health insurance plan, be sure to understand their limitations. Here's a guide: caringvoice.org/short-term-hea…
A recent study has shown, for the first time, that companies that championed people with disabilities actually outperformed others — driving profitability and shareholder returns. nytimes.com/2018/12/27/opi…
Your insurance plan is about to begin its 2019 coverage. We’ve collected three things you can do before then to hopefully save you money and heartache. caringvoice.org/getting-the-mo…
From $1,500 toenail cream to a $109,000 heart-attack bill, relive these medical billing horror stories in our KHN/@NPR #BIlloftheMonth club. khn.org/ODkzNDA3
It's the #FirstDayofWinter and the #WinterSolstice! Listen to Dr. Samer Hattar, chief of the Section on Light and Circadian Rhythms at NIMH, on @NPR's Morning Edition. He discusses the results of a study that may explain how light exposure influences mood. n.pr/2Gxd52w
Eight strategies to navigate chronic illness around the holidays more smoothly—hopefully leaving you the joyful times to remember most. caringvoice.org/chronic-illnes…
A final resource for you as you #GetCovered for 2019. You have through Dec. 15 (12 a.m. PT) to enroll in the federal marketplace at healthcare.gov More info: view.publitas.com/caringvoice/fa…
The Pulmonary Hyperte... @PHAssociation
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Team PHenomenal Hope @teamphhope
5K Followers 781 Following Providing HOPE and opportunities to those who need it most through education, research, and patient services.
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
phaware® @phaware
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Scleroderma Canada @SclerodermaCAN
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SRFCure @srfcure
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Genetic Counselors @GeneticCouns
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Nickicaroline1 @Nickicaroline1
29 Followers 190 Following Paraeducator 👩🏫 | Chronic Illness advocate 🌸 | Lymphedema fighter 🤺 | Laughter seeker 💫
FrequenCell @FrequenCell
1K Followers 6K Following * Frequency Therapy Wearable Tech * Our mission is to empower people to lead vibrant and pain-free lives with 100% safe, natural, non-chemical methods.
Caring Connections Ho... @trustedbysenior
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Anusha Kosta @PediatricsMeets
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Melvina @tatesheigh56896
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Amhara @GenocidalState
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Todayisagift @Todayisagift802
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GREGoR Consortium @GREGoR_research
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Feedkast @_Feedkast
130 Followers 2K Following The latest Medical Articles for HCPs - Pharmamarketing is our business, curated and customized content is our passion. Download in the Appstore and GooglePlay.
SERVPRO Chesterfield @SERVPROchester
36 Followers 550 Following #SWaM Certified, Clean up, Restoration & Rebuild Company, #Fire, #Water, #Mold, #HVAC #cleaning 804-378-2323 #Chesterfield #TriCities #Richmond #RVA
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thornburger🧬 @GcThornburger
128 Followers 173 Following Sarah Lawrence Genetic Counseling🧬Class of 2023 LA 🇲🇽🌴💙➡️ NY 🗽 (she/her)
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106 Followers 869 Following Utilizing ML, AI and RWD to find, engage and educate specialty and rare disease patients who could benefit from life saving therapies
Helen Beneddit @HBeneddit
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Get-e @get_e_
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Gauchers Disease @gauchers3
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PHAustria_InitiativeL... @Phaustria_
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FleishmanHillard TRUE... @true_global
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SpineNation @RealSpineNation
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Sara @afsml1
476 Followers 5K Following Mama, physician, vegan #Resistance #docsforgunsense #ThisisOurLane #ClimateChange #Humanrights #BLM Opinions my own & don't represent my employer.
Rayne @ThePainReports
20 Followers 15 Following Just another chronic illness warrior documenting their struggles with pain, fatigue and the general shit show that is invisible illness!
Don Moores @moores_don
1K Followers 1K Following President & COO Kamloops Blazers, motivational speaker. Humble advocate of children with idiopathic Pulmonary Hypertension.
Alice Lee @alee7095
2K Followers 4K Following This is a second account from @pepperpell. I have HD mutated gene and promoting awareness to rare diseases and HD/JHD while I can.
The Lupus Liar @thelupusliar
2K Followers 2K Following Why live with Lupus? Lupus lives with you. #Redefine living with #LUPUS. Tell it where, what, and when. Because Lupus is a liar! https://t.co/bplHX8RPhS
Pamela @pain_prejudice
1K Followers 5K Following A Modern Day Hippy. Wife. Mom. Animal Lover. Peace and Love! Fighting hard against RA, Fibromyalgia, Small Fiber Neuropathy. Chronic Pain Patient Advocate!
Tina Goble @TinaGoble5
89 Followers 712 Following I am a 43 year old female I have been living with a rare lung disease since 2003 pulmonary hypertension as found secondary FROM another autoimmune disease SLE.
annie watson @helixchic
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Camille Caregivers @Camilecaregiver
1K Followers 4K Following Whether help is needed for a few hours a week, or around the clock, Camille Caregivers can attend to your in home needs in the comfort of our own home. Service
Disability Hub @disability_hub
302 Followers 640 Following Join Disability #Community Hub #Facebook #group. #Share what you know about #Disability https://t.co/1wzZMRfgCq
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7 Followers 147 Following Entrepreneur: Finacial Analysis : Ministerial Servant :social Work :Travel Thistle : Knowledge Thistle
Lauren Holder @laurencurehd
1K Followers 637 Following HD advocate, #rarediseases advocate, Producer of Help4HD Live, caregiver, mom, and much more!
Delite Eliason @sheedee2000
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PatientView @PatientView
3K Followers 3K Following Working with patient groups to improve healthcare. #patientcentricity #Pharma #reputation and most recent #PAGC19 Also see https://t.co/cfM4vScsDg
The Pulmonary Hyperte... @PHAssociation
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Team PHenomenal Hope @teamphhope
5K Followers 781 Following Providing HOPE and opportunities to those who need it most through education, research, and patient services.
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
phaware® @phaware
9K Followers 9K Following Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️
Scleroderma Canada @SclerodermaCAN
2K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
Pulmonary Hypertensio... @PulmonaryNews
5K Followers 1K Following Your source for pulmonary hypertension news, support, & real stories from the community. Let's raise awareness together!🎗️
Genetic Counselors @GeneticCouns
15K Followers 583 Following National Society of Genetic Counselors (NSGC) is the leading voice, authority and advocate for the genetic counseling profession. RT does not equal endorsement.
KFF Health News @KFFHealthNews
182K Followers 1K Following A national newsroom that produces in-depth journalism about health issues; a core program of @KFF.
Independent Sector @IndSector
35K Followers 6K Following We are the national membership organization that connects, strengthens, and advocates for nonprofits and philanthropies.
The Chronicle of Phil... @Philanthropy
199K Followers 3K Following News, resources, advice, and commentary about the nonprofit world from The Chronicle of Philanthropy.
Council on Foundation... @COF_
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Atlantic Research Gro... @argcro
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ProjectStreamline @ProjStreamline
412 Followers 135 Following A collaboration of grantmakers and grantseekers working to improve grantmaking practices. No new Tweets here; see @PEAKgrantmaking for more.
Candid Learning for F... @GrantCraft
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HDSA New Mexico @HDSANewMexico
405 Followers 82 Following We are a national non-profit voluntary health agency dedicated to finding a cure for Huntington's Disease.
HDSALosAngeles! @HDSALosAngeles
593 Followers 466 Following Official twitter account for HDSA Los Angeles.
HuntingtonStudyGroup @HuntingtonSG
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kneecola @onherway29
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6 Followers 38 Following Licensed Clinical Social Worker for the South Central Region of HDSA
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620 Followers 4K Following I love health. I love inclusion. And I love to grow businesses.
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ThinkGenetic, Inc. @ThinkGenetic
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Sarah Karlin-Smith @SarahKarlin
17K Followers 3K Following Research Director at Public Citizen's Access to Medicines program. Former journalist covering intersection of pharma, health policy & politics.
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Charles Ornstein @charlesornstein
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Katie Thomas @katie_thomas
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PTEN Foundation US @PTENFoundation
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192 Followers 149 Following Daughter and I fighting Cowden's Syndrome. 1 in 200,000. Rare. Invisible. Real. Tumor growths, malignancies, vascular malformations, pain. Raise Awareness!
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Brad Frost @brad_frost
112K Followers 551 Following I make things and help people. Web designer, teacher, consultant, speaker, writer, musician, & artist. Host of Wake Up Excited! Author of Atomic Design
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230K Followers 3K Following Co-founder @CodePen. Podcasts @ShopTalkShow. Ran CSS-Tricks 2007-2022. I like it when you like things.
Global Times @globaltimesnews
1.9M Followers 548 Following China's national English language newspaper, under the People's Daily. Apps: https://t.co/S9E7BpY53Q
Google Analytics @googleanalytics
1.2M Followers 368 Following Get the latest news and product updates on Google Analytics, Tag Manager and the Google tag. Learn more at https://t.co/90zQzLnANJ
Intuit Mailchimp @Mailchimp
238K Followers 14K Following We help you understand your customers’ individual needs by treating them like individuals. Got questions or need help? DM or tag us @Mailchimp / @Mailchimphelp.
Huff/Post50 @huffpost50
24K Followers 1K Following News, features and the best blogs on topics that matter most to people over 50. Follow us here and on Facebook: http://t.co/LXny6wELTH
Nancy LeaMond @NancyLeaMond
6K Followers 1K Following AARP EVP: advocacy, lobbying, education & volunteers.
AARP Advocates @AARPadvocates
44K Followers 3K Following Nonprofit. Nonpartisan. AARP advocates for what matters most to the 125 million Americans 50+ and their families.
PH Serbia @PHASerbia
276 Followers 208 Following Plućna arterijska hipertenzija je teška, retka, progresivna i smrtonosna bolest. Bez lekova preživljavanje pacijenata koji su uglavnom mladi iznosi manje od 3 g
PHA Special Events @PHA_Events
21 Followers 18 Following
Pulmonary Wellness Fo... @PulmWellness
2K Followers 2K Following Cardiovascular, Pulmonary, Complex Medical Rehabilitation, Education and Research
PHAAustralia @PHAAustralia
500 Followers 114 Following Pulmomary Hypertension Association Australia - supporting PH patients, their families and carers - education and awareness - Together We Are Stronger
WomanPlace @place_woman
563 Followers 1K Following Entrepreneur, Skin Care Advisor at Beauty Society, Inc at WomanPlace; #Womensrights; #Defenderofwildlife; #Skincare;
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CrowdTNonProfit @TeeNonProfit
27K Followers 105K Following Design High Quality Screen Printed Tees for Your Non Profit Organization. Zero Risk. Zero Upfront Cost.We Directly Ship to Your Customers. You Keep The Profits.











