SRFCure @srfcure
America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma. srfcure.org San Francisco, CA Joined April 2011-
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The 5th Annual SRF Scleroderma Patient Forum is happening TOMORROW—and it's not too late to register! Register for tomorrow's Forum here: bit.ly/40LlmG3
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Register for the Patient Forum—happening this Thursday: srfcure.digitellinc.com/live/16/page/1…
Hear why Amanda H. (dx 2015) is joining us on June 11 for the 5th Annual SRF Scleroderma Patient Forum! Only 3 days left before this annual event, and registration is STILL OPEN: 📅 Thursday, June 11th ⏰ 9:00 am PDT / 12:00 pm EDT 💻 FREE and online
In just four days, the SRF Scleroderma Patient Forum is officially back for its 5th year—and to celebrate, you can enter multiple raffles to win prizes! 🎉 Just by registering, you're automatically entered into the first one. Register for the Forum: bit.ly/40LlmG
What is scleroderma? 🔎 Swipe to learn more about what it is and how it affects those living with the disease. ➡️ Learn how you can get involved this Scleroderma Awareness Month: srfcure.org/sayscleroderma
"People pay attention to clothing, so by wearing my sweatshirt out, I know that it can either start a conversation about what scleroderma is, or people can google 'scleroderma' on their own," Alex P. (dx 2022) says. Grab some gear at the SRF Merch Shop: bit.ly/4flyWIU
Register now for the SRF Scleroderma Patient Forum: srfcure.digitellinc.com/live/16/page/1…
Check out this clip to hear why Tomisa S. (dx 1993) is joining us on June 11 for the 5th Annual SRF Scleroderma Patient Forum! Sign up using the link in the first comment below! Thursday, June 11th 9:00 am PDT / 12:00 pm EDT FREE and online
June is here—and so is Scleroderma Awareness Month. We’re asking you to say it with us: #SayScleroderma. 📣 Every way that you #SayScleroderma brings us closer to a world where scleroderma is understood, treated, and one day cured. Learn more: srfcure.org/support-us/say…
Register for the 5th Annual Scleroderma Patient Forum: srfcure.digitellinc.com/live/16/page/1…
Paul D., dx 2022, invites you to join him at this year's Scleroderma Patient Forum! There's still time to register for the SRF's annual educational event: Thursday, June 11th 9:00 am PDT / 12:00 pm EDT Online & FREE to attend
It’s almost Scleroderma Awareness Month–swipe through to see how you can get involved and #SayScleroderma! ➡️ Discover Scleroderma Awareness Month resources: bit.ly/3Kd5iEP
Clinical trial eligibility can sometimes seem confusing, but the criteria for enrolling are rooted in the science of how scleroderma progresses. Discover information about clinical trials for scleroderma: bit.ly/3WyHBhh
"She handled everything that came her way with so much grace and strength, and she never complained," says Taylor S. of her late aunt Carol (dx 2023). Read the full story: bit.ly/4doKGcj
Register for the Scleroderma Patient Forum: srfcure.digitellinc.com/live/16/page/1…
Check out this highlight from Dr. Torok's presentation from the Scleroderma Patient Forum archives on what makes scleroderma unique in kids. This year, she's back and joined by colleagues to dig into what that means for managing it.
Join the 2026 SRF Annual Research Challenge and help fund the science that brings us closer to a cure for scleroderma. Your generosity supports scientists dedicated to defeating this disease, like Joe DeRisi, PhD, at UCSF. Double your impact today: bit.ly/4eNkJV0
May 17 is a day we hold close, as it would have been Bob Saget's 70th birthday. He was a brilliant comedian, a beloved SRF Board Member, and was a champion of the scleroderma community. Today, we remember him with love and honor his commitment to finding a cure for scleroderma.
Learn about how gastrointestinal (GI) complications affect people living with scleroderma at this year's Scleroderma Patient Forum. Register for the event here: bit.ly/4wrLKn6
What can cause oxygen levels to suddenly drop in people with scleroderma-ILD, and what warning signs should patients watch for? 🔎 Read more about scleroderma-ILD here: bit.ly/4epfHdQ
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