Search results for #rareaware
I support undiagnosed children’s day. #RareAware #UCD2024 #1In17
I support undiagnosed children’s day. #RareAware #UCD2024 #1In17 https://t.co/kUY1Kpxv7Y
SWAN UK (Syndromes Without A Name)📷 Help us reach more families this Undiagnosed Children's Day by sharing this post! #share #rareaware #1in17
SWAN UK (Syndromes Without A Name)📷 Help us reach more families this Undiagnosed Children's Day by sharing this post! #share #rareaware #1in17
An amazing example of #PPI from a fabulous young lady living with severe ichthyosis, Lucy's wish 💫 An amazing example of how we can involve young people with lived experience to share their challenges and support communities to become #RareAware 🧬💫
An amazing example of #PPI from a fabulous young lady living with severe ichthyosis, Lucy's wish 💫 An amazing example of how we can involve young people with lived experience to share their challenges and support communities to become #RareAware 🧬💫
जागतिक यकृत दिन #worldliverday #liverday #liver #health #hepatitis #liverhealth #onlineneta #online_neta #hormones #healthcare #healthylifestyle #hormone #hormonebalance #livercancer #doctor #healthyliving #awareness #liverdisease #rareaware
We need better health and social care services for those with EB in Ireland. It's crucial for service providers to be #RareAware. Together, we can ensure no one with EB is left behind. #ActRare2024 #EBawareness #RareDisease #GetRareAware debra.ie/what-is-eb/
Join us tomorrow - Wednesday 27th from 12 - 1.30pm Please register to attend by email: [email protected] #pleaseshare #RareDisease #rareaware
Mayors reception March Wednesday 27th from 12noon to attend please register via email: [email protected] #rareaware #1in17
In ‘Dancing to a Different Tune’ Charlene Son, @GlobalGenes CEO & founding board member of @curestxbp1 talks about her rare disease journey following the birth of her daughter Juno: samebutdifferentcic.org.uk/raritylife #RarityLife #raredisease #rareaware #inclusionmatters #nationallottery
#RareDiseaseDay2024 Looking to the future for rare disease, North & South Conference. A huge thanks to @RareDiseasesIE & Rare Disease Community for your part in a very successful RDD2024. #Rareaware #1in17
Be #RareAware for Rare Ovarian Cancers via @ocrahope ocrahope.org/news/be-rareaw… and join along with #RareDiseaseDay to shine a spotlight on rare disease.
The CymaBay team celebrated #RareDiseaseDay and took the opportunity to learn more about rare diseases and test their knowledge. #KeepLearning #RareAware
@CUH_NHS Outpatient Senior Nurse Team along with Rarebear have been wearing their stripes for #RareDiseaseDay #ShowYourStripes #RareBearLife #RareAware
R Scrub was very specially genetically enhanced in every single way 🥰 A rare little star ⭐️ #1inamillion I could list all his little 'things' but I don't need to- one will do- he was fabulous 😘 #RareDiseaseDay2024 #RareAware
Delight to be at #RareDiseaseDay with @RareDiseasesIE . Words from @RobinSwann_MLA @healthdpt in support of rare disease & NI rare disease action plan. #rareaware #1in17
Delight to be at #RareDiseaseDay with @RareDiseasesIE . Words from @RobinSwann_MLA @healthdpt in support of rare disease & NI rare disease action plan. #rareaware #1in17
It’s Rare Disease Day! Although mitochondrial diseases, as a collective, are not thought to be rare, affecting 1 in 200 babies born in the Uk, the individual diseases that come under the umbrella of mitochondrial disease are. #mito #RareAware #RareDiseaseDay
RAREAwareGlasgow @RAREAwareGgow
85 Followers 1 Following A society dedicated to raising awareness about rare diseases, the impact on patients and carers, and what medical students can do to drive positive change.