Search results for #brittlebonedisease
Getting my steps in after working/studying from home today. Incredibly lucky to have this as one of my local routes. Hoping that all this walking helps on my next DEXA scan! 🤞🏻 #NHS1000miles #brittlebonedisease
27 miles ✅ this week ☀️ (walking and jogging) and really enjoyed swimming on Friday (first time in over a year) 278 miles completed so far this year #NHS1000miles #brittlebonedisease #justkeepgoing #sunday #positivity
To #CAMHS who refuse referrals of #autistic people: Would you advise orthopaedic services to reject referrals for fractures in people with #BrittleBoneDisease as well? Would you suggest neurologists should also refuse people with brain abnormalities?
Thanks to @proudcharlotte1 for sharing her story living with Osteogenesis Imperfecta, more commonly known as #BrittleBoneDisease. Charlotte has had over 50 fractures. But that hasn't stopped her completing over 15 half marathons! #OsteogenesisImperfecta
Thanks to @proudcharlotte1 for sharing her story living with Osteogenesis Imperfecta, more commonly known as #BrittleBoneDisease. Charlotte has had over 50 fractures. But that hasn't stopped her completing over 15 half marathons! #OsteogenesisImperfecta
31 miles of walking this week ✅ including my 140th time volunteering at @parkrunUK👌🏻 231 miles ✅ so far this year. Well done to everyone taking part and thanks for your brilliant support! ☺️💫🙌🏻 #NHS1000miles #community #justkeepgoing #brittlebonedisease #osteogenesisimperfecta
I think I did very well with my steps today! 😂👌🏻(and on my day off) 13.5 miles according to my phone! Balanced very nicely with fish and chips with family tonight #happy #tuesday #selfcare #positivity #brittlebonedisease
A research team at @uamshealth was awarded a $1.54 million grant from the National Institutes of Health (@NIH) to support its goal of finding better treatments for #OsteogenesisImperfecta (#BrittleBoneDisease/#OI) 🎉 news.uams.edu/2023/11/15/nih…
Baby girl with brittle bone disease plays a sliding game in bed with mom😭 #BrittleBoneDisease #FamilyLove #SpecialNeeds 📽️ video.twimg.com/ext_tw_video/1…
My first bike ride in a long time, felt ridiculously unfit but I got out and I did it (and didn’t fall off!) 🙌🏻🚴🏼♀️ #cycling #quayside #exercise #brittlebonedisease
🥳 Our medical book on #osteogenesisimperfecta is now available in English 🇬🇧! Please share the link with anyone interested 📘 bit.ly/medical-book-o… #raredisease #brittlebonedisease @BrittleBoneUK @OISAustralia @OIFoundation
Seeking medical care for her #BrittleBoneDisease, Michelle and her family left their home in #Venezuela and moved to #Colombia. @hicolombia_ provided Michelle with a new wheelchair and helped her register to see a pediatrician and orthopedic specialist. bit.ly/44A5pSO
Definitely a struggle with motivation and juggling placement and work. I got straight out the door tonight and did a 2 mile run/walk/run, lovely evening and I really enjoyed it 🙌🏻👌🏻@WeStudentNurse @WeNurses @UKRunChat #wednesday #ukrunchat #studentnurse #brittlebonedisease
Annoyingly, despite his promises to stay, he left fairly soon after I left him. I wish I'd not spent money on the tax and food drinks, to keep him going. I hope to see him soon to ask what happened? #homelessness #BrittleBoneDisease
Happy Friday! Week 3 ✅ of 12 on placement. Lovely solo walk to the Angel earlier, rubbish weather but great to get out 👌🏻 (4.5 miles in total and nearly 17,000 steps today) #positivity #nursesactive #weactivechallenge #studentnurse #brittlebonedisease
50 வயதிற்கு மேற்பட்ட இருபது ஆண்களில் ஒருவருக்கு மட்டுமே ஆஸ்டியோபோரோசிஸ் உள்ளது, ஆனால் ஐந்தில் ஒரு பெண்ணுக்கு இருக்கிறது. #brittlebonedisease ##brittle #menshealthcare #bonehealth tamil.boldsky.com/health/tips-to…
1st batch of teriparatide injections arrived today, ready to start 23/6. Anyone here on teriparatide? Your fractures reduced? Bone pain decreased? Side-fx? #Disabilitytwitter #disabledlife #neisvoid #chronicillness #chronicpain #oi #brittlebonedisease
I’m so proud to share with you our last publication about #OsteogenesisImperfecta type XIV 🦴🧫 doi.org/10.1016/j.matb… #brittlebonedisease #matrixbiology #PhDlife
#mondaymotivation 💪🏻 really enjoyable bike ride whilst I still can’t run ✅ Gateshead to Wylam and back, 24 miles in total 😎👌🏻🚴🏼♀️ #justkeepgoing #thisgirlcan #brittlebonedisease #exercise #raredisease #determined
Volunteered at @saltwelljuniors @parkrunUK and then managed to cycle 16 miles. Now time to enjoy a family bbq 🙌🏻🚴🏼♀️ ☀️ #brittlebonedisease #osteogenesisimperfecta #justkeepgoing #nevergiveup
💛 Today is #WishboneDay! Join this international awareness-raising day led by the #OsteogenesisImperfecta community. #rarediseases #brittlebonedisease share4rare.org
