MNDA West London & Middlesex branch @WL_MND
The MND Association West London & Middlesex branch provides practical help & support to people living with MND in the London TW1-14, UB & W post codes. mndassociation.org West London & Middlesex Joined May 2014-
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The Veterans Support Group enables MND #veterans to support each other, sharing their experiences and common interests. It meets on the fourth Wednesday of the month from 2.30-3.30pm and the next meeting is this Wednesday 24/04. #MND #support #MNDA
If you or a loved one has recently been diagnosed with #MND you are welcome to join our Recently Diagnosed Group. Meet others in the same position, ask questions and find out about the support available. It meets this Fri 19th April, and on the third Fri of every month, at 2pm.
The South East Region Peer to Peer Support Group meets tomorrow (and always on the third Tuesday of the month) from 1100-1230. This group offers the opportunity to meet others with MND across the region. Contact [email protected] for details on how to join.
The Progressive Muscular Atrophy (PMA)- Primary Lateral Sclerosis (PLS) Support Group helps you link up with other people living with or affected by PMA or PMS. Our next meeting is this Monday 8th April 5-6pm. Contact [email protected]
The North, North West & West London Support Group: Feel free to join us for a friendly & supportive chat with others living with MND & their carers. We meet on the first Weds of the month at 11 am, our next meeting is this Weds 3 April. Contact [email protected]
Our Daytime Carers Group is for those who care for people living with MND in London and the South East. We meet on the first Tuesday of every month at 11am and the next meeting is on Tuesday 2 April 2024.
Our ***PEER SUPPORT Continuing Health Care (CHC) GROUP*** next meets on Monday April 1st at 11am. --> to better understand how to obtain CHC funding or to resolve problems with an existing package <--- Contact Anne for more information: [email protected]
Our Veterans Support Group enables veterans living with MND to support each other, sharing their experiences and common interests. Our next meeting in on Wednesday 27th March >>>
Our evening monthly carers group, for those who care for people with #MND, is coming up on Wednesday 27th March. See the flyer below for further details or send us a DM >>>
A reminder that our next Get-together is this coming Thursday 8th February. These informal monthly gatherings are for people living with MND, their families, carers, and other supporters, to meet each other in a relaxed environment. 2-4pm at The Duke of Kent, W13 8DL.
A reminder that our next Get-together is this coming Thursday. These informal monthly gatherings are for people living with MND, their families, carers, and other supporters, to meet each other in a relaxed environment. We get together from 2-4pm at The Duke of Kent, W13 8DL.
Let's talk CHC. Come along on Monday to our Peer Support CHC Group – to better understand the process of obtaining Continuing Health Care funding. Meets at 11am. Contact [email protected] mndassociation.org/sites/default/…
The January sales are well underway! If you're looking for a bargain online, please use @easyuk to raise a donation for us at the same time. It doesn't cost you anything extra and thousands of brands will donate for FREE. Sign up here: join.easyfundraising.org.uk/mnda-west-lond…
@WL_MND @MNDNorthWilts @MndaSouth @MNDAEastSussex @MNDsouthlondon @MNDSandESom @MNDAEastKent @MNDMidKent @MndaHerts @mndawss @MNDwestsussex @MNDAwestmids @westsurreymnda @MNDa_Cheshire @MNDA_WestYorks @SYMNDA @mndayork @MNDManchester Please share.
We have two online support groups coming up this week: Tomorrow, Tuesday 19th December, a group for those living with and affected by MND in the South East Region. And Wednesday 20th December, our evening online carers group. See attached flyers for details >>>
If you, or a loved one, have been recently diagnosed with #MND, you are welcome to join our friendly online group who are meeting on Zoom tomorrow. Get in touch with Lisa (details in the flyer) for more information and joining details.
🎄🎅Here at the West London & Middlesex branch of @mndassoc we're feeling festive! Great to catch up at our festive party earlier this month. 🎄🎅
Some more snaps from a great day supporting Kevin Sinfield and @Rob7Burrow in Richmond Park on the final day of the #7in7in7 challenge.
Some more snaps from a great day supporting Kevin Sinfield and @Rob7Burrow in Richmond Park on the final day of the #7in7in7 challenge. https://t.co/dIHQnv8IdY
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
Jayne Halhead 🌹 @Jaynes__World
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David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
MND Assoc VIP & Event.. @mndVIPteam
5K Followers 2K Following News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
MND Education @mndeducation
3K Followers 2K Following The Education and Information team at the Motor Neurone Disease Association for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.
eyegazeartist @sarahezekiel
13K Followers 13K Following Loving life despite MND/ALS. Eyegaze & AI artist, @MND_NWLondon Branch Co-Chair & @LifelitesOrg Patron. Stunt double in Sarah's Story.
Nick Goldup @NickGoldup1
1K Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Greg Broadhurst @GregBroadhurst
2K Followers 1K Following Footy daft & @FCUnitedMcr Co-Owner. Volunteer / Campaigner MND Association @MNDassoc. Volunteer - @MNDManchester. F/Time Job - Insurance Broker. History Nerd
Chris James (he/him) @ChrisJamesMND
2K Followers 814 Following Director of External Affairs at the Motor Neurone Disease Association @mndassoc.
🏔️ Paul @ Munros.. @Munros4MND
2K Followers 3K Following 🌟 Doddie Champion 🌟 Attempting to climb Scotland's 282 highest mountains (Munros) & raising money for @MNDoddie5 🏔 £75,000 & counting... #DoingItForDad 💔
West Sussex North @MNDwestsussex
2K Followers 2K Following West Sussex North Branch of the MND Association. We support people living with MND, their families & their carers. https://t.co/dY75vHnmd6
MNDA Northern Ireland @MNDA_NI
2K Followers 2K Following 💙Raising awareness 🧡Supporting people with MND in NI ➡️FB: https://t.co/L8xEK0v5zV ➡️JustGiving:https://t.co/wX1lQPM1Qf #mndani Reg Charity No. 294354
Alex Ward MND Angel �.. @alexwardfund
525 Followers 895 Following Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. https://t.co/nYlk7THMZm
MNDA Leics & Rutland @MNDA_Leics
1K Followers 708 Following Leicestershire & Rutland branch of the Motor Neurone Disease Association.
Betty’s Brigade Fou.. @No_More_ALS
345 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
NURO CORP. @nuro_corp
687 Followers 3K Following One of the leading manufacturers of Neurotechnology.
150MND @150mnd
114 Followers 371 Following we are a team of friends aiming to raise £150k by walking 150 miles inspired by our great friend Rob who was recently diagnosed with MND. A Big Rugby fan
Mary @mary_ibarra48
2K Followers 3K Following
Chris Scandaglia @ChrisScandaglia
943 Followers 5K Following https://t.co/VTII0I4qsa President, in memory my grandfather where I have worked w AROD&CANO other NYY raised $10310 ALS widow, $4612 ALS widower & $2505 for ALS widow.
My MND Mates @MyMNDMates
43 Followers 105 Following An online community for those living with MND/ALS. We’re passionate in raising vital awareness of those diagnosed in the younger generations.
Allison Gaskell @GaskellAllison
22 Followers 97 Following
Sara @Sara56267153
2 Followers 113 Following
Martyn Clarke @clarkemartyn1
1K Followers 928 Following 7 Ironman Triathlons in 7 days #7for7IM 800 miles #TriathlonImpossible across Europe in 7 days raised £65k+ for #MND inspired by @rob7burrow
GreyCurmudgeon @greycurmudgeon
4K Followers 4K Following Motor Neurone Disease (MND) sufferer. Never trusts MSM so don't use them. Mostly prefer dogs to people. They're more honest & often more intelligent.
MotorNeuroneDisease @MNDPatients
4K Followers 3K Following Set up to help, advise & support people affected by #MND #ALS Ideas & suggestions welcome from everyone #NoCause #NoCure
Alon Ben-Noon @NoonAlon
1K Followers 3K Following Leading NeuroSense Therapeutics (Nasdaq: $NRSN), a Clinical stage Biotech company, accelerating therapies for ALS and Neurodegenerative diseases.
reem @reem05876685
2 Followers 23 Following
Darren Smith 🇬🇧.. @Dazza70Smith
5K Followers 4K Following “Promoting Positive Disabilty Awareness” Words to change the world so it becomes a place of Dignity and Respect for All. Always Smiling Forever Thankful💜🙏🤗♿️
SiHallas @SimonHallas2
347 Followers 2K Following Fundraising for MND. walking 100km in 1 day to raise money and awareness. Hull FC fanatic and Views are my own.
HFH Healthcare @HFHHealthcare
169 Followers 688 Following We provide specialist nurse-led #complexcare for adults and children across London and the home counties, delivered in the comfort of their own homes.
trac4GOOD @Trac4GOOD
272 Followers 1K Following trac4GOOD the virtual fundraising events app for charities. Available to download on iPhone App Store and Google Play for Android
Claire @ClaireBickley1
2 Followers 25 Following
Kielan Arblaster @kielankielan
487 Followers 754 Following Policy Manager @mndassoc. Former Senior Policy Officer @alzheimerssoc. Views (and contentious likes) my own
Lee Morrison @LeeMorrison2022
345 Followers 887 Following Disabled, ALS fighter, power chair, USMC & Army Veteran, Book seller on AbeBooks @ https://t.co/pFVnC80NOW NO DM!!!!! You WILL be blocked!!
Mind Over MND. @mindovermnd
114 Followers 171 Following
sioned Roberts Jones @sionedjones4
358 Followers 1K Following Sioned o Llanrug , yn briod a Mel , Mam Leah , Caryl & Cian , Nain Efan💙 Awel❤Casi❤️Dwi'n ❤ Cymru🏴 Ynys Môn 🏴Cymraes , plaid Cymru 💚 Teulu 🤍 #Mnd💙🧡
Ben O'Donnell @Ben_0D9
515 Followers 2K Following If ya ever in a jam, I'm ya man !! GOD:1944-2017 Ya hair looks nice ! LFC...WRUFC..Ashville U18’s
Rachel Young @rachelyoung1909
38 Followers 131 Following
All is Well: Lessons @AllsWell333
613 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
Ventilation Inpatient.. @AintreeVIC
89 Followers 255 Following Welcome to Aintree’s Ventilation Unit specialised in NIV and tracheostomy care.
Niall @NiallMurphy_
237 Followers 539 Following Senior Campaigns Advisor at @MNDassoc | Interested in social & environmental justice & Geopolitics 🌈 | @royalholloway @RHULGeography alumnus |
Peter Mills @millsdcfc
89 Followers 170 Following Happily retired, Grandad, DCFC East Stand season ticket holder, Secretary MNDA Glos, Cirencester Walking Football, Springsteen disciple.
Sandra @sandraJrodgers
94 Followers 2K Following Passionate about conservation and protecting the worlds vulnerable species, climate change and associated loss of biodiversity and health/disease and education
pradeep @PuligillaP
7 Followers 52 Following
Warren Schiffer @Wingsoverwallst
2K Followers 2K Following Join us 2 cure ALS (Lou Gehrig's Disease)! Cofounder of MDA's Wings Over Wall Street®, widower because of ALS (love & miss you Toni), recruiter of ALS Warriors.
ALS Society of NB and.. @CareAndHope
513 Followers 2K Following ALS NB & NS is the life-affirming advocate for people & their families helping them navigate through a confusing & difficult disease with dignity & purpose.
Nikhil Dawda @NikhilDawda1
116 Followers 762 Following
Elizk @Elizk84179966
216 Followers 906 Following
Kurt @The_bald_driver
141 Followers 281 Following life can be a dark and lonely place it's how we approach it that really matters ! BIG Villa fan Huge fan of the Luke clothing brand
MNDA Yorkshire Dales @MNDA_Dales
46 Followers 148 Following The Yorkshire Dales branch of the @MNDASSOC. We support people living with MND in the Yorkshire area. Find out more HERE 👉 https://t.co/7n5OPdLuhb
Ann Quinn @AnnAnnquinn
87 Followers 291 Following Branch Contact for the South Yorkshire Branch of the Motor Neurone Disease Association
Moonbeam Ninja @MoonbeamNinja
511 Followers 2K Following While we research for a cure, let's approve #NurOwn, T-regs and Cu-tsum for ALS patients.
Adam Brittain MND Ass.. @CommunityMnd
22 Followers 138 Following Community Engagement Partner at the MND Association. Working to ensure that no one faces MND alone.
Siobhain @gcomp_s
42 Followers 195 Following Doing all I can to help support my husband with ALS/MND.
Sam & The Bucket List @SJHH32
552 Followers 1K Following #MNDWarrior diagnosed 5/3/22, aged 35. Living with MND and living my BEST life! Husband ~ Daddy ~ Son ~ Brother ~ Friend.
MND Association | Nor.. @mndassocNI
676 Followers 595 Following Supporting those living with and affected by motor neurone disease in Northern Ireland as part of the @mndassoc.
aravind @aravind41593327
2 Followers 49 Following
Darryl Borsato @BorsatoDarryl
1K Followers 1K Following ALS Fighter, proud husband and SOD-1 Mutant #FuckALS #WorldStrongestALSPatient ALS Action Canada board member / ALS Society of BC Advocacy Committee member
Ally Grant @allyegrant
249 Followers 1K Following 🇺🇦MND, exBBC, continual picker-upper of toys and small bits that hurt your feet.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
Rob Burrow CBE @Rob7Burrow
199K Followers 2K Following Proud owner of the Autobiography of the year 2022. You can get it at all book stores or Amazon. #toomanyreasonstolive Number 1 Sunday times best seller!
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
Jayne Halhead 🌹 @Jaynes__World
6K Followers 4K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease #MND/#ALS #MND #MoreNeedsDoing! Championing #Lancashire
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
MND Assoc VIP & Event.. @mndVIPteam
5K Followers 2K Following News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
Brian Dickie @DrBrianDickie
2K Followers 293 Following Director of Research at the UK MND Association
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
MND Education @mndeducation
3K Followers 2K Following The Education and Information team at the Motor Neurone Disease Association for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.
eyegazeartist @sarahezekiel
13K Followers 13K Following Loving life despite MND/ALS. Eyegaze & AI artist, @MND_NWLondon Branch Co-Chair & @LifelitesOrg Patron. Stunt double in Sarah's Story.
Nick Goldup @NickGoldup1
1K Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Greg Broadhurst @GregBroadhurst
2K Followers 1K Following Footy daft & @FCUnitedMcr Co-Owner. Volunteer / Campaigner MND Association @MNDassoc. Volunteer - @MNDManchester. F/Time Job - Insurance Broker. History Nerd
Dr Ahmad Al-Khleifat @AhmadAlKhleifat
2K Followers 351 Following Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
Chris James (he/him) @ChrisJamesMND
2K Followers 814 Following Director of External Affairs at the Motor Neurone Disease Association @mndassoc.
West Sussex North @MNDwestsussex
2K Followers 2K Following West Sussex North Branch of the MND Association. We support people living with MND, their families & their carers. https://t.co/dY75vHnmd6
MotorNeuroneDisease @MNDPatients
4K Followers 3K Following Set up to help, advise & support people affected by #MND #ALS Ideas & suggestions welcome from everyone #NoCause #NoCure
sioned Roberts Jones @sionedjones4
358 Followers 1K Following Sioned o Llanrug , yn briod a Mel , Mam Leah , Caryl & Cian , Nain Efan💙 Awel❤Casi❤️Dwi'n ❤ Cymru🏴 Ynys Môn 🏴Cymraes , plaid Cymru 💚 Teulu 🤍 #Mnd💙🧡
West London Queer Pro.. @wlqp_org
284 Followers 296 Following Bringing West London’s LGBTQ+ Community together 🏳️🌈🏳️⚧️
Sam & The Bucket List @SJHH32
552 Followers 1K Following #MNDWarrior diagnosed 5/3/22, aged 35. Living with MND and living my BEST life! Husband ~ Daddy ~ Son ~ Brother ~ Friend.
Darryl Borsato @BorsatoDarryl
1K Followers 1K Following ALS Fighter, proud husband and SOD-1 Mutant #FuckALS #WorldStrongestALSPatient ALS Action Canada board member / ALS Society of BC Advocacy Committee member
Jordan @AnnmarieMND
585 Followers 890 Following Fighting to find a cure for Motor Nerones Disease! https://t.co/aOnxCOQQXK
VentMND Studies @VentMND
166 Followers 259 Following Studies exploring the use of home mechanical ventilation in MND. -VentMND - end of life decision making - closed -TVLife - Living with trachy vent- closed
Lambeth Together @LambethTogether
4K Followers 10K Following We are a partnership of NHS, council and community organisations working to improve health in Lambeth. Part of south east London's Integrated Care System (ICS).
Stuart Thom @StuartThom11
980 Followers 3K Following Ambassador of the My Name'5 Doddie Foundation.. Charity fundraiser.. Lover of all things sport..
Nicola Ransom @NicolaRansom4
27 Followers 97 Following
does not exist @mndsw_care
178 Followers 0 Following we are trying to leave Twitter as a moral step, but lack of support means deactivating account seems nigh impossible…just says oops try later. can’t even escape
Kibaya @Kibaya17061336
59 Followers 237 Following
東邦大学 脳神�.. @Neurology_Toho
350 Followers 276 Following 東邦大学脳神経内科の公式アカウントです。学生、研修医や専攻医の方の見学希望、入局相談はいつでも大歓迎です。https://t.co/WDoPO1h3ed
Martyn Clarke @clarkemartyn1
1K Followers 928 Following 7 Ironman Triathlons in 7 days #7for7IM 800 miles #TriathlonImpossible across Europe in 7 days raised £65k+ for #MND inspired by @rob7burrow
VoiceItt @Voiceitt
293 Followers 578 Following Voiceitt speech recognition for non-standard speech: opening the world of voice technology for people with speech disabilities and aging adults.
Rachel Brown @MND_CommsAids
236 Followers 224 Following MND Association Communication Aids Coordinator. All views are my own
Lee David Evans @LeeDavidEvansUK
5K Followers 5K Following Ramsden Fellow at @mileendinst. Writing about the brilliant, the trivial, the inspiring, the fascinating and downright odd from post-war British politics.
Sarah Jones @SarahJonesOT
329 Followers 744 Following Specialist Palliative Care Clinical Lead Occupational Therapist in Hywel Dda UHB. All views my own.
JulieDoyleCullen @JulieDoyleCull
556 Followers 821 Following Business woman and caregiver turned #author. Doing what I can to fight #ALS
Sam Spears @SpearsSam
194 Followers 692 Following PhD Student at UCL & @NikSharmaLab researching bespoke neck collars for people living with MND/ALS | MSc, BSc | he/him
CB Hounslow United @CBHounslowUTD
3K Followers 435 Following Official account of CB Hounslow Football Club. Currently playing in Combined Counties League - Division 1. #UpTheDragons #WelcomeToTheLair
Cllr John Martin @JM4NorwoodGreen
448 Followers 616 Following Labour🌹councillor for Norwood Green Southall | Small business owner | Chair Ealing High Streets Task Force. All views my own. Casework to [email protected]
themnddiaryproject @mnddiaryproject
158 Followers 332 Following Listening to stories of people living with Motor Neurone Disease to help improve future healthcare. Monitored 8-4 weekdays.
MNDa CheshireBranch @MNDa_Cheshire
348 Followers 280 Following Raising money and awareness to help support people throughout Cheshire. Fighting Motor Neurone Disease with incurable optimism!
Ruth Cadbury MP 💙 @RuthCadbury
25K Followers 1K Following Proud Labour MP since 2015 for Brentford & Isleworth (inc Hounslow Osterley & Chiswick) For news & sign-up for regular updates please see my website 👇🏻
Kelly Lewis @KellyLe57403676
41 Followers 159 Following Campaigning to improve the lives of people living with MND and their carers in their community.
Richard Cave 🇺🇦 @speedoftrust27
2K Followers 941 Following Speech and Language Therapist with MND Association & Adecco for Google. Part time PhD @ UCL. International Alliance of ALS Associations professional 2022 award.
Cathryn Pinto 💙 @CathrynPinto
951 Followers 1K Following Researcher in emotional wellbeing for people with neurological diseases Mental health | Digital health| Health Psychology trainee | Views are my own.
Rebecca Gatenby @littlebec88
124 Followers 307 Following A Yorkshire mother, writer and campaigner. If you enjoy poetry and short stories click on the link below to access my blog 👇🙂
Phil Rossall @prossall3
123 Followers 78 Following Living with motor neurone disease. https://t.co/nMT0br7Xue
Victoria Hamerton @Toraandbeth
48 Followers 76 Following
Jaspal's Voice MND @JaspalsVoice
261 Followers 301 Following BEM Award Jaspal's Voice is a non-profit org to raise awareness & funds for Motor Neurone Disease (ALS).Founder of MediVoice App https://t.co/FYcpbjoW3W
Jo Campbell MNDAssoc @jo_mndassoc
365 Followers 249 Following Area Support Co-ordinator for @mndassoc covering Devon & Cornwall Views are my own #worldfreefromMND #MND
MNDA - Hertfordshire .. @MndaHerts
349 Followers 505 Following We are the Hertfordshire branch of the MND Association. Supporting those living with and affected by MND.
Big Steps Of Hope @bigstepsofhope
224 Followers 403 Following Virtual #WalkToDFeet #MND 👣 Raising funds for @mndassoc. Taking steps together to d’feet Motor Neurone Disease. Sign up today! #BigStepsOfHope 💙🧡
The Neurological Alli.. @NeuroAlliance
7K Followers 947 Following 100+ organisations working together to improve workforce and services for everyone affected by neurological conditions. #BackThe1in6
Katherine Howells @DrKHowells
1K Followers 2K Following Team Leader - Modern Britain at @UKNatArchives. Historical images, memory and digital methods. PhD Digital Humanities. All views my own.
MND Association Tyne .. @MNDTyneAndWear
131 Followers 86 Following Twitter page for the @mndassoc Tyne and Wear Branch. Sharing news, research and information about #MND for those living in Tyne and Wear
MND Association North.. @mnd_NlandGroup
123 Followers 59 Following Twitter Feed of the @mndassoc Northumberland Group - sharing info and campaigning to support those with MND, Carers and Families living in Northumberland
ELA Colombia @ColombiaELA
495 Followers 449 Following Asociación Colombiana de Esclerosis Lateral Amiotrófica -ACELA. Miembro pleno de Alianza Internacional de Asociaciones de ELA. ALS Colombia
DougKerr @DougKer39026136
633 Followers 985 Following Cruise Plymouth Welcome Team Lead ⚓️ Kidney Research UK Ambassador Clean Our Patch Ambassador 🚮 Kidney Transplant recipient 🙏
The Voice Keeper @TheVoiceKeeper
347 Followers 1K Following Hassle-free voice banking technology which allows you to preserve your voice with just a few minutes of recording from your phone. Try it out for free #ALS #MND
Auntie Malorie @malorieblackman
75K Followers 1K Following Noughts & Crosses series, Pig Heart Boy, Boys Don't Cry, etc. Former UK Children's Laureate. Retweet ≠ agreement. She/her. Rep'd by https://t.co/6LikLNrJA8Lab grown motor neurons, that are activated by light, could be used to bypass damaged motor neurons in #MND #ALS. 🔦 @DrBarneyB and team have shown these neurons can improve muscle in early laboratory testing. Learn more: mndassociation.org/research/our-r…
Our latest @TrendsNeuro reviews an important mRNA surveillance pathway (NMD) in neuronal physiology and neurodegeneration: sciencedirect.com/science/articl… A pleasure to write this with the talented Marija Petrić Howe @PataniLab @UCLIoN @mndassoc @ListerInstitute @The_MRC @TheCrick
Motor neurone disease does not discriminate. It can impact people from all backgrounds – including those in the LGBTQ+ community. To mark Pride Month we’ve created a video featuring people living with #MND, supporters, ambassadors and staff. The MND Association is here for…
We have our @mndassoc branch get together tomorrow, 10th May. We will have @EuansGuide join us virtually to talk about their incredible award winning work. All are welcome, just turn up at @SaleFC Heywood Road venue on the night, we look forward to seeing everyone there.
Well done Graeme!
Here's the cast of @222aghoststory at the Lyric Theatre Shaftesbury Ave with Graeme Bloom, who lives with MND. Graeme organised a collection at the theatre last Saturday & with five branch members helping out they raised a fabulous £450 for @mndassoc !
THE LONDON MARATHON ✅💥 230 runners, over £600,000 raised. We are so proud of each and every member of #TeamMND who supported the fight against motor neurone disease today. 🧡💙 There’s no finish line until there’s a cure.
Just spotted at mile 21 Mo Farah flying past! We can’t wait to see Sir Kev! 💙🧡 @mndassoc #LondonMarathon
#Branches & #Groups if you have @MNDPatients in need of an #AAC device Pls contact @MND_CommsAids or #MND Connect Helpline it's free and offers information & support on all aspects of motor neurone disease 📞 0808 802 6262 📧 [email protected] mndassociation.org/support-and-in…
FYI, after only doing week 1 @Tanyacurry2 something I am very passionate about #AAC! @MND_CommsAids In 2022, the @mndassoc Communication Aids Service loaned 201 iPads and 279 #AAC apps to enable people living with #MND to continue to communicate
A new blockbuster novel, School Reunion, by @Iananderson27 who lives with #MND in @westsurreymnda area now out. All profits go to @mndassoc Available on Amazon at amazon.co.uk/Scho.../dp/B0B…... facebook.com/IanAndersonAut… Ian has a great following including @JudyMurray!
Who's tuning into @CBeebiesHQ right now? In 5 minutes, @Rob7Burrow will be reading tonight's Bedtime Story - Tilda Tries Again, a story all about perseverance. Rob will be using his communication aid - a first for the show. Watch live below 💙 #CBeebies #MND
Check out our @WL_MND Branch Seasonal Party! 🥧 Mince pies 🍷 Mulled wine, tea and coffee 🎶 Live music ❓ @theJeremyVine's MND Egghead Quiz Join Branch members and Jeremy himself, this 𝐒𝐮𝐧𝐝𝐚𝐲 𝟒𝐭𝐡 𝐃𝐞𝐜. Contact the Branch below to let them know you're coming! #MND
Well done BBC for showing that the loss of a physical voice should not be a barrier to participation. A little thoughtful adjustment and open-mindedness can make our world more inclusive. People are disabled by society’s inflexibility not by their bodies.
“It brought back so many memories of me reading to my own children” The former Leeds Rhinos player Rob Burrow is the latest celebrity to take part in the CBeebies Bedtime Story 🌙📘 He chose a book all about resilience and determination ⬇️
Sounds like a brilliant event @WL_MND 👏
Check out our @WL_MND Branch Seasonal Party! 🥧 Mince pies 🍷 Mulled wine, tea and coffee 🎶 Live music ❓ @theJeremyVine's MND Egghead Quiz Join Branch members and Jeremy himself, on 𝐒𝐮𝐧𝐝𝐚𝐲 𝟒𝐭𝐡 𝐃𝐞𝐜. Contact the Branch below to let them know you're coming! #MND
Check out our @WL_MND Branch Seasonal Party! 🥧 Mince pies 🍷 Mulled wine, tea and coffee 🎶 Live music ❓ @theJeremyVine's MND Egghead Quiz Join Branch members and Jeremy himself, on 𝐒𝐮𝐧𝐝𝐚𝐲 𝟒𝐭𝐡 𝐃𝐞𝐜. Contact the Branch below to let them know you're coming! #MND
#MND Warrior @RobBarrie389 was 24 when diagnosed with devastating motor neuron disease (#ALS) and he recently turned 30! Today he leaves for the trip of a lifetime to #Pittsburgh, home of his beloved #NHL @penguins 🏒! Safe travels, Rob! xx #LetsGoPens! #MND #MoreNeedsDoing
I’m backing the #SupportMNDCarers campaign which launches today. People with #MND are so reliant on carers, often unpaid family & friends. @mndassoc’s report shows only 25% of carers have been assessed to check if they need extra support. Please ask your MP to back a review 👇
Unpaid carers are at breaking point. Today, we launched our #SupportMNDCarers campaign calling on @SteveBarclay to launch an urgent government review into carer's assessments @mndcampaigns
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