Mid Kent Branch MNDA @MNDMidKent
Working to raise awareness and to support those affected by Motor Neurone Disease in the Mid Kent area midkentmnda.org South East, England Joined October 2015-
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Following200
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A fantastic result from our quiz night last Saturday. Massive thanks to @TheShaunWallace for being a brilliant quiz master.
Great day @Brands_Hatch for @mndassoc organised by Eric Matthews. Fastest fund raising event I’ve ever been to! Exhilarating laps of the track all helping to beat this cruel disease that kills six people in the UK every day.
@lauradonnlee Pls read letters to @Andrew4Pendle @NICEComms from @AmmarAlChalabi @kingsmnd @profcjmcdermott @neuroshef A tragedy for patients like @eleanor_dalley @united2endmnd & huge blow for future of precision medicine in UK ukmndri.org/2024/03/26/let… & ukmndri.org/2024/04/02/uk-…
Ordering your weekly shop online this weekend? 👀 You could win back the cost of your shop! ✨ Order online via easyfundraising with Tesco, Morrisons, ASDA, Sainsbury’s, Waitrose, Iceland, and Ocado before April 28th to be entered! 🙌 bit.ly/3vld1gx
Katy Styles making a very good point on @BBCBreakfast this morning! Unpaid carers perform a huge task. Carers Assessments are not being done properly these days by @Kent_cc where she lives. @RogerGough2 @DanWatkins please note. 👇🏼
New research published in @TheLancetNeuro has confirmed that neurological conditions are now the leading cause of ill health and disability globally. This groundbreaking research underscores the urgent need for action. neural.org.uk/news/neurologi… #BackThe1in6 #neuroscience
Next Tuesday at @Brands_Hatch, an opportunity for petrol heads to enjoy themselves & raise funds for @mndassoc @MNDMidKent @MNDANWK @MNDwestkent @MNDAEastKent @mndaeastsurrey @MNDAEastSussex @MNDwestsussex
@onein300 @NICEComms @GOVUK @VictoriaAtkins The government needs to get out of the way.
There has been a flurry of #MND #ALS clinical trial results in the last couple of weeks. Over on our blog we discuss a statistic which is often used to report on the outcome of clinical trials and why it’s important to delve a little deeper. Learn more: mndresearch.blog/2024/03/06/ris…
Tofersen has been proven to be effective for people with #SOD1 #MND, which accounts for 2% of all MND cases. NICE has said they do not view SOD1 MND as a clinically distinct disease - against advice from leading MND clinical experts. Read how we are taking action ⬇️
Very disappointing response from @NICEComms at board meeting today: - they will NOT reconsider - already considered it several times - taken expert clinical advice - want to discourage pharma targeting small groups (precision medicine??) What next for SOD1 patients??
Very disappointing response from @NICEComms at board meeting today: - they will NOT reconsider - already considered it several times - taken expert clinical advice - want to discourage pharma targeting small groups (precision medicine??) What next for SOD1 patients??
We learned today that a key performance indicator for @NICEComms is positive social media comments! They need to earn them 😡 Horrendous decision and effective death sentence @AmmarAlChalabi @kingsmnd @MNDPatients @MNDoddie5 @CharlotteHawkns @sallynugent
We learned today that a key performance indicator for @NICEComms is positive social media comments! They need to earn them 😡 Horrendous decision and effective death sentence @AmmarAlChalabi @kingsmnd @MNDPatients @MNDoddie5 @CharlotteHawkns @sallynugent
I don’t comment about ‘alternative’ & unproven ‘therapies’ because of the understandable situation that #mnd #als leaves us in. Sadly we can open ourselves up to exploitation. Take care & if something appears ‘too good to be true’ it probably is?. tandfonline.com/doi/full/10.10…
Devastating news.
Thanks so much to everyone who helped make this today's afternoon tea such a success - the organisers, helpers, buyers of books and raffle tickets, cake-eaters, tea-drinkers etc. It looks like we've raised a significant amount of money to help local plwMND 🥰
Reporting on #MND #ALS clinical trial results can sometimes lead to misleading headlines 📰 Our latest blog post discusses a statistic often used to report on the outcome of clinical trials and why it’s important to delve a little deeper. Read more: mndresearch.blog/2024/03/06/ris…
Pls email your MP to ensure patient voice is heard at @APPGonMND on Weds. Statement below, draft message to use as you wish at united2endmnd.org/2024/03/06/acc… Subject to confirmation of +ve trial outcome we need MPs to help us access therapy & get responses to unanswered questions #mnd
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Lee Millard @onein300
2K Followers 899 Following 1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
John Adams MND Warrio.. @JohnAda10163823
11K Followers 10K Following MND Warrior fighting to find a cure @mnd lifetime WBA supporter @WBA https://t.co/jGbYyoODnu?
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
MND Education @mndeducation
3K Followers 2K Following The Education and Information team at the Motor Neurone Disease Association for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.
MND Assoc VIP & Event.. @mndVIPteam
5K Followers 2K Following News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).
Alex Ward MND Angel �.. @alexwardfund
525 Followers 895 Following Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. https://t.co/nYlk7THMZm
Chris McDermott @profcjmcdermott
1K Followers 496 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
eyegazeartist @sarahezekiel
13K Followers 13K Following Loving life despite MND/ALS. Eyegaze & AI artist, @MND_NWLondon Branch Co-Chair & @LifelitesOrg Patron. Stunt double in Sarah's Story.
Chris James (he/him) @ChrisJamesMND
2K Followers 814 Following Director of External Affairs at the Motor Neurone Disease Association @mndassoc.
🏔️ Paul @ Munros.. @Munros4MND
2K Followers 3K Following 🌟 Doddie Champion 🌟 Attempting to climb Scotland's 282 highest mountains (Munros) & raising money for @MNDoddie5 🏔 £75,000 & counting... #DoingItForDad 💔
Jude de Vos @heyheyjude23
621 Followers 789 Following Fly Free Jody🌻A Mothers Love Never Dies🕊️Love You 4 Ever ❤️ : MND FundRaising Challenges: Ben Nevis 2022: Euro Motorbike 2018: Camino 2025
MNDA - Hertfordshire .. @MndaHerts
349 Followers 505 Following We are the Hertfordshire branch of the MND Association. Supporting those living with and affected by MND.
MNDANorwichWaveney @MNDANorWave
425 Followers 447 Following Norwich & Waveney branch of the Motor Neurone Disease Association. Branch area defined by all NR and IP21-27 postcodes inclusive. Facebook: MNDANorwichWaveney
West Sussex North @MNDwestsussex
2K Followers 2K Following West Sussex North Branch of the MND Association. We support people living with MND, their families & their carers. https://t.co/dY75vHnmd6
MNDA-EastKent @MNDAEastKent
632 Followers 138 Following MNDA-East Kent is a voluntary group supporting people living with MND and their carers.
All Terrain @ATWheelchairs
696 Followers 2K Following Some of the most amazing powered & Manual Wheelchairs you will ever see! Explore places you didn't think possible!
Nida Edwads @nid_edwad
36 Followers 5K Following
Meta Sanberg @me_sanber
47 Followers 4K Following
Betty’s Brigade Fou.. @No_More_ALS
343 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
Angela Stevens @TheNanStevens
295 Followers 763 Following Retired teacher, ex-wedding videographer & feature writer. Love dancing. Love Rock Choir. Hate live exports. Supporter of Manston Airport. All views my own.
phil @bungayphil
21 Followers 196 Following Hubby, Dad #PwP with #YOPD + #HSP7, Co-Lead of @medwayneuro1 + Sec of #MedwayNVDi, member of @UKHSPGroup + member #pcit @UniKent @OfMeadow @CORochesterSoc
Luke Drayson @DraysonLuke
344 Followers 1K Following UK Healthcare Development Manager: Rollz International : Sheffield Hallam Univerity BSc Physiotherapy
DRECK @DRECK1486325
80 Followers 2K Following
Lisa @Lisa63426373060
128 Followers 3K Following
Kimi Warren @KWarren6702
131 Followers 3K Following
150MND @150mnd
115 Followers 371 Following we are a team of friends aiming to raise £150k by walking 150 miles inspired by our great friend Rob who was recently diagnosed with MND. A Big Rugby fan
Oliver Ziff @ojziff
671 Followers 3K Following Dad to 3 princesses, Neurology SpR by day, ALS data scientist by night. Leeds United fan in between.
Pro dispose uk limite.. @prodisposeuk
351 Followers 3K Following Waste management company based in Ashford, kent. Fully licenced, covering Kent, Thanet and Medway areas Book your rubbish collection online!
Cathy Guillet @GuilletCat60185
69 Followers 3K Following
My MND Mates @MyMNDMates
43 Followers 105 Following An online community for those living with MND/ALS. We’re passionate in raising vital awareness of those diagnosed in the younger generations.
A.G.C.C U.G @CopticUganda
338 Followers 2K Following SUPPORT OUR ORPHANAGE BY DONATING ANY AMOUNT TO HELP ORPHANS TO GET REQUIREMENTS TO USE THANK YOU.🙏🏼😔
Asonibare Emmanuel Ti.. @asonibare23
416 Followers 4K Following Hello potential clients! We are fundraising professional guiding individuals and groups to achieve goals through successful crowdsourcing. Let's start
Jennie Starkey @StarkeyJennie
480 Followers 322 Following Mum of 4, educator, PhD student, diagnosed with MND Sept 2021. recently retired. Raising MND awareness through humour (sometimes dark) with my blog.
EndMND @EndMND
37 Followers 41 Following Fighting Motor Neurone Disease Through Fashion. 100% of profits donated to the Motor Neurone Disease Association.
Shuseson @shuseson13439
5 Followers 447 Following Gods determine what you're going to be。Contact me Telegram number:
Toshem @Toshem163041
38 Followers 1K Following
SiHallas @SimonHallas2
347 Followers 2K Following Fundraising for MND. walking 100km in 1 day to raise money and awareness. Hull FC fanatic and Views are my own.
HFH Healthcare @HFHHealthcare
169 Followers 688 Following We provide specialist nurse-led #complexcare for adults and children across London and the home counties, delivered in the comfort of their own homes.
Claire @ClaireBickley1
2 Followers 25 Following
Millie Jenkins @MillieJenkinss
289 Followers 382 Following Associate Consultant in the Health Team at Portland Communications. Previously at the MND Association. All views are my own.
Rochester Cathedral @RochesterCathed
9K Followers 3K Following England's second oldest cathedral, founded in AD 604. Home of Textus Roffensis, the only existing written copy of the first code of English law.
Mind Over MND. @mindovermnd
114 Followers 171 Following
Rachel Young @rachelyoung1909
38 Followers 131 Following
Lee Morrison @LeeMorrison2022
345 Followers 887 Following Disabled, ALS fighter, power chair, USMC & Army Veteran, Book seller on AbeBooks @ https://t.co/pFVnC80NOW NO DM!!!!! You WILL be blocked!!
All is Well: Lessons @AllsWell333
614 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
Ventilation Inpatient.. @AintreeVIC
89 Followers 255 Following Welcome to Aintree’s Ventilation Unit specialised in NIV and tracheostomy care.
巴中喝茶资源 @4bab599620634ec
1 Followers 22 Following 购买资源的兄弟点击🔜 @wwl0101（点击蓝色字体自动跳转）资源1个50，三个98，198成为会员可享受所有资源。会员可进群！
MNDA Yorkshire Dales @MNDA_Dales
46 Followers 148 Following The Yorkshire Dales branch of the @MNDASSOC. We support people living with MND in the Yorkshire area. Find out more HERE 👉 https://t.co/7n5OPdLuhb
Stepping Out @CarersStepOut
699 Followers 2K Following Offering glorious walks for #carers and those they care for across the country @TNLUK @sport_england #socialprescribing
Age Care Bathrooms @agecareuk
281 Followers 1K Following The UK's leading Independent Mobility Bathroom and Shower Specialists. 🚽🚿🛁
MND Black Country Gro.. @mndblackcountry
21 Followers 33 Following Twitter feed for Black Country Group of Motor Neurone Disease Association. Supporting those living with MND in Walsall, Dudley, Sandwell & Wolverhampton.
TwoParaReg @2410davesmart
0 Followers 17 Following
Geoff @Gebinh1
15K Followers 13K Following MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
LeMND24 @LeMND24
150 Followers 59 Following World Record Attempt in aid of MND - distance travelled in a golf buggy in 24hrs 29th April 2023 Totally Wicked Stadium
Elizk @Elizk84179966
216 Followers 906 Following
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
Pat Dolan @Team_Thriving
947 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmapping
Kurt @The_bald_driver
141 Followers 281 Following life can be a dark and lonely place it's how we approach it that really matters ! BIG Villa fan Huge fan of the Luke clothing brand
Prof.Dr İdrisoglu @HAidrisoglu
259 Followers 3K Following
Lord-Lieutenant of Ke.. @LordLieutKent
2K Followers 1K Following Twitter account for HM Lord-Lieutenant of Kent, His Majesty The King’s official representative in the County of Kent.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
Lee Millard @onein300
2K Followers 899 Following 1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
My Name'5 Doddie Foun.. @MNDoddie5
38K Followers 252 Following Registered Charity, established by Doddie Weir & friends to raise funds to aid research into Motor Neuron Disease & supporting fellow sufferers.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
Jayne Halhead 🌹 @Jaynes__World
6K Followers 4K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease #MND/#ALS #MND #MoreNeedsDoing! Championing #Lancashire
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
John Adams MND Warrio.. @JohnAda10163823
11K Followers 10K Following MND Warrior fighting to find a cure @mnd lifetime WBA supporter @WBA https://t.co/jGbYyoODnu?
Rob Burrow CBE @Rob7Burrow
199K Followers 2K Following Proud owner of the Autobiography of the year 2022. You can get it at all book stores or Amazon. #toomanyreasonstolive Number 1 Sunday times best seller!
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
Brian Dickie @DrBrianDickie
2K Followers 293 Following Director of Research at the UK MND Association
MND Education @mndeducation
3K Followers 2K Following The Education and Information team at the Motor Neurone Disease Association for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.
MND Assoc VIP & Event.. @mndVIPteam
5K Followers 2K Following News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).
Greg Broadhurst @GregBroadhurst
2K Followers 1K Following Footy daft & @FCUnitedMcr Co-Owner. Volunteer / Campaigner MND Association @MNDassoc. Volunteer - @MNDManchester. F/Time Job - Insurance Broker. History Nerd
Alex Ward MND Angel �.. @alexwardfund
525 Followers 895 Following Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. https://t.co/nYlk7THMZm
Chris McDermott @profcjmcdermott
1K Followers 496 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Oliver Ziff @ojziff
671 Followers 3K Following Dad to 3 princesses, Neurology SpR by day, ALS data scientist by night. Leeds United fan in between.
Colin Batt Removals @BattRemovals
323 Followers 404 Following Award winning house removal and storage company, piano removal experts. Container storage, climate controlled storage, document archive and shredding.
Jennie Starkey @StarkeyJennie
480 Followers 322 Following Mum of 4, educator, PhD student, diagnosed with MND Sept 2021. recently retired. Raising MND awareness through humour (sometimes dark) with my blog.
UK MND Research Insti.. @UKMNDRI
551 Followers 58 Following A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
Gulbenkian Arts Centr.. @TheGulbenkian
12K Followers 4K Following We are the Arts Centre @UniKent. Note: We no longer manage this channel. Find us on other platforms or https://t.co/kF8ELzDDy5
Geoff Burrow @burrow_geoff
9K Followers 181 Following Husband to my beautiful wife, Irene, and Proud Dad and Grandad. Fighting to find a Treatment and Cure for MND - we are SO CLOSE 👍👊🤞
Tim Atkinson @TimJAtkinsonMND
485 Followers 831 Following @mndassoc National Campaigns Manager Interested in activism, #volunteering, charities, community organising, and health and social care.
Millie Jenkins @MillieJenkinss
289 Followers 382 Following Associate Consultant in the Health Team at Portland Communications. Previously at the MND Association. All views are my own.
Leanne Prettyjohns @LPrettyjohns
678 Followers 2K Following #NUFC & #SheppeyUtd Fan! My husband @NigePrettyjohns was diagnosed with #MND (#ALS) Nov '13. Lost his battle May ‘19. Living life with no regrets.
David Monteith @davidrmmonteith
2K Followers 904 Following Dean of Canterbury , Chair of the Church of England College of Deans, gardener and poetry reading Irish man in exile.
Prof.Dr İdrisoglu @HAidrisoglu
259 Followers 3K Following
Verein ALS Schweiz @_als_schweiz
407 Followers 380 Following Amyotrophe Lateralsklerose (ALS) ist eine unheilbare Erkrankung des zentralen und peripheren Nervensystems.
Helen Whately @Helen_Whately
27K Followers 586 Following Member of Parliament for Faversham and Mid Kent. Minister of State for Health and Social Care.
Lord-Lieutenant of Ke.. @LordLieutKent
2K Followers 1K Following Twitter account for HM Lord-Lieutenant of Kent, His Majesty The King’s official representative in the County of Kent.
Patients United2EndMN.. @united2endmnd
473 Followers 74 Following We are a group of patients, working to support the drive for a cure for MND.
Richard Mead @Richard_Mead
549 Followers 399 Following Christian, Senior Lecturer @neuroshef, drug hunter, likes running on the hills in terrible weather
The Hydration Foundat.. @hydration_found
130 Followers 334 Following We are a charity that donates hands-free drinking systems (The Hydrant) to the elderly & those less mobile, preventing dehydration & its health risks. Est: 2016
Anne Rowling Regenera.. @AnneRowlClinic
1K Followers 347 Following A charitable facility @EdinburghUni delivering research & trials for people with neurological conditions including MS, MND, Parkinson's and cognitive disorders.
Alli Anthony @AlliAnthony2
150 Followers 218 Following Proud to be working for the Motor Neurone Disease Association
Funding for All @FundingforAll
2K Followers 2K Following FFA provides free, expert fundraising advice to Kent & Medway’s voluntary sector. Visit our website to find out how we can support your organisation.
Judith Newton @JNewton_MND
808 Followers 434 Following MND Nurse Consultant for Scotland, working closely with @MNDScotland & @EuansCentre. Views 100% my own.
KentUnited2EndMND @KentSings
29 Followers 73 Following The Kent MND Branches and Groups have come together to work for those living with MND in the county. YouTube channel at Kent Sings 2 End MND.
Sam & The Bucket List @SJHH32
552 Followers 1K Following #MNDWarrior diagnosed 5/3/22, aged 35. Living with MND and living my BEST life! Husband ~ Daddy ~ Son ~ Brother ~ Friend.
Rebecca Francis @bekfrancis
87 Followers 153 Following Speech Pathologist, PhD Candidate @Flinders #dysphagia #MND
Jessica @BarclayJessica
117 Followers 683 Following
Jordan @AnnmarieMND
585 Followers 890 Following Fighting to find a cure for Motor Nerones Disease! https://t.co/aOnxCOQQXK
MND Navigate @MndNavigate
337 Followers 261 Following Diagnosed with MND 2019. Sharing my journey with MND to hopefully inspire others to live strong and with positivity-Also founder of MND Elite -views are my own
Jason liversidge @LiversidgeJason
2K Followers 2K Following Terminally ill family guy with MND and fabry's, fighting the odds to make memories and raise awareness, doing crazy challenges despite being wheelchair bound.
Liz Liversidge @LiversidgeLiz
2K Followers 5K Following Mother, wife, Social Worker. Love life. Married to @LiversidgeJason, the most inspirational person I know, fighting #MND & #FabryDisease #DIYSOS family.
Kill Phil: The Podcas.. @KillPhilPodcast
233 Followers 820 Following Kill Phil: The Podcast. Following @philnewby5's journey with MND as he unpacks the debate on assisted dying with prominent experts and campaigners.
Compaid @CompaidTW
317 Followers 121 Following Compaid helps thousands of disabled and other vulnerable people in Kent to overcome digital, social and economic exclusion.
KM Charity Team @KMCharityTeam
4K Followers 2K Following Inspire Schools, operating as KM Charity Team, delivers literacy and health & wellbeing services in schools and collaborative fundraising events.
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
MND Peer Support @MND_PeerSupport
227 Followers 1K Following A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent
Sean White @SeanWhi00489566
421 Followers 620 Following Dietitian/NIHR doctoral fellow in Sheffield. Interested in decision making and the nutritional management of people with MND. Any views expressed are my own.
Rob Sanderson @GrainStorageRob
2K Followers 3K Following “Retired” (early obviously)from Openfield in 2018.Bit of consultancy now. Love sport: President WinchesterRFC. Raising awareness & funds for MNDA #CycleForKate.
KMTV @KMTV_Kent
6K Followers 671 Following Kent's dedicated TV Channel #KMTVKent 📺 Provided by @UniKent & @Kent_Online 🎥🎙 Have a story? Get in touch📲 Freeview 7 | Virgin 159
VoiceItt @Voiceitt
293 Followers 578 Following Voiceitt speech recognition for non-standard speech: opening the world of voice technology for people with speech disabilities and aging adults.
Unite ALS @unite_ALS
1K Followers 4K Following Unite is developing an all-in-one platform to bridge the gap between the #ALS community & researchers to accelerate the development of treatments & cures.
Rachel Brown @MND_CommsAids
236 Followers 224 Following MND Association Communication Aids Coordinator. All views are my own
Roger Widdecombe @RWiddecombeMND
477 Followers 327 Following Regional Fundraiser for @mndassoc covering the East of England.
Nicholas Cole @nickjamescole
479 Followers 182 Following Head of Research for The MND Association. MND ALS Research Scientist, Research Group Leader, Adjunct Research Fellow, Kitesurfer, Husband, Dad.
LifeArc @lifearc1
7K Followers 3K Following Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.
Rochester Cathedral @RochesterCathed
9K Followers 3K Following England's second oldest cathedral, founded in AD 604. Home of Textus Roffensis, the only existing written copy of the first code of English law.
Hey I know him! 😍
And the winner of the final category of awards- Individual achievement award- is none other than the champion of safety @DavidDjward. The advocate for #SaferCarsForIndia and many other projects. We will run out of space to write the achievements. Heartiest congratulations!!!
Great day @Brands_Hatch for @mndassoc organised by Eric Matthews. Fastest fund raising event I’ve ever been to! Exhilarating laps of the track all helping to beat this cruel disease that kills six people in the UK every day.
@AberdareNic We are NOT campaigning for an unproven drug. We are merely campaigning for the results of a trial! #als #mnd research is truly challenging but we cannot overlook basic process issues. 2 years and still no results on just 200 patients? Something is very wrong? #united2endmnd
Another great @mndassoc fund raising opportunity at Brands Hatch!
Next Tuesday at @Brands_Hatch, an opportunity for petrol heads to enjoy themselves & raise funds for @mndassoc @MNDMidKent @MNDANWK @MNDwestkent @MNDAEastKent @mndaeastsurrey @MNDAEastSussex @MNDwestsussex
Next Tuesday at @Brands_Hatch, an opportunity for petrol heads to enjoy themselves & raise funds for @mndassoc @MNDMidKent @MNDANWK @MNDwestkent @MNDAEastKent @mndaeastsurrey @MNDAEastSussex @MNDwestsussex
Wonderful to celebrate my mother Pat’s 100th birthday today. Great to be with sisters Sue & Jenny with some of her 12 grand & 18 great grandchildren & share congrats from HRH KCharles. Lots to celebrate, WW2 service as a Wren, marriage to my father Sam, & bringing up family of 3.
🖤 Yesterday we said our final farewell to #MND Warrior Sir John of #Droitwich, @JohnAda10163823. Thanks for being such a lovely man, so laugh-out-loud funny and for your legacy of love and hope on behalf of your #MND family! Lay down your sword, Sir John, night night....
There has been a flurry of #MND #ALS clinical trial results in the last couple of weeks. Over on our blog we discuss a statistic which is often used to report on the outcome of clinical trials and why it’s important to delve a little deeper. Learn more: mndresearch.blog/2024/03/06/ris…
In tears watching @moraisfilipe20 raise our fight for Mirocals data on the BBC this morning🥺 Not many people have stood up for us, so thank you Filipe 🙏 and thanks to your dear friend Stephen @DarbyRimmerMND who we all love to bits! ❤️ #mirocals
We are proud to share that we are now full members of the Association of Medical Research Charities (@AMRC) 🧬 Achieving full membership demonstrates our dedication to supporting the most promising science & adhering to best practices. Full story 👇 myname5doddie.co.uk/whats-on/artic…
I don’t comment about ‘alternative’ & unproven ‘therapies’ because of the understandable situation that #mnd #als leaves us in. Sadly we can open ourselves up to exploitation. Take care & if something appears ‘too good to be true’ it probably is?. tandfonline.com/doi/full/10.10…
Reporting on #MND #ALS clinical trial results can sometimes lead to misleading headlines 📰 Our latest blog post discusses a statistic often used to report on the outcome of clinical trials and why it’s important to delve a little deeper. Read more: mndresearch.blog/2024/03/06/ris…
On behalf our family Thankyou everyone for all your love and support We are overwhelmed with the response we have had and how much people loved Dad I have been asked if people could donate in his memoryI have attached his link for mnd. @mndassoc justgiving.com/fundraising/Jo…
It’s absolutely vital we get proven treatments to those with motor neurone disease as soon as possible. To do this, today alongside @MNDScotland and @MNDoddie5, we've written letters to both regulators and ILTOO Pharma regarding the MIROCALS trial. Read more information below.
Proud to have been involved with @mndassoc & @MNDoddie5 since my diagnosis. Both charities do an amazing amount of good with support & research. Care & Cure are equally important. In my opinion cure is the pinnacle of care. Thanks for sharing @JillADouglas
Incredibly proud to showcase some of the vital research we fund with our new research portfolio page 🔬 My Name’5 Doddie has committed over £11M to research – a figure that'd make Doddie proud as we work to fulfill his legacy of a World Free of MND myname5doddie.co.uk/research/our-r…
Save the date! On Friday 21st June the Kent MND community is organising a special @RockChoir concert to mark Global MND Awareness Day. Funds raised will help people living with this cruel disease. Tickets are available now - see: thegulbenkian.co.uk/events/rock-ch…
The first patient facing project of @UKMNDRI is EXPERTS-ALS. Here is a short post on how it's moving on. Hope you find exciting & interesting. The project was made possible by @GOVUK £50M investment into translational research. #united2endmnd #als #mnd united2endmnd.org/2024/02/19/beh…
Know what NHS Continuing Healthcare funding is? It's not means tested & can make a big difference to your finances IF you are eligible. But it can be a very daunting process. At our "peer support group" meetings we share experiences that might help others. Join us Monday 11 AM.
Delighted to share this opportunity for UK #MND clinical, nursing & AHPs to join a UK MND competency session run by @JNewton_MND, Scotland's Lead MND Nurse Consultant & Clinic Manager @AnneRowlClinic. See below for more details⬇️
Delighted to be running the U.K. clinical and research nursing and AHP competency session - open to any MND professional - get in touch if you’d like to join us- please share @MNDoddie5 @mndassoc @MNDScotland @ADFoundationUK @UKMNDRI
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