SickleCellWI @SickleCellWI
Official account of @DrAmandaBrandow and @AshimaSinghPhD's #SCD research in WI focused on improving patient outcomes & healthcare at MCW. Tweets are our own covidsicklecell.org Milwaukee, WI Joined September 2019-
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Are you a student with #sicklecelldisease? Check out these scholarship apps! Click on the QR code to learn more! @childrenswi @MilwaukeeMPS @alaafisisc #scdcwi #freemoney @EveryLifeOrg everylifefoundation.org/rare-scholarsh… @pfizer togetherforrare.com/scholarships @iascnapa iascnapa.org/about-3
Here are 5 facts about #sicklecelldisease you should know! @CDC_NCBDDD @ConquerSCD @SickCells @SCCConsortium @SCDAAorg
DYK? 1/350 Black babies is born with #SCD across 11 states in the U.S. A new CDC study found many babies w/SCD are born in counties with high or very high levels of social vulnerability. Learn more about SCD in newborns: bit.ly/48AC3Wa #SCDAwareness #SCDCWI @CDC_NCBDDD
Today is Day 1 of the SCD Policy Forum. We start at 11AM ET to learn about the federal priorities for the sickle cell disease community and prepare for Day 2's Virtual Hill Day. Stay hydrated and see you soon! #SCDPolicyForum #FundSickleCell #SickCells #SC3
#SCD Warriors or caregivers, are you ready to share your story and showcase your strength? #SCDCWI is putting together a powerful photoblog to celebrate the resilience of individuals like you! If interested in being featured and sharing your journey, email us! Link in comments
Today on #RareDiseaseDay, we reflect on the progress that has been made in #SickleCell and resolve to stay the course. Learn about recent progress and get updates on what ASH and partners are doing to improve the lives of all affected with SCD: ow.ly/KJg750QH9Rn
Curious about SCD in WI?Check out this snapshot from the CDC's #SickleCellDataCollection program in WI! Gain insights into the prevalence and epidemiology of SCD in WI. Let's raise awareness and advocate for better support and resources! @CDC_NCBDDD @MCW_Research @UWHealth @DHSWI
What we really want this Valentine's Day is improved access to high-quality outpatient care for individuals living with #SickleCell. #HealthPolicyValentines #ConquerSCD #SickleCell #SCD #SickleCelldisease #FundHealth #DontCutCures
Ya Vandyk @vandyk_y
73 Followers 5K Following
Becky Anderson @BeckyAnder62539
0 Followers 242 Following
Tiffany Miller @TiffanyMil96945
0 Followers 613 Following
Nora Marsh @MarshNora59425
41 Followers 5K Following
Liz Tish @LizTish322669
43 Followers 5K Following
Monserrate Raider @monserr_rai
61 Followers 5K Following
Kimberley Borelli @BorellKimberl
97 Followers 5K Following
Reeva Beckelhimer @ReevaBecke96017
18 Followers 3K Following
Michael Smith @MichaelatMarti
12 Followers 81 Following
Elisa Dovenbarger @DovenbargEli
25 Followers 3K Following
Lisa Lewis @IrishRed85
84 Followers 385 Following
Danielle Nance @DanielleNanceMD
104 Followers 388 Following
Bu_tia7 @BTia790089
31 Followers 2K Following
Melanie_US_ @MelanieUS244456
30 Followers 2K Following
Margie @landaumargie65
217 Followers 3K Following
Cordie Stayter @c_stayte
60 Followers 5K Following
Clara Benson @ClaraBenso73003
99 Followers 3K Following
MilaEccles @MilaEccles23584
30 Followers 2K Following
Owoeye David @davoshalom
774 Followers 2K Following God Lover. Infection Prevention & Control Specialist. Sickle Cell Warrior & Advocate. Author. https://t.co/9z1lvAfJYh…
CTEN Wisconsin @CTENWI
101 Followers 217 Following It is our mission to be recognized nationally and internationally as a leader in patient care, innovation and collaboration for the benefit of our patients.
Susan Frank @SFrank32513
137 Followers 3K Following
Donna @mahr_donna26
148 Followers 3K Following
Jagger Fields @FieldsJagg52317
113 Followers 3K Following
Jillian Hernandez @JillianHer7444
82 Followers 3K Following
New York State Sickle.. @NYSSCAN
1K Followers 1K Following New York Chapter of SCDAA (Formerly known as QSCAN) This is the only official twitter page for NYSSCAN Donate to our Givelively: https://t.co/h0C38Wy64t
Cali Hutchinson @Hutchinson52681
86 Followers 3K Following
stacy cowan @stacyaz2003
53 Followers 3K Following
Dr. Nina @nfayanders
627 Followers 848 Following Holistic Health Practitioner. Sickle Cell Expert. Producer of TOVA Tuesday Podcast. #PrimarySpecialtyCare #Research #Outreach
Ankur @ankurchugh02
62 Followers 153 Following Pediatric gastroenterologist @childrenswi. Formerly in finance @baincapital. Loves sports and family. Views my own.
Ann @jaredann34
144 Followers 3K Following
Lacey @lacey_jonson
220 Followers 3K Following
Kushal kriplani, @kushal_kriplani
244 Followers 527 Following MBBS @SJHDELHI, IM/Peds applicant Match 25 🇮🇳🇺🇸| I talk about Medical education/ Man Utd /Bucks
As One Foundation @AsOneFoundation
788 Followers 1K Following We educate to empower the global sickle cell population one family at a time.
Sickle Cell Midwest @sicklecellmw
968 Followers 504 Following The Uriel Owens Chapter is dedicated to supporting families in the greater Kansas City area that are dealing with sickle cell disease.
Kevin Davies @KevinADavies
9K Followers 2K Following Author "EDITING HUMANITY: The CRISPR Revolution and the New Era of Genome Editing"; Exec Ed @CRISPRJournal, @GENbiotechjrnl; @hwaspeakers
Martin Center SCI @MartinCenter
961 Followers 347 Following Martin Center Sickle Cell Initiative is a human services agency dedicated to aiding and enhancing the lives of those affected by Sickle Cell in Central Indiana.
V100.7 Milwaukee @V1007
7K Followers 1K Following Milwaukee's Only Hip-Hop and R&B! On-Air, Online, and streaming worldwide on your smartphone with the @iheartradio app! #theVmke
Elle Cole (She/her) @Cleverlychangin
11K Followers 9K Following International best-selling (8X) author Speaker & advocate for #sicklecelldisease Producer & #CleverlyChangingPodcast Host 💌 [email protected]
Nana Yaa @NanaYaa75340272
4 Followers 77 Following
Cheryl Stucky @Dr_CherylStucky
2K Followers 381 Following I'm a neuroscientist at the @MedicalCollege and study #pain and touch #neuroscience
MCW Child Neurology @mcw_peds_neuro
285 Followers 295 Following Official Twitter of the MCW Child Neurology Division 🧠 Milwaukee, WI 📍 Instagramhttps://www.instagram.com/mcw_peds_neuro/?hl=enKl3
THE SICKLE CELL SUPPO.. @SupporUnit
40 Followers 453 Following A community-based organization established to improve the lives of people with and afflicted by sickle cell disease through knowledge, skills, and advocacy.
Dianise Rodríguez Ga.. @DRGPhDCandidate
357 Followers 555 Following Puerto Rican neuroscientist studying pain in sickle cell disease | PhD student at #stuckylab | (she/ella)
Meghan Konda @Meghan_Konda
387 Followers 1K Following peds neuro MCW PGY2 | passionate about child neurology, diversity, research, and faith in medicine | Christian, crazy bird lady, INFJ, traveler, and painter
Ti-Lo @DrTitiFasipe
1K Followers 1K Following Sickle cell warrior and pediatric hematologist. Opinions are my own and not meant to be medical advice.
Journal of Communicat.. @JCIHonline
793 Followers 277 Following Leading journal by @tandfmedicine. Publishes research, interventions & perspectives on #healthcommunication in #healthcare #publichealth #globalhealth #medicine
Alaafia @alaafisisc
796 Followers 4K Following Alaafia serves as a safe space, offering empowerment, resources and assistance to African immigrant families and those affected by Sickle Cell.
CTEN Wisconsin @CTENWI
101 Followers 217 Following It is our mission to be recognized nationally and internationally as a leader in patient care, innovation and collaboration for the benefit of our patients.
Johns Hopkins Bloombe.. @JohnsHopkinsSPH
510K Followers 3K Following @JohnsHopkins Bloomberg School of Public Health. • https://t.co/oQFdQ4hFwU 🦠 • @PublicHealthPod 🎧 • @GHN_News 📧
Sickle Cell Midwest @sicklecellmw
968 Followers 504 Following The Uriel Owens Chapter is dedicated to supporting families in the greater Kansas City area that are dealing with sickle cell disease.
New York State Sickle.. @NYSSCAN
1K Followers 1K Following New York Chapter of SCDAA (Formerly known as QSCAN) This is the only official twitter page for NYSSCAN Donate to our Givelively: https://t.co/h0C38Wy64t
As One Foundation @AsOneFoundation
788 Followers 1K Following We educate to empower the global sickle cell population one family at a time.
JMIR Publications @jmirpub
37K Followers 16K Following #OpenScience publisher of #oa journals. J Med Internet Res (IF 7.4, JMIR #PublicHealth (IF 8.5), #overlay #JMIRx #planp #digitalhealth #digitalscience
Malaika Jabali @MalaikaJabali
40K Followers 2K Following Author: It's Not You, It's Capitalism @AlgonquinBooks Former Sr. News & Politics Editor @Essence | 2024 New America Fellow
National Alliance of .. @nascc_org
359 Followers 127 Following Official Twitter account of the National Alliance for Sickle Cell Centers. Providing support to centers around the nation in the pursuit of equitable treatment.
Martin Center SCI @MartinCenter
961 Followers 347 Following Martin Center Sickle Cell Initiative is a human services agency dedicated to aiding and enhancing the lives of those affected by Sickle Cell in Central Indiana.
V100.7 Milwaukee @V1007
7K Followers 1K Following Milwaukee's Only Hip-Hop and R&B! On-Air, Online, and streaming worldwide on your smartphone with the @iheartradio app! #theVmke
Pat McGann, MD @PTMcGann
4K Followers 1K Following #SickleCell #GlobalHealth #ObamaLeader Views/Tweets my own
@husicklecell @husicklecell
65 Followers 46 Following Official Twitter account for the Howard University Center for Sickle Cell Disease. Happy World Sickle Cell Day!
Elle Cole (She/her) @Cleverlychangin
11K Followers 9K Following International best-selling (8X) author Speaker & advocate for #sicklecelldisease Producer & #CleverlyChangingPodcast Host 💌 [email protected]
MCW-Institute for Hea.. @MCW_IHE
335 Followers 98 Following Institute for Health & Equity improves health and advances equity through research, education, and shared expertise by working collaboratively with communities.
Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMq
CMSGov @CMSGov
202K Followers 116 Following Official Twitter account for the Centers for Medicare & Medicaid Services (CMS). Official government account. Authentication: https://t.co/phdhdq21Gg
Charles P. Clayton @cclayton123
450 Followers 734 Following
HRSA @HRSAgov
40K Followers 232 Following The official government account of the Health Resources and Services Administration, an agency of @HHSgov. Authentication: https://t.co/abEVq8MjRu
MCW Graduate School @mcwgradschool
864 Followers 661 Following Fueled by curiosity. Focused on health.
NIH NHLBI @nih_nhlbi
80K Followers 661 Following Official account of the NHLBI. Leading @NIH institute on heart, lung, blood, & sleep disorders research. Privacy/comment policy: https://t.co/ZmlSJVOcAH
CTSI of Southeast WI @CTSIWI
363 Followers 547 Following A border less, synergistic biomedical research enterprise that is accelerating the translation of research discoveries into new and improved medical treatments.
Ti-Lo @DrTitiFasipe
1K Followers 1K Following Sickle cell warrior and pediatric hematologist. Opinions are my own and not meant to be medical advice.
MedicaidGov @MedicaidGov
16K Followers 140 Following A federal government managed Twitter account by the Centers for Medicare & Medicaid Services. Retweets or Follow ≠ Endorsements
WIDeptHealthServices @DHSWI
24K Followers 274 Following The Official Twitter Account for the Wisconsin Department of Health Services -- Visit us online at: https://t.co/CUjtPdRJqq
Jeff Huebner, MD, FAA.. @jhuebnermd
161 Followers 300 Following Family Doc, #Medicaid leader, striving for health equity. Tweets are my own
UnityPoint Health - M.. @uph_meriter
2K Followers 720 Following Helping you go from getting well to staying well, because you matter to this world.
WMJonline @WMJonline
64 Followers 29 Following Advancing the art and science of medicine in the Midwest
CDC_NCBDDD @CDC_NCBDDD
9K Followers 484 Following CDC’s Center protecting those most vulnerable to health risks: babies, children, people with blood disorders, disabilities, and those at increased genetic risk.
UW Health @UWHealth
21K Followers 2K Following We provide expertise and quality care to patients and families throughout Wisconsin, Northern Illinois and beyond.
Tony Evers @Tony4WI
63K Followers 1K Following Governor of Wisconsin. Former WI state schools Superintendent. Father, Educator, Euchre enthusiast, and lifelong Badger.
Hervé Falet 🌻 @hfalet
1K Followers 2K Following Cell Biologist, Hematologist • Platelets, Megakaryocytes, Membrane-Cytoskeleton Interactions • @BloodResearchWI @Versiti @MedicalCollege
Governor Tony Evers @GovEvers
116K Followers 239 Following Husband to Kathy, lifelong educator, Euchre and bobblehead enthusiast, and 46th Governor of the State of Wisconsin.
DreamsiCkle Kids Fdn @DreamsiCkleKids
1K Followers 3K Following 501(c)(3)#SickleCellAdvocates #MakeSickleCellPopular #Nevada #SickleCellFoundation #RareDiseaseAwareness
marissa cors @rissarys
167 Followers 338 Following Professional Patient-(noun) a person or individual with a chronic illness that has developed a specialized skillset of factual knowledge and coping strategies
SCTPN @SCTPN
914 Followers 519 Following SCTPN is a Brooklyn, NY based NPO with a global reach. With #1ViralVoice we speak for #sicklecelldisease.
The Cure Sickle Cell .. @thecuresci
617 Followers 56 Following An initiative of @NIH_NHLBI working to accelerate the development of treatments aimed at a genetic-based cure for sickle cell disease. Engagement ≠ endorsement
SickleCell_HU @SickleCellHU
250 Followers 151 Following A community for people affected by sickle cell. Learn, share, and connect with peers and healthcare professionals.
P.Allen Jones @pallenj
1K Followers 1K Following Writer, blogger & advocate for people living with sickle cell disease. #sicklecell #blooddisorder #sicklecellawareness
Jason Payne, MD, MSPH @JasonPayneMD
216 Followers 537 Following Pediatric Hematologist @ChildrensATL, Morehouse SOM. @UABPeds Alum, @MUSCkids Alum, @universityofGA Alum. #healthequity and #sicklecell advocate. 🏳️🌈(he/him)
MTSSC Foundation @MyThreeSicklers
178 Followers 59 Following Led by Mapillar Dahn, MTS Sickle Cell Foundation is passionate about raising awareness of sickle cell disease as well as supporting families affected by SCD.
Sickle Cell Disease N.. @sicklecell_news
191 Followers 38 Following We exist to bring you science, research and clinical news about Sickle Cell Disease. We are a free digital publication dedicated to the patient community.
Yarimar Carrasquillo @YarCarLab
2K Followers 2K Following Principal Investigator at the NIH interested in understanding how the brain modulates pain. Proud Puerto Rican. My views and opinions are my own. She/her/ella
Sickle Cell Care Foun.. @CareSickle
276 Followers 899 Following fighting and mitigating sickle cell Anemia,as a United entity on a global magnitude #SCCF UG
Ahmar U. Zaidi, MD (D.. @drzsicklecell
6K Followers 5K Following #sicklecell advocate|blood doc for kids|podcaster|💊 development for sickle cell disease|@tedx speaker|views mine only
Rep. Barbara Dittrich @RepDittrich
2K Followers 730 Following Official Twitter page for Wisconsin State Representative Barbara Dittrich of the 38th Assembly District.
New insights from #SCDCWI shed light on #sicklecelldisease related complications. Our latest publication reveals alarming rates of heart, lung or renal complications, underscoring the importance of ongoing research & intervention. Article in comments! #ManuscriptMonday
Are you a student with #sicklecelldisease? Check out these scholarship apps! Click on the QR code to learn more! @childrenswi @MilwaukeeMPS @alaafisisc #scdcwi #freemoney @EveryLifeOrg everylifefoundation.org/rare-scholarsh… @pfizer togetherforrare.com/scholarships @iascnapa iascnapa.org/about-3
See below for a comprehensive look into the data behind Sickle Cell Disease (SCD) in #Wisconsin, provided by the CDC's #SickleCellDataCollection program. @SickleCellWI
Curious about SCD in WI?Check out this snapshot from the CDC's #SickleCellDataCollection program in WI! Gain insights into the prevalence and epidemiology of SCD in WI. Let's raise awareness and advocate for better support and resources! @CDC_NCBDDD @MCW_Research @UWHealth @DHSWI
An average of 23 Sickle Cell Disease (SCD) births occurred in #Wisconsin between 2016-2020. Learn more below about the state's Newborn Screening (NBS) program and the importance of providing comprehensive care for these children. @SickleCellWI
Happy #WorldSickleCellDay! There was an average of 23 #SCD births in WI during 2016-2020. Comprehensive care is necessary to prevent complications in these children. #SCDC-WI @childrenswi @MedicalCollege @UWHealth @cdc @DHSWI @SickCells. Learn more at: cdc.gov/ncbddd/hemoglo…
Here are 5 facts about #sicklecelldisease you should know! @CDC_NCBDDD @ConquerSCD @SickCells @SCCConsortium @SCDAAorg
DYK? 1/350 Black babies is born with #SCD across 11 states in the U.S. A new CDC study found many babies w/SCD are born in counties with high or very high levels of social vulnerability. Learn more about SCD in newborns: bit.ly/48AC3Wa #SCDAwareness #SCDCWI @CDC_NCBDDD
A great meeting led by the #SCDCArizona Team at @PhxChildrens - Insightful discussions by an awesome set of stakeholders. #SCDCWI was honored to be a part of it. @@CDC_NCBDDD To learn more about the Sickle Cell Data Collection program, please visit cdc.gov/ncbddd/hemoglo…
Today on #RareDiseaseDay, we reflect on the progress that has been made in #SickleCell and resolve to stay the course. Learn about recent progress and get updates on what ASH and partners are doing to improve the lives of all affected with SCD: ow.ly/KJg750QH9Rn
Curious about SCD in WI?Check out this snapshot from the CDC's #SickleCellDataCollection program in WI! Gain insights into the prevalence and epidemiology of SCD in WI. Let's raise awareness and advocate for better support and resources! @CDC_NCBDDD @MCW_Research @UWHealth @DHSWI
What we really want this Valentine's Day is improved access to high-quality outpatient care for individuals living with #SickleCell. #HealthPolicyValentines #ConquerSCD #SickleCell #SCD #SickleCelldisease #FundHealth #DontCutCures
📢News Alert!📢 The Biden-Harris admin is taking major steps towards better healthcare accessibility! A groundbreaking initiative was announced to boost access to #SCD treatments. Link for article, fact sheet and webinar below @MedicaidGov #sicklecelldisease #SCDAwareness🩸
Want to learn more about the Cell and Gene Therapy Access (CGT) Model? Join the CGT Model overview webinar on 2/6 from 2-3 P ET: go.cms.gov/cgt-webinar
Exciting News! Our fight against #SickleCellDisease continues with the renewal of our SickleCellDataCollection program in Wisconsin grant for 5 more years! #SCDCWI. Grateful for the ongoing support from the @CDC_NCBDDD ❤️#GrantRenewal #SickleCellAwareness Link in comments
Listen to a true #SickleCellWarrior recount her empowering experience at our symposium. Her story is a testament to the strength and resilience of our community and highlights the transformative power of coming together to share, learn, and support.
#ThrowbackThursday! Join us in congratulating @DrAmandaBrandow, Drs @AshimaSinghPhD & @LanaMucalo in presenting their posters focused on #sicklecelldisease research at #ASH23! Your research advancements are greatly appreciated @ASH_hematology #SCDCWI @MCW_Research @MCWPediatrics
Winter in Wisconsin means freezing temperatures are on the horizon. Extreme cold weather can have a disproportionate impact on the #sicklecelldisease population and influence pain levels. Read more in the article co-authored by @DrAmandaBrandow @SCDAAorg ncbi.nlm.nih.gov/pmc/articles/P…
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