The Cure Sickle Cell Initiative (CureSCi) @thecuresci
An initiative of @NIH_NHLBI working to accelerate the development of treatments aimed at a genetic-based cure for sickle cell disease. Engagement ≠ endorsement curesickle.org Joined May 2019-
Tweets841
-
Followers617
-
Following56
-
Likes708
@thecuresci is working together as a community to accelerate #SCD research. Hope is on the horizon. #GeneTherapy Learn more at: bit.ly/3sQl2CW
Beyond research, @nih_nhlbi's @thecuresci also promotes educational resources to learn about the causes, signs and symptoms, diagnosis, and treatment of SCD. Visit our Patient Factsheets for more: bit.ly/3WmXfws
Want to find data standards and tools associated with SCD? Search the CRF library to find modules & guidelines of interest: bit.ly/3KeCkF0 Search the CDE catalog to isolate a subset of CDEs and download details: bit.ly/44ZVAya #SickleCellDisease #DataElements
This article recommending various clinical trial endpoints can be used to develop #CommonDataElements for #SickleCellDisease genetic research studies: bit.ly/30wi9vO @BloodAdvances #Pain #PatientReportedOutcomes #Brain
Initiative leadership was involved in the development of the following article on #SickleCellDisease and its impact on bone marrow vascular niche. bit.ly/30vD5mC @BloodJournal #Transplantation #GeneEditing
Read about the emergence of Sickle Cell Anemia #SickleCell #GeneTherapy: bit.ly/3VHaUOx @ASH_hematology
The last five years have been a very exciting time for sickle cell disease. - Dr. Eboni Lance. A brief history & current therapies in #sicklecell disease: bit.ly/3sqO6jX #ClinicalTrials
Many living with #sicklecelldisease have concerns about how #genetherapy might impact fertility. Watch this video of CureSCi's Executive Director Dr. Benz speaking about this #SCD community concern. bit.ly/3FL9bhX
Progress has been made to treat and prevent the complications of #sickle cell disease. Watch our video to learn more about the research that paved the way for @thecuresci: bit.ly/49hxbWA @nih_nhlbi
Want to find out about the advocates and people living with sickle cell disease who are helping to shape the direction of the Cure Sickle Cell Initiative? Visit the Community Input Panel webpage: bit.ly/49ronxu to learn more !
CureSCi is a collaborative, patient-focused research effort that includes patients at every level of the Initiative. Patient engagement is a key component, particularly during the development of clinical trials." Read more: bit.ly/3U0xMas @nih_nhlbi @SCCConsortium
Want to find out about the advocates and people living with sickle cell disease who are helping to shape the direction of the Cure Sickle Cell Initiative? Visit the Community Input Panel webpage (curesickle.org/community-inpu…) to learn more!
Process and strategies for patient engagement and outreach in the #SCD…Read the full article: sciencedirect.com/science/articl… @nih_nhlbi @SCCConsortium @NationalMedAssn
What is #GeneTherapy? How does it help treat disease? Learn more from @ASGCTherapy: asgct.org/education/gene…
"We're seeing #GeneTherapy and #GeneEditing become a reality." Watch this video to learn how scientists, researchers, and the SCD community are working together to develop a curative strategy. youtube.com/watch?v=4bPIfo… #SickleCellDisease
Dr. Leslie Silberstein maintains an @NIH funded experimental program focused on bone marrow micro environment. He is also Scientific Director of the @NIH_NHLBI #CureSickleCell Initiative. Learn more about Dr. Silberstein here: curesickle.org/leadership #genetherapy #SCD #research
Dr. Edward J. Benz Jr. is an internationally recognized hematologist & active @NIH funded Investigator. He is also Executive Director of the @NIH_NHLBI Cure Sickle Cell Initiative. Learn more about Dr. Benz here: curesickle.org/leadership #curesicklecell #genetherapy #SCD
The Community Input Panel within CureSCi is a critical link between the #SCD community and researchers, clinicians, and providers. Read our latest CIP Member Spotlight featuring Ade Adeyokunnu: curesickle.org/community-inpu…
Learn more about the science of #sicklecell disease, how #genetherapy works, and progress towards a genetic cure for #SCD – visit the resource library at the @nih_nhlbi Cure Sickle Cell Initiative website: curesickle.org/resource-libra… #curesicklecell
Looking for information about #genetherapy for #SCD? The @nih_nhlbi Cure Sickle Cell Initiative offers videos, educational materials, and other resources for #sicklecell patients, advocates, caregivers, and providers. Visit curesickle.org/patient-advoca… #curesicklecell
Pat McGann, MD @PTMcGann
4K Followers 1K Following #SickleCell #GlobalHealth #ObamaLeader Views/Tweets my own
Alexandra Power-Hays,.. @DrPowerHays
3K Followers 2K Following #SickleCellDoc & hematologist at @cincychildrens fighting for our pts, locally and globally 🌍 Alum of @The_BMC, @BostonChildrens, @HarvardMed, @EmoryAlumni 🎓
Blood Diseases & Diso.. @BloodHealthEd
611 Followers 422 Following Official account for the @nih_nhlbi Blood Diseases & Disorders Education Program (BDDEP), part of @NIH. Privacy/comment policy: https://t.co/eI3RnXwPYN
Seethal Jacob, MD, MS @seethal_jacobmd
2K Followers 2K Following #SickleCell Provider/Advocate, #PHOdoc, #HealthServicesResearch Let’s talk #ImplementationSci and #Telehealth. Tweets are mine.
Memej99-SickleCellLif.. @Memej99
3K Followers 2K Following SickleCell/CP Advocate| Board Member @sicklecellmw & @national_pain Community Leadership Council| SocialMediaStrategist @DHealthhub #SickleCellLifeOfMemej
SCDAA @SCDAAorg
5K Followers 2K Following The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
John Joseph Strouse @dukesickle
1K Followers 711 Following Adult and pediatric hematologist, sickle cell provider and advocate
Sickle Cell Disease C.. @ConquerSCD
4K Followers 363 Following The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
NIH NHLBI @nih_nhlbi
80K Followers 661 Following Official account of the NHLBI. Leading @NIH institute on heart, lung, blood, & sleep disorders research. Privacy/comment policy: https://t.co/ZmlSJVOcAH
Umut A. Gurkan @UAGurkan
2K Followers 2K Following Wilbert J. Austin Professor of Engineering @CWRU @CaseEngineer @CWRU_MAE @CWRUBME @CASECCC @HemexHealth @BioChipLabs @AcadofInventors @NewVoicesNASEM @aimbe
Amber M Yates, MD @sicklecelldoc
3K Followers 2K Following #twinmom, #RAWarrior #PHODoc #MedicalAffairs #SickleCell Tweets are not medical advice. she/her
Elle Cole (She/her) @Cleverlychangin
11K Followers 9K Following International best-selling (8X) author Speaker & advocate for #sicklecelldisease Producer & #CleverlyChangingPodcast Host 💌 [email protected]
National Alliance of .. @nascc_org
359 Followers 127 Following Official Twitter account of the National Alliance for Sickle Cell Centers. Providing support to centers around the nation in the pursuit of equitable treatment.
Sick Cells @SickCells
3K Followers 662 Following National Advocacy Organization, Official Nonprofit.
NHLBI Bethesda Labs @TheBethesdaLabs
2K Followers 282 Following The official Twitter account for NHLBI DIR, conducting clinical and basic research on the @NIH Bethesda campus. Privacy policy: https://t.co/LxfpA3apOQ
Deva Sharma @DevaSharma1981
297 Followers 348 Following Hematologist (internal medicine trained), transfusion medicine physician, sickle cell disease advocate, lover of carbohydrates, cheese, red wine & Netflix.
Sickle Cell Midwest @sicklecellmw
971 Followers 504 Following The Uriel Owens Chapter is dedicated to supporting families in the greater Kansas City area that are dealing with sickle cell disease.
Women & sickle cell @w_sicklecell
2K Followers 1K Following Official page of #Dabmscf Dedicated to the feelings of 👩#discussions #solutions #Mustwomensuffer4everything @DabmaFoodAid ( Food 🍛 aid account )
SickleQueenT @sickle_t
456 Followers 228 Following here for #TeamSickleCell, #Warrior, #Advocate, CEO, Reproductive health, stem cell transplant rejection survivor
Robyn Cohen MD,MPH @RobynCohenMD
2K Followers 647 Following Pediatric pulmonologist @the_BMC #asthma #sicklecelldisease researcher, advocate, ally, unprepared mom of teen daughters, proud wife of @jserdoc. She/her, #BLM.
KingdomWoman @KingdomWalking
11 Followers 77 Following #teamsicklecell🩸 #sicklecellwarrior💪🏾 #autismmom 💙
Lake Region Sickle Ce.. @CellRegion
0 Followers 4 Following
Jariess-Med @j_semenyo
20 Followers 171 Following Biomedical Scientist // Human Genetics and Haematology Researcher // Sickle Cell Disease Advocate //Graphic designer // Content Creator
Bryan Ampey @OnlyAmpey
31 Followers 135 Following
Ann Van de Velde @sanguinebiomab
607 Followers 1K Following Hematologist Antwerp University Hospital; Founder and Board Member BIOMAB - Biological and Medical Art Belgium
SCTPN @SCTPN
916 Followers 519 Following SCTPN is a Brooklyn, NY based NPO with a global reach. With #1ViralVoice we speak for #sicklecelldisease.
Eduardo Silva @EduardoAB_Silva
433 Followers 473 Following Associate Professor, Department of Biomedical Engineering (@silvalabuis) | this is my personal account.
Rock Bottom Initiativ.. @tweetrockbottom
49 Followers 121 Following A non-profit organization committed to empowering individuals living with Sickle Cell Disease. Empower | Support | Educate #rbwarrior🎗
Dr. K(Kanayo Nwankwo) @yosky27
870 Followers 1K Following #CureSCD #HemOnc AIM Scholar @appdconnect #AIMTOLEAD Future Leader Scholar @hvpaa. ‘Views My Own’
lesley e giles @lesleyegiles1
11 Followers 185 Following
Harish K. Vasishth @vasishth_h18822
30 Followers 647 Following General Manager at Akums Drugs and Pharmaceuticals Limited CDMO Business | New Buss. Development | In-Out Licensing | Strategic Partnership | Exports - Stro
Courtney Reasons @ccreasons
75 Followers 97 Following LOVE God. LOVE my husband. LOVE my 2 children. LOVE my doodles. LOVE Gwinnett Church. I aspire to LOVE BIG by serving others.
Dr Eddie @Eddy07698471
89 Followers 313 Following
Focus On Sickle Cell .. @UgandaSickle
256 Followers 1K Following FOSCA exists to provide a multi-faceted approach to combating SCD that includes testing, research, raising awareness, and providing psychosocial support.
christina c @christina_22910
0 Followers 2 Following
Delta State Sickle Ce.. @DeltaSickle
3 Followers 28 Following Improving lives of sickle cell warriors in Delta State
Clement Agyemang @ghclement2000
90 Followers 73 Following Big companies are small companies that succeeded
Arianna Martin, PsyD @DrAriannaMartin
0 Followers 35 Following
Mark De Zonia (Dezoni.. @MarkDezonia777
174 Followers 3K Following A computer must determine if your wack crazy is my present theory ,because there is no observable intelligence online anymore it dead long ago as far I know.
Achile @Achile77595161
154 Followers 273 Following |Muslim|Nigerian|Architect|Construction Expert|Advocate of good governance|Humanitarian|
Kirunda B. Ramadhan @kirundaramadhan
201 Followers 1K Following Research, Quality, Monitoring and Evaluation, Development Specialist, Independent analyst, Critical Thinker". "Opinions are my own"
Canadian Rare Disease.. @CanadianRDN
227 Followers 596 Following Pan-Canadian network uniting clinical, scientific and patient experts to improve the health and well-being of individuals affected by rare diseases.
painless dentist 🤓 @lesspaindentist
109 Followers 292 Following Dental technologist 😁||Tyrese BOT🏀||Philly blud🤩||HIM 22👽
amita singh @amitasinghv
4 Followers 780 Following
Usama El Safy @UsamaSafy
235 Followers 5K Following
CarynLoucks @CarynLouck50293
50 Followers 2K Following
Shamaree Cromartie @ShamareeCromar2
57 Followers 304 Following
chelleb @chelleb
5 Followers 481 Following
Owoeye David @davoshalom
775 Followers 2K Following God Lover. Infection Prevention & Control Specialist. Sickle Cell Warrior & Advocate. Author. https://t.co/9z1lvAfJYh…
Faryal Munir, MD @FaryalMunir6
142 Followers 358 Following MBBS, MD, FAAP, Pediatric Hematology/Oncology Fellow, MD Anderson Cancer Center @UTHealthHouston @MDAndersonnews | Traveler, Reader, Explorer, Realist, Optimist
Cola @taruscarolina
493 Followers 645 Following
Sickle cell strong @strong91968
95 Followers 75 Following
kristina 🇪🇺🇦.. @kfs2404
681 Followers 1K Following
Science - Work @science_vertex
44 Followers 65 Following
Colleen Kelly, MD @ckelly60637
494 Followers 2K Following Pediatrician • Fellow @DFBC_Pedcare via @BostonChildrens @The_BMC • @UChiPritzker @NotreDame grad • Views = mine. RTs ≠ endorse.
Michael O'Brien, MD @MichaelOBrienMD
440 Followers 1K Following Med-peds doctor, healthcare innovator
Rolland Kacsoh @_roka
28 Followers 43 Following
Okomo Francis @OkomoFrancis
75 Followers 589 Following
Michel Haddad @michelmeesh
55 Followers 347 Following Startups, entrepreneurship, MMA, lobster diving, spearfishing, science... that about covers it.
kareem kabir @kasalikareemkab
2 Followers 28 Following
Ajayi Babajide Olu @olu_zee
49 Followers 123 Following An education enthusiasts playing and telling my Story as a Fellow of Teach for Nigeria
SickleCellProdigy @SCProdigy
320 Followers 91 Following For The #SickleCellProdigy | Who Wants A #SickleCellTribe 🌎 | Awareness. Impact. Legacy.
Masinde Joseph @Josephmacyndeh
4 Followers 111 Following
Symone O. Reid, M.Ed @SymoneReid_
189 Followers 125 Following 🇯🇲 MS4 & aspiring academic Internist excited for what’s to come! I love a good view ☀. My niece calls me a rockstar 🤘🏾✨.
New York State Sickle.. @NYSSCAN
1K Followers 1K Following New York Chapter of SCDAA (Formerly known as QSCAN) This is the only official twitter page for NYSSCAN Donate to our Givelively: https://t.co/h0C38Wy64t
ASH @ASH_hematology
69K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
Blood Diseases & Diso.. @BloodHealthEd
611 Followers 422 Following Official account for the @nih_nhlbi Blood Diseases & Disorders Education Program (BDDEP), part of @NIH. Privacy/comment policy: https://t.co/eI3RnXwPYN
SCDAA @SCDAAorg
5K Followers 2K Following The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
Sickle Cell Disease C.. @ConquerSCD
4K Followers 363 Following The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
NIH NHLBI @nih_nhlbi
80K Followers 661 Following Official account of the NHLBI. Leading @NIH institute on heart, lung, blood, & sleep disorders research. Privacy/comment policy: https://t.co/ZmlSJVOcAH
Sickle Cell Consortiu.. @SCCConsortium
4K Followers 907 Following a collective of community-based organizations, patient-advocates, community partners and research/medical advisers.
NHLBI Bethesda Labs @TheBethesdaLabs
2K Followers 282 Following The official Twitter account for NHLBI DIR, conducting clinical and basic research on the @NIH Bethesda campus. Privacy policy: https://t.co/LxfpA3apOQ
National Human Genome.. @genome_gov
81K Followers 446 Following Funding research at the forefront of genomics to improve human health. Formerly the Human Genome Project. https://t.co/4hdQRFkFNU
FSCDR Foundation for .. @FundSickleCell
3K Followers 222 Following Change the Conversation. Reshape the Future. We are the USA’s only outpatient center solely focused on SCD
Julie Panepinto, MD, .. @NHLBI_BLOODDir
860 Followers 131 Following Official Twitter account of the Director, NHLBI's Division of Blood Diseases and Resources, part of @NIH. Privacy/comment policy: https://t.co/3VyJPhNNiv
Lakiea Bailey, Ph.D @SCDadvocate
2K Followers 806 Following Sickle cell disease advocate, activist, research scientist...and occasionally...patient... with a doctorate in molecular hematology and regenerative medicine.
Refeyn @refeynit
2K Followers 399 Following Pioneers in mass photometry, a revolutionary new technology for analysing single biomolecules in solution, label-free, and in a matter of minutes.
Health Disparities @NIMHD
31K Followers 851 Following Official Twitter account of @NIH's National Institute on Minority Health and Health Disparities. Engagement ≠ Endorsement. Posting policy: https://t.co/wi4D76sKOh
CWRU Engineering @CaseEngineer
2K Followers 187 Following Case School of Engineering: 140 years of collaborative research, experiential learning and solving urgent problems in an ecosystem of innovation.
Emmes @EmmesCRO
705 Followers 201 Following Emmes is dedicated to providing statistical expertise, data management, and overall operational support to clients involved in clinical and biomedical research.
Stanford Children's @StanfordChild
23K Followers 2K Following Top ranked children's hospital exclusively dedicated to kids & expectant mothers. Dig. Policy: https://t.co/ImJ2ElR3ia Nondiscrim. Policy: https://t.co/oJM6V2DVNR
UCLA Broad Stem Cell @UCLAstemcell
3K Followers 1K Following Supporting innovation, excellence, and the highest ethical standards focused on taking stem cell discoveries from the lab to the patient. (RT≠endorsement)
CSL Behring @CSLBehring
10K Followers 518 Following We are driven by our promise to help patients lead full lives. See our community guidelines: https://t.co/kApe7qvO6t
Terumo Blood and Cell.. @terumobct
2K Followers 564 Following The official twitter account of Terumo Blood and Cell Technologies. Contributing to Society Through Healthcare. https://t.co/RMkhaLUirw
CRISPR Therapeutics @CRISPRTX
22K Followers 0 Following
UMN Medical School @umnmedschool
10K Followers 445 Following We're committed to innovative research, clinical excellence and educating the next generation of healthcare leaders. #UMNmed
Rice University @RiceUniversity
51K Followers 971 Following At Rice, we are in constant pursuit of wisdom and commit ourselves to endless exploration.
RTI Health IT @RTI_HealthIT
1K Followers 1K Following Delivering evidence-based decision making, communication science, public health & clinical informatics to improve health. An official feed of @RTI_Intl.
Harvard Medical Schoo.. @harvardmed
451K Followers 685 Following Official Twitter home of Harvard Medical School, featuring our advances in biomedical research, trends in medical education, and more.
Case Western Reserve @cwru
21K Followers 1K Following At Case Western Reserve University, we innovate, inspire and lead. Follow along to see how we think beyond the possible—in 280 characters or less. #CWRU
The Kohn Lab UCLA @Kohn_Lab
509 Followers 110 Following Our mission is to treat patients suffering from primary immunodeficiency diseases with hematopoietic stem cell gene therapy.🩸🦠✂️🧬⛑: tweets from lab members.
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
NIH Intramural @IRPatNIH
16K Followers 5K Following Official National Institutes of #Health (#NIH) Intramural Research Program (#IRP) Twitter account. Our #research changes lives. #biomedical #science
Cayenne Wellness @CayenneWellness
770 Followers 880 Following Improving nutritional & mental health through education, research, awareness initiatives & more. For more info., please visit https://t.co/SptI4GEzRa!
ASH Research Collabor.. @ASHCollab
2K Followers 180 Following Non-profit organization established by @ASH_Hematology to improve the lives of people affected by blood diseases and accelerate progress in #hematology.
UW Medicine @UWMedicine
36K Followers 1K Following A higher degree of healthcare in Washington state. Connecting patient care with a top-rated medical school and a research powerhouse.
UCSF School of Medici.. @UCSFMedicine
32K Followers 1K Following Striving to advance human health through a fourfold mission of education, research, patient care, and public service.
Vanderbilt School of .. @VUmedicine
8K Followers 781 Following Official Twitter account for Vanderbilt University School of Medicine where we educate and train the next generation of health care professionals. #VandyMed
Emory School of Medic.. @EmoryMedicine
13K Followers 966 Following Located in Atlanta, Georgia, Emory University School of Medicine is a leading institution with the highest standards in education, research, and patient care.
Medical College of Wi.. @MedicalCollege
14K Followers 2K Following Pioneering pathways to a healthier world. #MCWknowledge
Boston Children's @BostonChildrens
67K Followers 3K Following The official Twitter feed for Boston Children's Hospital, providing you with all of our latest news and information. Disclaimer: https://t.co/b99Kgz6TpH
NIIMBL @NIIMBL
834 Followers 115 Following Manufacturing USA institute dedicated to advancing biopharmaceutical manufacturing technology and workforce development
City of Hope @cityofhope
33K Followers 1K Following City of Hope is a National Cancer Institute-designated comprehensive cancer center for cancer, diabetes and other life-threatening diseases.
Vertex Pharmaceutical.. @VertexPharma
72K Followers 89 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
bluebird bio @bluebirdbio
11K Followers 743 Following We’re pursuing curative #genetherapies to give patients and their families more bluebird days. Guidelines: https://t.co/QXqQgHMGTC
National Library of M.. @NLM_NIH
73K Followers 521 Following Official account of the National Library of Medicine at @NIH. Serving scientists & society. More at @MedlinePlus and @NCBI. Privacy: https://t.co/PA0HWREPXC
Eric Green @NHGRI_Director
13K Followers 4 Following @Genome_gov Director. Genomicist. St. Louis Cardinals fan. He/Him/His NHGRI privacy policy: https://t.co/zVJz7zRkLX
Dr. Vivek Murthy, U.S.. @Surgeon_General
1.1M Followers 187 Following 19th & 21st U.S. Surgeon General. Dad, husband, doctor, author. Dedicated to building a healthier, kinder, more connected world. https://t.co/GxSi2TxtAD
Dr. Monica M. Bertagn.. @NIHDirector
183K Followers 122 Following Official account of the @NIH Director Posts prior to 11/9/23 were from former NIH Directors Engagement ≠ endorsement Privacy: https://t.co/GijpA0bFOx
ASGCT @ASGCTherapy
10K Followers 2K Following Advancing knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.
CIRM @CIRMnews
15K Followers 515 Following Accelerating world class science to deliver transformative regenerative medicine treatments in an equitable manner to a diverse California and world
CIBMTR @CIBMTR
6K Followers 501 Following Research organization, collaborating with the global scientific community to increase survival and enrich quality of life for patients needing cellular therapy.
National Institute of.. @NIST
87K Followers 533 Following NIST promotes U.S. innovation & competitiveness by advancing measurement science, standards & tech to enhance economic security & improve our quality of life.
U.S. FDA @US_FDA
563K Followers 145 Following Our posts are FDA Approved! Privacy Policy - https://t.co/LbTJXYRXVP FDA Authentic Accounts - https://t.co/w2LNbzG7M0
#happybossesday #SCFG Manager Superlatives Jackie George- Good Samaritan Award Tabatha McGee- Tech Expert Award Maria White Tillman- Dewey Decimal Award Danina Battle- Light at the End of the Tunnel Jeanette Nu'Man- Bermuda Triangle Award Daphany Johnson- Every Dept. Award
Provider Inservice Training on Sickle Cell Disease in 345 South Halcyon Road, Arroyo at Arroyo Grande Hospital, Friday October 27th at 5:00 AM, Tickets: Free. santamariatimes.com/events/?_evDis… #Health #345SouthHalcyonRoadArroyo #SocialEvvnt
.@FDA granted #RMAT designation to an investigational #genediting treatment for severe #sicklecell disease. bit.ly/3Qkk00J
Why do sickle cell patients fear going to the ER to be treated even when they need medical help? You can learn more about ER experiences that people living with sickle cell encounter here ➡️ nbcnews.com/health/health-… via @NBCNews #emergencydepartment #healthcare #sicklecell
This #NationalHealthEducationWeek learn more about the #BloodDiseases & disorders affecting millions of people in the U.S. Find resources about their symptoms, treating and managing these conditions and, blood safety: nhlbi.nih.gov/education/blood
A new @NBCNews article about challenges faced by #SCD warriors in the #ED. @ACEPNow & @ASH_hematology created a tool to provide accessible, action-oriented guidance on managing SCD complications in the #ED: acep.org/patient-care/s… #EndStigma
Sickle cell patients say they face long delays in emergency rooms before receiving essential care, plus discrimination and suspicion that they are seeking drugs to get high. nbcnews.com/health/health-…
Join us TODAY for a free webinar on our learnings from community listening sessions for #Latino #RareDisease patients, along with new ways to increase access to programs serving Latino/a/x and Spanish-speaking rare disease community members. Register now: bit.ly/3t3zRHV
In this episode of The Hematologist podcast, Dr. Satiro De Oliveira talks about his experience with the mentorship program within ASH’s Minority Recruitment Initiative (MRI) & its impact on trainees from underrepresented groups. 🎧Listen here: ashpublications.org/thehematologis… #ASHDEI
The wait is almost over! Just one more week until the launch of our 51st Annual National Convention. Get ready to expand your sickle cell knowledge and strengthen your community bonds. Learn more: buff.ly/3t6MlP5
Living with #SCD is challenging. This Mental Health Awareness Week, check out this webpage from @BeTheMatch to get support through the PACES program: bethematch.org/patients-and-f…
Announcing the #NIHComPASS program’s community-led health equity projects! Awardees will study how to address factors in communities that affect health, like access to safe spaces, healthy food, employment opportunities, transportation, & health care: go.nih.gov/NIHComPASSAwar…
#BloodTransfusions are essential for #SickleCell patients. Learn more about #BloodDonations and consider being a #BloodDonor: nhlbi.nih.gov/education/bloo…
It's Wellness Wednesday! Take Medications as Prescribed: If your doctor has prescribed medications to manage your symptoms or prevent complications, make sure to take them as directed. #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecellanemia #sicklecelldisease
Adopting a lifestyle that supports both mental and physical health has helped many people manage #SickleCell disease, relieve symptoms, and stay as healthy as possible. Learn more: go.nih.gov/RSqeHfP #SickleCellAwarenessMonth
Snapshots from the 2023-2024 @UCLAstemcell Training Program Orientation! Can't wait to see what our trainees will learn and accomplish as a cohort over the next year! 🙌🎉
The new World Coalition on Sickle Cell Disease 🌍 is a public-private partnership aiming to reduce #sicklecell childhood mortality + improve the lives of those w/ #SCD in low-and middle-income countries. More in @BloodAdvances: loom.ly/FsKwt-I #sicklecellAwarenessMonth
#DYK that that the #SCD community needs a stronger, more diverse blood supply? Check out @AmericasBlood's U.S. #BloodDonation Statistics & Public Messaging Guide to learn more about the state of blood donor diversity and spread the call to #donateblood! americasblood.org/statistics_gui…
Living well with #SickleCell disease may often mean managing severe pain. Talk with your healthcare team about a pain management plan that makes sense for you. Learn more: bit.ly/3Ey1ewd #SickleCellAwarenessMonth
Did you know September is #Leukodystrophy Awareness Month? And this week is also #MitochondrialDisease Awareness Week! At the crossroads of both is September 20th, #LBSLAwarenessDay. That's today! Learn all about #LBSL from @CureLbsl at bit.ly/45JoNxO #CureLBSL
Trends for United States
You might like
