DreamsiCkle Kids Fdn @DreamsiCkleKids
501(c)(3)#SickleCellAdvocates #MakeSickleCellPopular #Nevada #SickleCellFoundation #RareDiseaseAwareness dreamsicklekids.org Las Vegas, NV Joined February 2018-
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I am honored to be speaking at the 2024 NORD #LivingRareForum in Los Angeles, California on June 8! This in-person and virtual gathering is like no other in the #RareDisease community, and I can't wait to join other advocates and families there. -GGlass livingrare.org
#RDW24 #ShowYourStripes #MakeSickleCellPopular 🌙🦓🌙🦓🌙🦓🌙🦓🌙🦓🌙🦓🌙🦓
Guideline-Based Care Might Reduce Cerebrovascular Illness in Sickle Cell Disease bit.ly/48SxgA0 #SickleCell #SickleCellDisease #SickleCellAnemia @DreamsiCkleKids
🌟 In loving memory of Dr. Rashid, a remarkable hematologist/oncologist and Nevada's champion for sickle cell healthcare. Her tireless dedication improved lives and inspired us all. Rest in peace, dear doctor. Your legacy lives on. 🙏❤️ #RememberingDrRashid #SickleCellAdvocate
SCDAA is disappointed by the @nbcsnl skit about the recent historic approvals of potentially curative gene therapies for #SCD. SNL chose to cast a spotlight on this news with a tone-deaf skit that is distasteful at best and harmful at worst. Read more: buff.ly/3Rv3Uk5
Dreamsickle Kids Foundation is thrilled to extend our heartfelt gratitude to this year's Platinum Sponsor, Vertex Pharmaceuticals! 🙌 Thank you, Vertex Pharmaceuticals, for your continued partnership and dedication to the SCD community. 🌟🙏 #Vertex #SCDAwareness ❤️🌙❤️
Our leader @SCDCommunityBae will be the keynote speaker at the SNBNA ceremony speaking on #SickleCell Care! Don't Miss this event!
🌟Happy National Hair Day! 🌟 Today, we celebrate not just fabulous hairstyles, but the resilience of sickle cell warriors who use Hydroxyurea to manage their condition. Warriors and Caregivers, let's unite and share the products and tools you use to keep your hair happy. 🌙❤️
It's almost time register now! dreamsicklekids.org/2023-lv-scd-wa… #MakeSickleCellPopular ❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙
Two weeks away! Register at : flipcause.com/secure/cause_p… #MakeSickleCellPopular 🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️
📣 September 1st is here! 🌟 Join us as we kick off Sickle Cell Awareness Month. Let's spread knowledge about Sickle Cell Disease, a rare genetic disorder affecting many, especially those of African descent Together, let's amplify sickle cell awareness all September long! 🌙❤️
Dreamsickle Kids Foundation extends heartfelt gratitude to our esteemed gold sponsor, Pfizer for their unwavering support of the 6th Annual Las Vegas Sickle Cell Walk. Your commitment to the Sickle Cell community is truly inspiring. #MakeSickleCellPopular ❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙
Dreamsickle Kids Foundation extends heartfelt gratitude to our esteemed gold sponsor, Pfizer for their unwavering support of the 6th Annual Las Vegas Sickle Cell Walk. Together, we're making a difference! #MakeSickleCellPopular ❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️
#BPM23 #LoveInAction #SupportBlackNonprofits #SupportSickleCell #MakeSickleCellPopular ❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙
Sign Up to Volunteer at: cognitoforms.com/DREAMSICKLEKID… 🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙
We will be hosting a webinar on getting SCD proclamations for Sickle Cell Awareness Month. If you ever wonder what to say, where to request a proclamations out Executive Director will share exactly how to do so. Register Here: dreamsicklekids.org/events-%26-ann… #MakeSickleCellPolicy 🌙❤️🌙
Dream Juicing Workshops are back this summer! Tomorrow we will host 25 guest for a community Juice workshop with Al-Maun Neighborly Needs Community Development in #89106 . #CommunityJuiceWorkshop #SickleCellAwareness 🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️
Memej99-SickleCellLif.. @Memej99
3K Followers 2K Following SickleCell/CP Advocate| Board Member @sicklecellmw & @national_pain Community Leadership Council| SocialMediaStrategist @DHealthhub #SickleCellLifeOfMemej
Pat McGann, MD @PTMcGann
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Sickle Cell Midwest @sicklecellmw
965 Followers 504 Following The Uriel Owens Chapter is dedicated to supporting families in the greater Kansas City area that are dealing with sickle cell disease.
Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMq
Alexandra Power-Hays,.. @DrPowerHays
3K Followers 2K Following #SickleCellDoc & hematologist at @cincychildrens fighting for our pts, locally and globally 🌍 Alum of @The_BMC, @BostonChildrens, @HarvardMed, @EmoryAlumni 🎓
Seethal Jacob, MD, MS @seethal_jacobmd
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Sickle Cell Warriors @SCWarriorsInc
4K Followers 404 Following Sickle cell disease affects us all. Help us support, inspire, empower and advocate for patients & families affected by SCD. Join the fight to end sickle cell
André Marcel Harris,.. @andreharris89
7K Followers 8K Following ΦΒΣ @houstonsigmas | PhD student/MSW alum @UH_SocialWork | Founder of @BlackMenInSW | #SickleCellAdvocate at @SickleCellHOU & @scdaaorg | #HBCUGrad of @uncfsu
Taylor Kane @rarelikeher
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Sickle Cell Awareness.. @awareness_cell
2K Followers 4K Following Dr Dexter's/CEO-SickleCellFoundatio /Aware the people for sickle cell.(work for decrease SickleCell Birth & SCD Mother Mortality).Sicklestory#Writer#Blogger
John Joseph Strouse @dukesickle
1K Followers 711 Following Adult and pediatric hematologist, sickle cell provider and advocate
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Effie Parks @OnceUponAGene
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Amber M Yates, MD @sicklecelldoc
3K Followers 2K Following #twinmom, #RAWarrior #PHODoc #MedicalAffairs #SickleCell Tweets are not medical advice. she/her
FSCDR Foundation for .. @FundSickleCell
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Women & sickle cell @w_sicklecell
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Elle Cole (She/her) @Cleverlychangin
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Global Genes @GlobalGenes
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Sickle Cell Associati.. @BRSickle
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Etta_Bella 🇳🇬�.. @Sickled_Pink
768 Followers 756 Following hello. I'm Etta. i am a whole person. I am peculiar & i have sickle cell.
JOEL RABUKU OGOLLA CD.. @erick31742933
822 Followers 4K Following Just A parody account,love for CCTV AND IT,Governance, Youth Advocate, Human Rights Activist, Giving Bck to Society. YOuth for Life & Green Climate Initiative
Rock Bottom Initiativ.. @tweetrockbottom
43 Followers 121 Following A non-profit organization committed to empowering individuals living with Sickle Cell Disease. Empower | Support | Educate #rbwarrior🎗
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174 Followers 274 Following We help nonprofits and their local government partners access and administer federal grants that benefit Nevadans and strengthen their organizations.
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177 Followers 832 Following
Flossiiee @Flossiee_92
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3 Followers 64 Following It's just a sickle blood not a Sickle life.
Habeeb Lukman @Habeeblukman725
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Maurice Riddle @mtrtravels
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Irene @guerrero41irene
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christina @christi06606708
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m&t instant fufupowde.. @FufupowderM
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Kathy @kathy_brooks_
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Julie Makani @juliemakani
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MiMuk2024 @mimiemukinayi
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Focus On Sickle Cell .. @UgandaSickle
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Betty @bettyharris96
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Sweeties Sheroes and .. @SweetieSHSCDNOL
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Sharl Azar, MD @TheSickleDoc
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Wilson Odom @OdomWilson70312
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European Sickle Cell .. @escfederation
407 Followers 219 Following
Kim @kim_marn18
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Joy Ogingo @ogingojoy
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Owoeye David @davoshalom
771 Followers 2K Following God Lover. Infection Prevention & Control Specialist. Sickle Cell Warrior & Advocate. Author. https://t.co/9z1lvAfJYh…
Taylor Okun @taylo_ok
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NICOSAM HEALTHCARE LT.. @LtdNicosam
3 Followers 45 Following To deliver Medical Business Support, quality Certified Medical Equipment, Consumables and exceptional Diagnostic services
Erika Manzanares @ErikaManza48066
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UTSW Pediatric HemOnc @UTSW_PedsHemOnc
267 Followers 424 Following Welcome to the UTSW Pediatric Hematology and Oncology division!
Love Gift @PKwagala
24 Followers 597 Following Am a born again Christian,I believe in God the Father,the Son and the Holy Spirit, Pastor's son,Father,Entrepreneur,Public Health Practitioner&Gerontologist!
Ikolzy @IkolzyX
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DR. ANTIM BADOLE MD( .. @badole_antim
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Michael O'Brien, MD @MichaelOBrienMD
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Winnie Odiere @winnie_odiere
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Leila Pichon @LeilaPicho72341
90 Followers 5K Following
onyango buken @onyangobuken
58 Followers 395 Following
Memej99-SickleCellLif.. @Memej99
3K Followers 2K Following SickleCell/CP Advocate| Board Member @sicklecellmw & @national_pain Community Leadership Council| SocialMediaStrategist @DHealthhub #SickleCellLifeOfMemej
Sickle Cell Society @SickleCellUK
11K Followers 2K Following The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
Pat McGann, MD @PTMcGann
4K Followers 1K Following #SickleCell #GlobalHealth #ObamaLeader Views/Tweets my own
Julie Kanter @jkw4444
4K Followers 2K Following I specialize in sickle cell disease care for all ages with the heart of a pediatric hematologist. My tweets are my opinions to be shared and to support others
Sickle Cell Midwest @sicklecellmw
965 Followers 504 Following The Uriel Owens Chapter is dedicated to supporting families in the greater Kansas City area that are dealing with sickle cell disease.
Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMq
Alexandra Power-Hays,.. @DrPowerHays
3K Followers 2K Following #SickleCellDoc & hematologist at @cincychildrens fighting for our pts, locally and globally 🌍 Alum of @The_BMC, @BostonChildrens, @HarvardMed, @EmoryAlumni 🎓
Seethal Jacob, MD, MS @seethal_jacobmd
2K Followers 2K Following #SickleCell Provider/Advocate, #PHOdoc, #HealthServicesResearch Let’s talk #ImplementationSci and #Telehealth. Tweets are mine.
Sickle Cell Warriors @SCWarriorsInc
4K Followers 404 Following Sickle cell disease affects us all. Help us support, inspire, empower and advocate for patients & families affected by SCD. Join the fight to end sickle cell
SCDAA @SCDAAorg
5K Followers 2K Following The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
André Marcel Harris,.. @andreharris89
7K Followers 8K Following ΦΒΣ @houstonsigmas | PhD student/MSW alum @UH_SocialWork | Founder of @BlackMenInSW | #SickleCellAdvocate at @SickleCellHOU & @scdaaorg | #HBCUGrad of @uncfsu
Taylor Kane @rarelikeher
3K Followers 1K Following Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
Sickle Cell Awareness.. @awareness_cell
2K Followers 4K Following Dr Dexter's/CEO-SickleCellFoundatio /Aware the people for sickle cell.(work for decrease SickleCell Birth & SCD Mother Mortality).Sicklestory#Writer#Blogger
John Joseph Strouse @dukesickle
1K Followers 711 Following Adult and pediatric hematologist, sickle cell provider and advocate
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3K Followers 661 Following National Advocacy Organization, Official Nonprofit.
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Amber M Yates, MD @sicklecelldoc
3K Followers 2K Following #twinmom, #RAWarrior #PHODoc #MedicalAffairs #SickleCell Tweets are not medical advice. she/her
FSCDR Foundation for .. @FundSickleCell
3K Followers 222 Following Change the Conversation. Reshape the Future. We are the USA’s only outpatient center solely focused on SCD
Sickle Cell Disease C.. @ConquerSCD
4K Followers 363 Following The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
ASH @ASH_hematology
69K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
Julian Jons @r1r
241 Followers 703 Following Dad, husband. Lover of Disney, star wars, costuming, cosplaying, poker and almost anything handmade. Jawa with the 501st. I am deaf and a sickle cell warrior.
WestMidsSTN @WestMidsSTN
83 Followers 89 Following West Midlands Sickle Cell and Thalassaemia Network - looking after patients living with sickle cell,thalassaemia and rare anaemias across the Midlands
Simons Searchlight @s_searchlight
2K Followers 4K Following Accelerating research by collecting data/biosamples from ppl w/rare #genetic causes of #autism & other neurodev dis. Researchers can get data: https://t.co/kokQ7uLYWd
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53 Followers 294 Following
Halimat Olaniyan, M.D.. @halimattakeson
1K Followers 470 Following PGY1 @IUPathology | Founder & CEO of @chasingmedicine | Author |#sicklecellwarrior breaking barriers & ending silences. Views are my own.
Rare Patient Voice @rarepatientvoic
2K Followers 4K Following We help clients find rare and non-rare disease patients and caregivers for studies, and connect patients and caregivers with paid research opportunities.
Maven Collective Mark.. @CollectiveMaven
1K Followers 978 Following #B2BMarketing for #MSPartner & #SaaS marketing tips best served fresh by the award-winning team of Mavens. Nice to tweet you, come for tips, stay for gifs!
Usama El Safy @UsamaSafy
235 Followers 5K Following
Rare Disease Innovati.. @rdii_org
449 Followers 214 Following RDII is a non-profit organization focused on education, engagement and to equip the rare disease community
Chatspin @chatspin
26K Followers 271 Following #Chatspin is a random cam to cam site where you can instantly #connect with #strangers. Thousands of users online at all times. https://t.co/5CNsOd6FMX
Pharming Group NV @PharmingGroupNV
319 Followers 0 Following Pharming develops innovative protein replacement therapies and precision medicines for the treatment of rare diseases and unmet medical needs. HAE-GLO-2021-0008
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2.8M Followers 4 Following Independent internet privacy company. Download our browser on mobile and desktop. Unlike Chrome, it has privacy built in, including our private search engine.
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1K Followers 216 Following Join us each summer to enjoy a weekend of free events for all ages celebrating science and the arts - returning in June 2024! 🎉
Savvy Cooperative | #.. @savvy_coop
4K Followers 4K Following Health innovators have questions. Patients + caregivers have answers. Creators of the #AskPatients Lounge™️, coming to a conference near you!
HLTH Foundation @hlthfoundation
484 Followers 1K Following Non-profit promoting equity, inclusion &opportunity in healthcare. Affiliated w/ @HLTHEVENT. Hosts @C_Sweetener. Convenes the Techquity for Health Coalition.
HLTH @HLTHEVENT
11K Followers 3K Following Where the future of health happens 🦄 Join us at ViVE 2024 on February 25 - 28, 2024 in LA and HLTH 2024 on October 20-23, 2024 in Las Vegas. https://t.co/4mlZ5fDSFA
Nina Kohn @NinaKohn
967 Followers 660 Following Prof. @SUCollegeofLaw | Distinguished Scholar @SolomonCtrYLS | working to advance older adults’ civil rights, person-centered decision-making & legal education
ID:IOTS podcasting @IDiots_pod
4K Followers 510 Following The UK’s Prémièrẽ Infectious Disease Podcast. [email protected] https://t.co/13TJ0Cmg3U
Debbie Toth @Debbieke
661 Followers 500 Following In no particular order: mom, wife, elder dignity warrior, nonprofit beggar, community activist, lover of humans, pursuer of equity & kindness. Views are MINE.
Dr. Ijeoma Opara @IjeomaOparaPHD
28K Followers 5K Following Associate Professor @yale | Director of @thesashlab |PhD in FSHD alum @montclairstateu | MSW Alum @NYUSilver | MPH Alum @nymedcollege
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312 Followers 89 Following For The #SickleCellProdigy | Who Wants A #SickleCellTribe 🌎 | Awareness. Impact. Legacy.
William Aird @WilliamAird4
23K Followers 310 Following Professor of Medicine at Harvard Medical School #Hematology #MedEd Founder of @TheBloodProjec1
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796 Followers 1K Following
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admiralfrogpants.eth @admiralfrogpant
212 Followers 207 Following Co-founder and CEO of Medibanx. Patients can support research & development if they own their medical record
HEMLIBRA® (emicizuma.. @HemlibraHCP
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Rasaq Mariam Adédàp.. @AdedapoArike
6 Followers 22 Following I'm a fashionista💯 I make people look gorgeous for a living❣️ I specialize in; Gowns Khimar Jalbab Abaya Cap Niqob Exquisite native wears Hennah designs💅 etc
Virpax® Pharmaceutic.. @VirpaxPharma
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Resilient 1 🇺🇸 @LukeKimber32
1K Followers 2K Following Retired Medical First Responder (Disabled by Malpractice/Negligence) CPP *My mission: Change healthcare law’s,. https://t.co/QdHJFsKSsO
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347 Followers 682 Following Passionate Educator, Writer, Consultant, Science Nerd, Rare Disease Blogger & Advocate, Mom and CNA to 2 kids w/ DEND. My aviation nut hubby by my side.
Lynsey Chediak, MSc. @LynseyChediak
478 Followers 919 Following Shaping the future of health & hopefully equity // @CMCAA & @Venture4America & @LSEnews & @wef now at @medicines360 // #Arthrogryposis #raredisease survivor
Thai Ali Floyd @thaiafloyd
5K Followers 2K Following Florida A&M Alumna🐍 | Multimedia Sports Reporter | Child Of God | galvanizer | opinions are my own | @andscape, @HBCULegends-@SINow, @ESPNPlus |
Matias Page ⭕️ HO.. @Hormetik
22K Followers 813 Following Formerly depressed, fat, and weak. This is THE Training Program for men 35 or Older: https://t.co/tePUqXF1PI
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Amanda Khan @AmandaKhan310
1K Followers 2K Following Senior Political Manager @popdemoc. Co-founder @organiz_org. People power builder and swimmer of pools, local Vegas foodie. 🇬🇾 Tweets are my own.
Brenda Zamora @BrendaZ_NV
507 Followers 416 Following Personal account | Trustee account ➡️ @trusteezamora | Creating the world I want to live in | Las Vegas 🎰 | 🇲🇽 🇬🇹 | My tweets are my own 🌸
Clark County Nevada E.. @ClarkCountyNVes
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Nutritional Therapy @NTAtraining
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CCSDUNIFY @ccsdunify
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Quentin-Michael Savwo.. @qmsavwoir
1K Followers 4K Following Pres., NAACP LV. Pro-Democracy. For my ppl. I ❤️ #BlackWomen. Boo’d up 👨🏾🤝👨🏽💍. #AllBlackLivesMatter. #CCJKMOT🤙🏽🥶🦍.
The National Action N.. @nanlasvegas2020
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This little guy is 4 months old today! 4️⃣
Guideline-Based Care Might Reduce Cerebrovascular Illness in Sickle Cell Disease bit.ly/48SxgA0 #SickleCell #SickleCellDisease #SickleCellAnemia @DreamsiCkleKids
@nbcsnl 4) Gene therapy is transformative medicine, but it is NOT a cure for sicklecelldisease!
@zorapanina @nbcsnl Some things are not up for comic relief. The pain and suffering of others is one. Especially in the context health disparities and access to care.
@zorapanina @andreharris89 @nbcsnl Maybe you should tell us exactly how educated you were able to become based on this wildly inaccurate skit! Maybe you live with this horrendous disease? Maybe you've experienced medical bias and trauma when seeking help? I'm just confused as to the "educational" part. 🙄🤷🏾♀️
@zorapanina @andreharris89 @nbcsnl We respectfully disagree! The #snl skit was NOT educational! In fact, Europeans and others can and do get #sicklecell, and gene therapy is not a "cure" it's a treatment. Please take the time to truly educate yourself on SCD, the MOST COMMON genetic blood disorder IN the world!
@zorapanina @andreharris89 @nbcsnl No she doesn’t clearly there is nothing subjective about pain from a crisis, increased risk of stroke, kidney disease, potential blindness etc.
@zorapanina @nbcsnl Okay. So stay out of sickle cell’s business right now. We will call you when we need visceral neuropathy’s support. WE said it ain’t funny. The end.
@zorapanina @nbcsnl Do you have sickle cell?
@nbcsnl Your lack of knowledge, and education of Sickle Cell Disease is showing. Aren’t good writers supposed be do research on the things write about? How dare you make a joke of this. Shame on you @kenanthompson any respect I had for you is gone brotha.
@nbcsnl I felt the skit focusing on #sicklecell anemia in a Christmas gift exchange was offensive, not funny, racist & inappropriate. Having a brother, niece & nephew with the disease I know they would not be trading a cure for a toy. @sicklecellmw @ConquerSCD @SickCells @SCWarriorsInc
@nbcsnl This was so disrespectful to the sickle cell community
@nbcsnl You all thought this was funny? As a mom of two sickle kids needing treatment right now this was tasteless. ESPECIALLY WITH A $5 MILLION DOLLAR PRICE TAG. How about you make a donation? Instead of making jokes???
@nbcsnl So desperate to be funny again that you poke fun at a serious disease....and still fall flat with the attempt at humor.
@nbcsnl I have sickle cell disease SC and I did not find this skit to be funny at all my is Carlton Walker Jr
@nbcsnl Yall missed the mark and as this disproportionately impacts African, Black and Latinx populations, but yall knew that and pressed forward. Disgusting and tone deaf.
@nbcsnl Trash. Not funny. Read the room, we’ve been saying this for how long??
@nbcsnl If you know anything about #sicklecell, you know this is tasteless and disappointing.
@nbcsnl I am not amused, and I am tired of SCD being used a punchline and not taking the time to ADVOCATE & EDUCATE. First, the white man saying no one in his family would have it is false, as SCD is hereditary. Any race can INHERIT SCD. and yes I have it.
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