PANSPANDAS @PANSPANDAS

SHOW UP! October 9th, 4-6PM. Boise Capitol to support “Gianna’s Bill.” Wear green! 💚

SHOW UP FOR GIANNA. SHOW UP FOR IDAHO KIDS. 💚 On October 9, Idaho families are gathering at the Capitol for one simple reason: kids with PANS/PANDAS need treatment, not denials. Gianna (“Gigi”) Coulter of Melba is one of those kids. Her story is why this bill carries her name. PANS/PANDAS is an immune-driven condition that can suddenly change a child’s personality, behavior, and ability to function. IVIG and other treatments can help—when insurance actually covers them. Many Idaho families are still being told no. This is PANS/PANDAS Awareness Day. It’s also the day we show lawmakers that Idahoans expect coverage for medically necessary care. 📅 Thursday, October 9 | 4–6 p.m. 📍 Idaho State Capitol, Boise Wear green. Families will speak. Legislators will speak. There will be a way to sign in support of Gianna’s Bill on site. If you have a child, know a family going through this, or simply believe sick kids shouldn’t have to fundraise or fight insurers for care—come stand with them. Show up for Idaho kids. 💚

“She was clawing at her mum and screaming, ‘Make it stop.’” Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three ⬇️ thetimes.co.uk/article/he-scr…

Shining a light on this horrific condition that has brought our family to its knees. More research, education for doctors, & treatment is crucial to save lives #PANDAS #PANS @PANSPANDASUK @MedTweetMYHQ @NHSEngland @MorecambeBayNHS @simonfell

The Times and Sunday Times @thetimes

2 years ago

“She was clawing at her mum and screaming, ‘Make it stop.’” Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three ⬇️ thetimes.co.uk/article/he-scr…

11 32 53 30K 14

Full room for this exciting conference on PANDAS/PANS. I look forward to excellent talks from world experts. It would be great to have one in the old continent too @PandasPans

🚨🚨@SecKennedy please help this father. Get in touch with him.👉 @weaponrosary Robert F. Kennedy, Jr & U.S. Department of Health and Human Services , I’m not stopping until we talk on behalf of all PANS/PANDAS children that are suffering just like this ⬇️. This is what PANDAS looks like. *Pediatric Autoimmune Neuropsychiatric Disorder Associated w/ Streptococcal (PANDAS)

Excited to join pediatric innovators at @A4MEvents Pediatrics Reimagined Summit this September in Nashville! Master functional approaches to PANS/PANDAS, autoimmunity, neurodevelopment & metabolic health in kids. Register now a4m.com/pediatrics-rei…

Clinicians & researchers: Register for The Alex Manfull Fund Symposium on Nov 14 in Portsmouth, NH. This event brings together leading experts to explore the research & clinical advances in PANS/PANDAS & other immune-mediated neuropsychiatric disorders. thealexmanfullfund.org/the-alex-manfu…

Boise! Show up wearing green October 9th for children suffering from Pediatric Autoimmune Neuropsychiatric Disorder. Currently there is no insurance coverage and parents are left with $30,000 / month in medical bills.

@IdahoStatesman @KTVB @CBS @FoxNews @CNN @IdahoNews6

LAST WEAPON @weaponrosary

a week ago

October 9th update for children suffering in Idaho. Thank you @LamarOOH for supporting our kids. @SenatorRisch @GovernorLittle @MikeCrapo @RobertKennedyJr

0 0 3 172 1

💚 8 DAYS TO GO! Why are we Steppin’ Out? To help improve recognition, support, research and care for people affected by PANS/PANDAS. Every step helps move us toward healthier futures. canadahelps.org/en/charities/i… #SteppinOut #PANSPANDAS

Strep can present as tummy bugs, headaches, vomiting, behaviour change. irishtimes.com/ireland/2026/0…

keyboard_arrow_left Previous keyboard_arrow_right Next

Join PPN on Oct 9 to raise awareness of PANS/PANDAS, treatable, immune-mediated neuropsychiatric conditions. By highlighting the need for early diagnosis, treatment, research funding, we can help families access the care they need & move the field forward. pandasppn.org/awareness

Boise PANS/PANDAS Rally Updates: 💚A digital form will be at the event for you to sign in support of Gianna’s Bill 💚 Hundreds have committed or RSVP’d. Can we get over 1,000?! 💚Lamar Advertising Co has donated Billboards. WOW! Thank you!!!! 💚KTVB NBC is sending news/reporting 💚Idaho Legislator will speak 💚Multiple Pans-Pandas Families attending and speaking 💚Wear green! If you don’t have green 👇 💚Waiting on an RSVP from: @GovernorLittle and @RobertKennedyJr Shirts: lastweapon.com/shop/p/mercy-f… Hoodie Sweaters: lastweapon.com/shop/p/mercy-f… Thank you @MichaelRCaputo for the “Mercy for Gianna” theme idea. It caught on with multiple social media platforms and helped get us here. More big updates coming this week! Got some amazing community events happening in preparation to share.

Register now for the Oct 8 webinar: “From Crisis to Connection: A Dynamic Framework for PANS & PANDAS in Schools.” Karan Lamb, PhD, will explore strategies for assessments, developing accommodations, navigating crises, & building collaborative support. pandasppn.org/learning

@SenatorRisch Jim,

LAST WEAPON @weaponrosary

3 weeks ago

@GovernorLittle please come support “Gianna’s Bill” on October 9, 4-6:00 at the Idaho State Capital Building. Link 🔗 in comments 👇. PANS/PANDAS Awareness Day. @MikeCrapo @SenatorRisch @ACF_Adams

1 2 4 422 0

Kathryn & Michael’s daughter was 9 when PANS changed everything. Today, she’s stable and heading to college. “We walk because every child deserves the chance to get their life back.” Read their story: inflamedbrain.org/one-reason-to-… #OneReasonToWalk #SteppinOut2026 #PANS #PANDAS 👟

keyboard_arrow_left Previous keyboard_arrow_right Next

@GovernorLittle please come support “Gianna’s Bill” on October 9, 4-6:00 at the Idaho State Capital Building. Link 🔗 in comments 👇. PANS/PANDAS Awareness Day. @MikeCrapo @SenatorRisch @ACF_Adams

🚨VERY IMPORTANT 👇👇👇👇👇👇👇👇👇👇 🚨🚨Please find it in your heart to help get Gianna to Washington, D.C. for new treatment. Please listen to her father. Any amount will help. I personally donated. Thank you, and please repost. We all love Gianna and want her to get the help she needs. God bless you all. Donate here: gofundme.com/f/support-gian…

LAST WEAPON @weaponrosary

a month ago

@HHSResponse @RobertKennedyJr doing a GoFundMe since insurance doesn’t cover my daughter’s illness. @DrJBhattacharya

6 10 16 8K 2

Clinicians & researchers: Register for The Alex Manfull Fund Symposium on Nov 14 in Portsmouth, NH. This event brings together leading experts to explore the research & clinical advances in PANS/PANDAS & other immune-mediated neuropsychiatric disorders. thealexmanfullfund.org/the-alex-manfu…