Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1
Ruby was taken by #rhabdomyosarcoma 2 weeks before her 7th birthday. She was amazing. We fundraise for better treatments and a cure. Over £230k raised so far. bemoreruby.com Scotland, United Kingdom Joined February 2020-
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📢 The 1st spin-off project from the baseline review has been published! The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇 onlinelibrary.wiley.com/doi/10.1002/pb…
This means so much to us. Huge thanks to @InchturePrimary for raising this incredible amount to pay for the installation of a Be More Ruby bench in the school grounds 💗🦄 A lasting legacy for our girl. She would absolutely love it. #teaminchture #bemoreruby
This means so much to us. Huge thanks to @InchturePrimary for raising this incredible amount to pay for the installation of a Be More Ruby bench in the school grounds 💗🦄 A lasting legacy for our girl. She would absolutely love it. #teaminchture #bemoreruby
Be More Ruby day at @InchturePrimary! So grateful to Ruby’s school for continuing to remember and celebrate her life 💗 More photos to come 😍 #teaminchture #bemoreruby
Be More Ruby day at @InchturePrimary! So grateful to Ruby’s school for continuing to remember and celebrate her life 💗 More photos to come 😍 #teaminchture #bemoreruby
International childhood cancer awareness day. Reminding people of the stats and why change is needed. #sophieslegacy #childhoodcancer
We chatted about the use and design of the online resource. All of this information will be used to improve the accessibility and transparency of research into treatments for children with relapsed/refractory #RMS And we even finished the day with some amazing cupcakes!!
Happy birthday Ruby 🩷 You should be 11 today. We should be celebrating with you. Instead we are joining kindred spirits and clever minds to work on a resource to help children like you. We miss you. We love you 🩷💔
❔Pain in childhood cancer – take part in our research. 🏘We want to build a digital resource to help children and their carers manage pain caused by cancer and its treatment. 👉Join us! birmingham.ac.uk/schools/nursin…
📢CAN YOU HELP? We're developing an online resource about Living-REFoRMS to let families & professionals access info about studies in the review. We’d love you to get involved if you have experience of #rhabdomyosarcoma - fill out the form: forms.gle/oYuozX5CrJ2jei… or email/DM us
Very proud to be involved in this research. Representing our daughter’s wishes to help others like her 🩷🦄
Very proud to be involved in this research. Representing our daughter’s wishes to help others like her 🩷🦄
Today on @theJeremyVine Listen from 1:31:35 to hear Ruby’s mummy talk about anticipatory grief. The life of a child forever changed by cancer is a life that creates grief, regardless of the outcome. So much more to say… bbc.co.uk/sounds/play/m0…
LAUNCH OF OUR 25TH ARC IN THE UK - NEIVE'S ARC Welcome Neive's Arc to our ever-growing army of UK Arcs. Neive is currently on palliative care. She has run out of treatment options. This is not good enough. Read her story here. #thearcs #rhabdomyosarcoma alicesarc.org/arc/neive-warw…
Our Art in the Park #childhoodcancer art exhibition is on display in the woods near the Coventry Peace Orchard until 24th Sept. It's a lovely space to display the art and stories Video credit: Shawry's Videos and Images #GoGold #CCAM #childhoodcancerAwarenessMonth #Covhour
We wish we lived nearer so we could visit this beautiful exhibition. Thank you @PassTheSmileOrg for organising it and including Ruby’s art once again. It looks lovely. A perfect, peaceful setting for this important #CCAM display. We wish Ruby was here to create more 💛🎗️
We wish we lived nearer so we could visit this beautiful exhibition. Thank you @PassTheSmileOrg for organising it and including Ruby’s art once again. It looks lovely. A perfect, peaceful setting for this important #CCAM display. We wish Ruby was here to create more 💛🎗️
July is #SarcomaAwarenessMonth 🎗️💛 7 in 10 children who are diagnosed with #rhabdomyosarcoma will survive – but this is a lot lower than the average survival across all cancers. That’s why #SNFs like @PassTheSmileOrg & @BeMoreRuby1 are so important 👇🏻
Busy party planning with our friends at @BuddiesRacquet 🤩 Some fantastic prizes to be won from local businesses ☺️ Aiming for a great celebration and lots of funds raised in Ruby’s memory 💗 Get in touch for tickets or to donate👍 Email [email protected] for more info!
Beat the ex pro (giant fluffy unicorn) goalie at Inchture village fête yesterday. Ruby’s Daddy being more Ruby 💗🦄 There was blood. There was lots of sweat 😅 we don’t think there were any tears. We hope Ruby is giggling somewhere this Father’s Day. She should be here 💔
The YPI group from @PHS__Drama were absolutely fantastic! Did such a brilliant job, Ruby would have been immensely proud of you all 🦄💗
The YPI group from @PHS__Drama were absolutely fantastic! Did such a brilliant job, Ruby would have been immensely proud of you all 🦄💗
We are so, so grateful to the @PerthHighSchool YPI winners for choosing us as their charity and working so hard to achieve the win. It means so much, and we know how much it would mean to Ruby, who always wanted to help other children like her. Thank you all 💗 @CCLG_UK
We are so, so grateful to the @PerthHighSchool YPI winners for choosing us as their charity and working so hard to achieve the win. It means so much, and we know how much it would mean to Ruby, who always wanted to help other children like her. Thank you all 💗 @CCLG_UK
Huge thanks to @LeanneL78385979 and the team challenging themselves to complete Tough Mudder 2023, raising some funds for Be More Ruby while they’re at it! 💪🎗️ They’d be very grateful for donations to spur them on! justgiving.com/fundraising/le…
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1K Followers 2K Following Freelance journalist | 🎨 Arts & culture 🎭| Newsletters & committee member @WIJ_Scotland | Views my own | Email: [email protected]
@ashleysgamble I can’t think of a better way for you all to be spending Fred’s birthday. I hope you all have a productive day.
We’re underway! Thrilled to welcome 650+ delegates to our biggest ever conference: multiple educational streams now underway! #CCLG2024
Kicking off #CCLG2024 with a strategy-setting meeting with a cross-section of our membership and thinking about the next five years for @CCLG_UK & @TYACancerPro - lots of enthusiastic discussion from our brilliant colleagues who have given up their Sundays to support us
Best of luck to Gail and Liz who are running the #londonmarathon2024 for Pass The Smile. Enjoy the day and the experience - and thank you 🖤❤️🖤❤️ To sponsor Gail: justgiving.com/page/gail-emme… To sponsor Liz: justgiving.com/campaign/pass-… #childhoodcancer
Final countdown to #CCLG2024! Manic office morning in readiness for welcoming almost 680 delegates to our Annual Conference from Sunday - Tuesday (a new record by some margin!)
In Westminster today for the launch of @Cancer52org’s manifesto for rare and less common cancers (which includes all childhood cancers). As ever, vitally important we all come together on common challenges #C52Manifesto
Ensuring our health information for patients and families is accurate, reliable, up-to-date and accessible is vital and our #PIFTick accreditation demonstrates our commitment to this! Well done to the team for achieving reaccreditation again!
We'd also like to say a massive well done to the organisations who were reaccredited in March. Congratulations @CR_UK, @CCLG_UK, @myrovlytis, @rcpsych, @TeenageCancer, @tommys and @UKPTrust on your continued #PIFTick accreditation.
I struggle to look at photos of myself now as I see the grief in my eyes straight away, the ‘after’ version of me. But we went to Valencia & we had a nice time 🇪🇸 so sharing these pictures in the interests of balance - wish Floss was there too #childloss #bereavedbysuicide 💛
This.
Today is National Siblings Day. Our thoughts are with all those siblings who have experienced the loss of a precious brother or sister 💞 You are not forgotten. You are not alone.
Ruby Fuller and Jessie Ross bonded over social justice and Taylor Swift – before Ruby died of blood cancer at just 18 Read about Jessie's journey to Downing Street below ⬇️ telegraph.co.uk/health-fitness…
📢 The 1st spin-off project from the baseline review has been published! The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇 onlinelibrary.wiley.com/doi/10.1002/pb…
April is bowel cancer awareness month. This photo of Charlotte was taken just 2 months before her diagnosis of stage 4 BC with extensive spread to her peritoneal cavity, stomach lining and surrounding lymph nodes. Charlotte died in just 4 months of her diagnosis💔 @bowelcanceruk
Happy Easter, Ben. Our third now without you, though you are so close to us in spirit. We see you everywhere. Breathe free, young man: 🐥❤️🌞
From a heartbroken Father, describing #ChildhoodCancer 💔 “As a photographer it is important to capture the truth and the reality of a situation, too easy it becomes to capture the joy of life whilst discarding the torture that we see. This is the hardest photograph I have…
Pebbles for Ruby by her talented friend, Lizzie ❤️ Dotted around Dulwich woods. Let us know if you find one! #livekindlyliveloudly
Happy heavenly birthday Ben 🖤❤️💫❤️🖤
@BeMoreRuby1 @InchturePrimary Amazing! Well done everyone at Inchture. ❤️ We have a buddy bench in our school in memory of our secretary who died a few years ago and it’s still used 6 years later. 🥰
P1 have been learning how to solve addition and subtraction problems using a number line. They enjoyed hopping up and down number lines to practise this! #teaminchture
Congratulations to our pupils who received the termly ‘striving to be the best they can be’ certificate. It was wonderful to hear how they have been challenging themselves in their learning, developing their resilience and supporting their peers #TeamInchture 🌟
This means so much to us. Huge thanks to @InchturePrimary for raising this incredible amount to pay for the installation of a Be More Ruby bench in the school grounds 💗🦄 A lasting legacy for our girl. She would absolutely love it. #teaminchture #bemoreruby
Thank you so much for a huge team effort in raising a massive £957 towards our .@BeMoreRuby1 bench. The pupils and staff enjoyed the fabulous baking everyone donated #TeamInchture 🌈 🦄
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