Kate Renton @DrKateRen
Consultant in Paediatric Palliative Medicine. Enthusiastic and bad at saying no. Surprisingly pointy elbows. All views are my own. Hampshire, England Joined August 2015-
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HCP insights emphasize the need for a standardised tool to assess breakthrough pain in paediatric palliative care, to enhance patients’ pain related diagnosis, management, and quality of life mdpi.com/2756408 #mdpichildren via @MDPIOpenAccess
Proud to have contributed to this.
Proud to have contributed to this.
My interview with the Guardian on conflict, difficult decisions and the Archie Battersbee case amp.theguardian.com/world/2022/aug…
Now @TimWarlow is updating on the GI Dystonia guideline development. First, a RAND process has agreed a definition. @TheAPPMuk guideline coming soon
Totally awesome to hear the incredibly hard work put in by the @TheAPPMuk guidelines groups... Though the evidence base in #pedpc is growing, their literature searches highlights that sparsity remains.
Are you a health professional in a Neonatal Unit? *WE NEED YOUR HELP* ...on study design, outcome measures + recruitment for our end-of-life care research Join us for an online meeting on Wednesday 22 June, 1-3pm (via Zoom) Contact: [email protected] @BAPM_Official
Dr Lynda Brook and @AlderHey team talking @TheAPPMuk study day about palliation in patients with darling Fontan's. #pedpc
Great challenge to finish with from @EmilyHarrop10 - how will YOU contribute to evidence base for #pedpalcare #APPM2022 #mustfinishthatphd 🤣
The latest version of Basic Symptom Control in #pedpc is now out. Please do download (but be mindful of printing this gardgantuan volume!): togetherforshortlives.org.uk/resource/basic…
All the awesome things we do... Do take a look at our website and sign up to support us. appm.org.uk/about-appm/joi… #pedpc
Cracking presentation from Dr Sophie Bertaud about her forthcoming PhD study looking at ante-natal decision making in #pedpalcare - good luck with the study - can’t wait to see the results @NeonatalEthics @TheAPPMuk @LDCentre1 @mancini_smith
'Grief is a normal response to loss of any kind.' Yet we are unfamiliar with it. We don't know how to help. Here's a helpful animation from @Shapesofgrief Take a look, and pass it on. You never know who might find this is the very insight they need. youtube.com/watch?v=Wyj1sV…
Lorna Fraser @lornafraser10
2K Followers 2K Following Professor of Palliative Care and Child Health at Kings College LondonBecky Hepworth RN �.. @hepworth_becky
4K Followers 3K Following Matron for Children and Young people @wecypnurses, Queen's Nurse, Florence Nightingale Scholar and Mum. Isle of Wight. Views my own #weCCNs #weCYPNsMichael Griksaitis @MJGriksaitis
4K Followers 770 Following Consultant #PedsICU @UHSFT. Faculty @UoS_Medicine. Lead SORT paediatric transport. Chair @pccsatg. Like #physiology, #POCUS & #MedEd. #SoMe team @PedCritCareMedTSH @TSH2020nurse
337 Followers 529 Following Cnc for children life limiting conditions. Schwartz round facilitator. Dad of 3 great children and 1 patient wife. Welsh man (rugby mad)in 🇮🇪 views my own.Michael Tatterton PhD.. @MJTatterton
2K Followers 2K Following Dad | Chief Nurse @BluebellWoodCH | Assoc Prof (Reader) Children's Palliative Care @UoB_nursing | Editor @JournalofCHC & @EBNursingBMJ | | Trustee @ICPCNTogether for Short Li.. @Tog4ShortLives
26K Followers 2K Following Together for Short Lives is the UK charity for children and young people who are expected to have short lives.Stacey Power Walsh @powerstace
746 Followers 826 Following RNID & RCN (PhD). Passion for Childrens palliative and complex care. Assistant Professor @ucdsnmh. @nilmdtsireland Volunteer. Views are my ownPeta Coulson-Smith @DrPetaCS
1K Followers 3K Following Paediatrician 👩🏻⚕️ Lecturer Medical Ethics & Law 👩🏻🏫 SFHEA | Pall Care | CYP mental health | Paed Medical Mediator | SW Conflict Management ChampionClaire Pickett @fairyclaireyp
242 Followers 283 Following full time mummy, and a full time play specialist!natalie hughes @nataliehughes79
607 Followers 1K Following NHSE CYP team in spec comm, PEoLC & LTP Views my own and not that of my employers or profession. Neurodivergent person & parent @natbrom79 on Threads by Meta🌟 Kath Evans RGN R.. @KathEvans2
38K Followers 31K Following Director of #ChildrensNursing @NHSBartsHealth #YoungBartsHealth #CYPHealthRights #CYPSocialPrescribing @NELHCP @CityUniHealth #NHS1000miles #UltraRunnerHannah Linane @HannahLinane
370 Followers 312 Following Palliative Medicine Doctor. Fellowship in Adolescent and Young Adult Palliative Med, Children’s Health Ireland. Value compassion and kindness Views are my ownKatrina Cathie 💙 @katrinacathie
1K Followers 740 Following Wife, mother, paediatrician and researcher @uhsft @sotonchildhosp, breast cancer patient. All views are my own.Christine Mott @DrChristineMott
249 Followers 141 Following Paediatric Palliative care Physician General Paediatrician Travel fanaticThe Bipolar Doc @doc_bipolar
21K Followers 3K Following Paediatrician. Lived experience of burnout & mental illness. Compassion & humanity in healthcare. Speaker, writer, teacher. Views my own. (She/Her)Stephanie kelly @stephrkelly
518 Followers 1K FollowingLaura Bengree @LBengree
5 Followers 95 Following Lead Nurse for Paediatric Oncology & Palliative care in Southampton. Passionate about Neuro-Oncology and Medical Law. Wife, Mother, Friend…All view my own.Jane Lewins @LewinsJane
383 Followers 1K Following Mummy, Wife and Nurse. Proud to be an Advanced Clinical Practitioner working with Babies, Children and Young People. 🌈 All views are my own.Timothy Warlow @DrTimothyWarlow
4 Followers 23 Following Consultant in Paediatric Palliative Medicine, Clinical Lead Wessex Children’s & Young Adults’ Palliative Care Network. Guitarist, Cyclist, All comments my own.Anthony William @Anthony02466491
113 Followers 792 FollowingJustin Baker @justinnbaker
3K Followers 1K Following Blessed husband and father of four kiddos Chief, Division of Quality of Life and Pediatric Palliative Care at Stanford Medicine; [email protected]Dr Adil Daing Officia.. @dradiliqbaldain
597 Followers 4K Following Consultant Surgical Oncology And Robotic Surgery. Member American-ASCO,SSO And European ESMO Cancer Societies. Rt's Not Endorsements.Williams_5437 @willams39260145
66 Followers 2K FollowingLeeanne Tully @Leeanne20201
86 Followers 246 Following CNS Paediatric Complex Disabilities. Mammy to two beautiful kiddos ❤️ RCN/RNID. All views are my own.Ambresh Michael @MichaelAmbresh
41 Followers 519 Following Wow that is very good i'm from Los Angeles California as a US military Doctor currently stationed here in Baghdad, IraqZoey Fry @ZoeyFry5
150 Followers 168 Following *CCNSPQ* Paediatric Community Matron. DCHFT. Queens Nurse.Becky Tuohy-Hoy RNC �.. @BeckyTH18
541 Followers 2K Following Childrens Complex Care Sister • • Passions CYP, Respiratory, LTV, NIV, ED & EoL *Specialist Community Nurse Practitioner & Non-Medical Prescriber*Sam Dhesi, MD @samdhesi_
314 Followers 2K Following Building the future of workforce @ Lantum. Ex-DHSC, Ex-NHS. Expert in gently persuading NHS MDs to become tech leaders and change the world.Shreyans GA @shreyans_gaamin
137 Followers 1K Following Budding Pathologist. I never put profile pic because i don't believe on privacy policy..Helen Turnham 💙 @HelenTurnham
329 Followers 297 Following Consultant Paediatric Critical Care, Anaesthetist, Feminist, student of Moral Philosophy, Wife, Mum of 3, RunnerCheryl Adams @A21958448Adams
4 Followers 92 FollowingEve Holroyd @_EveMalam_
561 Followers 1K Following HEE Leadership Fellow~Children’s Palliative Care CNS @BTHFT~Interested in pathway development/workforce transformation/inequalities~Mum~CrossFitter~My opinionsHermione Andrejevic @hermica08
30 Followers 184 Following Consultant in Paediatric Palliative Medicine and Paediatric Outreach. Mater Dei Hospital MaltaAndrea St.Hilaire @AndieStH1
339 Followers 2K Following PhD researcher, seeking critically ill teens’ perspectives w/use of creative media. Grief educator, end-of-life doula, secular chaplain, mindfulness instructorZachary Tait @zachary_tait
704 Followers 3K Following former londoner, two-time Pointless loser, sometimes junior doctor, incoming palliative ACF 🌈🩺 he/himBecky Bedford RN(chil.. @BeckyBedford3
468 Followers 509 Following Passionate about children and young people realising their aspirations. WellChild Inspirational Nurse Award 2021 aka @CareCcn All views and opinions my own@Spanish Palliaeteur @MaraTer09760776
368 Followers 968 Following Caring for vulnerable people and fragile lives, because they matter. I Stand by the Statement that "Dignity is a Sense of Personal Worth" (Cicely Saunders)helen humphrey @helenhu38019018
249 Followers 4K Following Paediatric Nurse👩⚕️, Lecturer and Practice Education Lead for Children's Nursing UEA. Good food, good wine, Be kind. Views my own 👍Helen Finlinson @HelenFinlinson
69 Followers 46 Following Head of Inclusion and Development, St Elizabeth Hospice, Young adult care and transition lead for Zest. All views expressed here are personal.SPIRE Network @SPIREConcept
512 Followers 2K Following SPIRE-Severe neurological imPairment in IREland; examining prevalence, healthcare utilisation and parental experience. Supported by CHI Research & InnovationOceans Community Proj.. @Oceansproject1
271 Followers 1K Following Our focus is on local community integration projects; health inequalities; vaccines for all; prostate checks for all men, especially Black men.Matt Makin GMC 343336.. @COSMakin
8K Followers 5K Following Mancunian & MD of the mighty @NorthMcrGH_NHS , home of the Regional Infectious Diseases Unit . Hon Prof, Health & Behavioural Science @BangorUni also MD of SCUKDr Caroline Anderson @CarolineMusicT
51 Followers 174 Following Music Therapist. Allied Health Professional. Research interests: intercultural music therapy, and children’s hospice care.Phil Laslett @PhilipLaslett
2K Followers 4K Following On a mission to enable people to maximise their personal and professional growth #salesenablement #confidence #mindset #runner #authorAnna jones @annajones780
788 Followers 645 Following Director of children’s services at chestnut tree children’s hospice. Passionate about palliative care & love education. RSCN,CCNS , Florence Nightingale ScholarCharlotte Holland @dr_charlotte_h
11 Followers 63 Following Paediatric Consultant with an interest in medical education and paediatric palliative care.Palliaped @palliaped
80 Followers 68 Following Palliaped spreads culture, research, and training among healthcare providers involved in pediatric palliative care.Becky Davis @BeckyDa38655956
57 Followers 118 Following Clinical Nurse Specialist in Children’s Palliative Care. Preferred habitat: the beach and my camper van Margot 🙂. Views are my own.Natalie Elliot @NatalieElIiot
29 Followers 371 FollowingGen Southgate @GenSouthgate
295 Followers 529 Following NHS Superfan❤️ Paediatric Palliative Medicine GRID Registrar. @UoS_Medicine grad. Views my own. 🇪🇺 🇺🇦Mary Felton @maryddevins
771 Followers 1K Following Wife & older Mammy. Proud Irishwoman - love everything Irish or Ireland related. Paediatric Palliative Care Doctor - my passion. Opinions my own....Rebecca Mcdonald @Rebeccamc130681
82 Followers 179 Following Clinical Nurse Specialist Paediatric Palliative Care Hywel Dda UHB Msc Palliative MedicineCait Lee 💙 @cait__lee
108 Followers 262 Following Love is a reflex... it's what you do... Children’s Nurse working in Paediatric Palliative Care. All views are my own.Emily Tammam @EmilyTammam
3K Followers 928 Following IBCLC, mother of daughters, bereaved mother of Neve, interested in palliative care, birth and death, communication and connection, baking, painting, runningjennifer evans @jevans2808
369 Followers 870 Following paediatrician - infectious diseases immunology & palliative care. mum of 2 great young people and proud to live in Wales 🏴Gareth Jones 💙 @gso_jones
612 Followers 1K Following Proud dad and husband. CYP palliative care senior manager @NHSEngland | RNChild and CCN. Music 🎶 | Rowing | Views own.Christina Parfitt �.. @drparf
177 Followers 303 Following General Paediatric Consultant. Interests in Oncology and Palliative care. College Tutor. Passionate about Trainee Well-being, RTT and MentoringDr Neil Pender BM MSc.. @DrNeilPender
16K Followers 17K Following Consultant in Palliative Medicine, Tameside and Glossop Integrated Care NHS Foundation Trust. VIEWS ARE MY OWN. Retweets are not necessarily endorsements.Ximena Garcia @ximegq01
641 Followers 474 Following Palliative Care Pediatrician 🇨🇴 Project coordinator Global Palliative Care Program at @stjude 🇺🇸 Happy/Proud Mother of Pauli and Nana 👨👩👧👧SotonHannah_EBC @SotonHannah_EBC
339 Followers 548 Following Paediatric Outreach ACP @sotonchildhosp. Generally found drinking coffee, wearing flip flops & looking for the next adventure! 🏔 🥾 🎒Joanne Balfe @joannebalfe
722 Followers 851 Following Irish Paediatrician. Too many interests, too little time. All opinions are my own.Claire Crawford, PhD,.. @PalliativClaire
1K Followers 1K Following Pediatric palliative social worker in Texas. Passionate about #medicaleducation and cats. All thoughts my own. She/hers #pedpc #socialwork #hapcLorna Fraser @lornafraser10
2K Followers 2K Following Professor of Palliative Care and Child Health at Kings College LondonDr Rachel Clarke @doctor_oxford
284K Followers 4K Following Palliative care doctor 👩🏻⚕️ Writer DEAR LIFE, BREATHTAKING 📚 Rep: @AitkenAlexander 📝 Founder: @hospiceukraine 🇺🇦 THE STORY OF A HEART out 5.9.24 🫀Kathryn Mannix @drkathrynmannix
41K Followers 1K Following Retired palliative care doctor. Writer: 'With the End in Mind', 'Listen.' Wants us to understanding dying more, fear it less, listen better. Rep: @DHAbooksMichael Griksaitis @MJGriksaitis
4K Followers 770 Following Consultant #PedsICU @UHSFT. Faculty @UoS_Medicine. Lead SORT paediatric transport. Chair @pccsatg. Like #physiology, #POCUS & #MedEd. #SoMe team @PedCritCareMedMichael Tatterton PhD.. @MJTatterton
2K Followers 2K Following Dad | Chief Nurse @BluebellWoodCH | Assoc Prof (Reader) Children's Palliative Care @UoB_nursing | Editor @JournalofCHC & @EBNursingBMJ | | Trustee @ICPCNTogether for Short Li.. @Tog4ShortLives
26K Followers 2K Following Together for Short Lives is the UK charity for children and young people who are expected to have short lives.Stacey Power Walsh @powerstace
746 Followers 826 Following RNID & RCN (PhD). Passion for Childrens palliative and complex care. Assistant Professor @ucdsnmh. @nilmdtsireland Volunteer. Views are my ownPeta Coulson-Smith @DrPetaCS
1K Followers 3K Following Paediatrician 👩🏻⚕️ Lecturer Medical Ethics & Law 👩🏻🏫 SFHEA | Pall Care | CYP mental health | Paed Medical Mediator | SW Conflict Management ChampionUniversity Hospital S.. @UHSFT
19K Followers 2K Following University Hospital Southampton NHS Foundation Trust includes Southampton General, Princess Anne Hospital and Southampton Children's Hospital. #WeAreUHSnatalie hughes @nataliehughes79
607 Followers 1K Following NHSE CYP team in spec comm, PEoLC & LTP Views my own and not that of my employers or profession. Neurodivergent person & parent @natbrom79 on Threads by MetaRCPCH @RCPCHtweets
35K Followers 3K Following We represent more than 22,000 paediatricians and child health workers, working to ensure that children everywhere receive the best care. #ChoosePaediatricsHospice UK @hospiceuk
30K Followers 7K Following Official Twitter account for Hospice UK. We are the national charity for hospice and end of life care. Parent charity of @dyingmatters.#hello my name is Ros.. @ffolliet
14K Followers 4K Following Paeds Surgeon, a few views on #presentationskills given a few talks. Improving with age, apparently. sings. #ally #HeForShe #htdap he/himDying Matters @DyingMatters
66K Followers 40K Following Official Twitter account for @HospiceUK's Dying Matters campaign. Dying Matters Awareness Week takes place from 6 - 12 May #TheWayWeTalkAboutDyingMattersCarol Davis @CarolUHS
961 Followers 745 Following 30+ years acute hospital pall med consultant. Still learning. Love normalising palliative care; should be part of mainstream health care All views are my own.Helen Turnham 💙 @HelenTurnham
329 Followers 297 Following Consultant Paediatric Critical Care, Anaesthetist, Feminist, student of Moral Philosophy, Wife, Mum of 3, RunnerGen Southgate @GenSouthgate
295 Followers 529 Following NHS Superfan❤️ Paediatric Palliative Medicine GRID Registrar. @UoS_Medicine grad. Views my own. 🇪🇺 🇺🇦Palliaped @palliaped
80 Followers 68 Following Palliaped spreads culture, research, and training among healthcare providers involved in pediatric palliative care.Lucy Coombes @LucyCoombes7
375 Followers 322 Following PhD in palliative care (interest in PROM development in CYP palliative care) Clinical Nurse Specialist in Paed Pall Care @royalmarsdenNHSXimena Garcia @ximegq01
641 Followers 474 Following Palliative Care Pediatrician 🇨🇴 Project coordinator Global Palliative Care Program at @stjude 🇺🇸 Happy/Proud Mother of Pauli and Nana 👨👩👧👧Poh Heng Chong @starpalsPH
249 Followers 125 Following Palliative care specialist. Supports sick kids. Lush gardens, good design, effortless swimming are what I chase for!Dr Naomi Heller @NayHeller
783 Followers 691 Following Passionate about Human Rights, kindness and education for social change 💪🌍🌈 She/Her (Tweets in personal capacity)Lizzie Bendle @drlizziebendle
127 Followers 531 Following Paediatric palliative medicine consultant @EvelinaLondon | joint PCLOD @nhsbt | honorary clinical tutor @cardiffuni | on exec @TheAPPMuk All views are my ownAlison Cashell @alicashell
395 Followers 1K Following RGN, RCN, MSc. Children's nurse with a passion for palliative care, rugby fan/coach. All views my own.Justin Baker @justinnbaker
3K Followers 1K Following Blessed husband and father of four kiddos Chief, Division of Quality of Life and Pediatric Palliative Care at Stanford Medicine; [email protected]Alex Mancini (Smith)�.. @mancini_smith
2K Followers 933 Following National Lead Nurse for Neonatal Palliative Care. Passionate about supporting families and staff. Proud wife to Tony and Mum to 3 fantastic young men & Coco.Nicky Packham 💙 @Dolly_dolby
520 Followers 806 Following Modern Matron (Integrated Community Children's Nursing Service) Solent NHS Trust ☆ RNA ☆ RNC ☆ SPCHN (HV) ☆ Queens Nurse ☆ All views are my own.SCH Therapy Dogs 💙 @schtherapydogs
2K Followers 681 Following All im’paw’tant mutterings of 7 golden retriever therapy dogs providing Animal Assisted Intervention to patients at Southampton Children's Hosp. Book link belowSanjay Patel @doctorsanjay
2K Followers 567 Following Consultant in Paediatric Infectious Diseases. Working on ways to improve how we deliver acute care to children and young people in Wessex.Dr Natalie Kemp @nataliedkemp
109 Followers 167 Following Paediatrics. Palliative Care. Policy. Alumni Uni of Bath, UQ, KCL.Mark Alderton @MarkAlderton3
396 Followers 238 Following Doctor, paediatrician, interested in allergy, husband and father to two, enjoy stupidly long runs.Professor Christina L.. @ChristinaLiossi
975 Followers 2K Following Professor & Consultant in Paediatric Psychology, University of Southampton & Great Ormond Street Hospital for Children. Editor in Chief, British Journal of PainSarah Rylance @sarah_rylance
659 Followers 510 Following Medical Officer @WHO 🇨🇭 #globalhealth #NCDs #lifecourse #asthma #COPD Tweets are my ownProf. Mark Taubert @ProfMarkTaubert
17K Followers 5K Following NHS Palliative Care Consultant @VelindreCC @CardiffUni ★ Vice-President @EAPCvzw ★Chair Advance Care Planning NHS Wales Exec ★edits @BMJ_SPCare #TalkCPR ⚡🇩🇪Practical Ethics @ethicsinthenews
13K Followers 331 Following Oxford Uehiro Centre for Practical Ethics, University of Oxford. Exploring ethical questions for the C21st. https://t.co/GN1Q4SnrmRAmy Savage @DrAmySavage
253 Followers 107 Following Wife, mum, psychologist. Eternal optimist. Kindness is free, sprinkle it everywhere please. Views expressed are my own.Jonathan Downie @jonodownie
280 Followers 282 Following Paediatric Palliative Medicine Consultant. Compassionate healthcare. Glasgow. All views are my own.Emily Harrop @EmilyHarrop9
182 Followers 412 Following Medical Director at Helen & Douglas House (Oxford) and Consultant in Paediatric Palliative Care. Mother of two teenagers, runner and campervan enthusiast.Charlotte Mellor @clmellor
10 Followers 96 FollowingTog4ShortLivesPolicy @Tog4Policy
1K Followers 3K Following Tweeting about UK policy and politics affecting children and young people who are expected to have short lives and all those who support, love and care for themThe Association for P.. @TheAPPMuk
799 Followers 112 Following The APPM represents doctors working in Paediatric Palliative Medicine in hospital, hospices & the community. We support practice, service delivery & training.Tara Kerr-Elliott @KerrElliott
1K Followers 2K Following Children’s Palliative Care #nurse @GOSH| NIHR CDRF | post death matters| Education | Simulation |communication |Bioethics |Schwartz |vaccinator |💙NHS| SwiftieArchana Soman 💙�.. @archsom
459 Followers 1K Following t-e, g-r wokerati. paediatrician. palliative care. mother. feminist. leftist. domestic abuse survivor. views mine not employers'. RT not endorsementMichelle Meiring @MichelleMeirin3
114 Followers 97 Following Palliative Care Paediatrician + CEO @ Paedspal Chairperson of PatchSA Convenor Postgraduate Diploma Palliative Medicine (Paediatrics)Anne-S Darlington @asdarlington
655 Followers 386 Following Professor of Child and Family Psychological Health, School of Health Sciences, University of Southampton, U.K.Stefan J. Friedrichsd.. @NoNeedlessPain
3K Followers 1K Following Professor of Pediatrics. Chief, Division of Pediatric Pain, Palliative & Integrative Medicine @ucsfchildrens President IASP’s @ChildPainSIG (opinions my own)Palliative Diploma @dippallmed
20 Followers 2 Following 25th Anniversary of Palliative medicine/care courses with Cardiff UniversityAndrew Fletcher @itsandyfletch
1K Followers 1K Following Proud chief executive of @Tog4ShortLives. Past Chair @MeningitisNow. Third Sector Rising CEO winner 2020. Lover of the arts, sport and eating. Views my own.Pat Carragher @CarragherPat
515 Followers 606 Following Retired MD of CHAS - handed over to Annabel Howell & a growing senior clinical team. Passionate to support children’s palliative care in Scotland & beyond!Ben Hughes @benbo2013
399 Followers 628 Following Husband, Dad, and academic #PhD in #advancecareplanning. Interested in #social engagement, #social history, #socialjustice, #cake, #death, and #crimeSouthampton Children'.. @SotonChildHosp
4K Followers 753 Following Official Twitter for Southampton Children's Hospital. Sharing the stories, successes and opportunities at Southampton Children's Hospital. Part of @UHSFT.Academic Unit of Chil.. @UnitChild
145 Followers 321 Following Academic Unit of Child Health, University of Sheffield. Research interests include bone, endocrine, radiology & oncology. Head of unit: Prof N Bishop.Maruzza Foundation @MaruzzaCongress
246 Followers 76 FollowingKevin Madden @madden_kevin
2K Followers 2K Following Palliative Care physician, specializing in PediatricsAbby Rosenberg, MD, M.. @AbbyRosenbergMD
3K Followers 602 Following Chief, Pediatric Palliative Care @DanaFarber, @BostonChildrens; @harvardmed; clinician, researcher, feminist, change-maker. Tweets my own. She/Her/Dr. 🌈Feeling a little bit proud of myself this evening, passing the Independent prescribing module. Special thanks to @karenmacaulay8 and Dr Asma Shah who have given me endless support as Practice assessors and the many who have offered me prescribing practice hours. 🥂
Now @TimWarlow is updating on the GI Dystonia guideline development. First, a RAND process has agreed a definition. @TheAPPMuk guideline coming soon
A couple of slides from my presentation for the @TheAPPMuk 'Association for Paediatric Palliative Medicine' event at @HiltonHotels Birmingham Metropole. I've never done anything like this before, it was amazing to talk twice about Charlie, Thomas & Long-term Vent Withdrawal.
It’s here! New edition of the Basic Symptom Control Manual. Huge round of applause for Dr Sat Jassal and all contributors . Available to download free from @Tog4ShortLives website @TheAPPMuk
A big thank you to everyone who presented and all those who came to #APPM2022 @CharliesSnowman @lornafraser10 @cypacp @DrKateRen @DerianHouse @ClaireHouse @LizzieC_TfSL @Tog4ShortLives
Amazing 2 wks with a marathon, a 1st face 2 face conference (SPPC) 4 some time the following day, & then clinical work. Today I’m in “Brum” 4 the APPM conference - just great 2 c so many folk again. Here’s AK, current APPM chair, presenting Sat, Formulary author 2 say thanks+++!
Excited for the start of day 2 of the @TheAPPMuk after an excellent research study day yesterday!
'Clinicians often worry about timing, but it is far more detrimental not to have these conversations than to wait for the ‘perfect’ time.' Nadine Lusney, clinical nurse specialist #EndofLifeCare #PedPC #clinicians hospicenews.com/2022/06/03/ter…
@DrKateRen @FionaMcElligott It was really shocking to hear about the negative physical health effects (although we shouldn’t be surprised as stress and worry must a have long term negative impact) 🙁
@DrKateRen @FionaMcElligott They did look at the overall effects of some of the implementation of the National Policy in 2016 (including the OutReach nurses who are called Clinical Nurse Coordinators for Children with Life-limiting Conditions) Results were positive this the government funding for more…
@DrKateRen @FionaMcElligott I am one of the CNC in Ireland, I belive the most important part of our role, is being a point of contact for families between all services in both acute and community, thus taking pressure from families and helping with continuity of care.
The latest version of Basic Symptom Control in #pedpc is now out. Please do download (but be mindful of printing this gardgantuan volume!): togetherforshortlives.org.uk/resource/basic…
Dr Sat Jassal acknowledged for his incredibly hard work setting and leading on the APPM masterformulary. #pedpc
Congratulations @LucyCoombes7 ! So good to hear how much progress you’ve made on the #CPOS study! Amazing achievement esp through Covid. And thank you for the tips re ethics and “some upset being ok”.#APPM2022 #pedpalcare
Fantastic to hear about the #paramountstudy co-produced Pain information resource for parents currently in development ! Looks like it will be fantastic- also for professionals. Well done Paramount team! @TheAPPMuk #pedpalcare
And now - so good to hear from professor @lornafraser10 about the wide range of studies underway @UoYmhrc as always reminding us of the importance of #PPIE #collaboration #pedpalcare @TheAPPMuk
Cracking presentation from Dr Sophie Bertaud about her forthcoming PhD study looking at ante-natal decision making in #pedpalcare - good luck with the study - can’t wait to see the results @NeonatalEthics @TheAPPMuk @LDCentre1 @mancini_smith
The APPM research day has begun! Fantastic to see people in '3D' again and network. #pedpc