Diverse Alzheimers @DiverseAlz
All about the dementia(s), care, rights & inclusion. Join #DiverseAlz Thursday 8pmGMT/3pmET to discuss issues, share, learn & reflect. Global Joined May 2013-
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@DiverseAlz More hands make work lighter. Team up and help out. Win win .
Care/supporting a person living in a care home…one still can/does
Care/supporting a person living in a care home…one still can/does
We asked ppl to describe carers in less than three words. Look at this…
We asked ppl to describe carers in less than three words. Look at this…
@DiverseAlz No, I disagree carers and supporters compliment the care given in residential or nursing settings.
Meeting centres support programme highly appreciated by people with dementia and carers: a European cross-country evaluation by Dorota Szcześniak et al in Aging Mental Health (2021), via Pubmed: pubmed.ncbi.nlm.nih.gov/31684754/
Look….
@DiverseAlz Q 10 Think about "And then?" i.e. what might happen when it's all over. Meanwhile create "circles of support" around both you and the person you're supporting. #diversealz
This…
@DiverseAlz For some it’s a paid role not a loving role & agreement on hourly rate dependent on their experience They are hired to do a job & with that we hold expectations It can be a very fine line with trust compatibility So different than doing it with unending love or no choice
Children and young people and caring...we shouldn't forget @lorenzos_house
Thank you to everyone who joined. If we see any more posts, we'll pick them up tomorrow. Appreciating your time in this space. #Diversealz
Seeing word fight in timeline. We've been discussing caring, what it takes. Be prepared to "fight", fall down and get back up. #diversealz Correct?
This...
@DiverseAlz Well, first of all support them ! They need help. So help them. If we all think of how vulnerable any of us could be in a worst case scenario, picture it. Then act as if you are fighting for your own life to be understood. You'll fight to the end then. #diversealz
Caring. @dr_shibley writing a memoir. Prediction. X will propel it to best seller status #diversealz #dembk
#Memoir: Dear Life: A Doctor's Story of Love and Loss by Rachel Clarke covers caring for her beloved father. @doctor_oxford new book, The Story of a Heart, will be released in September. #diversealz #dembk
We're asking via/with @Dembkclub about the books by carers or with a carer focus that have made a difference to you. #diversealz
@Dembkclub @DiverseAlz I got a lot from Sally Magnusson’s book - Where Memories go
Before we go Question 11 One tweet could make a difference - tapping in to the X dementia community. Would you agree? #diversealz
Ian Kremer @LEAD_Coalition
67K Followers 47K Following Working to end #Alzheimers/#dementia. @WUSTL @UMichLaw https://t.co/GJkJVm4vF2 https://t.co/dd0eOpRj6V https://t.co/1ARWoHKsQu
DrDr (😊)Wendy Mitc.. @WendyPMitchell
21K Followers 895 Following Sharing my journey, if anyone chooses to read it, of living as well as I can with dementia near Beverley. Follow my blog - https://t.co/FprcPcpcqr
Alzheimer's Society @alzheimerssoc
203K Followers 1K Following We want a world where dementia no longer devastates lives. That’s why we give help to everyone living with dementia today, and hope for the future.
radical optimism @dr_shibley
29K Followers 22K Following #dementia #delirium #disability #neurodiversity primrose hill hon visiting prof @LivUni hon res fellow @ucl #cats #books pro #EU #ageing persl views
Dementia UK @DementiaUK
117K Followers 2K Following Dementia UK provides specialist dementia support for families through our Admiral Nurse service. We respond to messages 9-5 Monday to Friday on Twitter.
Patti LaFleur @carepatti
3K Followers 1K Following Millennial Daughter trying to navigate losing both of her parents from dementia. former teacher, current lover ❤️
Sara Livadeas @saralivadeas
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Willy Gilder @willygilder01
2K Followers 1K Following Living in Scotland with Alzheimers. Board member of Deepness. Luminate Scotland outstanding older artist. podcaster
Innovations in Dement.. @Innov_Dementia
15K Followers 6K Following Rachael, Steve & Damian tweeting about #DEEP #DementiaEnquirers #DementiaDiaries #GettingAlong #rights #accessibility #voices #belonging #recoverydiscovery
Young Dementia Networ.. @YoungDemNetwork
14K Followers 2K Following The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.
Adam Gordon @adamgordon1978
18K Followers 10K Following Medical Doctor. Geriatrician. Professor of Care of Older People @medicineUoN. President @gerisoc. Research interests in care homes, med ed and sarcopenia.
Adam Smith @BetterResearch
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Dr Clarissa Giebel �.. @ClarissaGiebel
5K Followers 2K Following Senior Research Fellow @livuni @arc_nwc in dementia care inequalities. Founder #LiverpoolDementia & @AgeingScientist. If not researching, found outside running.
Bikerwise @bikerwise
4K Followers 1K Following Widowed by dementia. Motorcyclist, swimmer, cyclist, horse lover, walker, novel reader, Nanny, local councillor, oh & retired academic. Views my own.
Just a care home girl @Justacarehomeg1
5K Followers 370 Following Small town girl with a big passion caring for older adults! Nursing in care homes since qualifying as a nurse in 2002! All OPINIONS ARE MY OWN.
Neil Crowther @neilmcrowther
12K Followers 5K Following Strategy. Research. Storytelling. Activism. Co-Convener of #SocialCareFuture. Consultant & irritant. All views expressed my own, tho largely plagiarised.
tommy dunne BEM 💙 @TommyTommytee18
11K Followers 10K Following Living with dementia (Alzheimers) not suffering with it. I may not have enough time left to see a world without Dementia but I hope to see one that accepts it.
British Geriatrics So.. @GeriSoc
37K Followers 6K Following The BGS is a multidisciplinary professional membership association promoting better health & care for older people. Twitter monitored weekdays 9:30am - 5:30pm.
Adelina ComasHerrera @AdelinaCoHe
6K Followers 5K Following Research on Long-Term Care & dementia care systems, based at @CPEC_LSE. Working on a new Global Observatory of Long-Term Care @GlobalObLTC, part of @ilpnetwork
Dr Zena Aldridge @ZenaAldridge1
2K Followers 1K Following Portfolio Dementia Consultant Nurse / Clinical Lead / Fellow. Passionate about improving practice and understanding.
Lara Juanillo @dtblackbox
46K Followers 13K Following 🌟Author w/25+yrs #health ins pricing expertise,teaches #CEO #CFO #HR #Unions💪to✂️#healthcare 💵 w/o cutting #EEBenefits- #SelfInsured #HealthAi - Let’s🤝
Linzi @linzi_mcintosh
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Leonarda Lumia @LeonardaLumia
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Amy L B @Amyblueeyes26
84 Followers 79 Following Dementia & Delirium Trainee AP@Somerset FT/ Patient Champion 2021+⅙Clinical team of the year 2022🏆/🏳️🌈❤️🐕🐈/Keen traveller 🌍(All views are my own)
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iPrevalence - UK Dise.. @iprevalence
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healthconscious @healthyappy
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Dr Jane Thompson @JaneThompsonAdv
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DaisyJuke @studant47
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lesleybethell @lesleybethell1
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Bari @Bari1559014
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Philly Hare @phillyhare
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Dem Fafo @DemFafo
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NOH8 Campaign @NOH8Campaign
792K Followers 424K Following Putting a face to the fight for equality! Join us in taking a stand against bullying and discrimination. #NOH8 #NOH8Worldwide
Emma Wooller @WoollerEmma
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CarePatrol of Greater.. @CPMobileNWFL
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Ian Kremer @LEAD_Coalition
67K Followers 47K Following Working to end #Alzheimers/#dementia. @WUSTL @UMichLaw https://t.co/GJkJVm4vF2 https://t.co/dd0eOpRj6V https://t.co/1ARWoHKsQu
DrDr (😊)Wendy Mitc.. @WendyPMitchell
21K Followers 895 Following Sharing my journey, if anyone chooses to read it, of living as well as I can with dementia near Beverley. Follow my blog - https://t.co/FprcPcpcqr
Alzheimer's Society @alzheimerssoc
203K Followers 1K Following We want a world where dementia no longer devastates lives. That’s why we give help to everyone living with dementia today, and hope for the future.
radical optimism @dr_shibley
29K Followers 22K Following #dementia #delirium #disability #neurodiversity primrose hill hon visiting prof @LivUni hon res fellow @ucl #cats #books pro #EU #ageing persl views
Dementia UK @DementiaUK
117K Followers 2K Following Dementia UK provides specialist dementia support for families through our Admiral Nurse service. We respond to messages 9-5 Monday to Friday on Twitter.
Sara Livadeas @saralivadeas
26K Followers 8K Following I believe social care changes people's lives for the better. Do you? CEO, trustee, consultant, advocate, adviser, friend.
Innovations in Dement.. @Innov_Dementia
15K Followers 6K Following Rachael, Steve & Damian tweeting about #DEEP #DementiaEnquirers #DementiaDiaries #GettingAlong #rights #accessibility #voices #belonging #recoverydiscovery
Young Dementia Networ.. @YoungDemNetwork
14K Followers 2K Following The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.
Adam Gordon @adamgordon1978
18K Followers 10K Following Medical Doctor. Geriatrician. Professor of Care of Older People @medicineUoN. President @gerisoc. Research interests in care homes, med ed and sarcopenia.
Adam Smith @BetterResearch
12K Followers 4K Following #Dementia Research at @UCL - creator of Dementia Researcher supporting ECR Careers
Dr Clarissa Giebel �.. @ClarissaGiebel
5K Followers 2K Following Senior Research Fellow @livuni @arc_nwc in dementia care inequalities. Founder #LiverpoolDementia & @AgeingScientist. If not researching, found outside running.
Ageing Better @Ageing_Better
33K Followers 2K Following The Centre for Ageing Better is a charity working to create a society where everyone enjoys later life. Supported by @TNLComFund
Bikerwise @bikerwise
4K Followers 1K Following Widowed by dementia. Motorcyclist, swimmer, cyclist, horse lover, walker, novel reader, Nanny, local councillor, oh & retired academic. Views my own.
Just a care home girl @Justacarehomeg1
5K Followers 370 Following Small town girl with a big passion caring for older adults! Nursing in care homes since qualifying as a nurse in 2002! All OPINIONS ARE MY OWN.
Neil Crowther @neilmcrowther
12K Followers 5K Following Strategy. Research. Storytelling. Activism. Co-Convener of #SocialCareFuture. Consultant & irritant. All views expressed my own, tho largely plagiarised.
tommy dunne BEM 💙 @TommyTommytee18
11K Followers 10K Following Living with dementia (Alzheimers) not suffering with it. I may not have enough time left to see a world without Dementia but I hope to see one that accepts it.
British Geriatrics So.. @GeriSoc
37K Followers 6K Following The BGS is a multidisciplinary professional membership association promoting better health & care for older people. Twitter monitored weekdays 9:30am - 5:30pm.
Adelina ComasHerrera @AdelinaCoHe
6K Followers 5K Following Research on Long-Term Care & dementia care systems, based at @CPEC_LSE. Working on a new Global Observatory of Long-Term Care @GlobalObLTC, part of @ilpnetwork
Vic Rayner 💚 @vicrayner
12K Followers 5K Following OBE CEO @NCFCareForum ; Director @GlobalAgeing ; Honorary Visiting Professor in Health Sciences @CityUniLondon
Rights For Residents @rightsforresid2
6K Followers 6K Following Grassroot campaign fighting for rights of those in care #CareSupporter #GloriasLaw #RightsForResidents FB: https://t.co/tSUgJJM6z2
Izzy Jones @IzzyJon67069546
501 Followers 2K Following looking after mum recently lost dad #HEITS 💜💙 Dementia Dallys & Dachshunds. Big supporter of Aston Villa #UTV kindness is everything & sunshine ☀️
Rekha Boodoo-Lumbus F.. @RakheeLb
648 Followers 368 Following Nurse ENTR Science Lover/Philomath Humanitarian Researcher/Writer FDR: Rakhee LB CNO POL Network WHO Dementia MU https://t.co/FbF07BfjeH
Robert W. Turner II @robertturnerphd
3K Followers 5K Following @GWSMHS Assistant Professor; Department of Clinical Research & Leadership; Founder of @RWTurnerLab, conducting studies on #Caregiver and former #StudentAthlete
Dr Diana Karamacoska @DrKaramacoska
568 Followers 361 Following 🇲🇰🇦🇺 First-gen academic. Brain health advocate. Ally 🏳️🌈. Vice Chair of @ParticipantPIA & Aussie lead of @PEERSPIA
Facet Publishing @facetpublishing
3K Followers 3K Following The publisher of choice for the information professions worldwide #libraries #informationprofessionals
Delirium Journal @DeliriumJournal
525 Followers 154 Following High-impact research to change #delirium practice || Sister journal to @DeliriumCommsJ || Official publication @AmerDelirium @EDA_delirium @ANZA_delirium
Delirium Communicatio.. @DeliriumCommsJ
445 Followers 154 Following Increasing the breadth of #delirium understanding || Sister journal to @DeliriumJournal || Official publication @AmerDelirium @EDA_delirium @ANZA_delirium
Centre for Death and .. @cendeathsociety
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Guilaine Kinouani @KGuilaine
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Lisa Cini @lcini
2K Followers 3K Following America's Trusted Authority On Alzheimer's & Long-Term Care Living Design. Her Mission Is To Improve Quality of Life By Design. National Speaker & Author.
The Plunkett Centre f.. @PlunkettCentre
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3K Followers 4K Following Award winning comms pro. Loves good ads & good wine, hates typos & raisins. Passionate about reducing inequalities. Comms and Campaigns AD @Mission44. VMO.
Janet @Janetcsills
3 Followers 31 Following
Dr Gayle Madden RMN @GayleBorley
1K Followers 777 Following Registered Mental Health Nurse with a passion for dementia care, leadership and innovation. Working at Dementia UK as Head of Admiral Nurse Academy
CatherineM @catherinemary0
2K Followers 621 Following LaTrobe Uni,Swinburne Uni,Phillip Institute of Tech. Co-Author:Reflections on Education-Australian perspectives.Linton Medallist.Profile pic via @artlessartthou
Oralieve 💙 @Oralieve_UK
2K Followers 2K Following Oralieve helps make dry mouths happy again. Our range of products are designed to help keep mouths healthy and comfortable. Visit https://t.co/SgjNzBhNj7
Dr James Makokis (neh.. @DrMakokis
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Chanee D. Fabius @ChaneeFabius
1K Followers 1K Following #researcher interested in addressing #inequities in #LTSS experienced by older adults, caregivers, and direct care workers. DST 1913 ❤🤍 #research #consulting
Xiaoxiao @MusicXiaoxiao
693 Followers 3K Following DIYer. #guzheng er. Dir @dementia_radio. Tr @livunilanguages. #Music #Dementia #Ageing #Wellbeing PhD @LivUni. #PerformanceScience @DurhamAlumni @LeedsAlumni
Anton Micallef @AntonMicallef
58 Followers 160 Following Osteopath, homeopath, mindset coach, dry needling acupuncturist, and public speaker
Amie Jayne💚(she/he.. @Amie_OT
808 Followers 600 Following Occupational Therapist & Lecturer @UoE_OT. Former Dementia Specialist OT. Vice Chair of @RCOTEastern. All Tweets are my own. LGBTQIA+ She/Her 🏳️🌈
Sandra Kirkwood @sandra_kirkwood
420 Followers 435 Following Consultant Occupational Therapist; Music Researcher--enjoys surfing, camping, community cultural development. Pianist.
The Black Frontline @TheBlkFrontline
1K Followers 918 Following The Black Frontline is an oral history project framing COVID through stories of 300 Black doctors & nurses in the US, the UK & Ghana by @TheAIEJ & @COVIDBLK
APPG on Dementia @APPGDementia
977 Followers 188 Following The All-Party Parliamentary Group on Dementia is co-chaired by @Debbie_Abrahams & Baroness Browning. Secretariat by @alzheimerssoc; follow us for work updates!
mixedracefaces @mixedracefaces
2K Followers 1K Following #mixedracefaces a hub for #diversity dm | [email protected] https://t.co/J2dtVHtB7J ◾️Retweets are not an endorsement.
Dr. Eseosa Ighodaro, .. @Dr_Ighodaro
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Jackie Pool @Jackie_Pool
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Kizzy Kukreja💙 @KizzyKukreja
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Dr Caroline Green @CarolineEdAG
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S A M A R @Samar_Khoury
939 Followers 7 Following @2_facegemini Artist born in Congo @taggingafrica|Ramazani African Contemporary Luxury Ambassador|Model Beauty Hair Fashion|@mwasisanawa Lifestyle @herenotalone
Lucy Pollock @lucypgeridoc
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Corrina Grimes @Cgrimes3
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Bella DePaulo @belladepaulo
5K Followers 3K Following Lifelong lover of single life. "SINGLE AT HEART: The Power, Freedom, and Heart-Filling Joy of Single Life" is a finalist for the INDIES Book of the Year award.
Newson Health Menopau.. @NHMenoSociety
3K Followers 50 Following Bringing together professionals all over the world to share their knowledge and research on the perimenopause, menopause and hormone health
balance Menopause @balanceMeno
8K Followers 63 Following World's #1 app dedicated to the menopause by Newson Health 🩺 Founded by @drlouisenewson 📱 @OrchaHealth approved 🏆 @Apple Editors' Choice Award Winner 2023
mymenopausedr @mymenopausedr
405 Followers 1 Following For evidence-based and unbiased information about the perimenopause and menopause go to @balanceMeno or follow our founder @drlouisenewson
Dining with Dignity(N.. @niamhskitchen
2K Followers 2K Following Through determination and a little imagination I am bringing modified food to life!!! UKIRG member
@DiverseAlz @Shedfieldlodge @3Uknz @wendymo94921768 @evergreennebs @LynnGamble20 @Gal2019 @rightsforresid2 @janis_cottee @CareRightsUK @TraceyShorty28 @Crocusflower2 @MikePTrain @lyndaward56 @creativitycare @IRememberBetter @Koohinor64 @fett1111 @jemifraser @juliagapowell @occhianne @GizelleTalavia @Xchizlon @DementiaMama @FLComs @DUETcare You too 🌙xx
@DiverseAlz @janis_cottee Thank you for sending me off to listen the The Three Degrees and I will, though don't know when, I ..🎼Will See You Again, but I'll keep in touch. 💜❤️
@DiverseAlz It’s great- my dad loves it and daughter has fun too- nice to do as children grow up from kids to teenagers ❤️
@w8charlotte @DiverseAlz @Gerodontology @MCM_HEKSS Some good quality lip balm for dry lips, new heads for old toothbrushes 👄 🦷 🪥
@DiverseAlz @Gerodontology @MiliDoshi7 @MCM_HEKSS How about a refillable water bottle to remind us to drink plenty of water and limit sugary drinks 💦
@DiverseAlz Good morning 👋 Hope you have a lovely day too 💜
@DiverseAlz And thank you for asking and caring. XOXO from the two of us.
@DiverseAlz I’m aiming to join you and wondering if you have used Ai to generate your questions tonight?
@DiverseAlz @drkathrynmannix @KateLeeCEO Oh lovely stuff and so important! The beauty of words matters perhaps more than ever as they become harder to hold in mind. Poems of childhood may keep their resonance …
@BBWaSA_UK ill do ones in my thesis: The Crongton Series - Alex Wheatle The Wormwood Trilogy - Tade Thompson The Icarus Girl - Helen Oyeyemi 26a, Ordinary People - Diana Evans This One Sky Day - Leone Ross Seduce - Desiree Reynolds Kaya Abaniah and the Father of the Forest - Wayne Trotman
@DiverseAlz I hope to take her out on one of our #DAG picnics again tomorrow. It's nearby, in the National Park. She's not eating much so I'll make her a smoothie. She loves those.
Fewer tantrumy Brexiters can only be a good thing. We could do with more MPs who understand the issues and care about the country. NI Brexit deal may trigger resignations, Sunak told | News | The Times thetimes.co.uk/article/rishi-…
@DiverseAlz One of the most helpful things said to me by a specialist dementia nurse was. ‘ It’s a marathon, not a sprint. Conserve your energy for when it’s most needed and take time to breathe’.
@DiverseAlz Q1, yes I’ve participated in research into how effective reminiscence is for UCLH, several how caregivers “feel about” questionnaires, helped to develop one of the NICE guides, assisted several students over the years etc. #diversealz
@DiverseAlz Not all researchers are scientists in laboratories, lots of people involved in research are the average person, maybe with an interest in the subject being researched. #diversealz
@DiverseAlz @nursesKidONE And check whether they will let you know the outcome of the research. #diversealz
@DiverseAlz I think the stigma and fear surrounding dementia plays a huge part in people’s reluctance to participate. #diversealz
@DiverseAlz African Americans I know who have participated in research, all had long term & good relationships with their physicians. It really isn't about Tuskegee anymore; it's the problems in the US health care system now. 15 minute appointments don't build trust. #diversealz
@DiverseAlz I'd participate in any research that needs to take blood from me, do genetic testing, brain scans but I won't partake in any MoCA now or in the future. It's like a IQ test and I don't believe it does anyone any good. #DiverseAlz
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