Covid19 The Untold Story @Covid19Untold
Campaign to raise awareness of the long term effects of Covid 19 youtu.be/wKX75EVJ8e0 Joined September 2020-
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The Truth About Long Covid TONIGHT C4 8pm @CandourTV @LongCovidSOS @LongSymptoms @LongCovid @long_covid @LongCovidPhysio
The Truth About Long Covid TONIGHT C4 8pm @CandourTV @LongCovidSOS @LongSymptoms @LongCovid @long_covid @LongCovidPhysio
Our next film from @CandourTV Well done @SallyOgdenTV for her network debut.. & thank you to our amazing contributors who have been/ are still so ill treated by @drpaulwhitaker & his team @BTHFT Long Covid is the legacy we will be living with for years. Pls share & watch!
Making this film wasn't a choice, it was parental instinct. As Grandma used to say "better out than in". Thanks to all the kids @FrancesorFran for data from her survey published in the @bmj_latest youtu.be/RiIambG8vs0 #LongCovidKids #OurUnhappilyEverAfter #LongCovid
This is very powerful - ventilation is so important. How to achieve this in winter without wasting energy resources? english.elpais.com/society/2020-1…
@anoucurr
"As much as seven months on, some people with COVID-19 are still suffering symptoms. Experts say much more research is needed into #LongCovid" by @ashishskynews feat. Erika & Matt, members of our @long_covid Support Group on Facebook & @freya_sawbridge youtu.be/VDNCFCXg3Vg
'In some cases people have no symptoms of the #coronavirus initially but then have months and months of fatigue, brain fog and muscle pain and they didn't know where it came from' - Matt Hancock explains #LongCovid implications. Live updates: trib.al/1bbBZpe
At long last. Thank you for this @MattHancock @NHSEngland @DHSCgovuk
"This should be a sharp reminder to the public – including to young people – that COVID-19 is indiscriminate and can have long-term and potentially devastating effects." @MattHancock. Glad the govt have at last caught up longcovidsos.org rb.gy/qfcmcs
"UK Health Secretary @MattHancock warns of long-term effects of COVID-19, as new film released on #LongCovid" Helpful recognition for those living with debilitating symptoms for months, like the 27.5k people in our Long Covid Support Group vimeo.com/468635890/335f…
UK folks with Long Covid, please complete this quick and useful survey to let the NIHR know of your experiences of Long Covid and accessing healthcare. Please RT smartsurvey.co.uk/s/LivingwithCo…
Long COVID patients share experiences of extreme fatigue and frustration that their symptoms are not always taken seriously. news.sky.com/story/coronavi…
Thank you Vicky!
Today marks 6 months... #LongCovid
A really powerful account me can all learn from . #longcovid
A really powerful account me can all learn from . #longcovid
We appreciate the fantastic research you are carrying out and are very excited that people with #LongCovid should soon be able to have issues raised by their COVERSCAN MRI rapidly assessed by doctors
We appreciate the fantastic research you are carrying out and are very excited that people with #LongCovid should soon be able to have issues raised by their COVERSCAN MRI rapidly assessed by doctors
I am living with #LongCOVID. I am experiencing multi-dimensional and episodic disability, across all dimensions of disability. My primary symptom is fatigue & post-exertion malaise. Along with other symptoms. I want to describe the nature & extent of disability I experience.
Dr Elisa Perego @elisaperego78
34K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views ownsdooW ekiM @campagvindaloo
377 Followers 2K Following some fucker hacked my original account @cartelmike . so im ghosting here til i reclaim my throneCaleb Innis @InnisCaleb
546 Followers 6K FollowingStar💫 @Starseeker1986
2K Followers 3K Following C19 March 2022 || Life ⏸️ || Creator of Beautiful Things | Emotional Health & #longcovid Advocate 🌙 💫 🔮💎🪬 🦋🦄#unvaxed #MCAS #foodintolerances #ToriesOutLP @TwitMom7
589 Followers 2K Following Chronically ill Spoonie SAAMMOM/Single African American Muslimah Mom Of Many,2w3 ENFJ,CHHA,CNA,Fibromyalgia induced by LONG COVID 3/17/2020. I ❤️ British TVlimitlessliza @limitlessliza
1K Followers 2K Following #Vibeshifter/ Connector/ StoryTeller/ Yogi/ Disruptor/ Spoonie/ Citizen Scientist/ #LongCovid-BIPOC-Women’s-Healthcare Advocate #FBLC Co-Founder @BIPOC_EquityJJ Schoch, Heal Long .. @jjschoch
672 Followers 2K Following How I healed after 1 year of #LongCovid with research-proven nutraceuticals, fungi, and plant medicines. Book soon on Amazon. #Covid19 #longhauler #FBLCRupert wilson @Oxfordite
1K Followers 5K Following The problem with electrons is they’re always so negative. - low cost COVID19 mitigation: Duronic fan + HEPA filter see link. Image ht @DocJon55: 1. WFHJean #JoinAUnion @jshutt2304
1K Followers 3K Following Proud NHS worker. Community library volunteer. Socialist. Playing at photography. #LongCovid She/herLong-Covid Advocacy �.. @longcovidIRE
3K Followers 5K Following Advocating for #longcovid treatment. Need help from journalists, researchers and politicians to create awareness to #treatlongcovid #FBLCCraig Wallace @CraigWtweets
7K Followers 3K Following Head of Policy at Advocacy for Inclusion. Views here are my personal opinions. RT do not = endorsements. Pronouns - him/disabled personUlrika J @JernUlrika
34 Followers 781 Following Humor är det bästa i hela skapelsen. Tävling det tråkigaste.Christina Holloway @Christi18883284
649 Followers 5K FollowingMartin v Oers 2 @M02
1K Followers 5K Following 😇Prikken ja💉, maar = onvoldoende bescherming.🦠Daarbij #preventie ook noodzaak.🆘☠️Stop #virusplicht!💪😷💨@ContainmentNU🫂🐘https://t.co/L51jWSULXf ☮️🔻🍉🌈 🌍🐬Fleck Projector @FleckProjector
30 Followers 144 Following A sonic melodic soothing gritty psychedelic alt-rock project. Bent & Broken on all platforms Nov 29 Vocals/Guitars/Bass-Jason Pritchett Drums-Kellii ScottMandyBea 😷💙 #FB.. @BeavenMandy
896 Followers 1K Following Having a Twitter break until January to work on my breathing 🤞The Long Covid Sessio.. @SessionsTlc
7K Followers 1K Following Longest running Podcast on #LongCovid. In depth interviews with the world’s leading doctors and scientists trying to work on the pandemic’s long tail.Peter Kelly @Kelly1911Peter
1K Followers 1K Following Long Covid since May 2020, Living life at a snails pace. Any opinions are mine 😎Andrea Kopacz @KopaczAndrea
198 Followers 1K Following Mother💕/Philippians 4:13✨/PA-C🩺/Emergency Medicine🩻/DIY🛠/Dog Lover🐶/#NFL fan 🏈:#FinsUp🐬,#Bears🐻,#Chiefs/Pro⚾️Brat/Tweets are my own opinion😉Carol Smith 🌻 @arabicsmith
141 Followers 2K Following Librarian who hikes. Librarians are positive social change agents. Views are mine. I routinely scrub my social media. she/herJNews @JNewsLondon
779 Followers 1K Following Social justice generally. London-based, global-minded. A retweet is not an endorsement.LongCovidPapers @LongCovidPapers
2K Followers 566 Following A bot tweeting out research papers on LongCovid from Pubmed (peer-reviewed) and MedRxiv (before peer-review). #LongCovidSerpina, Longhauler, .. @SerpinaLonghaul
2K Followers 5K Following Longhauler in search of health & equanimity. Presumed COVID infection in March 2020. #LongCovid deniers summarily blocked. RT not endorsement. #FBLCRawan.M @xrawanx
3K Followers 4K Following Mother | Emergency medicine consultant | Toxicologist, Emory | Always a novice learner, continuously curious. 🚢Markmewerds @markmewerds
693 Followers 2K Following Aim Investor - #KNOWTHEGAME. Buy wholesale NOT Retail. .Successful investing is anticipating the anticipation of others. ZERO EMOTION in TRADESEmM @Voy @EmMVoy2
4 Followers 30 Following Tech Innovator Conceptual Artist Economist, Writer, Strategist Change & Management Consultant CheFoodie. GoDestined. And Still, BeComing 🙏🏾🤍📜Kat is Guilty.. @That_DarnKat
1K Followers 5K Following She/her🩷 Progressive, Affirming Christian✝️Writer✍🏻English M.A.📙Cat Lady🐱Domhnall Gleeson Fan🧡Swiftie🎵 #AuDHD🩷#Hashimotos🩷#PCOS🩷#OCD🩷#LongCovid🩷(ON HIATUS) @jonah_mcgarva
2K Followers 3K Following Always seen; Never heard. co-founder of @LongCovidCanada Kānaka Maoli #ActuallyAutistic #LongCovidLong-Haul COVID PA @LCovidpa
188 Followers 223 Following Pennsylvania's State Chapter of @C19lh_Advocacy , COVID Longhaul, #FBLC #pacovid #longhauladvocacy #resources #support #longhaulcovidCovid Long-Haulers Su.. @LongCovidGroup
2K Followers 2K Following 🇨🇦's Largest Long Covid Community 18K Advocating Recognition Research Resources Lead Rep of Long Covid Kids Canada @LCKCanada 🧡❤️💙tweets by @SarahBaraBimHaroon Sulaiman Khan @haroon_sulaiman
787 Followers 5K Following Aitchisonian, Fullerton College,Rotarian, Educationist,Helen Wellie @HelenKe26588406
387 Followers 1K Following My own views are my own. always be kind to others. Post covid sufferer since march 2020. Better after 2nd vaccine april 2021. semirecovered! RN can't work now!Molly @MolWilPT
15 Followers 29 FollowingSara #FBLC @Sarasearching
3K Followers 2K Following Nov'20 I was fit, healthy & ran 50miles for charity that month...then bed/housebound for 19mths #LongCovid Re-infected June'22 & Feb'23 🙏 #LongCovidHope 💛Heni @Henijg
1 Followers 53 FollowingPádraigín Ní Dorc.. @td_oak
730 Followers 3K Following Research Associate @HealthSciYork & @YESIUoY KE Fellow I PhD Researcher @StaffsUni I Natural Environments I Health Inequalities I PPIE I Views own.4 Inclusion @C4Inclusion
3K Followers 3K Following 4 Inclusion - @Channel4 inclusion & diversity team. News, events & updates, on/off screen plus in the media industry. Channel 4: The Iconic Inclusive EmployerDenise O'Donnell @dod_denise2007
162 Followers 5K FollowingSally Ogden @SallyOgdenTV
2K Followers 3K Following Documentary Producer/Director @bafta @griersontrust nominated producer for @channel4 #thefamilysecret 📺 #Bradfordgirl #workingclass #mentalhealthcampaignerCandour Productions @CandourTV
2K Followers 1K Following Candour is a female-led indie based in Leeds. We make films we care passionately about - and we’ve just won a BAFTA on our 7th go!!Dr Kirsty 🧐✨ @KirstyClinPsy
189 Followers 933 Following Clinical Psychologist in diagnostic neuropsychology. Views mine. She/her.laura 💙 @laurakay27
305 Followers 1K FollowingDr Elisa Perego @elisaperego78
34K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views ownMichael Rosen 💙�.. @MichaelRosenYes
319K Followers 6K Following You can order a copy of the paperback of 'Getting Better' here: https://t.co/GZPAwh66QyLong Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovidProf Nisreen Alwan �.. @Dr2NisreenAlwan
82K Followers 5K Following Public Health Professor MBE. My words=my PERSONAL views. RT≠endorse. Other SM: @[email protected], nisreen.a.alwan @Threads, https://t.co/yfWKMqZjXJLong Covid Wales 🏴.. @LongCovidWales
3K Followers 872 Following Devolved Welsh Campaigning Offshoot of 60k strong patient-led UK Support Group @long_covid #LongCovid #Wales #TreatLongCovidGERARDO KUFUOR @KufuorGerardo
4 Followers 94 FollowingSazza @RedAndWoolly
2K Followers 5K Following Most of the change we think we see in life, is due to truths being in and out of favour. Robert FrostSiôn Edwards 🏴�.. @Sionedwards
2K Followers 5K Following Portfolio GP, Advisor PMCAT, Interested in #healthinequality European; Cymro. 🏴 #YmaOHyd - a bit woke.Medics4MaskUpWales @Medics4W
751 Followers 1K Following Doctors in Wales pushing Welsh Govt to adopt #ZeroCovid , achieving this by aligning with exemplar countries on mask use in indoor public spacesLongHauler @HaulerLong
550 Followers 235 Following Covid gave me craniocervical instability. Damage to connective tissue is a big part of long covid. Post-viral conditions need care, recognition and research.Steven Phillips, MD @StevePhillipsMD
75K Followers 549 Following Wharton│Biotech│Yale-trained MD, researcher, & bestselling author Tweets aren't medical advice https://t.co/4i3PQCyRFW https://t.co/GixP6s0iL5 Health, Freedom, TruthCoalition of Covid Re.. @CCRSP_
197 Followers 304 Following Hi there. Do not follow this account until I can fund it. Thank you 🙏🏻 Justin 🙂 #LongCovid #Covid19 #PASCDavid Strain @DocStrain
3K Followers 612 Following Clinical Academic working with older adults, diabetes and sarcopenia. Affiliations with @ActionforME @BMA_Academics @ExeterMedPaul Roberts @PaulRobertsNHS
5K Followers 2K Following NHS CEO, attempting to be retired. This is my personal X/Twitter account and posts therefore my own. Reposts not endorsements. He/Him/HisMarie (She/Her) #FBLC @mariepercival
1K Followers 3K Following Chatterbox. Northern lass. Chartered Surveyor. Photos of my beach, garden & 4 fluffy dogs. #longcovid 99% recovered 46 months 1st infection Feb/ March 20Chimére L. Sweeney @chiluvs1
3K Followers 579 Following Black Woman #LongCovid Filmmaker. DONATE to my FILM! Disabled and Destined.Chaand Nagpaul @CNagpaul
16K Followers 426 Following GP, London; chair Harrow LMC, Chair BMA Racial & Ethnic Equality Forum; NHS Race & Health Observatory Board; Trustee @DoctorsDistress, ex BMA council chairProf. Nicholas Hart @NickHartGSTT
7K Followers 635 Following @GSTTnhs Deputy Medical Director/ @KingsCollegeLon Professor Respiratory Critical Care/Director @GSTTResearch /Director @LaneFoxResearch /Director @UKRDLeadersAmy Small @amyismall
5K Followers 3K Following GP, Norwegian/American, mum to 2 boys, wife to a Frenchman, always busy, dreaming of rest. 🏳️🌈🇳🇴 🏴🇪🇺 #longCOVID Innovator and advocateGez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agencyJenJen @jenthepen1
263 Followers 2K FollowingFlorence 3.5% 💙 Lo.. @FlorenceSSG
370 Followers 645 Following Caught Covid in March, now have heart, lung & eye damage. Kids still have symptoms too. #CountLongCovid #LongCovid #longcovidkids #makeschoolssafe #safeedforallAndrew Pancholi @AndrewPancholi
13K Followers 187 Following Author Market Timing Report and Zero Hour. Commodity & Stock Market and Geopolitical Cycles forecaster. Board Member Foundation For The Study of Cycles. Gann.Dr Dominic Pimenta MD @DrDomPimenta
53K Followers 2K Following CEO - TORTUS | Physician | AI researcher | Author | Dad |Colette Coyle @DrColetteCoyle
785 Followers 1K Following Intensivist, former physio, critical Care follow up enthusiast!Fiona Lowenstein @fi_lowenstein
9K Followers 1K Following mostly off this site, find me on IG/my website editor, THE LONG COVID SURVIVAL GUIDE journo🖊 NYT, Vox, Teen Vogue, etc. formerly @itsbodypolitic 💛 they/themNajib M Rahman @naj_rahman
3K Followers 2K Following Professor of Respiratory Medicine, Director Oxford Respiratory Trials Unit, University of Oxford. Opinions are my own.Suzanne Thorn @Suz_Thorn
50 Followers 156 FollowingGlyn Middleton @tvskillsgm
945 Followers 2K Following Passionate about factual TV skills. Co-Founder, True North. Ex-Head of Skills, Screen Yorkshire. Documentary-maker. Retired 2022.Caroline Parker @Carriescutt
286 Followers 1K Following System thinking & convening, innovator, Service Development Manager, Occupational Therapist. Opinions are my own. She/her, 🏳️🌈🏳️⚧️ allyDeeny 🇬🇧🇯�.. @thisisdeeny
144 Followers 838 FollowingOliver ✊🌏🔥 #C.. @tynewrc
20K Followers 15K Following Eco-socialist, ex-Labour #Jamie4Mayor #Feminist #MHcampaigner #GTTO #BlackLivesMatter #FreePalestine green & left songwriter https://t.co/CapOyjuutN…Talya Varga @TalyaVarga
2K Followers 1K Following Assistant Editor, Sky News. Digital Video, Social Media, Streaming and On Demand. RT= interest, not always agreement.Long Covid Symptoms #.. @LongSymptoms
774 Followers 707 FollowingHayley Richardson @RichoJourno
3K Followers 3K Following Assistant Head of Features @TheSun Previously: Associate @Femail Editor Loves travel, dogs and tea. E: [email protected] Instagram: @RichoJournoEmma Greatorex @Emma5News
3K Followers 3K Following Senior Assistant News Editor @5_News. Got a story: [email protected] Views are my own.caroline housam @caroline_housam
262 Followers 457 Following RGN. Specialist Practitioner, Urgent Community Response. Background in acute medicine, clinical education and critical care. Any opinions expressed are my ownBradford Teaching Hos.. @BTHFT
11K Followers 1K Following We deliver high-quality healthcare from sites across Bradford. Supported by @BTHFTCharity. Part of @WYAAT_HospitalsPaul Whitaker @drpaulwhitaker
1K Followers 1K Following Respiratory Consultant @BTHFT, TB, lung infections, bronchiectasis, and drug allergy.Michael Beckles @DrMichael_B
87 Followers 60 Following Dr Michael Beckles BSc (Hons) MB ChB FRCP Consultant Respiratory and General Physician at the Royal Free Hospital in London. Views expressed are my own.Prof. Devi Sridhar @devisridhar
310K Followers 531 Following Professor & Chair of Global Public Health, Edinburgh Uni. Director of @GlobalHealthGP. Certified Level 3 Personal Trainer. Author of 'Preventable'. Views own.Michelle McParlin @MAC4U25
1K Followers 1K Following “People Problems call for People Solutions” Recovering the long tail #longcovid #countlongcovid #pwlc now also interested #MECFS #PoTs Mother, Dog lover #FBLCLinn Järte @LinnJarte
2K Followers 1K Following MBBS iBSc DTM&H DMCC. Global. Junior anaesthetist. Inquisitive. Strive to always be open-minded. Clean air is a human right. I 😷 #LongCovid #COVIDisAirborneAndrea @EfCovid19
2K Followers 3K Following My Long Covid journey started 3/24/20 & I've been sick ever since | ME/CFS, POTS, EDS | neuro-spicy cycle breaker | 38YO, she/herAlyson Jane @AlysonJane3
50 Followers 61 Following Working at trying to get my health back from a lifetime of Lyme and co Infections.. MCADRichard Brooke-Powell @RichardBrookeP2
997 Followers 738 Following Lyme disease bitten Vermont1984 been ill since with Borreliosis Bartonella (cat scratch disease)EBV coccidioides patient/advocate. Anti wrongsLaura Long @Ellemarie_318
2K Followers 3K Following Dreamer . Earth warrior☮️❤️🧡💛💚💙💜Being kind is my superpower💥 #vegasstrong #vote #longcovid #FBLC #POTS #MCAS @servingourkidsHayley Hassall @HayleyHassall
4K Followers 430 Following TV and Radio presenter: BBC 5Live, Bitesize Daily, File on 4, ITV Tonight, Panorama, The One ShowCovid-19 Patient Stor.. @RecoveryCovid19
3K Followers 814 Following A resource for those recovering from Covid-19. Find out more about what a recovery journey can look like and share your own recovery story to help others.Dr Adam Rutherford @AdamRutherford
166K Followers 3K Following Back off man, I'm a scientist. President of @Humanists_UK Lecturer in Genetics @UCL Genetics, race, eugenics, history of science, movies, books, cricket, +–=÷×Dr Ian Frayling 🇺�.. @Doctor_IMF
3K Followers 1K Following Past-President Association of Clinical Pathologists, patient, retd NHS. I usually do hereditary cancer. Trustee of @Long_Covid Support. Views my own.BREAKING: After careful consideration, I’ve asked @TfL to keep the requirement to wear face coverings on public transport as a condition of travel after 19 July. Mandatory face masks will give passengers reassurance and protect both them and our heroic transport workers.
Cannot express in words how awful this illness is. Many of us that had supposedly mild, at-home cases in March 2020 still don’t feel anywhere near fully recovered despite never requiring hospital treatment. I’ve never known anything like this. Hopefully the truth will come out.
COVID-19: UK's longest-known COVID patient was 'begged' by wife not to end treatment before he died news.sky.com/story/covid-19…
Friends, family &carers of people living with #LongCovid, although you mean well please don’t say things like “pull yourself together”, “try to forget about it” or “be positive”. Such language may trigger feelings of self-blame & that’s certainly not positive. Just offer empathy.
I’m grateful that @CandourTV & @C4Dispatches were able to bring awareness to the people suffering around the UK from #LongCOVID. I’m also privileged the @BTHFTDietitians and @drpaulwhitaker have been able to support and create this service despite challenges.
As many as 500,000 people may have long Covid in the UK. #Dispatches meets the people suffering and asks: can the NHS cope with the virus's lasting legacy?
Don’t miss @Channel4’s Dispatches next Monday at 8pm! The programme will look at how debilitating Long COVID is and the ground-breaking work of our own @drpaulwhitaker and his amazing team at St Luke’s Hospital. #TeamBradford #WeCare
I’m beyond proud to share C4 Dispatches @SallyOgdenTV and @CandourTV have made looking at how debilitating long covid really is and the incredible work being done by @drpaulwhitaker and his amazing team at St Luke @BTHFT to help provide support. Essential viewing!
Looking forward to watching C4 Dispatches programme on Long Covid. It will be great to hear about the amazing and important work from @drpaulwhitaker & team at @BTHFT. Lots of people will need support from NHS services to cope with the long term effects of #COVID19 #LongCovid
I’m beyond proud to share C4 Dispatches @SallyOgdenTV and @CandourTV have made looking at how debilitating long covid really is and the incredible work being done by @drpaulwhitaker and his amazing team at St Luke @BTHFT to help provide support. Essential viewing!
@C4Dispatches @Channel4 Thank you for covering #LongCovid. Our @long_support Facebook group has over 37,000 members sharing info and support, including Zoom socials, events and webinars. Anyone living with the condition is very welcome to join our friendly gang that none of us wanted to be in.
WATCH The Truth About Long Covid on @Channel4 tomorrow at 8pm
Our next film from @CandourTV Well done @SallyOgdenTV for her network debut.. & thank you to our amazing contributors who have been/ are still so ill treated by @drpaulwhitaker & his team @BTHFT Long Covid is the legacy we will be living with for years. Pls share & watch!
Great to see @C4Dispatches have made a film about Long Covid. March 15th 8pm - Amazing work @SallyOgdenTV & @CandourTV please share @LongCovidSOS @LongCovid
I’m beyond proud to share C4 Dispatches @SallyOgdenTV and @CandourTV have made looking at how debilitating long covid really is and the incredible work being done by @drpaulwhitaker and his amazing team at St Luke @BTHFT to help provide support. Essential viewing!
I’m beyond proud to share C4 Dispatches @SallyOgdenTV and @CandourTV have made looking at how debilitating long covid really is and the incredible work being done by @drpaulwhitaker and his amazing team at St Luke @BTHFT to help provide support. Essential viewing!
Very proud of what we have all achieved @BTHFT. Together with colleagues from across the hospital we are a strong team. Ready for a difficult winter with #COVID19. Thank you @vsmacdonald @Channel4News for spending the day with us.
@piersmorgan And how many of today's 22,885 cases will result in those infected being incapacitated for months because of #LongCovid? Our @long_covid Support Group has over 28k members, in urgent need of rehab, research and recognition. For more on our campaign see: LongCovid.org
Docs shouldn't be afraid to tell patients when we don't know something. "There are more things in Heaven and Earth Horatio..." Hamlet Sacrificing the truth for ego never ends well.
Horror, shame, and hopefully some sort of reckoning.
@StevePhillipsMD As I said earlier to @marybethpf, history will look back in horror at the forces that blocked early covid treatment.
When someone has cancer, the community rallies. People run 10K's to raise money, bring food, & offer to babysit. When someone has ME/CFS, Lyme+, or another marginalized chronic condition, they're told to think positively & get a hobby. This. Has. To. Change.
Families and employers need to be considerate to colleagues with #LongCovid -bits of memory are shot and navigating long documents is tricky. and long haulers-let your brain recover!
BBC RADIO on now: Woman's Hour - "Women and Long Covid", feat. @Dr2NisreenAlwan & many other members of #LongCovid campaigning community, following up on @lesleymacniven recent appearance @LongCovidScot @BBCWomansHour Covidhttps://www.bbc.co.uk/sounds/play/live:bbc_radio_fourfm
@Dr2NisreenAlwan Wow! That's so progressive! In Sweden we're still in denial! #SwedenInDenial
@Dr2NisreenAlwan Yes. Finally! It's not as if I, you, or anyone else has been quiet it. It's hard to know what else to do apart from appearing on mass media TV programmes (check), in mass media papers (check), talk about it on twitter/facebook (check) and support long cover groups (check)