CFP-Patient Support @CF_Pakistan
Karachi,Isb,Lahore,Multan Joined April 2017-
Tweets139
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Followers64
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Following511
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Likes38
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CFP-Patient Support retweeted
Are you an adult wCF and want to apply for an academic scholarship? Apply for the Lauren Melissa Kelly Scholarship! bit.ly/2JmlwO4 #CF #CysticFibrosis
CFP-Patient Support retweeted
How many more funerals?? What further deterioration of health is acceptable to all those waiting for this drug to be made available to be prescribed in the U.K.? Vertex Pharmaceuticals - lower your price now!! NHS get negotiating!! #OrkambiNow... dailyrecord.co.uk/news/scottish-…
CFP-Patient Support retweeted
14-year-old Benat Broderick, who lives in Dublin, with #cysticfibrosis, talks about how Orkambi has improved his quality of life. Our fight for #Orkambi in the UK continues. To read Benat’s story, head over to: bit.ly/2syVhJT
CFP-Patient Support retweeted
All the Great Strides walks are now complete! Please help us plan for next year and let us know what you liked and what you would like to see improved. Also help us with planning when your walk will be and where! Your input is... surveymonkey.com/r/Binghamton
CFP-Patient Support retweeted
CFP-Patient Support retweeted
We are getting ready for our last walk weekend of spring! Tomorrow we’ll be in Lansing, Petoskey, and Mt. Pleasant. We can’t wait to see everyone, and to wrap up an incredible 30th anniversary of Great Strides season! Go Great Strides!
CFP-Patient Support retweeted
#ECFS2018 - Tobacco Smoke Exposure Greatly Speeds Loss of Lung Function in Children with CF, Study Reports buff.ly/2Lwetjm
CFP-Patient Support retweeted
CBS News has learned law enforcement is closing in on a group of thieves that's stolen more than a million dollars from ATMs in the last month. The Secret Service issued an alert last week about the high-tech robberies known as "jackpotting" cbsn.ws/2rNmUlp
CFP-Patient Support retweeted
How do you stay mindful of germs during cold and #flu season? @PaceBace, an adult living with #cysticfibrosis, shares how he combats germs in everyday life. on.cff.org/2Bp2C16
CFP-Patient Support retweeted
Pls everyone in #Surrey can you get behind your local #cysticfibrosis community. #Orkambi will slow down the decline in lung function. Pls sign petition to make it available on NHS: petition.parliament.uk/petitions/2094… epsomguardian.co.uk/news/15891731.…
CFP-Patient Support retweeted
Synspira Receives $3 Million from CF Foundation to Continue Development of SNSP113. Read more >> bit.ly/2ANnkrj
CFP-Patient Support retweeted
Registration for @CF_GreatStrides 2018 is OPEN! Join us in the fight against #cysticfibrosis, & sign up today ➡️ on.cff.org/2iF3aZc 👟🚶
CFP-Patient Support retweeted
Dying woman has dream wedding after being refused lung transplant dailym.ai/2zYJszB via @MailOnline
CFP-Patient Support retweeted
Personal Spirometers May Help Pediatric CF Patients Improve Treatment Adherence, Study Suggests. Read more >> bit.ly/2qa1QQH
CFP-Patient Support retweeted
#NACFC2016 – Palliative Care’s Association with End-of-Life Seen as Barrier to Its Use in CF. Read more >> bit.ly/2f4xiM0
CFP-Patient Support retweeted
#NACFC2016 – New Database Could Better Identify CF Patient Variables, Outcomes After Lung Transplant. Read more >> bit.ly/2fsjEFT
CFP-Patient Support retweeted
#NACFC2016 – CF Survival Differences Between the U.S., Canada Likely Due to Nutritional Support. Read more >> bit.ly/2f4zymj
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