CFRoundtable @CFRoundtable
We’re a community of adults with CF providing support, info, and encouragement since 1990. Sign up for our free biannual magazine! cfroundtable.com United States Joined May 2011-
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Have you read this compelling article in the Summer 2022 publication? Keep your eye out for more about Jerry (@jerry_cahill) in our Autumn issue! Link in bio - "Summer Publication". #cfawareness #cf #cysticfibrosis #chronicillness #cfwarrior #transplant #lungtransplant
Have you read the Summer publication? Be sure to check out the article,“In the Spotlight With Dominic Quagliozzi” by Xan Nowakowski, Ph.D., M.P.H. on pages 26-28. Link in bio. #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa @XanNowakowski
CF Parents, “6 Tips for Parenting a Child with Cystic Fibrosis” has great info. Check it out! Link in bio. #parenting #parentingtips #parents #parentingsupport #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable
Happy Relaxation Day! Relaxation as someone with CF…what is that? Kidding…we all have to find ways of relaxing. From playing video games to taking a hike, tell us how you relax! #cysticfibrosis #cf
Begins this Thursday! The retreat enhances social support for adults with CF and includes educational presentations by CF experts and special guests, daily exercise, arts and crafts , support groups and more. Registration is required. Link in bio. Register today!
Are you (your child or spouse) not taking CFTR modulators? If you’re part of the final 10%, your input is critical! Link in bio. emilysentourage.qualtrics.com/jfe/form/SV_3l… #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable #cfresearch
Meet Xan! @XanNowakowski #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable #nonprofit #nonprofitorganization #nonprofitsofinstagram
Meet Beth! #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable #nonprofit #nonprofitorganization #nonprofitsofinstagram
Check out our YouTube channel now! As a CFer or caregiver, how do you cope with CF? youtube.com/watch?v=wpt2wE… #webinarwednesday #webinar #webinars #youtube #youtubechannel #coping #copingskills #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable
Let us know in the comments what content you find helpful (educational posts, information on CF Roundtable and resources available, scholarship announcements, or anything else of which you would like to see more). #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness
Meet Sonya! #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable #nonprofit #nonprofitorganization #nonprofitsofinstagram
The newest CFR Publication is almost here! What are you waiting for? Subscribe now! Link in bio. #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable
Follow CF Roundtable on YouTube today! #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #youtube #youtubechannel
In honor of CF Awareness month, let’s have some fun. How much do you really know about cystic fibrosis? Retweet with answers! #cfawareness #cf #cysticfibrosis #chronicillness #cfroundtable #usacfa #cfwarrior #cfawarenessmonth #RareDisease
The CF Roundtable team is made up of really amazing people. Learn more about our Treasurer, Colleen, on our website - link in bio. #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable #nonprofit #nonprofitorganization
Don't miss this scholarship opportunity! Visit AbbVieScholarship.com for more info - link in bio. #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable #scholarship #scholarships #scholarshipopportunities
Visit AbbVieScholarship.com for more information - link is in our bio. Retweet to let others know! #cfawareness #cf #cysticfibrosis #chronicillness #cfawareness #cfroundtable #usacfa #cfwarrior #cfroundtable #scholarship #scholarships #scholarshipopportunities
People with #cysticfibrosis are at risk for two common bone diseases: osteoporosis and osteopenia. Tiff Rich, a 32-year-old living with CF, was diagnosed with osteopenia as a teenager. #CFAwarenessMonth
There are more than 30,000 people with #cysticfibrosis in the US waiting desperately for a cure! The time to act is now. Let's go!!!! #CFAwarenessMonth #crossoutCF
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 561 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech / Healthtech | Venture / Startups | Hockey coach 🔬🏒 @BostonCollege @TuckSchool 🦅🌲
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
CF News Today @CFNewsToday
5K Followers 2K Following Your source for cystic fibrosis news, support, & real stories from the community. Let’s raise CF awareness together!🎗️
Emily's Entourage @EmilysEntourage
2K Followers 2K Following Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Katie Fielding @KatieF
6K Followers 3K Following EdTech Geek | #ISTEcert Trainer | @VSTE Coach of the Year 2019 | #a11y | 🫁 @cf_foundation | She/Her
Margarete Cassalina @MargCassalina
3K Followers 3K Following Just a grandma standing before #X trying to make friends. I’m a speaker & author of 4 books. See my website for more ⬇️ Also, I advocate for @CF_Foundation
Dr Meghan McGarry @DrMeghanMcGarry
964 Followers 1K Following @uw @seattlechildren Pediatric Pulmonary Doctor, Cystic Fibrosis & Health Equity Researcher, Mom of 2, Opinions are my own (she/her)
Question CF @questionCF
1K Followers 2K Following 2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
Beam for Cystic Fibro... @Beam_CF
1K Followers 618 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
Nick Talbot @CF_vs_Everest
2K Followers 912 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
cf/Aware @CFAware
12K Followers 9K Following All about Cystic Fibrosis. Always refer to your team for specialist advice. Oh and we don't always agree with RTs.
Pamela Scarborough @PamelaS_Beam
990 Followers 979 Following Digital health. Physiotherapist & Yoga teacher. Cofounder @beam_cf @kidneybeam_ Delivery Lead for the @heartfoundation walking website. Research @yogacfresearch
Tanya Koorts @TanyaKoorts
304 Followers 410 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Melodie Ramone @Melodie_Ramone
76K Followers 31K Following Author. Mom to autonomous wild things. Cystic Fibrosis Advocate. Certified Kitchen Witch. A Goddess with a Godzilla twist. I am my mother's savage daughter.
Beth @Drbeth_
1K Followers 3K Following Rheum,CF-related arthritis, books,learning,crafts,equality/human rights,juggling life/medicine w T1D. own views posted
THCF @THCF_ECFS
4 Followers 79 Following
_laurenclayton_ @laurenclayton__
67 Followers 135 Following Respiratory physiologist 🫁 | PhD researcher @UoPSportScience - Exercise physiology in cystic fibrosis during the modulator era 👩🏼⚕️🫁🚴🏼♀️ @CFwarriors
phage trial @phage_trial
18 Followers 173 Following A clinical trial to assess the safety and microbiological activity of bacteriophage product WRAIR-PAM-CF1 in people diagnosed with Cystic Fibrosis
Rae Alder @AuthenticlyRae
33 Followers 130 Following Advocate, Speaker, and Fighter: Cystic Fibrosis, EDS, POTS. Advocating for equity & our right to authenticity ✊🏾 ♥︎ 🏳️🌈
JODIE MORGAN @CFCHAMP12
24 Followers 105 Following You never know how strong you are , until being strong is the only choice you have 💫
Colleen Rue @ColleenRue23198
30 Followers 464 Following
Maude Perrine -Writer... @MaudePerrine
2K Followers 3K Following Author of 'Love you' & audiobook narrator 📚🎧 Cystic fibrosis & diabetes warrior 🫁💜 Spoonie🥄Married 💍 #cysticfibrosisawareness
Katie @Katiecros11
4 Followers 94 Following
Mark Tremblay @tremblay_mark
35 Followers 157 Following Director of Celebrate Recovery, follower of Jesus Christ. For when I am weak, then I am strong. 2 Corinthians 12:10
jim @averagesbeater
23 Followers 322 Following Drunk tweeter, Chronic Overthinker and averages beater
Uwe Rode @Hansaing
9 Followers 175 Following
Linda Dresser @LindaDresser
10 Followers 155 Following
Nectar Destar @DestarNectar
338 Followers 2K Following
Kristina Robinson @HaliteSolutions
18 Followers 29 Following Advocate for Seniors with Cystic Fibrosis, Community Connector, Innovative Collaborator and Partnership Builder.
Medibanx @Medibanx
98 Followers 419 Following Empowering rare disease research through patient-centric longitudinal data aggregation and active patient participation.
Judy Hamblen @MomJudyHamblen
15 Followers 120 Following HEARTBROKEN LOST 3 SON'S TO CRITICAL DISEASES!:GOD BLESS ALWAYS SISTER IN CHRIST JUDY ANN HAMBLEN
Ethris @ethris_mRNA
243 Followers 399 Following Ethris is pioneering the development of next-generation mRNA therapeutics and vaccines using its suite of proprietary and best-in-class mRNA and LNP platforms.
Maura Gavaghan @MauraGavaghan
131 Followers 420 Following I talk about science and medicine working with super smart scientists and MDs! First #mRNAallday tweets :) #Biotech #LifeSciences
marl @marleyjayeX
589 Followers 446 Following
A. Roberts 📸 @hippylovephotos
258 Followers 407 Following 'Cuse🍊✖️est.2013 ✖️Published Photographer 📚 ✖️CF🫁
Prawin Kumar @drprawin484
69 Followers 130 Following
Nancy Paradis @NancyParadis66
112 Followers 157 Following Born & raised in Southwest Detroit…Saw JOHNNY DEPP in Louisville October 22,2022 I advocate for Chiari Malformation and Cystic Fibrosis🤘🏼😈☠️🖤☮️
Dr. Orla Tinsley @orlatinsley
22K Followers 6K Following Multi - Award Winning Artist / Author / Teacher / Activist / Speaker⚡️ MFA @ColumbiaSOA ⚡️ Arts Council Literature Award / Rare Disease Advocate / Ninja ⚡️
Shaunda Ellis @ShaundaWarrior
10 Followers 73 Following
JimmyApple @jimmyapple127
55 Followers 257 Following Host of the podcast, An Apple A Day living with a disability. Advocate for people with disabilities. There is no such thing as a disabled person!!
Joyce Gagliano @joyce_gagliano
0 Followers 5 Following
Colie Creations Inc @ColieCreations
14 Followers 124 Following A 501c3 nonprofit organization in New Bern, NC that advocates for patients through storytelling. Donate and shop here. ⬇️⬇️
Lstarkloff @Lstar1983
29 Followers 419 Following
June Crowley @JuneCrowley11
16 Followers 291 Following
Stacey Stein @smmstein39
236 Followers 3K Following To know You is to Love 💕 You. Mother, wife- and everything else that comes with life as a Woman ♌️ 🦁
The Charity CRM @CrmCharity
242 Followers 2K Following Providing CRM solutions that enable charities to simplify and enhance fund raising activities.
Jordy @J_Long_P
168 Followers 368 Following
Shinichiro Ogawa @ogshinichiro
812 Followers 4K Following Stem cell scientist, Former surgeon in Japan, @ShinshuUni,@UHNTransplant. @UHN_Research, Assistant Professor, @LMP_UofT, Affiliate Scientist @McEwenInstitute
Entero Therapeutics (... @enterothera
2K Followers 2K Following Entero Therapeutics, Inc., is a biopharmaceutical company focused on the development of targeted, non-systemic therapies for gastrointestinal (GI) diseases
WELMO @welmoproject
207 Followers 803 Following This project receives funding from the @EU_H2020 Research & Innovation Programme. Any related tweets reflect only the views of the project owner.
Steve @IH75Scout
0 Followers 59 Following
kgrover @kgroverto
335 Followers 578 Following Pres/CEO @cfcanada Lover of pop culture and great clothes and wanting to live in a world that embraces diversity and is kind to people. Opinions are my own.
Rare Patient Voice @rarepatientvoic
2K Followers 3K Following We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.
Sixty Vibe Roses @sixtyviberoses
19 Followers 193 Following My lungs mostly work but my butt has probs.
विजय प्�... @7F02Z8nbj80FeUi
12 Followers 220 Following
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 561 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech / Healthtech | Venture / Startups | Hockey coach 🔬🏒 @BostonCollege @TuckSchool 🦅🌲
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Vertex Pharmaceutical... @VertexPharma
70K Followers 83 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
CF News Today @CFNewsToday
5K Followers 2K Following Your source for cystic fibrosis news, support, & real stories from the community. Let’s raise CF awareness together!🎗️
Emily's Entourage @EmilysEntourage
2K Followers 2K Following Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Save Antibiotics @saveantibiotics
15K Followers 4K Following Working to save antibiotics by supporting new drug innovation & responsible use. A @PewTrusts campaign.
Boomer Esiason Founda... @cysticfibrosis
10K Followers 930 Following Fighting Cystic Fibrosis - Advocacy - Education - Fundraising
Katie Fielding @KatieF
6K Followers 3K Following EdTech Geek | #ISTEcert Trainer | @VSTE Coach of the Year 2019 | #a11y | 🫁 @cf_foundation | She/Her
Margarete Cassalina @MargCassalina
3K Followers 3K Following Just a grandma standing before #X trying to make friends. I’m a speaker & author of 4 books. See my website for more ⬇️ Also, I advocate for @CF_Foundation
Question CF @questionCF
1K Followers 2K Following 2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
Beam for Cystic Fibro... @Beam_CF
1K Followers 618 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
Nick Talbot @CF_vs_Everest
2K Followers 912 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
CF Ireland @cf_ireland
5K Followers 2K Following Cystic Fibrosis Ireland is the national charity dedicated to improving treatment & facilities for people with CF in Ireland. (RCN) 20011376
cf/Aware @CFAware
12K Followers 9K Following All about Cystic Fibrosis. Always refer to your team for specialist advice. Oh and we don't always agree with RTs.
CYSTIC FIBROSIS INDIA @cfindiaofficial
241 Followers 281 Following Cystic Fibrosis Trust of India. Official Account of Cystic Fibrosis patient in India. #waiting for miracles #waitingformiraclemedicine
Salty AF 🫁♻️ @saltylungs
12K Followers 1K Following Physician Scientist in industry. Queer AF. I have 3 boys and a cute 🐈⬛. 2x dbl lung transplant recipient. she/her #cysticfibrosis #doubledocs 🌈🏳️🌈
ReCode Therapeutics @ReCodeTx
572 Followers 155 Following ReCode Therapeutics is a genetic medicines company using superior delivery to power the next wave of mRNA and gene correction therapeutics.
Paula @fresky37
62 Followers 650 Following Fulfillment is... sharing and capturing the moment, geeking out on medical research.
Attain Health Foundat... @_AttainHealth
31 Followers 55 Following Attain Health is a non-profit focused on helping individuals living with Cystic Fibrosis optimize their health through partnership and peer support.
ArcturusRx @ArcturusRx
1K Followers 511 Following Arcturus Therapeutics is a messenger RNA medicines company #Arcturus #ArcturusRx #mRNA #Rarediseases #OTC #CF #Vaccine #COVID19 $ARCT
Zambon @ZambonPharma
2K Followers 181 Following Pharmaceutical and fine chemical family company born in 1906, operating in 23 countries with 2400 employees and products commercialized in 87 countries
Matinas BioPharma @MatinasBio
10K Followers 2K Following Matinas BioPharma ( $MTNB ) is focused on improving the intracellular delivery of nucleic acids and small molecules with its LNC platform technology.
Tyler J Ford @TyFordFever
1K Followers 2K Following Science communicator (writing, drawing, video-ing) with a particular interest in applied biological science. Previously a biofuels researcher. He/Him 🏳️🌈.
Paul Turner Lab @PaulTurnerLab
3K Followers 41 Following Experimental evolution of viruses for basic science and evolutionary medicine @yale_eeb. Tweeting papers & news from our group. Acct managed by lab members.
Scott Bickel @ScottGBickel
1K Followers 1K Following Pediatric Pulmonologist🫁@nortonchildrens / @UofLPeds Have the best wifey, 2 awesome girls. OSU alum-Go Bucks! #PedsPulm #BeatBPD #CureCF #CureSMA #SmashSMARD
Spirovant Sciences @spirovant
104 Followers 8 Following Spirovant Sciences is developing novel gene therapies for cystic fibrosis and other pulmonary diseases.
Horizon @HorizonNews
5K Followers 2K Following Horizon Therapeutics is now part of Amgen. We encourage you to follow @Amgen. The Horizon X page is no longer active or monitored.
Canadian Cystic Fibro... @CFAdvocacynow
1K Followers 1K Following Access to CF medication is a moral, ethical & medical imperative. With your help, we're going to make it a legal requirement. Please join our fight. #CFcantwait
My Sydney CF 💙 @MySydneyCF
96 Followers 60 Following Capturing the good, the bad and the ugly in our pursuit to reinvent the way we deliver care for people with CF
Teena K @Tkuang_
446 Followers 169 Following
ArrowheadPharma @ArrowheadPharma
4K Followers 104 Following Arrowhead Pharmaceuticals develops medicines that treat intractable diseases by silencing the genes that cause them.
NOAACF @noaacf
115 Followers 30 Following The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.
Center For Latino Pat... @LatinoswithCF
155 Followers 186 Following Our mission is to improve the health and quality of life for Latino patients with Cystic Fibrosis through research, education, advocacy, & patient engagement.
The Salty Life Founda... @thesaltylifecf
150 Followers 269 Following The Salty Life: A Cystic Fibrosis magazine featuring people affected by CF in all walks of life🧂🌊65🌹 #thesaltylife #saltylife
emmadag, phd @emmuhdag
387 Followers 1K Following Medical writer | Biochem PhD | @UNC Grad | Cystic fibrosis advocate |
@antabio @antabio
578 Followers 105 Following Developing Tomorrow’s #Antibacterials. #PoweredByCARBX. @allianceBEAM. #AntimicrobialResistance #AMR #CarbapenemResistance #NDM #OXA #KPC #CysticFibrosis #Lung
Linda Bowman @LindaBowmanL
477 Followers 946 Following Advocate for @CF_Foundation Speaker~ Intrigued by humans ~Giving grace ~ say no to group think ♥️ https://t.co/06So8lm1Sj
Pulmonary Therapy @Pulmonary_Ther
901 Followers 1K Following Rapid publication, peer reviewed, inclusive, #openaccess journal indexed on PubMed. Impact Factor 3.0, CiteScore 5.2. Part of @AdisJournals @springernature
Peter Frey @PeterFreyLife
493 Followers 83 Following Pastor. CF Husband. Daily Vlogger @TheFreyLife showing the ups & downs of everyday life with #cysticfibrosis.
Ann Field @AnnField_PhD
44 Followers 75 Following
National Aspergillosi... @MFT_NAC
4K Followers 624 Following The National Aspergillosis Centre is a national leader in the clinical management, diagnostic testing and monitoring of patients with aspergillosis.
ben chan @AnotherBenChan
182 Followers 38 Following It's basically me IRL but... the internet version...
The North Star @TheNorthStar5
325 Followers 310 Following
Ella Balasa @ellabalasa1
623 Followers 1K Following #patientadvocate | speaker | published writer | living with #cysticfibrosis. Antibiotic resistance and patient co-creation in healthcare are my passions
CDC Director @CDCDirector
337K Followers 471 Following @CDCgov Note: Posts prior to 1/20/25 were from former CDC directors. Privacy policy: https://t.co/qNVn53Yrr7 #publichealth #science #government
CF Vests Worldwide @cfvww1
6K Followers 7K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Chelsea 🫁🧂🍭 @chelsofthewest
1K Followers 1K Following cystic fibrosis. type 1 diabetes. anti-racist. feminist. white settler on unceded land. ✨recognizable by my cough✨ **NOT DEAD YET** she/her
Cat Williams @dizzycatdesign
6K Followers 4K Following NYU Film alum, artist,❤️ my rescue pup, writing, tango dancing, 3D printing. Double lung transplant 12/17/20 for cystic fibrosis. ♻️🫁 Cancer survivor
🏥 Alder Hey 💙 @AlderHey
56K Followers 2K Following Creating a healthier future for children & young people everywhere. Posting 9am-5pm weekdays (excluding bank holidays) 😀 #AlderHeyFamily. Part of @NHSEngland
York Hull Adult CF Ce... @yorkhullcf
402 Followers 304 Following Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.
Manicures&MedicalBill... @ManicuresM
62 Followers 185 Following Newbie blogger capturing my journey with cystic fibrosis (age 39) ~ sometimes I sew & create stuff 🤷🏼♀️
Tracey Daniels @thecfphysio
2K Followers 2K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
Tiffany Christensen @sickgirlspeaks
2K Followers 2K Following CF + 2 dbl lung TXs = currently on dialysis. Writer. Podcast host. Virtual keynote. Proud VP at The Beryl Institute, elevating the human exp in healthcare. #BLM
Julie Desch @juliedesch
597 Followers 1K Following Do you have a chronic illness? Are you sick of it running your life? Can you be healthier and happier even if you are sick? Yep...I'll tell you how.
Liz Salmi @TheLizArmy
8K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes. Bringing punk rock to health care. @thelizarmy.bsky.social
eCysticFibrosis Revie... @DKB_CF
137 Followers 153 Following eCysticFibrosis Review summarizes the latest cystic fibrosis clinical data and research into a monthly newsletter & podcast. #CF #CysticFibrosis #CME #MedEd
Travis Flores @travisflores
10K Followers 6K Following “5yrs to live” 33 yrs ago💪#DonateLife💙🫁💚#CysticFibrosis Speaker | Writer | Producer (He/Him) @NYUniversity: MS #YellowHeartSquad💛#lovewins🏳️🌈










