With One Breath @WithOneBreath
#WithOneBreath is a non-profit started by parents passionate about finding a cure for #cysticfibrosis & providing support to families during a hospitalization. withonebreath.org Minnesota USA Joined December 2009-
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My sister shouldn't have to choose between financial security and life! Ask your congressmen and women to support paid leave for people with CF and caregivers in the next round of pandemic aid. Thank you, Brooke Christensen (age 15) @CF_Foundation
Please expand paid leave in future pandemic bills for people with cystic fibrosis. My sister (and parents of kids with CF) shouldn't have to choose between financial security and life! Thank you, Brooke Christensen (age 15) @SenTinaSmith
Please expand paid leave in future pandemic bills for people with cystic fibrosis. My sister (and parents of kids with CF) shouldn't have to choose between financial security and life! Thank you, Brooke Christensen (age 15) @SenAmyKlobuchar
Please expand paid leave in future pandemic bills for people with cystic fibrosis. My sister (and parents of kids with CF) shouldn't have to choose between financial security and life! Thank you, Brooke Christensen (age 15) @RepTomEmmer
The Cystic Fibrosis Foundation Urges Congress to Expand Paid Leave Policies cff.org/About-Us/Media… via @cf_foundation @RepTomEmmer @SenAmyKlobuchar @SenTinaSmith @CFF_Minn
Nearly 200 Teens Gather Virtually for the Foundations 12th Annual Teen Advocacy Day cff.org/News/News-Arch… via @cf_foundation
@belfastcowboy Thank you Belfast Cowboys for your support!
Thank you Gear Daddies!
HOPEstock on Saturday, October 6th at Hilde Performance Center in Plymouth MN. Come out and show support for the battle to fight cystic fibrosis. Doors open at 3:30, program begins at 4:00. Tickets available on site or at geardaddies.com or at withonebreath.org
#HOPEStock2018 is just a week away! Unite to Fight #cysticfibrosis! Saturday, October 6, 2018 4-10 PM, Hilde Performance Center 3500 Plymouth Blvd Plymouth, MN 55447 Enjoy live music, games, food trucks, tequila, beer, wine, and prizes! withonebreath.org #WithOneBreath
HOPEStock 2018 Music: Main Stage: 4:45 pm-The Tim Sigler Band 6:20 pm-Rob Olson Story and Acoustic 6:35 pm-Belfast Cowboys 8:00 pm-Sabrina Ness Story and Solo 8:30 pm-Gear Daddies Side Stage: 4:20 pm-Lester River Boys 5:50 pm-The Billy’s 7:40 pm-j. bell and The Lazy Susan Band
Upcoming show: October 6th, 2018 at Hilde Performance Center in Plymouth MN. A benefit for the fight against cystic fibrosis HopeStock 2018. withonebreath.org
Are you ready to hear who will be on the main stage at HOPEStock 2018? The big reveal is coming soon... ow.ly/Pgt730k8qV4
Raising teenager is not for the faint of heart. The lastest blog post is up...Sticks and Stones ow.ly/YV4h30jYnaz
Vertex Pharmaceuticals has agreed to be a Gold Sponsor of HOPEstock 2018! For more than a decade Vertex has been committed to bringing life-lengthening drugs to market for those battling cystic fibrosis.
Timron Precision Gear has agreed to be a Silver Sponsor of HOPEstock 2018! A company committed to taking care of family, customers, AND friends!
Mexican Moonshine has agreed to be a Platinum Sponsor of HOPEstock 2018! May your heart and cup overflow under the glow.
HOPEstock 2018 - October 6! a 1-day outdoor music festival will change many, many lives...including yours!
So many of us working parents can identify with the the feeling of failure that is part of trying to do it all. Check out the latest blog post about how one Supermom finds grace one busy week night. ow.ly/fUT330jfHkk
The Lambert family is giving it all they've got! And now, Mason is a healthy 8-year old who just happens to have CF. Read their story of hope. #WithOneBreath #HopeStock2018 ow.ly/9O2c30jfHjw
Triple donation to #WithOneBreath from AmazonSmile March 12-31. Just make an Amazon purchase & they donate 1.5% of purchase to #WithOneBreath. Every cent counts! Please share this easy way to support favorite causes with friends. TY! ow.ly/uaoc30iNxsJ
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Liz Gordon @lizgordon11
35 Followers 281 Following
Miley @shiningMiley_
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Seytasa @seytasa47488
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Minnesota Rare Diseas... @MNRDAC
12 Followers 25 Following
Wishes & Dreams for C... @Wishes4CF
11 Followers 27 Following Wishes and Dreams for Cystic Fibrosis is comprised of CF families with the mission of raising awareness and funds for The Cystic Fibrosis Foundation🌹🖤
Maude Perrine -Writer... @MaudePerrine
2K Followers 3K Following Author of 'Love you' & audiobook narrator 📚🎧 Cystic fibrosis & diabetes warrior 🫁💜 Spoonie🥄Married 💍 #cysticfibrosisawareness
The Extroverted Intro... @_joelNOTosteen_
1K Followers 4K Following Personal Musings of a Public School Educator 👨🏻🏫🎶🎹|🧑🏻💻|✝️ |♍️ |7️⃣0️⃣4️⃣ |🏳️🌈🙇🏻♂️🧎🏻♂️|🔴⚫️🟡|6️⃣5️⃣🌹
Nicola Rowbotham @nicrowbotham
349 Followers 245 Following Mum, Paediatrician, Researcher, Baker, Gardener, Taster of Wine. Views are my own
Beating The Odds @ChrisMacleodBTO
199 Followers 414 Following “Beating The Odds” is Chris MacLeod’s inspirational book with 11 lessons to help you overcome a health crisis and lead a more resilient life.
Travis Flores @travisflores
10K Followers 6K Following “5yrs to live” 33 yrs ago💪#DonateLife💙🫁💚#CysticFibrosis Speaker | Writer | Producer (He/Him) @NYUniversity: MS #YellowHeartSquad💛#lovewins🏳️🌈
нαииαн ʝєffє... @comewhatmayhmj
129 Followers 1K Following ι вelιeve ιn тнe pacĸerѕ, ĸarмa, ѕoυlмaтeѕ, arт; aвove all тнιngѕ ι вelιeve ιn ℓ σ ν є. ♥️ ¢уѕтι¢ fιвяσѕιѕ мυтαит 🖖🏻 12.13.18 -- ∂συвℓє ℓυиg тяαиѕρℓαит.
Marika Viens @MarikaViens
359 Followers 5K Following
Ella Balasa @ellabalasa1
623 Followers 1K Following #patientadvocate | speaker | published writer | living with #cysticfibrosis. Antibiotic resistance and patient co-creation in healthcare are my passions
APAPE- Down Syndrome ... @apape97
798 Followers 3K Following APAPE TOGO Association des Parents et Amis des Personnes Encephalopathes (APAPE) et des personnes avec Trisomie 21 Down Syndrome Lomé Togo
Judy Schloss @JudySchloss
731 Followers 2K Following Respiratory Therapist- mom of three crazies- dog lover -hobby farmer - crafter. Opinions are my own! #RespiratoryTwitter
KrisDeEtteMiller @ette_kris
61 Followers 246 Following Christian, Wife, Mother, Teacher, Crusader for people with anxiety, ADHD, CHF, CF and all citizens with disabilities. https://t.co/5zD1NqLDZh
Just Me @Life_and_Oils
21 Followers 130 Following
afrith50 @aprilfrith50
366 Followers 172 Following To tell everyone about my crazy life with Cystic Fibrosis! 😷Delta F508 x2😷 Oh, and I’m also 19,Thank You very much! #powertothelungs #breath breath #CFlife
Billie jo Smith @cureCF4myAs
249 Followers 2K Following mama to 2 sweet tiny humans with CF. wife. 31. friend. Mainer. Outspoken. 💜💜🌹🌹 learning to live more sustainably!
Darski,LPN,CFmom @darlenekavanagh
223 Followers 1K Following Help cure Cystic Fibrosis! My 27yr old son has CF.I'm praying for a cure!
craig holmes @HolmeMadeHulme
41 Followers 465 Following Hand made, unique gifts made by me. Website coming soon. insta- @holme_made_23 #handmade #christmasgiftideas #hulme #sustainable #cfartist #manchester 😀
Cystic-Fibrosis.com @CysticFibro_HU
255 Followers 187 Following A community for people affected by cystic fibrosis. Learn, share, and connect with peers and healthcare professionals.
NTM Info & Research @NTMinfo
1K Followers 998 Following #NTMir Non-profit organization dedicated to patient support, medical education & research for people with nontuberculous mycobacterial lung disease (#NTM).
BCM Tailor Labs @BCMTailorLabs
3K Followers 4K Following Anthony Maresso, Ph.D. Co-Founder TAILOR LABS ([email protected]) - Medicines, Microbes, Mutation, Phage, Wastewater Science, and the Search for Human Immortality
Trikafta for Kiwis @trikafta4kiwis
110 Followers 194 Following New Zealander's with Cystic Fibrosis fighting for life changing medications #trikaftaforkiwis @trikaftaforkiwis on Instagram @trikaftaforkiwis on Facebook
Singing4Breathing CIC @CopdSingers
2K Followers 4K Following Award winning Choir + Harmonica players dx with various respiratory conditions eg COPD asthma etc Online + Live Sessions. Northampton based.
Zoey @_ZoeyJones_
662 Followers 2K Following Mother, Lecturer in Social Work, PhD researcher @edgehill. Campaigner for CF #cysticfibrosis #CF 🌹🌹🌹🌹🌹🌹🌹
Ashleigh's Life Found... @AshleighLife
73 Followers 485 Following Mission: To provide monetary Grant Awards to those who are at or near End Stage Cystic Fibrosis.
Pam Thompson @Dakotapam
2K Followers 1K Following Wife, mom, professional fundraiser, LCMS Sunday School teacher, #cysticfibrosis advocate, drinks too much coffee, #adultballet student.
Win4Quinn @Win_4_Quinn
38 Followers 101 Following
Kalyn Ponti @klponti
55 Followers 406 Following
hannah jeffers @clairvoygiraffe
62 Followers 634 Following i have #cysticfibrosis. i am post emergency life saving double lung transplant since 12.13.18! 🤘🏻😌 very very blessed. 👏🏻
Nikki @nikkisnewlungs
97 Followers 282 Following
The Cffb @TheCFFB
151 Followers 295 Following The Cystic Fibrosis Foundation of Barbados is dedicated to building awareness and assisting those persons living with CF in Barbados
Canadian Cystic Fibro... @CFAdvocacynow
1K Followers 1K Following Access to CF medication is a moral, ethical & medical imperative. With your help, we're going to make it a legal requirement. Please join our fight. #CFcantwait
Dr Shafa Waters @ShafaWaters
1K Followers 2K Following Group Leader @miCFResearchLab | Scientia Senior Lecturer @UNSWMedicine @sydney_kids. We create #organoids to study #rare lung disorders #PersonalisedMedicine.
ANGRYMAMABEAR @mjmamabear24
542 Followers 3K Following Salubrious #T1D woman (#DCCT/#EDIC), son w/Cystic Fibrosis. Child & Healthcare advocate. Lover of great music, sunrises, sunsets & the beautiful day in between.
gamergirl @AbbyRee09026544
253 Followers 4K Following Loves video games, especially Legend of Zelda and Harvest Moon. Gamers, feel free to follow me.
BigChefMiniChef @BigChefMiniChe2
186 Followers 2K Following New charity cookbook by Chef Matei Baran, quarter finalist in Master Chef The Professionals. Developed with his son, Armin, who was born with Cystic Fibrosis.
jackspack @jackspackwpg
69 Followers 283 Following Walking with our son Jack on our journey with Cystic Fibrosis. Thankful for each day.
Kote Hanger @DemocratCreep
9 Followers 375 Following Melissa Malino activist. To protect all rare wildlife species. with government power. except. humane kind. the right to kill me my child before its born.
CysticFibrosisSligo @CysticSligo
133 Followers 418 Following Volunteer Twitter account for the Sligo branch of Cystic Fibrosis Ireland. Direct messages open to all. 🙂
Kira Taylor @TheKiraTaylor
464 Followers 2K Following Content Creator | Influencer Living Non Toxic & Spreading Positivity ~ CF Warrior 💌: [email protected]
meggojerry💙 @meggojerry
62 Followers 142 Following Ex nurse, mum to 2 complicated teens, crazy cat lady. Takes photographs.
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 561 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech / Healthtech | Venture / Startups | Hockey coach 🔬🏒 @BostonCollege @TuckSchool 🦅🌲
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Nick Talbot @CF_vs_Everest
2K Followers 912 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Margarete Cassalina @MargCassalina
3K Followers 3K Following Just a grandma standing before #X trying to make friends. I’m a speaker & author of 4 books. See my website for more ⬇️ Also, I advocate for @CF_Foundation
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Maureen Ballard ☮�... @AuntieMoMoore
380 Followers 346 Following CF Auntie raising awareness and funds to find a cure for cystic fibrosis.
Beam for Cystic Fibro... @Beam_CF
1K Followers 618 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
David Turner (gs65 on... @GreatStrides65
3K Followers 1K Following Holding my nose in Musk's sewer and hoping for bluer skies Slava Ukraini 🇺🇦
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Liz Gordon @lizgordon11
35 Followers 281 Following
gamergirl @AbbyRee09026544
253 Followers 4K Following Loves video games, especially Legend of Zelda and Harvest Moon. Gamers, feel free to follow me.
abi halstead @abihalstead
587 Followers 927 Following CF patient on the hunt for phage therapy for my chronic burkholderia gladioli infection. Also Lead Governor @royalpapworth
Alison Fare @BrynSeiriol
357 Followers 356 Following
Mandie Rudd-Sherman @shermanmandie
142 Followers 155 Following cystic fibrosis warrior || growing our family with a Gestational Carrrier || (she/her)
Tiffany @ernurse02
942 Followers 1K Following Travel nurse in the ER... I have stories that would make you cringe, laugh, and cry. My job is my passion and my life!! CF advocate. Next stop....Med school!!
Lungs of Love @cfkidsbook
46 Followers 84 Following Lungs of Love: A Cystic Fibrosis Children’s Book. Message us for a free PDF copy! Double lung transplant: 12 June 2018.
Teresa #kaftrio @CFinit4ALLuk
466 Followers 686 Following campaigning 4 ALL fighting this hideous disease #CF 2 have the best Precision meds #LifeSavingDrugs4ALL on the NHS #STOPTHECLOCK #WeHaveKaftrio #Now4thelast10%
Celtaxsys @Celtaxsys_inc
89 Followers 128 Following Celtaxsys is a clinical stage pharmaceutical company focused on advancing treatments for patients with rare inflammatory diseases including cystic fibrosis.
JWLS Official @JWLS_Official
95 Followers 293 Following Contemporary timepieces ∞ Each purchase supports the fight against #CysticFibrosis ♡ In memory of Julia Marlane Lyons. ♡ We ship worldwide.
Charlotte @sallischarlotte
33 Followers 107 Following mum to 3 beautiful daughters. one has cystic fibrosis but she's a warrior & have an amazing partner #family #warriorstogether
Shantelle Harris @tellioautumn
45 Followers 197 Following I'm quirky, adventurous, loving, goofball...I am fighting for a cure for cystic fibrosis, I'm an artist, traveller, loyal, kindhearted. Love an old soul:)
CFP-Patient Support @CF_Pakistan
64 Followers 511 Following
linda mcguinness @lindamcguinnes8
138 Followers 685 Following Wife of the century, mother to 3 “little” darlings.Mum to a CF fighter. #cysticfibrosis #orkambinow
Adrian Llewellyn-Jone... @AdrianLJ45
2K Followers 4K Following Ex Detective Sergeant. Associate https://t.co/VPXvR8wr73. Director https://t.co/32MZt5xH4L. https://t.co/Y3qHc9BYKv Owner The Mouse House Cowbridge
Leanne Olney @LeanneOlney
387 Followers 3K Following Mum to one CF super warrior. Fighting for #orkambinow and a life unlimited 💛
Jordonne Harris Memor... @HarrisFund
76 Followers 162 Following Funding home comforts and treats for Cystic Fibrosis young adults when in hospital @ Bristol Royal Infirmary.
Catherine Meredith @873Meredith
2K Followers 4K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Kira Taylor @TheKiraTaylor
464 Followers 2K Following Content Creator | Influencer Living Non Toxic & Spreading Positivity ~ CF Warrior 💌: [email protected]
CysticFibrosisSligo @CysticSligo
133 Followers 418 Following Volunteer Twitter account for the Sligo branch of Cystic Fibrosis Ireland. Direct messages open to all. 🙂
jackspack @jackspackwpg
69 Followers 283 Following Walking with our son Jack on our journey with Cystic Fibrosis. Thankful for each day.
BigChefMiniChef @BigChefMiniChe2
186 Followers 2K Following New charity cookbook by Chef Matei Baran, quarter finalist in Master Chef The Professionals. Developed with his son, Armin, who was born with Cystic Fibrosis.
ANGRYMAMABEAR @mjmamabear24
542 Followers 3K Following Salubrious #T1D woman (#DCCT/#EDIC), son w/Cystic Fibrosis. Child & Healthcare advocate. Lover of great music, sunrises, sunsets & the beautiful day in between.
Dr Shafa Waters @ShafaWaters
1K Followers 2K Following Group Leader @miCFResearchLab | Scientia Senior Lecturer @UNSWMedicine @sydney_kids. We create #organoids to study #rare lung disorders #PersonalisedMedicine.
The Cffb @TheCFFB
151 Followers 295 Following The Cystic Fibrosis Foundation of Barbados is dedicated to building awareness and assisting those persons living with CF in Barbados
Nikki @nikkisnewlungs
97 Followers 282 Following
hannah jeffers @clairvoygiraffe
62 Followers 634 Following i have #cysticfibrosis. i am post emergency life saving double lung transplant since 12.13.18! 🤘🏻😌 very very blessed. 👏🏻
Kalyn Ponti @klponti
55 Followers 406 Following
Win4Quinn @Win_4_Quinn
38 Followers 101 Following
Pam Thompson @Dakotapam
2K Followers 1K Following Wife, mom, professional fundraiser, LCMS Sunday School teacher, #cysticfibrosis advocate, drinks too much coffee, #adultballet student.
Ashleigh's Life Found... @AshleighLife
73 Followers 485 Following Mission: To provide monetary Grant Awards to those who are at or near End Stage Cystic Fibrosis.
Singing4Breathing CIC @CopdSingers
2K Followers 4K Following Award winning Choir + Harmonica players dx with various respiratory conditions eg COPD asthma etc Online + Live Sessions. Northampton based.
Chelsea 🫁🧂🍭 @chelsofthewest
1K Followers 1K Following cystic fibrosis. type 1 diabetes. anti-racist. feminist. white settler on unceded land. ✨recognizable by my cough✨ **NOT DEAD YET** she/her
⚡Amanda Tocher⚡ @AmandaTocher
665 Followers 440 Following #CysticFibrosis/ #CFRD/ Double Lung Transplant in 07/ In my world everyone's a pony and they all eat rainbows and poop butterflies! - Dr Seuss
Sean McPherson @twinkiejiggles
8K Followers 6K Following Host of @citycastmsp, co-host of No Brains, No Lightbulbs from @triviamafia, member of @heiruspecs previously @kbemfm
Tin Whiskers Brewery @TinWhiskersBrew
7K Followers 1K Following Artfully engineered craft beer in Lowertown, St. Paul.
Buck Wolter @wolterb
578 Followers 5K Following
kevin white @kevinwhitephoto
248 Followers 121 Following Husband, dad, photographer. I love hockey, the Alaska wilderness, camping, hunting and country music.
Dave King @DaveKingThing
19K Followers 1K Following
Brady Mallory @BradyMalloryTV
4K Followers 629 Following Writer. Journalist. Storyteller. Human. Anchor-reporter for News 3 Now/Fox 47. KELOLAND alum. Retweets aren’t endorsements.
Charmaine Deanne @charmaine_slade
68 Followers 157 Following Mommy to 4 boys and one special princess with cystic fibrosis. Cure Cystic Fibrosis. My princess deserves a long life 💗
Breathe On @BREATHEONUK
2K Followers 4K Following Breathe On is being established to provide vital support and advocacy for all adult patients with covid or long term covid who are on ventilators.









