CF_Bane @cf_bane
The mask is to raise awareness. The mission is to find a cure. What matters is our plan! New Jersey, USA Joined August 2016-
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Followers234
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Following672
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Likes95
Part of the new Lucosky Brookman Foundation and CF Bane campaign! CF Bane and his Army run for… instagram.com/p/BVr3YauDEuN/
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Tomorrow, with the support of the Lucosky Brookman Foundation, CF Bane will be racing for all… instagram.com/p/BL0_0t2j4Qo/
CF_Bane retweeted
2014. Told I need a lung transplant. 2015. Denied a transplant. 2016. Given Orkambi. Climbed up to Stoodley Pike💪🏼
CF_Bane retweeted
Did you know? The #cysticfibrosis gene was discovered in 1989. #CFawareness
65 laps = 1 mile swim for #cysticfibrosisawareness #cysticfibrosis #curecf #65roses… instagram.com/p/BJ5ustIjfT4/
CF_Bane retweeted
Why do some children with #cysticfibrosis call the disease #65roses? Learn the full story: spr.ly/6013BNL1D
CF_Bane retweeted
Hello hello to some of our new friends! @cf_bane, @gooeybrains, and @seby33!
#CFBANE is on twitter!!! Join my army in the fight against #cysticfibrosis and together we can defeat the enemy, CF, once and for all!!
Christina @Amazing_Tina_
194 Followers 3K Following Vet student I know my way around big things 🫢 21 Check my FREE link to see what I'm talking about ⬇️
Uiflorbaw @Uiflorbaw55612
25 Followers 2K Following
Darthar @DartharVOnB
32 Followers 2K Following
March Circle @march_community
235 Followers 2K Following Privacy-first AI for 400M rare-disease warriors. Stories, research, tools—march with us. 💙 #RareDisease
Balphie @BalphieRuffalo
635 Followers 3K Following
CF Nutritional Suppor... @llc_cf
117 Followers 529 Following My goal is to help CF'ers better access vitamins, probiotics & supplements they need to thrive until CF stands for #CureFound e:[email protected]
Max @Maxs_Story
591 Followers 2K Following This is Max. He was diagnosed with Cystic Fibrosis when he was 10 days old. Hes now 9! Trying to raise awareness for CF!
Just Me @Life_and_Oils
21 Followers 130 Following
Dr Pip Gregory @FWWcartoonPip
642 Followers 2K Following Cartoon humour, history & memory. Avid gardener. Working with a smile, a CFcough & MSstumble (tweets own views & interests) @CFResNetwork #cccuclimatedragon
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
charley @charleyannet
80 Followers 115 Following • 22 • Bolton📍 trying to live my best life and be the best version of me🌱
Mark Cox Development @MarkCoxDevsLtd
124 Followers 294 Following Building & Decorating company based in Richmond, Surrey. Over 20 years experience in the construction industry. We work in the London and Surrey areas.
Ashleigh's Life Found... @AshleighLife
73 Followers 485 Following Mission: To provide monetary Grant Awards to those who are at or near End Stage Cystic Fibrosis.
Jamie Stephenson 🦜... @ssnjimb
2K Followers 5K Following I'm Jamie I suffer from #Cysticfibrosis I'm #openlyautistic They/Them 🌈 love Music/vintage computers, #CureCF #Supportthestrikes. Only Follows Back Real PPL
Lαυɾҽɳɳ @LReynoldss20
45 Followers 744 Following All alone she was living - In a world without an end or beginning 🤍🖤
#UK CF campaigner Sha... @CFno1LeftBehind
1K Followers 1K Following 🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter
Zoey @_ZoeyJones_
662 Followers 2K Following Mother, Lecturer in Social Work, PhD researcher @edgehill. Campaigner for CF #cysticfibrosis #CF 🌹🌹🌹🌹🌹🌹🌹
Elizabeth Ann @Izzyann03
167 Followers 1K Following Advocate. Mentor. CF Momma. “We are how we treat each other and nothing more.”
JimmyApple @jimmyapple127
55 Followers 257 Following Host of the podcast, An Apple A Day living with a disability. Advocate for people with disabilities. There is no such thing as a disabled person!!
Steven Jackson @StevenJ65264801
26 Followers 346 Following
Anthony Thompson @bigbaddoctor
2K Followers 5K Following Big 60,Runner, Gamer,Cystic Fibrosis,🔺F508 & 2798+ 5G - A, Consultant in Palliative Medicine, ManU fan, Tweets in a personal capacity only
Jack Griffiths @JGriffiths993
832 Followers 2K Following #TrophyHunter - https://t.co/CGFeiMlUuj Lung Transplant Recipent, Liverpool Supporter. PSN: JGriffiths993 XBL: JGriffiths993 Feel free to add me
my CF Hero 💙 @myCFHero
1K Followers 2K Following Mother to a 9 year old girl, with the life limiting condition #CysticFibrosis. Fighting for access to medicines #Orkambi #Kaftrio (#Trikafta) #DoTheRightThing
Kirsty Morris @KirstyLMorris
26 Followers 115 Following
Beth Peters @BethPeters80
1K Followers 2K Following Patient Advocate. Theatre Maker. Educator. Transplant Survivor. Cystic Fibrosis Pt. Stage Source Board Member. General Badass. https://t.co/ccYj4Ktgys
Paige Roberts @PaigeNRob
77 Followers 224 Following Coffee enthusiast ☕️ Mummy to my darling Ivy and a little CF warrior Henry 💛 Fight for a life unlimited 🌹#Lifesavingdrugs4CF #Orkambinow #ddf508
Rachel 🏒🪐✨�... @dollarsNdonuts
512 Followers 2K Following Boston❤️🇺🇸 BRUINS🏒🖤💛 King Patrice forever👑 UK born🇬🇧 Gamer 🎮Finance Girl💰Cosplayer/Instagram 🔥WWE FANGIRL - |Rhea|Iyo|Kairi|Orton|Cody|Cena| 👊🏻
Pam Flesor @12map21
173 Followers 568 Following For my granddaughters birthday Please Help Me Add Tomorrows! Help make CF stand for Cure Found! donation to my walk: https://t.co/ZWy3oMLPJF
Huggg @huggg_uk
2K Followers 2K Following Creating happier workplaces by putting appreciation first. Get gifting today: https://t.co/Y8TpjCjFVb
nichelle whidby @nwhidby
184 Followers 230 Following
CysticFibrosisSligo @CysticSligo
133 Followers 418 Following Volunteer Twitter account for the Sligo branch of Cystic Fibrosis Ireland. Direct messages open to all. 🙂
Chronically Bridget @ChronicallyBL
768 Followers 4K Following California girl #SanDiego 🐳 • Advocate ♻️🌿🐶 • Dialysis • #Spoonie 🥄 • Transplant&Cancer survivor • #thisisCKD
Cystic Fibrosis Chann... @The_CF_Channel
192 Followers 263 Following For people with Cystic Fibrosis, by people with Cystic Fibrosis 🌹💜💛💙 Founded by @IzzyRosamond
Bravebob @Bravebob2014
1K Followers 2K Following This is a record of my training , thoughts and adventures as a long distance swimmer.
Leanne Olney @LeanneOlney
387 Followers 3K Following Mum to one CF super warrior. Fighting for #orkambinow and a life unlimited 💛
Daniel Judah @danielrjudah
72 Followers 113 Following Father of a child with Cystic Fibrosis trying to keep him healthy. https://t.co/JdlJMW9dUg from @ruthiez12w
Morgan Coxhead @MorganCoxhead
636 Followers 2K Following I am 20 and I am determined to be the first person with #CysticFibrosis to become a professional goalie! Help make my dream become reality and share my story!
Natasha Robinson R&R ... @rrcffighters
318 Followers 897 Following This is a page for raising awareness for CYSTIC FIBROSIS and also a fundraiser page on behalf of my son's Rhyan and Rhys who both suffer with CF.
Nick Callaghan @lmstepney1
630 Followers 2K Following
Total Care Rx @TotalCareRx
127 Followers 909 Following We’re committed to the long-term health & well being of our patients in the communities we service including CF, Epilepsy, Organ Transplant, HIV, PanCan & LTC.
Nicola Hurley @NicolaHurley_
316 Followers 337 Following PhD Researcher | Respiratory & Exercise Physiology | Cystic Fibrosis
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
#Lifesavingdrugs4cf #... @sade_39
432 Followers 393 Following We Need Everyone's Help In Our Campaign For Access To ALL Precision Medicines For People With CF In The UK. Please join our FB group. 👇🏾
S @Dsade39
365 Followers 2K Following
Tweet Vamos @tweetvamos
420 Followers 3K Following Twitter account for Vamos 2018 Music submissions and promotions for our weekend event at The Station Hotel on the 11 - 13 of May 2018
Keith Majors @keithmajors
46 Followers 172 Following
Luke Doherty @lukedotsey
798 Followers 247 Following @Senregister accredited Performance Nutritionist | S&C Professional | Golf & Football Medicine qualified
Ellie Marie Scott @Ellietotscott
76 Followers 375 Following Pro Tea Drinker. My lungs suck at being lungs.
Leeds CF SRC @LeedsCFSRC
265 Followers 74 Following Leeds Cystic Fibrosis Strategic Research Centre. Follow us to find out what happens in labs researching cystic fibrosis! 👨🔬👩🔬🔬✌️
Alice Peterson @AlicePeterson1
2K Followers 1K Following Bestselling author of books that celebrate triumph over adversity. Rheumatoid arthritis survivor, devoted dog owner to Mr Darcy.
Katie Johnstone @katiejohnstone4
327 Followers 1K Following Spreading the word of Cystic fibrosis and Organ donation in memory of my beautiful angel nephew Jack ♡☆♡
S @Dsade39
365 Followers 2K Following
#Lifesavingdrugs4cf #... @sade_39
432 Followers 393 Following We Need Everyone's Help In Our Campaign For Access To ALL Precision Medicines For People With CF In The UK. Please join our FB group. 👇🏾
CFP-Patient Support @CF_Pakistan
64 Followers 511 Following
Beam for Cystic Fibro... @Beam_CF
1K Followers 618 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
Dan @Dan1988H
818 Followers 3K Following Aviation Worker. I have Cystic Fibrosis. I am a HUGE Motorsport Fan!
cecil's studio @cecillaw
115 Followers 175 Following We're sticky, but we're happy... #CysticFibrosis #CF
Max @Maxs_Story
591 Followers 2K Following This is Max. He was diagnosed with Cystic Fibrosis when he was 10 days old. Hes now 9! Trying to raise awareness for CF!
Salty girl✨ @cf_fighter_
257 Followers 62 Following My Cystic fibrosis page // 22 // All welcome to follow my journey // Waiting to be listed for a double lung transplant // find a cure // main ac @jordonneharris
🦁ELI 🪬🤟🏽�... @interstellarEli
2K Followers 7K Following Fighting Jew hate & propaganda with facts and ‘some’ sarcasm. Proud Jewish ✡️American 🇺🇸🇺🇸🇺🇸🇺🇸 ❤️🤍💙 THE HOSTAGES ARE FINALLY FREE!!!
CFF Delaware Valley @CFF_DelValley
547 Followers 930 Following Cystic Fibrosis Foundation - Delaware Valley Chapter. RT or Favoriting does not imply endorsement.
Jeremy Parks @JWheezy314
436 Followers 8 Following Just a guy with Cystic Fibrosis, married to an amazing woman, trying to spread God's love, inform people about CF, and LIVE LIFE!!!
Amber Goff @ambergoff0715
252 Followers 214 Following 🌹Cystic Fibrosis. Minnesota born. North Carolina adopted. Living in Indiana.💍Army Wife/Sister 🇺🇸 My dogs. #JeepGirl #doublelungtransplantjourney 💜💚♻![Im 28, living with Cystic Fibrosis[D F508 G551D]. I am happily married and have a daughter. I am here to meet new people and try to raise awareness of CF.](https://pbs.twimg.com/profile_images/3275560474/9c1bf69f6c4328ba9ba2670b4a6fbb77.jpeg)
Jeramy Wilson @jwilson24
182 Followers 115 Following Im 28, living with Cystic Fibrosis[D F508 G551D]. I am happily married and have a daughter. I am here to meet new people and try to raise awareness of CF.
Battle4KC @Battle4KC
153 Followers 850 Following World record breaking LifeSaver battle May 6th, 2017 in Kansas City to benefit Children's Mercy Hospital for Cystic Fibrosis Awareness Month.
Chad Riedy @cjriedy
449 Followers 550 Following Husband, father of 2 incredible boys and friend, living with #CysticFibrosis and no longer a long suffering DC sports fan.
Ashley BallouBonnema @BreatheBravely
216 Followers 160 Following Seeker of adventure, musician, Cystic Fibrosis fighter, lover of life, writer, and truly grateful for each beautiful relationship, opportunity, and breath.
Lisa Principe @LisaPrincipe
136 Followers 832 Following Mom to 4 children.. a policeman's wife and a CF mom~
Just Breathe Cornwall @Just_BreatheCF
189 Followers 404 Following We are a local charitable group, raising funds to support families affected by Cystic Fibrosis in Cornwall.
Ali's Gift @Alis_Gift
134 Followers 180 Following We work to remove the unique challenges people with Cystic Fibrosis face so that CF is never the reason they miss out on travelling, study, whatever they want!
Vicky Coxhead ⫩ @vickser22
602 Followers 3K Following loving mum to my 4 beautiful children. Cystic Fibrosis and Autism are a big part of life but my hubby and of course Mr Gary Barlow helps! My blog @sendmummyblog
DJ's Dudes Fund @DJsDudes
508 Followers 782 Following Non-profit one mission to cure CF! Affiliate Walk sponsor @soardogg code- djsdudes Great Strides walks in NY. PA & MO for the CF Foundation
Breathe Believe @Breathe_Believe
217 Followers 339 Following Fighting Cystic Fibrosis while Giving those affected by Cystic Fibrosis reason to BELIEVE ⭐️
Jesse Martin @jmfitness27
56 Followers 202 Following Happily married, Christ follower, Cystic Fibrosis overcomer,online personal trainer, ISSA cpt, sixty five apparel ambassador, JESSE65 for 10% off!
DiaBraxstenLewis65�... @braxsten_lewis
190 Followers 319 Following Proud single mummy of a precious baby boy Braxsten Lewis#diagnosed with Cystic Fibrosis at birth#help find a cure#fighting CF all the way
Dad and a Baby @Daddyandababy
2K Followers 3K Following I love being a dad and a husband. I say what I think & review what I use. I will tell you about my experiences w/ products & my adventures as a first time dad.
Beam @beamfeelgood
3K Followers 2K Following Online platform for ppl w/ health needs. Working w/ clinicians, academics & charities to offer live & on-demand classes, motivational support & remote care.
Susan Schept @sschept1
207 Followers 185 Following Susan is a science writer and editor for the Cystic Fibrosis Foundation. My views are my own and do not reflect those of the Foundation.
CFSupport-MI @cfsn_mi
112 Followers 107 Following CF Support -MI is dedicated to providing services and support to individuals with cystic fibrosis, their families, and the communities that support them.
Team Beazy @TeamBeazy
56 Followers 113 Following Team Beazy was created after Beatrix was diagnosed with #CysticFibrosis shortly after she and her twin sister were born. Help us raise awareness of #CF! 💜💛
Simon Stothard @SupersiMagicguy
260 Followers 498 Following 38 years old and raise money for Cystic Fibrosis as I have CF. Despite this so far I have run 6 marathons with a personal best time of 3 hours 42 minutes.
Laura LT @mapleleith
704 Followers 1K Following #cysticfibrosis #CKD #notjustlungs • Liver, pancreas + kidney transplant recipient ⭐ • Tories Out 🌻 Printmaker 🌿🍃 Insta: @not.just.lungs ✨
Salty Cysters @saltycysters
308 Followers 94 Following •Lea & Tiff 👯 •Cystic Fibrosis Fighters 💪🏼 •Bicoastal Cysters with a passion to help the CF community 💜 •Check us out on FB & Instagram: @SaltyCysters
Team Brawlin Colin @teambrawlncolin
136 Followers 237 Following TBC is about 11yr old Colin Lee, his great strides team, and family! Together we can make CF stand for Cure Found!
CF Trust Youth @CFTrustYouth
1K Followers 215 Following Community of and for young people with cystic fibrosis. Part of @cftrust, we run online workshops, talks, meetings and socials. Stay up to date here :)Trends for United States
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