@[email protected] @AutSciPerson
Autistic consultant and writer with a Masters in Neuroscience. white, nonbinary. they/them Opinions are my own. #SayNoToABA autisticscienceperson.com Maryland, USA Joined February 2018-
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Something I’m not hearing a ton about is that Gallaudet Students, from the historic college for the deaf, are also participating in solidarity encampments in the DMV area.
Banning/criminalizing mask-wearing is where it’s been headed for a while. Disabled people tried to warn everyone, we really did 😩 All while being called “cops” for pleading with folks to continue masking amidst an ongoing pandemic when the literal police hate masks & spread 🦠
Banning/criminalizing mask-wearing is where it’s been headed for a while. Disabled people tried to warn everyone, we really did 😩 All while being called “cops” for pleading with folks to continue masking amidst an ongoing pandemic when the literal police hate masks & spread 🦠 https://t.co/b2J8MnqVfx
@Swilua @AutSciPerson I broke my leg in late January and didn't mention it to anyone until my next scheduled doctor's appointment in March, my leg hurt. Something always hurts. I heard it break but I also broke my toe and just assumed that was what I heard so I wrapped my toe and moved on
@Swilua @AutSciPerson I fractured my wrist and the only person who believed it was worse than a sprain was a teacher
@AutSciPerson I eventually had to have a hysterectomy bc the pain was so severe. Few people believed me, and the ones who did generally didn't until they saw me pass out or immobilized from it. Having this chart def gives me a better idea of what the expectation of diff pain levels actually is
@AutSciPerson It turns out I had several ovarian and uterine cysts, some the size of golf balls. I went for 10 more years after that before I found one who took me seriously. By that time, I was 28; I'd been suffering from this since age 12.
@AutSciPerson when i was 14 i slipped on some ice. lying in the road, unable to concentrate for the pain, my dad told me to get up, that if it was serious i'd be screaming and crying. he said we should 'wait and see' so we didn't go to a&e for at least 2 hours. i had broken my knee.
@AutSciPerson Yeah, when I was a teenager I thought I had Hurt my arm and maybe broken it, i remember my friends hitting my arm, slamming onto the table , saying, you would be screaming in pain if you had really broken it, and I wasn’t , so, I believed them , but a week or so later..
@AutSciPerson Not this exact thing happening to me this summer lol (it was 7 years later though)
In one of the grosses displays I've seen in a while, Idaho's AG says that doctors are lying about having to airlift pregnant women out of state to get care, and that they're just trying to make a "political statement" idahostatesman.com/news/politics-…
@K66613269314 @AutSciPerson I probably gotta be like this more too. I swear I herniated my disc like 2 years ago, had sciatica... but the doctor at urgent care said I was probably overreacting... It made me wonder if I was accurate with my pain or not...
@AutSciPerson When I went into labor and it was finally time to go to the hospital, I remember the nurse asking me how I'd rate my pain. (This was years before my chronic pain started.) I told her a 4. She told me, "I'm going to write down a 2." I shrugged it off back then, but WTF?
@AutSciPerson My current baseline is a 6. If it gets any higher than that, I get whinier than usual when complaining about it. But once it gets even worse, I'll go quiet - sometimes completely nonspeaking or nonverbal. My husband recognizes my pain face, but other people don't.
I loved writing this guest post about addressing disability and COVID in my latest YA novel. CONDITIONS OF A HEART is so important to me, and I'm grateful I was able to share these parts of my life. teenlibrariantoolbox.com/2024/04/26/alt…
@DirtyNerdy2 @AutSciPerson This. We realized our cat was sick because he was hiding inside a cat bed that he never touches. The vet said it was good we caught it so early, etc. Can relate, just want to hide while in pain! (He’s fine now, pic for tax)
@AutSciPerson This is literally the reason why I'm sitting here in really bad pain following my flu/cov1d jab yesterday bcos I'm worried if i try to see a GP to get some pain meds (my regular one i can't see on short notice) won't believe the level of pain I'm in 🫤
@mamacorin @AutSciPerson I’ve heard their actually supposed to be only a temporal comparison for a single person (eg one person’s 5 one day to their 10 another day gives you info) but that’s def not widespread knowledge and who knows how they’re actually being interpreted
This scene from Nimona 🤣
This scene from Nimona 🤣 https://t.co/lpCELLtE33
@AutSciPerson Especially when a bunch of us also have chronic illnesses, meaning our perception of pain is even more messed up.
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3K Followers 2K Following Polygon gargoyle. Art, science, tech, cognition. Disabled, nonbinary, queer, white. they/them. 😷 📚 Mid Gaussian out now!
Orchid ⁷⁼¹ ⌬ @HeyItsOrchid
2K Followers 903 Following Host of Destiny lore podcast @guardians_lore | ⌬ | F1 | 🏳️🌈🏳️⚧️
Elena Filipczyk @ElenaFilipczyk
1K Followers 299 Following Writes about autism, disability, trauma, grief & animals. PhD candidate. Autistic. ADHD. Probably lying down. 🌱🛼💞🎸
Lauren Kayes @LaurenRKayes
4K Followers 2K Following queer, disabled, story-spinner. they/he/she. words @ Allure, The Rumpus, & etc. not here much, find me elsewhere! (header by @kendrawcandraw)
Shaina M @smac0905
2K Followers 2K Following "I am not ashamed of my grandparents for having been slaves. I am only ashamed of myself for having at one time being ashamed." (Backup Acct - @smac1621)
YK Hong @ykhong
7K Followers 4K Following Head @ Keep Beyond, anti-oppression culture shift + tech justice. IG: @ykreborn, bluesky: @ykhong
Briana Mills, LMFT �.. @theBrianaMills
8K Followers 749 Following Licensed Marriage and Family Therapist #134337. Not your therapist. Physically disabled. Bi. Specializing in disability, medical trauma, EMDR, and LGBT. She/Her
Lozza 👾 (they/them.. @LozzaGilbert
1K Followers 2K Following award-winning queer, disabled content creator, streamer & activist 🌿 Views my own and all that 📧: [email protected]
@GenderMeowster (they.. @GenderMeowster
3K Followers 1K Following transmasc nonbinary AuDHD yt disabled Twitch affiliate | offering comfy cozy moderated queer spaces & content | @GenderfulPod creator | @DisabledCCC stream teamSomething I’m not hearing a ton about is that Gallaudet Students, from the historic college for the deaf, are also participating in solidarity encampments in the DMV area.
Banning/criminalizing mask-wearing is where it’s been headed for a while. Disabled people tried to warn everyone, we really did 😩 All while being called “cops” for pleading with folks to continue masking amidst an ongoing pandemic when the literal police hate masks & spread 🦠
UT said masks are banned — so people masking for their health are gonna be arrested????
@Swilua @AutSciPerson "you wouldn't be able to put weight on it" only to snap the right one worse prying a shoe off. I'm really lucky, they were baffled that it had managed to stay in place and wouldn't need surgery or resetting.
@Swilua @AutSciPerson YOOO yup I'm p sure I fractured both feet in an ill-conceived attempt to show off by hopping down a three foot drop and landing on them flat, only got confirmation/xrays/boot for one after spending a week going 'I think it's broken', being told 'you'd know if it was,'
@Swilua @AutSciPerson I broke my leg in late January and didn't mention it to anyone until my next scheduled doctor's appointment in March, my leg hurt. Something always hurts. I heard it break but I also broke my toe and just assumed that was what I heard so I wrapped my toe and moved on
@Swilua @AutSciPerson I fractured my wrist and the only person who believed it was worse than a sprain was a teacher
@AutSciPerson I eventually had to have a hysterectomy bc the pain was so severe. Few people believed me, and the ones who did generally didn't until they saw me pass out or immobilized from it. Having this chart def gives me a better idea of what the expectation of diff pain levels actually is
@AutSciPerson It turns out I had several ovarian and uterine cysts, some the size of golf balls. I went for 10 more years after that before I found one who took me seriously. By that time, I was 28; I'd been suffering from this since age 12.
@AutSciPerson This scale is very helpful for me. As a teenager, I had pain w my periods that was a baseline 6, with cramps causing 9-10 level pain. My GYN at the time told me I needed to exercise more 🙃
@AutSciPerson Holy wow, my baseline is 7 and I've been reporting it as a 3 or 4 because I thought I was maybe being 'dramatic'
@AutSciPerson Man seeing this and realizing my base level for pain is a 6 or a 7...jeez
@AutSciPerson My best friend broke her collarbone and still only felt a 3 😅I think that was the moment she realized she had a high pain tolerance
@AutSciPerson when i was 14 i slipped on some ice. lying in the road, unable to concentrate for the pain, my dad told me to get up, that if it was serious i'd be screaming and crying. he said we should 'wait and see' so we didn't go to a&e for at least 2 hours. i had broken my knee.
@AutSciPerson If it was normal to just feel lots of pain most days , and not registering it as pain , if you know what I mean. Nearly all my teeth rooted out without me ever going to seek a dentist as well , partly because I have a problem brushing my teeth,
@AutSciPerson .. I went to the doctor about something else and mentioned my arm maybe Hurt, and , yes , turned out I had broken it . And just the other day , I stood on some glass , it got stuck under my feet, bellow the skin, I didn’t see anyone till I could hardly walk because I wasn’t sure
@AutSciPerson Yeah, when I was a teenager I thought I had Hurt my arm and maybe broken it, i remember my friends hitting my arm, slamming onto the table , saying, you would be screaming in pain if you had really broken it, and I wasn’t , so, I believed them , but a week or so later..
@AutSciPerson Not this exact thing happening to me this summer lol (it was 7 years later though)
@AutSciPerson yeah, not autistic (but i am adhd) but i have an injury that occasionally causes chronic pain around the level of a heart or gallbladder attack and this is very similar to how i compartmentalize pain (and lose spoons depending on how much effort i'm putting into blocking it out)
@AutSciPerson Being at a pain management clinic for the second time it goes the other way too, people with chronic pain can relate to us in ways they were never capable of before.
@AutSciPerson Yep, I was trying to explain this recently in some training I was doing but people found it hard to understand it isn't just a high pain threshold it's an expressive issue as well
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