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For every son, every daughter, every mother, and father. Let’s continue to ignite the flame of innovation and incinerate ALS. #Together IGNITE youtu.be/VSSReyNLGrc?si…
The world is a much better place with this guy in it. Happy Birthday @SteveGleason !
The world is a much better place with this guy in it. Happy Birthday @SteveGleason !
Using an analysis of Answer ALS data, @InSilicoMeds was able to validate a prior study & rapidly enroll patients into a Phase II study. Although no results yet, the shear speed of the work due to openly accessible data was, in their words, “spectacular.” #Together
Holy smokes, they have a crowd this year. Sorry to have missed it. @boaflouncer is repping those w ALS well.
Holy smokes, they have a crowd this year. Sorry to have missed it. @boaflouncer is repping those w ALS well.
Without women and girls in science, Answer ALS would not have created the largest and most comprehensive open access ALS data repository, Neuromine. Without women and girls in science, all ALS research would be years/decades behind.
Without women and girls in science, Answer ALS would not have created the largest and most comprehensive open access ALS data repository, Neuromine. Without women and girls in science, all ALS research would be years/decades behind.
Join me and @Duke_Neurology’s Dr. Bedlack on Feb. 8th 👇
Join me and @Duke_Neurology’s Dr. Bedlack on Feb. 8th 👇
Although our team couldn’t be at the #alsmndsymp in Basel, we wanted to remind everyone attending that they are the keys to answering ALS. From patient fellows to researchers to clinicians, you are all the keys. Now, pick that lock.
Happy Thanksgiving from our team to you and your families.
Update from @AnswerALS open data portal and its applicability to the @NINDSnews ALS strategic priorities.
A decade ago, we listened to Liz & others. A platform was demanded to be inclusive of input by patients, caregivers, clinicians, & researchers. Since launching in 2020, that platform, Neuromine, helped start over 350 new research projects around the world. #FreeAccess #Together
Ady Barkan, Rachael, and their entire team at Be A Hero were and are the heroes they push us to all be. Peace, Ady. We have the baton.
Ady Barkan, Rachael, and their entire team at Be A Hero were and are the heroes they push us to all be. Peace, Ady. We have the baton.
It’s been a few weeks, but we would be remiss if we didn’t give @NEALSConsortium a huge thanks for such a dynamic conference again this year. Being together with others trying to end this disease and sharing each others’ progress is added encouragement. #Together
We can’t wait to get our hands on this one! Thanks, Steve!
We can’t wait to get our hands on this one! Thanks, Steve!
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Steve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Mandi @RunningMama0522
2K Followers 1K Following
No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
BrainStorm @BrainstormCell
5K Followers 777 Following BrainStorm Cell Therapeutics, Inc. (NASDAQ: BCLI) is a clinical-stage biotechnology company developing autologous cell therapies for neurodegenerative diseases.
Fallyn Stohlton @FallynStoh99062
74 Followers 5K Following
Abbie Lautner @abb_laut
39 Followers 5K Following
Yazmin Estela @yazmin_este
60 Followers 5K Following
Darcey Varady @DarceyVara66499
76 Followers 5K Following
Diyana Petrova @petrova28698
4 Followers 34 Following
Mai Abdelgawad @MaiAbdel1230
7 Followers 168 Following MSc in Neuroscience, Research Assistant @lakatoslab @CambridgeUniversity, working on cortical development using brain organoids
Jeff doherty @jeff_doherty
7 Followers 19 Following
Terrilyn Planck @PlanckPlan
74 Followers 5K Following
Una Holsapple @HolsappleU12269
65 Followers 5K Following
Tihomir Ilic @tihoilic
23 Followers 405 Following D'où venons-nous ? Que sommes-nous ? Où allons-nous ? I never stand still. I want learning every day.
ALS Northwest @ALSNorthwest
526 Followers 350 Following ALS Northwest provides support and resources for people living with ALS, their families, and caregivers.
Cooper Penner @CooperPenner
250 Followers 798 Following Lost Boy (never Bar Mitzvah'd). ALS advocate. Current MD-PHD candidate at UPenn. mostly retweetin. He/His. Black Lives Matter.
razadu @razadu_
108 Followers 328 Following Experiencing ALS symptoms for several months now and anxiously awaiting a diagnosis; several other medical conditions have been ruled out
Brian Donovan @CheckBd
8 Followers 69 Following Diagnosed with ALS in 2024, but embracing hope. A proud husband, dad, and granddad, believe in future breakthroughs and cherish every family moment.
Paulomi Bhattacharya @paulomibh
3 Followers 23 Following PhD Candidate @Caltech B.S. @MIT Molecular Neuroscience/Genomics
Amy Lynn DelFratte @suzabella603
67 Followers 100 Following Experienced P2P fundraising professional with a demonstrated history of working in the non-profit organization management industry.
christine @Cris780195
1 Followers 44 Following
Nitesh Sanghai, PhD C.. @Sanghai_MedChem
163 Followers 573 Following Medicinal Chemistry, Drug Discovery. Doing Science to bring meaningful impact in human life. Let’s come together to bring “Hope” in People’s Lives. Love you God
Dan Maradei @MARYDAY1
125 Followers 2K Following
colorcrimes @colorcrimes
172 Followers 430 Following CoFounder/ @SullenClothing @pardytime and big time LA RAMS fan!
Mihir @terminal_coder
146 Followers 202 Following 36. Programmer, developer. Living with ALS (Amyotrophic Lateral Sclerosis). Grateful for each day.
ilan sinai @sinai_ilan
35 Followers 2K Following
Heather Marriott @HevMarriott
266 Followers 370 Following Postdoc in Translational Bioinformatics of ALS/MND @kingsmnd 🧠 | @mndassoc and @MNDScotland Pre-Fellow | All views are my own. she/they 🌈
Katerine Soisson @KaterineSo98031
31 Followers 5K Following
Inaaya Kraling @i_kralin
36 Followers 5K Following
Luna Schetrompf @LSchetromp37753
23 Followers 4K Following
Malia Perella @pere_mal
39 Followers 5K Following
penny hughes milner @pchmilner
52 Followers 159 Following
aarti sharma @aartisharma_k
130 Followers 420 Following Neuroscientist | ALS researcher | There is no earth 🌍 without ART
JAY5684 @JAY56841
23 Followers 75 Following
lulu @bblulu42
27 Followers 99 Following
Vanessa Hermans @VanessaInLovee
36 Followers 97 Following
Akay @JstAkay_
59 Followers 488 Following
Shelby Cozad @a13c058e4622457
23 Followers 72 Following
Lizz @pecamamc
1 Followers 77 Following
Monica Casula @MONYCHINA72
3 Followers 98 Following
BALL'N @neeko10
53 Followers 199 Following
Ali @Ali900493881190
37 Followers 64 Following
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Steve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Sarah Nauser @SarahNauser
12K Followers 516 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Mandi @RunningMama0522
2K Followers 1K Following
Brian Donnelly 🧬�.. @DonnellyDNA
880 Followers 32 Following CCO @ Ancestry. Husband, father, animal lover, wellness enthusiast.
Johnathan CK @JohnathanCK1
255 Followers 60 Following Neurologist and Geneticist at University of Sheffield. Christian, climber, runner and chicken owner.
ALS ONE @alsone_official
949 Followers 634 Following Our world leaders in ALS research & care have united 2 advance critical research towards a cure while improving the qual of life of individuals living w/ALS now
Kevin Geraghty @KevinMGeraghty
234 Followers 351 Following 40 year old hell bent on living and fighting #ALS with every fiber of my being. If you’re going through hell, keep going. #IAMALS #EndALS #fuckALS
King's MND Centre @kingsmnd
2K Followers 333 Following MND Care & Research Centre. Motor Nerve Clinic at Kings College Hospital. Internationally renowned for research & excellence in care. Contact us [email protected]
UmRaf @UmamRafique
159 Followers 162 Following
Ade Minggus Hukom @adehukom
173 Followers 223 Following English Teacher. Currently teaching in a beautiful seashore called Tanjungbumi. A happy Father of D.G Elhasiq Hukom A happy Husband of Santika
Dr. Elizabeth Medina .. @Dr_Liz_Medina
174 Followers 303 Following #Diversity #Inclusion #Equity #SocialJustice #FitMom #BlackVegan she/her/hers
metto @MettoBas
187 Followers 193 Following
Facundo Barreto @Facu_burton
181 Followers 165 Following Ing. Electromecánico. Posible Ing. Aeronáutico.
Joao Felippe @felippe_joao
180 Followers 406 Following
Cecilia Vaquerano @Cecilia1992H
175 Followers 991 Following
big papa5446 @bigspebder5134
205 Followers 316 Following
Piranha @BlueFlyProd
176 Followers 96 Following
Av Rizal @AvRizal666
176 Followers 193 Following
colleen mccullough @Mccullough41082
180 Followers 944 Following #ItWorks #distributor #wrapwithbean #itworksglobal
errix @errixonlyjuve
188 Followers 176 Following
Claudia Soler @pollosoler
188 Followers 261 Following
Woody Brown @_KNOCKonWOOD_
207 Followers 597 Following Every beginning starts today #TeamUL #504NOLA
Jennifer Langlade @JenniferVinyl
176 Followers 680 Following
BridgetRebecca @BridgetRebecca4
841 Followers 663 Following Momma bear 🐻 fighting for ALS treatments and a cure #Andrewsstrong
Michael Lecker @michaeliamals
330 Followers 135 Following Just some guy working for the ALS community
Sarah Parton (she/her.. @sarahkarpar
1K Followers 940 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Joao Pereira @jdpereira
6K Followers 5K Following Interested in neurodegeneration, deep learning, organoids and iPSCs! Also mentoring and science careers! Scientific Director iPSC NeuroCore Yale University
𝐀𝐫𝐩𝐚𝐧 .. @DrArpan100
2K Followers 2K Following Neurologist with an interest in studying the role of kinases in ALS/MND @mrcppu. SAP member @MNDScotland. Trustee @PhysicsPartners.
Rothstein Lab @Rothstein_Lab
974 Followers 429 Following Dr. Jeffrey Rothstein is a professor of neurology and neuroscience @HopkinsMedicine and is the founding director of @packardcenter. (trainee run)
Pat McGuinness @mcguinnesspat
181 Followers 169 Following I wish all those people who say I'm quiet would just shut up.
Pat Dolan @Team_Thriving
949 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmapping
Lizzie Dellar @LizzieDellar
621 Followers 981 Following Postdoc at @MNDOxford, working on protein biomarkers of MND and Extracellular Vesicles. Otherwise found water-colouring, board-gaming and tea-drinking.
Alison Reichert @alisonr
155 Followers 355 Following
Lee Morrison @LeeMorrison2022
370 Followers 887 Following Disabled, ALS fighter, power chair, USMC & Army Veteran, Book seller on AbeBooks @ https://t.co/pFVnC80NOW NO DM!!!!! You WILL be blocked!!
MitoSense @MitoSenseInc
817 Followers 777 Following "Harnessing the Power of Mitochondria to Fight Disease" ™️ such as ALS, Alzheimer’s, and Parkinson’s.
Karine Jean-Pierre @K_JeanPierre
541K Followers 5K Following This is my personal account. White House Account: @PressSec
Duke Neurology @Duke_Neurology
3K Followers 2K Following Twitter account of the Duke Department of Neurology
Hendrick Motorsports @TeamHendrick
796K Followers 273 Following Official account of the 14-time NASCAR Cup Series champions. @KyleLarsonRacin | @chaseelliott | @WilliamByron | @Alex_Bowman
VIRginia Internationa.. @VIRNow
12K Followers 574 Following VIRginia International Raceway is America's Motorsport Resort. One of the most challenging circuits in the country, our 1,300 acres are heaven on earth.
Melanie Mardlin @melanie_mardlin
92 Followers 1K Following
Lin Brehmer @LinBrehmer
33K Followers 2K Following 93XRT Morning DJ 28 years. Midday DJ since 2020. Take nothing for granted. Great to be alive
L Brielmaier @BrielmaierL
480 Followers 464 Following Engineer, @IEEEBrain, IEEE EMB, PLWALS, prog-rock, “Scientists investigate that which already is. Engineers create that which has never been.” Albert Einstein
Laura Hanson @lamhanson
714 Followers 495 Following Living with ALS since mid 2019. I carry the C9orf72 mutation. Living everyday with focus on the present. Grateful for the wonderful & powerful ALS community 💕
.@BarriosIzamar, @rachael_king, and Carl traveled to D.C. in support of care and caregivers. We made a short video about the trip and the movement for care. Please watch and share. <3 #TheCareEconomy
Watch this. And then watch this again. We need meaningful support mechanisms in this country for #caregivers and for people living with disabilities who cannot live with them.
.@BarriosIzamar, @rachael_king, and Carl traveled to D.C. in support of care and caregivers. We made a short video about the trip and the movement for care. Please watch and share. <3 #TheCareEconomy
Congratulations to @dantate2 for this much-deserved award & laudable career. Thank you for all you have done to fight with the #ALS community.
So proud of @dantate2 today and every day. Wonderful to see him receiving this recognition for his work ❤️❤️ bryceharlow.org bryceharlow.org/awards-celebra…
Agreed - Josh and Justin have led through this crisis with a level of integrity rarely seen. I have great respect for every person I’ve dealt with at @AmylyxPharma over the years. While selfishly I hope they stay in the #ALS fight, I wish them well in their next career moves.
Amylyx $AMLX to pull ALS drug from market, cut 70% of staff statnews.com/2024/04/04/amy… via @ADeAngelis_bio News aside, I have deep respect for the way Josh and Justin have handled the Relyvrio situation. A lot of companies talk about prioritizing patients over business. Amylyx…
Today we shared an update on our next steps, including a process we’ve initiated to remove our ALS treatment from the market and provide free access to therapy for those who wish to stay on. These decisions were informed by people who will be impacted and engagement with…
Pre-pub so not yet peer-reviewed but sounds an interesting new candidate target
One of the most exciting studies we have ever done -- medrxiv.org/content/10.110… -- a potential new therapeutic approach for ALS.
One of the most exciting studies we have ever done -- medrxiv.org/content/10.110… -- a potential new therapeutic approach for ALS.
Meanwhile, Gray and I are multi tasking. Opening gifts from the Bunny, and watching Liverpool. You'll never walk alone!
@alsadvocacy @TargetALS_fdn @AnswerALS @ALSTDI I heard @salesforce has a product called data cloud
@alsadvocacy @AnswerALS @TargetALS_fdn @ALSTDI Also in all seriousness…this. Platform silos stink.
@AnswerALS @alsadvocacy @TargetALS_fdn @ALSTDI Sorry I was being cheeky from the beginning because I enjoyed the word smoosh & was never actually suggesting smoosh wording or smoosh theory to officially enter the ALS lexicon.
@alsadvocacy @TargetALS_fdn @AnswerALS @ALSTDI This data sharing collab between @AnswerALS and @ALSTDI was announced earlier this month. answerals.org/2024/03/07/als…
Rivers just left to England on an epic adventure with his soccer. I probably won’t tell him this in a year or two… “Dude, I’m so bloody stoked, Rivers. Keep us posted, mate. Have fun. Be safe. If you have to choose between the two. Have fun, Mo Fo! I love you so much.”
Attn #ALS #MND researchers worldwide: learn more about the CDMRP funding program here later today.
Please join for an Informational Session on FY24 CDMRP Funding Opportunities, 27 MAR @ 1200-1300 EST. Use the following link to join the session: dod.teams.microsoft.us/l/meetup-join/…
Incredibly proud of @iamalsorg & the truly revolutionary work done. @bsw5020 & @sabrevaya = EXTRAORDINARY people I get to call true friends. We’re going thru hell together but doesn’t mean we can’t laugh & find moments of joy. 🎊 to the all volunteers/staff who work so hard u 🪨!
This is the moment that we first found out about the amazing grant from Mackenzie Scott and her incredible foundation. I am so proud of the amazing IAA staff and community. As you will see, disbelief turns into happy tears. Today, I cannot stop smiling.
Need inspiration. Look no further. Follow @SteveGleason and wish him a happy birthday. Thanks for inspiring us to leave white flags behind and to live impossible. Happy Birthday! 🎉
Had some father family time for my birthday this morning. Thanks for a beautiful birthday morning Gray and Rivers and Kyle and momma. I’m so grateful for our time together. I love yall, and I love this crazy wonderful Life! Heaven in our midst.
Thanks to the New Orleans Book Festival for having me, Michel, and Jeff Duncan for featuring our book, A Life Impossible, to be released next month. Thank you, Fletcher Mackel, for moderating and Ms. Gayle Benson for introducing us. To pre-order, bit.ly/3Pix3Pt
Thank you @Microsoft for your unwavering commitment to the #ALS Community and partnership with @TeamGleason , giving us a chance to have our natural voice back. Can’t wait to hear mine.😉
Proud to preview work to empower people with ALS with custom neural voice. Grateful to @TeamGleason, Brian and the beautiful Jeansonne family. Committed to making sure this technology is used for good and plan to launch later this year. youtube.com/watch?v=5FWwM1…
@ALSTDI @AnswerALS @Microsoft This is fantastic news. Collaboration across research institutions is so necessary to end this disease! Thank you for all of your hard work
The ALS Therapy Development Institute (@ALSTDI), @AnswerALS, and @Microsoft are pleased to announce a collaboration that will bring together the two largest existing clinical and omics data sets relating to ALS.
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