MND Research Australia @MND_RIA
Motor Neurone Disease Research Australia has built & sustained MND research nationally for 40 yrs. MNDRA is the research arm of MND Australia. mndresearch.org.au Australia Joined March 2015-
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The US Congressionally Directed Medical Research Programs (CDMRP) ALSRP funding program specifically supports impactful research to develop ALS treatments. Open to international applicants Deadline for Letters of Intent - June 18, 2024 cdmrp.health.mil/alsrp/default
They showed biallelic excision of the repeat expansion, or selective excision of the mutant allele preserved WT protein levels, corrected RNA abnormalities, abrogated dipeptide repeat production and reduced TDP43 pathology, in patient-derived iPSC MNs. doi.org/10.1073/pnas.2…
Blueprint Neurotherapeutics Network (BPN) for Small Molecules - to enable neuroscientists in academia and biotechnology companies to develop new drugs for nervous system disorders Non-U.S Entities (Foreign Organizations) are eligible to apply. neuroscienceblueprint.nih.gov/neurotherapeut…
Blueprint Neurotherapeutics Network (BPN) for Small Molecules - to enable neuroscientists in academia and biotechnology companies to develop new drugs for nervous system disorders Non-U.S Entities (Foreign Organizations) are eligible to apply. neuroscienceblueprint.nih.gov/neurotherapeut…
The Scientific Seminar continues next week with Dr @AlanCHYu from The Florey in Melbourne. Dr Yu will share exciting results, identifying a key inflammatory pathway causing MND progression. 12pm AEST on Tues 23rd April. To learn more or to register: fightmnd.org.au/fightmnd-scien…
$AMLX presented the PHOENIX study today at AAN meeting. Relyvrio and placebo curves sit right on top of each other. No surprise, of course, but good to see the data presented.
Brain Foundation 2024 research grant program is now open brainfoundation.org.au/apply-for-rese…
Important @smh story about the future of @MedResearchNSW. With our sector increasingly relying on philanthropic donors, it would be dire if this vital indirect funding was not renewed: smh.com.au/politics/nsw/f… @aamri @VictorChangInst @InghamInstitute @GarvanInstitute
This Neurology paper was led by @HoldomCory from @NgoShyuan’s group ft @StephanieHowe98, @Fred_Steyn, @rpavaneijk, with funding support from @MND_RIA @nhmrc @MNDFoundation @FightMND (3/3)
"Increase research funding for genetic sequencing around MND and improve access to genetic testing and counselling for people with MND and their families" was 1 of our recommendations in our pre-budget submission mndaustralia.org.au/advocacy/gover…
"Increase research funding for genetic sequencing around MND and improve access to genetic testing and counselling for people with MND and their families" was 1 of our recommendations in our pre-budget submission mndaustralia.org.au/advocacy/gover…
Messenger RNA transport on lysosomal vesicles maintains axonal mitochondrial homeostasis and prevents axonal degeneration nature.com/articles/s4159…
New Research: Magilock: a reliable control triggering method in multi-channel eye-control systems: Eye-tracking technology brings a different human-computer interaction experience to users because of its intuitive, natural, and hands-free… frontiersin.org/articles/10.33… #Neuroscience
We need to find better outcomes to measure the effect of new therapies in ALS. Our latest paper demonstrates that outcomes derived from wearable sensors are strongly associated with survival, paving the way for their use in clinical trials. @rpavaneijk thelancet.com/journals/ebiom…
Absolutely critical we keep learning as much as possible about how to keep our brain healthy
Absolutely critical we keep learning as much as possible about how to keep our brain healthy
Good to see trial participants getting the opportunity for OLE. Ideally, all trials should be incorporating open-label extensions into their protocols.
Good to see trial participants getting the opportunity for OLE. Ideally, all trials should be incorporating open-label extensions into their protocols.
Awesome work @ChungNeuro
We’re excited to announce the launch of our community-centered BCI registry to bring patients, carers and clinicians together to learn how #BCI is being designed to provide benefit to people with limited mobility. 🧠🧠 businesswire.com/news/home/2024…
SAVE THE DATE! We will be holding the 3rd Australian and New Zealand MND Research Symposium in Melbourne on Tuesday 27th and Wednesday 28th of August. An MND Connect session will also run on the Wednesday. Further information to come as we progress with the event.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Brad Turner @turnerMNDlab
986 Followers 867 Following Head of ALS/MND Lab | Florey Institute | University of Melbourne | Australia | Passionate ALS researcher striving for a cure
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
Dr Rachelle Balez👩.. @chellebalez
3K Followers 2K Following Stem cell alchemist exploring the world of neuroscience through mass spec imaging | she/her | @MolHorizons @UOW (HB2) | opinions mine
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
Jayne Halhead 🌹 @Jaynes__World
6K Followers 4K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease #MND/#ALS #MND #MoreNeedsDoing! Championing #Lancashire
Lee Millard @onein300
2K Followers 899 Following 1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
F I G H T M N D @FightMND
8K Followers 922 Following FightMND exists to champion hope and lead the fight against the Beast that is #MND/#ALS. Join the fight & donate today: https://t.co/Jrbp90Mq0d
Australasian Neurosci.. @AusNeuroSoc
3K Followers 1K Following The official twitter account of the Australasian Neuroscience Society. Tag us in tweets about your research! Tweets by @rockatscientist. RT ≠ endorsement
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
Dr Ahmad Al-Khleifat @AhmadAlKhleifat
2K Followers 351 Following Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Brian Dickie @DrBrianDickie
2K Followers 293 Following Director of Research at the UK MND Association
Walker Neuro Lab @WalkerNeuroLab
1K Followers 1K Following Neurodegeneration Pathobiology Lab studying TDP-43, on a mission to cure #MND #ALS & #FTD. Led (and most tweets) by @adamkeithwalker. @QldBrainInst, @UQ_News.
Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 12 and 9. Fighting MND one day at a time... #MND #ALS
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Daphne Velinos @DVelinos
115 Followers 150 Following cultural end of life educator ~ dignity in life and end of life / diversity,equity & inclusion /addiction harm reduction. Views My Own ( she/her)
Bims: Biomed News @Bims_BiomedNews
2K Followers 5K Following Biomed News is a free machine learning platform to help discover the latest biomedical research publications. Directed by @gavinmcstay2
Marina Boido @MarinaBoido80
257 Followers 420 Following Associate Professor in Human Anatomy at @unito. Neuroscientist interested in motor neuron diseases and spinal cord injury.
Pedro Assed @pedroassed
1K Followers 3K Following Magnus est qui se vincit. MD, MSc-Endocrinology-Federal Univ. Rio de Janeiro/UFRJ 🇧🇷Tweets are my own. RT is not endorsement #MedEd
Jordi van Unnik @jordivanunnik
15 Followers 22 Following Enthusiastic about trial methodology and statistics for ALS
Joseph Powell @drjosephpowell
3K Followers 3K Following Director of Cellular Science @GarvanInstitute | Director of UNSW Cellular Genomics Futures Institute @CellularFutures
Avril Mc Tague @avrilmctague
164 Followers 590 Following Physiotherapist interested in neurology and gerontology. PhD student in motor neuron disease. All views are my own. RT does not mean endorsement.
Ability To Empower @ability2empower
10 Followers 22 Following Through collaboration we empower each other with a personalised service tailored for all individuals
Sunny Brous @sunnystrongals
2K Followers 623 Following I have ALS but it does not have me. No apologies, no excuses, no regrets, just me.
Shana Taubert @ShanaTaubert
19 Followers 236 Following
Shahla Croxford @ShahlaBaghesta1
24 Followers 87 Following Retired physiotherapist . Humanity is most important . Campaigner to End Motor Neurone Disease since 2022 . NHS is a human right .
Caitlyn @CaitlynMcPhysio
4 Followers 67 Following
Richard Evans @RichardJaEvans
2K Followers 2K Following Director of Engagement at @MNDassoc. @PointofCareFdn trustee. Have written books about journalists Basil Clarke and Philip Gibbs.
Jennie Starkey @StarkeyJennie
480 Followers 322 Following Mum of 4, educator, PhD student, diagnosed with MND Sept 2021. recently retired. Raising MND awareness through humour (sometimes dark) with my blog.
N KDugar @KdugarN
36 Followers 162 Following #indian #trader , markets ! expressing thoughts which would take our country towards a better growth 📈
Deb Paust @PaustDeb
1K Followers 724 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Debank @Debank007
88 Followers 431 Following
Megha @megha_121
34 Followers 85 Following ALS researcher. Unraveling the mysteries of #ALS to find a cure. Passionate about science & making a difference in patients' lives. #NeverGiveUp #ALSResearch
Readable Research @ReadableR
90 Followers 120 Following Clear, simple summaries of Neuroscience research hot off the press – read and reviewed by those who live beyond our labs at @sheffielduni & @SheffieldBRC
Mizaura @mizaura
54 Followers 288 Following
Claudio Crespo Beneyt.. @Claucre73
52 Followers 100 Following
Fergal Waldron @FergalWaldron
435 Followers 484 Following Advanced Research Fellow @aberdeenuni | MND/ALS & neurodegenerative diseases | Clinical heterogeneity | Immunity & neuroinflammation | Genetics | Data synthesis
Mohamed amine Zr @AmineZerdo30585
11 Followers 109 Following
Brian Louden @brilouden
125 Followers 41 Following
Nirma Perera @perera_nir3741
41 Followers 122 Following
Shane Hartmann @shadohrealm
44 Followers 231 Following Father of two boys and Program Manager at Kyndryl. Love my Parramatta Eels, Sci-Fi and all things Food. Opinions are all my own
Francisco jose Ribago.. @RibagordaAvila
32 Followers 307 Following En proceso…. preparándome mentalmente!
Neuro Genomics @Neurogenomics1
685 Followers 5K Following Posting new and impactful articles about cognition, neuroscience, neurodegeneration, aging, genomics, sleep, and neuropsychiatry
Kimberly Jayne @kimbo_jayne
1K Followers 2K Following Running, Wine, #BloonWatch. Doing another trot for #MND Victoria. Donate ⤵️
Emma Windebank @elwindebank
0 Followers 28 Following
Manon Hughes @manonpiws
779 Followers 1K Following Community Adult SLT Team Lead for BCUHB West All-Wales Dysphagia CEN Secretary • All about patient-centred care • Mam to J • Views my own 🏴
Pathaez @Pathaez134893
17 Followers 1K Following
Gabriel Fernandes @gabephysio
228 Followers 666 Following Senior Physiotherapist, PhD candidate @spring_qut (Achilles tendinopathy in runners), Senior Research Assistant (QUT)
Lizzie Dellar @LizzieDellar
622 Followers 981 Following Postdoc at @MNDOxford, working on protein biomarkers of MND and Extracellular Vesicles. Otherwise found water-colouring, board-gaming and tea-drinking.
hariharan @HariharanTela
11 Followers 199 Following
Dr. Chandrika Konwar @ChandrikaKonwar
140 Followers 551 Following Fulbright Scholar @Caltech | Senior Research Fellow @UnivofDelhi | Systems Biologist studying elegans | GENETICS reviewer | GSA ECLP member
Kirstin McDonald @McDonald_KO
29 Followers 94 Following
Robynne Eleanor @robynne_eleanor
0 Followers 29 Following
150MND @150mnd
115 Followers 371 Following we are a team of friends aiming to raise £150k by walking 150 miles inspired by our great friend Rob who was recently diagnosed with MND. A Big Rugby fan
Straight Lines @straightlinesco
2K Followers 1K Following Incorporated in 2008, Straight Lines Consultancy provides corporate advisory services to companies in Australia, North America & UK
Luna @Tuffe328240
2 Followers 202 Following
Sarah Hancock @SarahHanco19601
3 Followers 22 Following
H @Bumble_Bee_2000
79 Followers 175 Following
Nabi Shaikh ( Data sc.. @NabiSha67998092
27 Followers 218 Following Passionate about problem solving using data driven methods.Machine learning. Python statistics.Aspiring Full Time Trader
Elizk @Elizk84179966
216 Followers 906 Following
Nitesh Sanghai, PhD C.. @Sanghai_MedChem
163 Followers 574 Following Medicinal Chemistry, Drug Discovery. Doing Science to bring meaningful impact in human life. Let’s come together to bring “Hope” in People’s Lives. Love you God
Peter Whitehead @peter_whit18612
95 Followers 183 Following Recently Diagnosed with MND/ALS, Father of 3, Estate Agent of 40 Years, love being on the sea power boating & huge Leicester City fan.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Brad Turner @turnerMNDlab
986 Followers 867 Following Head of ALS/MND Lab | Florey Institute | University of Melbourne | Australia | Passionate ALS researcher striving for a cure
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
Dr Rachelle Balez👩.. @chellebalez
3K Followers 2K Following Stem cell alchemist exploring the world of neuroscience through mass spec imaging | she/her | @MolHorizons @UOW (HB2) | opinions mine
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
Jayne Halhead 🌹 @Jaynes__World
6K Followers 4K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease #MND/#ALS #MND #MoreNeedsDoing! Championing #Lancashire
Lee Millard @onein300
2K Followers 899 Following 1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
My Name'5 Doddie Foun.. @MNDoddie5
38K Followers 252 Following Registered Charity, established by Doddie Weir & friends to raise funds to aid research into Motor Neuron Disease & supporting fellow sufferers.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
F I G H T M N D @FightMND
8K Followers 922 Following FightMND exists to champion hope and lead the fight against the Beast that is #MND/#ALS. Join the fight & donate today: https://t.co/Jrbp90Mq0d
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
Dr Ahmad Al-Khleifat @AhmadAlKhleifat
2K Followers 351 Following Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Brian Dickie @DrBrianDickie
2K Followers 293 Following Director of Research at the UK MND Association
Walker Neuro Lab @WalkerNeuroLab
1K Followers 1K Following Neurodegeneration Pathobiology Lab studying TDP-43, on a mission to cure #MND #ALS & #FTD. Led (and most tweets) by @adamkeithwalker. @QldBrainInst, @UQ_News.
Rob Burrow CBE @Rob7Burrow
199K Followers 2K Following Proud owner of the Autobiography of the year 2022. You can get it at all book stores or Amazon. #toomanyreasonstolive Number 1 Sunday times best seller!
Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 12 and 9. Fighting MND one day at a time... #MND #ALS
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
S. Can Akerman @CanAkerman
120 Followers 224 Following Postdoctoral Fellow @johnshopkins, Rothstein lab, studying neurodegeneration.
Stephanie Howe @StephanieHowe98
18 Followers 38 Following
Sunny Brous @sunnystrongals
2K Followers 623 Following I have ALS but it does not have me. No apologies, no excuses, no regrets, just me.
Target ALS @TargetALS_fdn
2K Followers 525 Following Target ALS brings together the right people, funding, critical tools and resources to foster the creation of breakthrough therapies to treat people with ALS.
Fergal Waldron @FergalWaldron
435 Followers 484 Following Advanced Research Fellow @aberdeenuni | MND/ALS & neurodegenerative diseases | Clinical heterogeneity | Immunity & neuroinflammation | Genetics | Data synthesis
Jennie Starkey @StarkeyJennie
480 Followers 322 Following Mum of 4, educator, PhD student, diagnosed with MND Sept 2021. recently retired. Raising MND awareness through humour (sometimes dark) with my blog.
Taylor Dick @TaylorJMDick
2K Followers 1K Following Scientist & Senior Lecturer @UQMedicine Uni of Queensland | lover of all things that move | bio+neuro+mechanics | wearable tech | @BRInCprogram 🇨🇦in🇦🇺
L Brielmaier @BrielmaierL
474 Followers 464 Following Engineer, @IEEEBrain, IEEE EMB, PLWALS, prog-rock, “Scientists investigate that which already is. Engineers create that which has never been.” Albert Einstein
Spinogenix @Spinogenix_Inc
196 Followers 457 Following Spinogenix is developing a new class of therapeutics to restore memory and motor functions lost in neurodegenerative and psychiatric diseases.
PharmAust @PharmAust
2K Followers 5K Following PharmAust is a clinical-stage biotech company focused on repurposing monepantel (MPL) for human neurodegenerative diseases ASX: $PAA FSE: $ECQ
LifeArc @lifearc1
7K Followers 3K Following Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.
Sano Genetics @sanogenetics
2K Followers 262 Following Sano combines genetic testing, recruitment, and long-term engagement in one platform, accelerating enrollment and simplifying operations for precision medicine
Jinsy Andrews, MD @JinsyMd
454 Followers 24 Following Neurologist, neuromuscular specialist. Opinions shared here are my own personal views.
Christen Chisholm @ChristenChiso
42 Followers 254 Following
Esther Hobson @DrEstherHobson
737 Followers 265 Following Consultant Neurologist/senior lecturer working at SITraN on ways to improve care for Motor Neurone Disease using telehealth and NIV (bikes and views are my own)
Charlotte Massey @Char_Massey
863 Followers 587 Following Specialist Neuromuscular Respiratory Physiotherapist @NHNN_therapies @UCL_QS_CNMD @UCLH @SheffieldHosp and NIHR clinical doctoral fellow @neuroshef
Alon Ben-Noon @NoonAlon
1K Followers 3K Following Leading NeuroSense Therapeutics (Nasdaq: $NRSN), a Clinical stage Biotech company, accelerating therapies for ALS and Neurodegenerative diseases.
Dr Darren Saunders @whereisdaz
27K Followers 3K Following Biomedical scientist | Talks science on Radio & TV | Writer | Thalassophile 🧬 🏄🏼♀️ 🌊 🏊♀️ 🚴 ⛷🏑
Lucas Orssatto @orssattolucas
483 Followers 652 Following Alfred Deakin Post Doctoral Research Fellow - Deakin University - Institute for Physical Activity and Nutrition (IPAN) @DeakinIPAN
Gabriel Trajano @gabrielstrajano
1K Followers 2K Following Associate Professor - Exercise Science |Neuroscience at QUT. MND researcher.
Fernando G Vieira @FGVoneforty
559 Followers 867 Following Dad. CEO & CSO at ALS TDI. Talk less, work more. Opinions expressed on this account are my own.
Associazione conSLAnc.. @ConslancioOnlus
212 Followers 299 Following Patient led Italian #ALS Association 🇮🇹🌎 - https://t.co/QuXcE5fVAB Founded by Andrea Zicchieri | Member @ALSMNDAlliance @EUpALS
Richard Gordon @neurorgordon
298 Followers 656 Following Translational Neuroscience Researcher on a mission to find treatments for Parkinson’s and ALS. @gordon_neurolab
Richard Cave 🇺🇦 @speedoftrust27
2K Followers 941 Following Speech and Language Therapist with MND Association & Adecco for Google. Part time PhD @ UCL. International Alliance of ALS Associations professional 2022 award.
Integrating Genomics .. @IGM_group
127 Followers 214 Following Based at the University of Queensland, our research aims to improve accessibility and equity of genomic testing across all healthcare settings.
Readable Research @ReadableR
90 Followers 120 Following Clear, simple summaries of Neuroscience research hot off the press – read and reviewed by those who live beyond our labs at @sheffielduni & @SheffieldBRC
Courtney D. Lynch, Ph.. @Doc_Courtney
4K Followers 2K Following Associate Prof of OBGYN & Epidemiology @OhioStateMed & @OSUPublicHealth. AE @PPE_Journal. @JohnsHopkinsSPH and @NICHD_NIH trained. Views are my own.
Stella Sarraf @StellaSarraf
26 Followers 12 Following
Nick Geraghty (He/Him.. @DrNickGeraghty
435 Followers 822 Following UOW 🦆 post-doc | Flow Cytometry | Neuroscience | Immunology | Purinergic Signalling | Succulent Obsessed 🌵 | Political views all my own
Matthew Harrison 🔬.. @hattdesigns
2K Followers 2K Following Senior lecturer/researcher #autism inclusion, PhD #digital games-based intervention @UniMelb. Co-founder NextLevelCollaboration. VP of @DLTVictoria. Retro gamer
Dr Monique Ryan MP @Mon4Kooyong
60K Followers 2K Following Independent Member for Kooyong. Authorised by M. Ryan 145 Camberwell Rd, Hawthorn East, 3123 #Mon4Kooyong
EnCouRage @EnCouRage_FMHHS
285 Followers 242 Following EnCouRage is the Faculty of Medicine Health and Human Sciences Early Career Researcher Network
UK MND Research Insti.. @UKMNDRI
551 Followers 58 Following A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
Ed Slater @edslater
22K Followers 2K Following Living with ALS/MND. Former Rugby Player for Gloucester and Leicester. Charlton Ath fan. No particular order 🙂
MND Iceland @IcelandMnd
190 Followers 180 Following
Aideen McInerney-Leo .. @Amcinerneyleo
1K Followers 1K Following Group leader #UQ/Integrating Genomics into Medicine(IGM)/Genetic Counsellor/Mainstreaming/Melanoma/ELSI/Consent; Mum; Views are my own
Dormann lab @DormannL
2K Followers 630 Following We study the molecular mechanisms of neurodegenerative diseases, in particular how RNA-binding proteins become dysfunctional in ALS and FTD.
Neuroscience News @NeuroscienceNew
450K Followers 6K Following Official Neuroscience News Twitter. Brain research news articles on neuroscience, psychology, AI, neurology, brain cancer, robotics, mental health & science.
OptiCALS @opti_cals
245 Followers 53 Following @NIHRresearch funded programme focused on nutritional management in #ALS #MND. @neuroshef, @CTRU_Sheffield, @ScHARRSheffield at @sheffielduni / @SheffieldHosp
Charlotte Fare @CharlotteFare
1K Followers 658 Following 🦠🧬🔬 Postdoc @Rothstein_Lab @HopkinsMedicine PhD @shorterlabgroup @BMBGGUPENN
Shorter Lab Members @ShorterLabGroup
4K Followers 2K Following We are a group of scientists @Penn working to combat protein misfolding as a way to understand and treat neurodegenerative diseases. (student run)
Eva Feldman, MD, PhD @EvaFeldmanMDPhD
1K Followers 333 Following @umichmedicine neurology, NeuroNetwork for Emerging Therapies, ALS Center of Excellence, Brain Health, Diabetes Complications-Views are my own
QurAlis @QurAlisCo
496 Followers 232 Following QurAlis Corporation is a private clinical-stage #biotech driving #Precision #Medicine breakthroughs for #ALS, #FTD, and other #neurodegenerative diseases.
Rothstein Lab @Rothstein_Lab
982 Followers 429 Following Dr. Jeffrey Rothstein is a professor of neurology and neuroscience @HopkinsMedicine and is the founding director of @packardcenter. (trainee run)
Judith Newton @JNewton_MND
808 Followers 434 Following MND Nurse Consultant for Scotland, working closely with @MNDScotland & @EuansCentre. Views 100% my own.
Thomas Shaw @thomcat992
446 Followers 585 Following Research Fellow at @UQ_EAIT @UQ_CAI. MRI enthusiast. MND researcher. 🧠 🏳️🌈
Bluefield Project @BluefieldProj
887 Followers 536 Following A non-profit medical research foundation dedicated to finding a treatment or cure for frontotemporal dementia (FTD).
It’s so inspiring to see the amount of dedicated scientists hard at work in Canada receiving support from @ALSCanada. The panel was a fascinating discussion and I appreciate @VPResearch_ALS and others making it possible!
We appreciate the many scientists, clinicians , and advocates gathering in Toronto this weekend for the @ALSCanada Research Forum. Our movement was honored @Jeanc9orf72 was able to share thoughts on asymptomatic genetic ALS / FTD research in a panel with leaders in the field.
Early birds. A packed room of scientists and community members at the 2024 @ALSCanada Research Forum. This is an opportunity to hear about the #ALS Canada-funded research.
Interested in #Proteostasis and #Neurodegeneration? Then check out this week's selection of publications on this topic! biomed.news/bims-proned/20… Thanks to @Bims_BiomedNews for the pre-selection! #ProteostasisInNeurodegeneration
"The most important element is determination. It's knowing that while the disease has only one direction to go, so do you. We do not give up, not today, not any day. You accept every moment for what it is and the victory of perseverance that it represents." -Sundeep 2020 #EndALS
4/5 Thank you for your visit and for supporting Australian research, Minister Husic. And for being a good sport about our creepy crawly lab buddies! 🔬
1/5 We were pleased to welcome The Hon Ed Husic MP, Minister for Industry and Science, to IMB. Although not a fan of spiders 🕷️, he was a fan of the research from the @VenomsLab who are investigating venoms to develop new treatments for stroke & bee-friendly pesticides.
Looking forward to this phase 1 trial in #ALS from @ProJenX moving ahead.
Really enjoyed getting back on my feet and back in a gym, which I haven't done in over a year. Thank you to the legends Rob and Sarah @ Apex Neuro for looking after me with real care and empathy whilst working hard to push me to expand my limits. In the video I am doing leg…
Agreed - Josh and Justin have led through this crisis with a level of integrity rarely seen. I have great respect for every person I’ve dealt with at @AmylyxPharma over the years. While selfishly I hope they stay in the #ALS fight, I wish them well in their next career moves.
Amylyx $AMLX to pull ALS drug from market, cut 70% of staff statnews.com/2024/04/04/amy… via @ADeAngelis_bio News aside, I have deep respect for the way Josh and Justin have handled the Relyvrio situation. A lot of companies talk about prioritizing patients over business. Amylyx…
Correct @billshortenmp MND doesn't just go away. Once you've got it you've got this profoundly disabling condition forever. #NDIS @mndaustralia
Team @UOW in the beautiful halls of Parliament House for Science meets Parliament #smp2024 @DrTheresaLarkin and @AtmosJennyF
I don’t comment about ‘alternative’ & unproven ‘therapies’ because of the understandable situation that #mnd #als leaves us in. Sadly we can open ourselves up to exploitation. Take care & if something appears ‘too good to be true’ it probably is?. tandfonline.com/doi/full/10.10…
@als_now @onein300 @MND_RIA @ALSTDI @biospace @MinoSean @HaterAls I would welcome seeing the publication of the ph 2/3 trial of CuATSM for ALS. In fact, I have written to CMD more than once to learn the status and received no response. Thanks for sharing the ALSTDI blog about the preclinical independent validation of CuATSM. #EndALS
@DrOzdinler #PatientsIncluded at their symposium?
It's not just for docs! #PatientsUseAI Exciting times for medicine! Knowledge is power & #genAI is causing an explosion in it. Patients & families find that tools like GPT-4, Claude & Gemini profoundly improve their ability to contribute to their care. epatientdave.com/2024/03/11/new…
#NDIS delays continue. MND is a category B disability and once an access application is made it's supposed to be expedited according to the NDIA guidelines. So, what's happening @NDIS? www-news-com-au.cdn.ampproject.org/c/s/www.news.c…
Researchers have found that women are consistently better prepared for board meetings, had better attendance rates and were more willing to ask probing questions. That should be a boon for corporate governance econ.st/4a02BkX 👇
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