axeALSFoundation @stevens_nation
On a mission to #axeALS Instagram: @teamstevensnation Facebook Group: Team Stevens Nation axealsgolftournament.org Joined October 2019-
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Happy Valentine’s Day to the grievers, the ones standing in the greeting card aisle with an ache in their chests, the ones who know love doesn’t die when your person does. And to Chris, 4 yrs ago I wrote this for you. I miss you. I miss you. I miss you. kelsiesnowwrites.com/2020/02/14/7/
So thankful for your support @fredcouplesgolf!! We love you! #axeALS
So thankful for your support @fredcouplesgolf!! We love you! #axeALS
We are excited to announce that our grant application is OPEN! We will be accepting applications from December 1st- December 15th, 2023. You must submit your application by midnight December 15th. Apply here: axeals.org/our-impact/#ap… #axeALS
So grateful for this conversation with Amanda Stevens and all she's doing for the ALS community through AxeALS. Listen in as she updates us on how her husband Eric is and what she's been working on. Available on any podcast app or here: bit.ly/ListenOnAppleP… @stevens_nation
Great day at @stevens_nation event with Cal HOFer @CoachMcArthur6 and Kirk Cartozian and his Tequila Mandala which was insane. #axeals #calfootball
One of my favorite days of the year at Virginia Country Club in Long Beach supporting Eric and Amanda Stevens and The axe ALS Foundation. These two are inspirations to us all and are making a huge impact in the als community fighting this horrible disease. #axeals…
They said I wouldn’t be able to talk- I can talk! They said I wouldn’t be able to eat- I can eat, a lot! They said I wouldn’t be alive today- I am very much alive! Never let someone else put boundaries on your life! Believe in yourself when others don’t. #ALS #FightLikeAGirl
So proud of the hard and impressive work of the coalition of @iamalsorg volunteers and others to push forward PPA for faster access to promising treatments. Proud to testify last week, to read Brian’s words on his behalf because ALS has taken his voice, along with so much else.💔
I call on @BrainstormCell to hold a Town Hall for the ALS community, so that it can explain why it withdrew the BLA before the PDUFA date. Also, please explain how this was the best decision for NurOwn and the ALS community. You owe this to us after we fought for a yes.
I call on @BrainstormCell to hold a Town Hall for the ALS community, so that it can explain why it withdrew the BLA before the PDUFA date. Also, please explain how this was the best decision for NurOwn and the ALS community. You owe this to us after we fought for a yes.
We are with you @sabrevaya. If you don’t have ALS, stay the hell out of this debate. We are one of the few who can say that Eric had NurOwn in his body. He wants & needs more. Let that be his choice, not yours. Until you’re dying, we don’t wanna hear from you. Just stop.
Today, I saw true courage from ALS patients and family. Unfortunately, it was not enough to get an approval recommendation from the AdCom who voted a 18 no, one yes and one abstain. I am ‘f’ing livid.
If you are one of those people that believe #NurOwn doesn’t work, you are effectively calling me a liar. Think about that for a minute. You probably should reevaluate who you are listening to. I would trust someone who knows firsthand what this therapy can do over anyone else.
Thank you @stevens_nation (aka axeALS) for signing onto our NurOwn statement! iamals.org/updates/septem…
#NurOwn has done a lot for Eric & for our family. Right now Eric cannot get anymore doses unless this treatment is approved. WE NEED YOUR HELP! Please sign on to the statement below & share the link with everyone you know! #axeALS iamals.org/action/nurown-…
An incredibly moving moment between Steve Gleason and Tim Shaw who served as honorary captains during the coin toss of Titans/Saints 🫶
Thank you @statnews and @levfacher for this amazing article. Now, let's get NurOwn approved! statnews.com/2023/09/08/als…
" I am not asking you to risk your life for me, like I did for others. I’m simply asking you not to stand in the way of me getting more of the drug that is helping me live." ~ Eric Stevens @stevens_nation Comment: regulations.gov/comment/FDA-20… #NurOwnNow #EndALS #ALS #NurOwnWorks
" I am not asking you to risk your life for me, like I did for others. I’m simply asking you not to stand in the way of me getting more of the drug that is helping me live." ~ Eric Stevens @stevens_nation Comment: regulations.gov/comment/FDA-20… #NurOwnNow #EndALS #ALS #NurOwnWorks https://t.co/jg96PSenvO
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswritesSandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4Sarah Nauser @SarahNauser
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34 Followers 207 FollowingMicah Childress @micah_chil
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153 Followers 1K Following I'm Lisa from Britain am in financial growth institute, also a trader in binary/Bitcoin mining and other crypto currencies,Vicky hyuga @Vickyhyuga81238
136 Followers 402 Following love 💕 making new friends and hanging out with family and friends kinda nasty 🇬🇧👅🍆S T @stemp67
67 Followers 545 Followingdonna thibodeau @ThibodeauDonna
107 Followers 2K FollowingDoberman lover club @dobermann_club
3K Followers 4K Following A family of #doberman lovers |Follow for DAILY #doberman post | Share #doberman content that melt your heart.This page is dedicated to all the dobei lovers💔Moekl @MaureenKathleen
50 Followers 442 FollowingEnd ALS Now @EndALSNow
963 Followers 930 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹Jonathan Brent M.D., .. @DrJBrent
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374 Followers 128 Following Around the globe, ALS warriors have found hope with the Deanna Protocol’s™ revolutionary approach to all-natural symptom reduction.Mk @miki881
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15 Followers 141 Following A Father & Husband..... symptoms onset since 2021 waiting for my DxJanice Page☮️ @JanicePage
27 Followers 327 Following Believer in Science, Truth, and Love. Proud Army mom to my 1st Lieutenant daughter leading an Armor platoon in Germany, and son Commissioning in May!Grant Marek @Grant_Marek
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1K Followers 4K Following I'm a #BrandMarketing specialist. I mostly post videos about #BrandStartegy, #SocialMediaBrandingand #PersonalBranding.Bill P Fights @WilliamP_Sr
131 Followers 338 Following Love my family and God bless the USA 🦅. Whiskey on the rocks. In the fight of my life. I hate ALS!!!!. Josh__/_Swerve__End.. @SwerveALS
270 Followers 330 Following . VR & Screen Experiences. Therapeutic Dawn. Info: https://t.co/HsedAR2lPU / Josh * Website is for laptops, not phones - Yes @IamALSorg @ALSActionNataly Johanson @Njohanso1
53 Followers 40 Following Public Health Researcher navigating this world with @CoachBehanSJC #EndALS#VoteBlue 🇺🇸 �.. @scoopdoggydoo
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0 Followers 13 FollowingLori Heller @HellerLori2018
63 Followers 189 Following “The thing I hated the most has become my purpose.” ALS Widow and advocate. Fighting for a cure.Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.Kelsie Snow @kelsieswrites
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26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.AZ Latina ☮️🌊�.. @aVoice4ALS
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9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.Chris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary FlamesALS Advocacy @alsadvocacy
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19K Followers 817 Following Media site digging every day to get the inside scoop on foundations and major donors.Brian Entin @BrianEntin
463K Followers 999 Following Senior National Correspondent @NewsNation. Traveler. Aviation nut. Dog lover. Total newshound. Email: [email protected]Nate Methot @a_life_derailed
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1K Followers 5K Following Neuroradiologist, Catholic, Patriot, Spartan, Buckeye, ALS Spouse #EndALS #ALSJosh Barnett @ByJoshBarnett
4K Followers 2K Following Managing Director/Editorial at @sbj. Former ESE @TheBuffaloNews. AME at @usatodaysports, Content director at @USATodayHSS, ESE at @phillydailynews.Jonah Javad @JonahJavad
14K Followers 1K Following Sports Anchor + Storyteller @WFAA • 💛👰🏼👶🏻🐻 • #Mizzou 🎓 • 9x Emmy + 5x Murrow winner • ⛳️ fan • @26shirts stan • ☮️💟 Altruism advocateTom Wallach, MD @md_wallach
5K Followers 1K Following Pediatric GI. Pain, EED, and intestinal barrier science. formerly of UCSF/Columbia. Ed board @jpgnreports . hater of ALS. tweets only represent me. he/himAthletes First @AthletesFirst
19K Followers 640 Following Athletes First is a full-service agency which represents top NFL athletes, coaches and college coaching personnel.HopOnACure @HopOnACure
520 Followers 61 Following Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOvErin Brockovich @ErinBrockovich
263K Followers 1K Following Consumer advocate & Environmental Activist. Founder of The Brockovich Report Newsletter https://t.co/mKaymVgN6h #TruthUnfilteredSynapticure @synapticure
4K Followers 505 Following Personalized virtual clinical care is finally here for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington'sChuck H @ChuckHabz
629 Followers 1K Following #ALSPepperChallenge #lg4day https://t.co/GM1NaE7P7y https://t.co/fyfKNV1fDFPeter J. Pitts @PeterPitts
2K Followers 538 Following President, Center for Medicine in the Public Interest, Former FDA Associate CommissionerBridgetRebecca @BridgetRebecca4
841 Followers 663 Following Momma bear 🐻 fighting for ALS treatments and a cure #AndrewsstrongSen. Lisa Murkowski @lisamurkowski
325K Followers 599 Following Official Twitter account for U.S. Senator Lisa Murkowski. Follow me for news and updates on what's happening in the Senate and across Alaska.Chad Smith @ChadSmithDT16
2K Followers 405 Following Former MLB & MILB Pitcher (DET & OAK) | USC Trojan Baseball 2008-2011 | FinanceSOS 4 ALS @SOS4ALS
286 Followers 561 Following Advocate for people with ALS. This "rare" disease has taken 3 from my life. *Drugs in bodies, hope for souls NOW.* Opinions expressed are my own.Bizzy @Beenbizzyballin
1K Followers 2K FollowingJason Villeggiante �.. @Captain23V
176 Followers 409 Following Bay Area Italian 🇮🇹 Beach Hippie ☮️ The views on this site are my own & do not reflect any official view or position of the Los Angeles Fire DepartmentMauricio Jimenez @mauricioj2001
345 Followers 139 Following I’m currently in the fight of my life. I have terminal Illness, ALS. I’m a husband and a father of two. don’t forget to drop a follow.Bruce Virgo @BVirgo1
434 Followers 295 Following Aussie #MND #ALS Warrior now living in Scotland. Retired Maritime/Shipping lawyer (non-practising - Australia, England/Wales & Scotland).Raekwon McMillan @Kwon_daTRUTH
61K Followers 843 Following Gifted With A Vision | Ohio State Buckeye | Omega Man | New England PatriotBrandon Bolden @BB_HulkSmash
61K Followers 235 Following Born and Raised in Baton Rouge, Louisiana husband, son, and father 4 beautiful children. #RaidernationPrasanna ALS @adhikariprasan
252 Followers 685 Following An advocate for PALS, CALS and their family members. Lost my father to ALSLisa Griffey @Jomomadcar
57 Followers 424 FollowingJaimie Barry @BarryJaimie
97 Followers 175 FollowingBlackrock Neurotech @BlackrockNeuro_
5K Followers 1K Following Our mission is simple: We want people with neurological disorders to walk, talk, see, hear, and feel again. We’re engineering the next generation of BCI.Ashley Davis @ashleydavisn
145 Followers 88 Following Follower of Jesus Christ, Married to @CodyDavis. Proverbs 3:6Kate Wilmoth @WilmothALSfight
332 Followers 349 Following NC. RN/Paramedic. DogMom. Living life as newlyweds while battling Ryan’s terminal diagnosis of ALS & fighting for changeJohn Lynch @JohnLynch49ers
160K Followers 167 Following Husband, father, San Francisco 49ers President of Football Operations/General Manager, Pro Football Hall of Fame Class of 2021 and Super Bowl XXXVII ChampionCody Davis @CodyDavis
8K Followers 797 Following ✝️ Follower of Jesus. 👨👩👦👦 Husband & Father of 3 boys. 🏈 Retired NFL player. ➡️ Data Science, Player Development, Charity. Col 3:23Mike Francis @mikeywfrancis
112 Followers 139 FollowingChase Garbers @ChaseGarbers
5K Followers 1K Following NFL Quarterback // Former Quarterback @ Cal // BT29🙏🏻Yellowstone @Yellowstone
326K Followers 144 Following The official Twitter account of @ParamountNet's series #YellowstoneTV, starring Kevin Costner. Let's go to work!Derek Koval @derekgunz
3K Followers 273 Following Husband. Father to 2 boys 1 girl and 2 angels. fighting ALS and RP Blessed by those around me.Aaron Rodgers @AaronRodgers12
4.6M Followers 571 FollowingMary Lutzenkirchen @mary_mlutzenkir
709 Followers 81 FollowingRon DeSantis @GovRonDeSantis
4.8M Followers 1 Following 46th Governor of the great state of Florida.Happy Valentine’s Day to the grievers, the ones standing in the greeting card aisle with an ache in their chests, the ones who know love doesn’t die when your person does. And to Chris, 4 yrs ago I wrote this for you. I miss you. I miss you. I miss you. kelsiesnowwrites.com/2020/02/14/7/
Hop On A Cure is proud to announce our investment in @MitoSenseInc, an innovative biotechnology firm specializing in mitochondrial therapies. Their flagship technology, MOT (Mitochondria Organelle Transplantation), is a promising new approach to ALS treatment. #cureALS
Today was my 1 year anniversary of doing in-home PT. If you asked me 1 year ago if I would still be walking today, I would have said most likely not. Not only am I still walking, but today I walked 40 feet. Good night moon.
Jason Kelce has elevated the game of football and the awareness of just how awesome Offensive Lineman are. He is a Hall of Famer on the field and off it he is a STAR. Congrats on retirement my brother, you gave the game everything you had.
So happy for @JaredGoff16 - dealt with adversity, met it and worked through it. Time and time again. An elite player, a special teammate & the best version of himself. ❤️❤️ cc @Elite11 @CalFootball @Lions
HC Dan Campbell, GM Brad Holmes & QB Jared Goff all came to Detroit in 2021: —During the 2021 season the Lions started 0-10-1 & finished the year, 3-13-1. —The following year they finished 9-8, just missing out on the playoffs. —This past season the Lions won 12 regular season…
Jared Goff deserved this win. The Rams and Sean McVay threw him away to Detroit and he comes back after helping get the Lions their first division title and home playoff game in 30 years to end the game with the best formation and play in football. Victory. YOU LOVE TO SEE IT.
Jared Goff leads the Detroit Lions to their first playoff win in 32 years. nbcnews.com/news/sports/ja…
Enormously grateful for Year 1 with the @RamsNFL. First class organization top to bottom. Couldn’t be more proud of @Coach_Gould. So much joy this year watching him do his thing. August 2024 can’t come fast enough. #Ramily 💙💛🏈
I couldn’t even tell you the last time I got to spend Christmas morning with all of my siblings and my mom & dad. I was maybe a year old. Tomorrow, that’s going to change and I can’t wait. The magic of Christmas! Love your people while you can! #Christmas2023
@fredcouplesgolf Great job, Fred! It’s an insidious disease and one that will be curable in our lifetimes, God willing. Thanks for using your talent for such a great cause!
@fredcouplesgolf Fred you are a true class act you often support causes close to your heart & you do it quietly & without fanfare while helping others less fortunate than you and you deserve a huge thank you for all the wonderful things that you do for others.. Thank you Fred
We had an an amazing day last month at the 3rd AXE ALS Golf Tournament for Eric and Amanda Stevens. The AXE ALS Foundation is a cause close to my heart. Suzanne and I are proud to be involved with this great family. We raised about $300k for the Foundation and had a blast…
So cool!
Congratulations to Hunter Green ❗ Green has been named to the FCS Freshman All-American Team 🏈 Read more ⤵️ 🔗 | loom.ly/WQzHRSg #GetUpGreeley
Conversation with a 6 year old… Him: I love SpongeBob Me: Did you know the creator had ALS Him: What is ALS Me: The same illness I have Him: Will it ever wear off Me: Well, I hope and pray for that everyday Him: I pray for that too because I love you Kids are the best. #ALS
Honored to be a part of this great cause yet again. #axeALS
Great day at @stevens_nation event with Cal HOFer @CoachMcArthur6 and Kirk Cartozian and his Tequila Mandala which was insane. #axeals #calfootball
One of my favorite days of the year at Virginia Country Club in Long Beach supporting Eric and Amanda Stevens and The axe ALS Foundation. These two are inspirations to us all and are making a huge impact in the als community fighting this horrible disease. #axeals…
They said I wouldn’t be able to talk- I can talk! They said I wouldn’t be able to eat- I can eat, a lot! They said I wouldn’t be alive today- I am very much alive! Never let someone else put boundaries on your life! Believe in yourself when others don’t. #ALS #FightLikeAGirl