Good vibes only @skipthebadnews
diagnosed with YOPD at 48. Delighted to be seen as young in some category but pretty pissed off with diagnosis. don’t want to hear the bad stuff. Joined November 2022-
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In this special episode of #2parkiesinapod we hear how ground breaking UCL research transformed the tremors of 5 people living with #Parkinsons into their own unique songs. Hear @clambert112358 & 3 participants reflect on the album's remarkable impact 🎧👉🏼2parkiesinapod.com
Question for Parkinson’s peeps - do you feel completely‘normal’ when taken meds? I feel better but not ‘normal’ 🤷♀️#parkinsons #yopd
It’s the week before my period so good vibes turned off but fellow PwP is it normal to have trouble getting out of bed in the night? Feel stuck but it’s fine in morning. 🤷♀️what’s occurring? #yopd #Parkinsons
Met the lovely @sossie_l for coffee #Parkinsonssilverlinings #yopd #Parkinsons
Started taking sinemet a couple of months ago and haven’t had a period since. Am 49 and was regular before then. Any other #womenwithparkinsons experience this? @OosterbaanA @RichelleFlan @Dr_SF_Hussain @Avng_Medusa @dopaminetheft @RoseDon79544976
Are you a pregnant woman with YOPD? Get in touch with @OosterbaanA who is carrying out vital research into this pregspark.com #yopd #womenwithparkinsons #Parkinsons
Starting my adventure across Europe tomorrow to raise Parkinson's awareness. Conquering 28 countries' highest peaks in 28 days, spreading hope and inspiration. Redefining perceptions of Parkinson's and connecting with the community. #EurUpIan #ParkinsonsAwareness
Are you living with Parkinson's & want to help improve nutrition research & information for People with PD? Please complete this survey designed by 2 dietetic students @Sarahw_nutri & @sinead_larkin from @fnsucc who are currently on placement with me. surveymonkey.com/r/PDDietSurvey
Hey #neurotwitter #mds do you or would you consider running #yopd #geriatric clinics separately so #yopd don't feel unnecessary despair at seeing fellow #peoplewithparkinsons ?
pd-school.teachable.com Link to @NatNeuro PD School. PD pro tracker great too. Anyone know a UK. based neuro like her?
Have you discovered @NatNeuro PD School? Essential if newly diagnosed. Wish I had found sooner. Video on medication so helpful and reassuring. Thanks @Avng_Medusa #yopd #Parkinsons #newlydiagnosed #womenwithparkinsons
Why I I keep getting stuck? Clothes never used to roll up. So frustrating. I need a lady’s maid 😂Will this stop once on medication?? #parkinsons #yopd
Always feel better after getting out with this one. #DogsofTwittter #labradoodle
Week before my period, positivity and energy drains, motivation disappears. I want to curl up in a ball, have a little weep and say ‘it’s not fair’. Normal service will resume in about a week. Anyone relate? #yopd #womenwithparkinsons #chronicillness #Parkinsons
Selegiline vs rasagiline? Anyone got a clue why a neurologist would prescribe one over the other early stages of PD? #Parkinsons #pd #yopd
Parkinson's patient takes to the gym to beat 'horrific' symptoms bbc.in/3wyt4Eq
Gavin Mogan @purposeful_pd
2K Followers 527 Following Personal Trainer to Parkinson’s warriors - move to your groove. Lawn-care for the soul - mow with the flow. Ball.DS @tapehead81
6K Followers 6K Following Husband. Father. Video Producer at @parkinsonsUK. Songwriter. Ex Teacher. Still giving it some despite #parkinsons dx 2011. thoughts are my own because they areGraeme Masson @masson_graeme
2K Followers 1K Following Winning some and losing some v #Parkinsons. 49ers, Aberdeen FC, R.E.M. I swear. A lot.studiosree @studiosree
762 Followers 2K FollowingDJClaireMJ @djclairemj
1K Followers 1K Following LCR radio presenter. I have PD. My email for requests etc [email protected]Parkinson's Humor @YumaBev
4K Followers 2K Following #Parkinsons symptoms since the 80's, finally diagnosed in 2007, bilateral DBS in 2012. Funny stories & helpful tips about life. Come laugh with me 🤣Richelle Flanagan �.. @RichelleFlan
5K Followers 6K Following Family, Friends, Dietitian, Coeliac/Parkinson’s/ADHD advocate, Life too precious not to smell the🌹Past President INDI; WPC Ambassador. Own Views.Stalbo @Sarah_says_hi
684 Followers 1K Following Hi! 🙋♀️Had many lives: good&bad. 😁 Passionate about teaching! ❤Family & friends, music, poetry, art, outdoors. ⚡️PD & FND. 🙏Grateful for the love l share!@MyParkinsonsLife @MyParkinsonsLif
1K Followers 396 Following Diagnosed in 2019. I want to create an account where people can exchange thoughts on Parkinsons Disease. Tone will be positive even though we share symptoms.Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.GorgonGoddess_The �.. @Avng_Medusa
1K Followers 1K Following a trivial glimpse * intellectually curious & difficult to shame * your ego is not on my agenda * she/her/I AMannie🇺🇦💙💛.. @annieconmonkey
690 Followers 593 Following proud mum of 2 rugby players - tramps like us... no fear bubble #parkinsonsRobert James Keene @Treboreneek
977 Followers 576 Following Writer, Radio presenter, Crown Green Bowler, video maker, Parkinson's Dinosaur, senior citizen, universal philosopher, eternal optimist.Martin Taylor @MartinTaylor9
1K Followers 2K Following Dad, husband, Hearts fan, occasional writer and patient advocate. Likes /RT are not endorsements. https://t.co/9znpM7geSLMatt Eagles ⚒️#CO.. @MattEagles
7K Followers 8K Following Head of Patient Voice @HAVASLYNXEU ⚒lifelong Hammers fan lived with parkinsons for 50 years - judge at the #BurberryBDA's 2023/24HappyHotspur @happyhotspur7
797 Followers 752 Following Husband, Father.Parkinson's Diagnosis 10+years. Love life & Speedway. Very supportive family. Opinions are my own. Retweets are not an endorsement.pdmama @elliejfinch
1K Followers 292 Following Food-loving linguist. Mum of two small beings. Dx with Young Onset Parkinson's Disease in 2013 aged 29. DBS Jan 2024.Phil Jerky @PhilJerky
2K Followers 1K Following Tall, beardy, stand-up comedian with Young-onset Parkinson's. All views expressed are my own. Email: [email protected]CMad @teachercm
6 Followers 524 FollowingCarla's Pondering PD�.. @PdPondering
766 Followers 366 Following *Educator/learner *Reader/writer *Fan/critic *Parent/child *Wife/partner *Healthy/diseased (Parkinson's)Sam Nauta @Yopper_Sam
37 Followers 163 Following "Ik ben niet ziek, maar heb een ziekte" "Jong en Parkinson" Liefde-Verbinden-Delen-Gunfactor-Positiviteit-Zingeving-Kennis-Ontwikkeling-Sport-Muziek *Blogger*Go Lucky @TreeFanForever
299 Followers 4K FollowingMaria Boucher @Maria_Boucher
80 Followers 281 Following wife, daughter, sister, sister-in-law, step-mama and grandma! diagnosed with PD in 2015. Still working full time and recently had DBS surgery and managing all.Bob Fitz @PSU1978
24 Followers 227 Following Penn State Alum (Blog), New Holland Ag Retiree, Boy Scouts volunteer, bleeds blue & white (Penn State, NH Tractors)...Helena 💋 @Helena__E5168
0 Followers 199 Following Sensuous sеductrеss relentlеssly chasing ecstasу's embrасeAI-PROGNOSIS @aiprognosis
144 Followers 366 Following AI-PROGNOSIS - a Horizon Europe-funded project developing Artificial intelligence-based solution for Parkinson’s disease risk assessment and prognosis.Rob Davies 💙 @physio_rob
595 Followers 884 Following Parkinson’s Specialist Practitioner/ Physio Independent Prescriber 💊 Visiting Lecturer Marjons Uni & Visiting Specialist Plym Uni 👨🏫 Trade Union activist 🗳Carolina Leach @LeachCarol54843
59 Followers 5K FollowingDR WAYNE MARKMAN (he/.. @markman_wayne
197 Followers 456 Following CEO,@SYMBYXBiome At home lasers/therapies for #Parkinsons, #fibromyalgia, #Crohns & Chronic Pain. BSc/MSc Chiro (Macquarie), MBA (Harvard), BA (Macalester)NorthSouthgrammy🇺�.. @aj10_17
587 Followers 1K Following love the beach, mountains and traveling all over the world. Caregiver for hubby with Parkinson’s.Kindness & Acceptance valued! Grandkids are awesome ❤️ ENTJVeda Iskra @IskraVed
74 Followers 5K Following[email protected].. @abrown012159
108 Followers 172 FollowingLeja Ebersole @l_eberso
51 Followers 5K FollowingChristian Lambert @clambert112358
572 Followers 296 Following Principal Research Associate & Neurologist at the Functional Imaging Laboratory (UCL) working on computational anatomy, disease phenomics & multiscale methods.Shantay Ungar @UngaShant
87 Followers 5K FollowingCharlotte Dore @CharlotteDore9
34 Followers 63 Following Research assistant @WCHN_UCL. Researching variability in #Parkinsonsdisease with quantitative MRI. PhD student @UCLIoN.Mary jackson @Maryjac50781856
18 Followers 305 FollowingPDWarriorTwins @PD_WARRIORS
80 Followers 177 Following We're the #PDWarriorTwins, docs on a mission to shake up the Parkinson's fight! Follow for memes, motivation, and more! Join us 💪 #Parkinsons #CommunitySupportSamantha-Marie @Slymaraner
16 Followers 216 Following Never underestimate the power of a kind word or act ! Life ain’t a dress rehearsal.... .gareth blake @ghblake
70 Followers 196 FollowingAaron Phelps @AaronPhelps5
31 Followers 246 Following Husband, father, pastor & small business owner fighting Early Onset Parkinson’s Disease.Katie Barraclough @ktbarraclough
113 Followers 369 Following American in London, freelance photographer and Stories Manager @ParkinsonsUK All views my ownMayowa @pt_mayowa
93 Followers 448 Following Physiotherapist|Msc student in Public health|Interests in PD, Geriatrics, Physical Activity, and Qualitative research|#JWEamon @Eamon4444
29 Followers 316 FollowingCheryl Hanson @CherylHanson75
3 Followers 88 FollowingFiona Eccles @FionaJREccles
383 Followers 570 Following Researcher in psychological impact of neurological conditions. Clinical psychology trainer. Life restricted by ME/CFS. Lover of silence. Twitter novice.Carly Armitage @Carly_LeighA
40 Followers 160 Following 2nd Year Speech & Language Student🗣️ Interested in neurodivergence, stroke, & head & neck cancer 🧠💬😊 #SLT2B #HudUniMatt Couchman @Tremr8
667 Followers 604 Following Parkinson's blogger, amateur musician, amateur photographer, geek. All views my own.Parkinson Association.. @PDAssocAB
1K Followers 754 Following We aim to make every day better for Albertans affected by Parkinson disease through support, education, advocacy, and funds for research.killparkinson @killparkinson
53 Followers 141 Following Let's protect our children by beat Parkinson's. We have an idea how, more soon! By & for Parkinson's patients. With ❤️ from BerlinJosefa Domingos @DomingosJosefa
306 Followers 284 Following Physical therapist specialist in Movement Disorders and researcherTufan Ergüder @OktenTurhan
10 Followers 570 FollowingLaura Cockram 💙�.. @Lozzaram
1K Followers 1K Following Head of campaigns at Parkinson's UK. I ❤️ movies, TV, travelling, meeting people, silent discos, dancing, driving & giggling. Views expressed my own.Jo Gardner @Josiepop1604
147 Followers 253 Following I simply want kindness and compassion to rule. Happily married to Owen Gardner. Mum to dog Holly and cat Bobby. Diagnosed July ‘22 with Parkinson’s Disease.Tincy Jose💙💙�.. @tincybinu9
186 Followers 309 Following A proud health professional wants to make difference....Jerome Maume @JeromeMaume
134 Followers 258 FollowingMelLerway @Lerwam
110 Followers 1K FollowingChris Westland @cdubdada
109 Followers 464 Following Human. Full time Clinical Operations. Father, husband, musician, PD decade #2.Parkinson's Europe �.. @ParkinsonsEU
8K Followers 2K Following 🌷The leading voice for #Parkinson's in Europe since 1992 🌷Supporting the 1.2m Europeans with #Parkinsons and their families 🌷Founder of #WorldParkinsonsDaySheila @haywardsheila44
460 Followers 3K FollowingGavin Mogan @purposeful_pd
2K Followers 527 Following Personal Trainer to Parkinson’s warriors - move to your groove. Lawn-care for the soul - mow with the flow. Ball.DS @tapehead81
6K Followers 6K Following Husband. Father. Video Producer at @parkinsonsUK. Songwriter. Ex Teacher. Still giving it some despite #parkinsons dx 2011. thoughts are my own because they areJonny Acheson @jonny_acheson
7K Followers 1K Following Husband, Dad, EM doc and Artist. Parkinsons since 2016. Director of Engagement @ParkinsonsEN. Thankful for grace. Likes to exercise, loves to draw. Views my ownGraeme Masson @masson_graeme
2K Followers 1K Following Winning some and losing some v #Parkinsons. 49ers, Aberdeen FC, R.E.M. I swear. A lot.studiosree @studiosree
762 Followers 2K FollowingDJClaireMJ @djclairemj
1K Followers 1K Following LCR radio presenter. I have PD. My email for requests etc [email protected]Parkinson's Humor @YumaBev
4K Followers 2K Following #Parkinsons symptoms since the 80's, finally diagnosed in 2007, bilateral DBS in 2012. Funny stories & helpful tips about life. Come laugh with me 🤣Richelle Flanagan �.. @RichelleFlan
5K Followers 6K Following Family, Friends, Dietitian, Coeliac/Parkinson’s/ADHD advocate, Life too precious not to smell the🌹Past President INDI; WPC Ambassador. Own Views.Stalbo @Sarah_says_hi
684 Followers 1K Following Hi! 🙋♀️Had many lives: good&bad. 😁 Passionate about teaching! ❤Family & friends, music, poetry, art, outdoors. ⚡️PD & FND. 🙏Grateful for the love l share!@MyParkinsonsLife @MyParkinsonsLif
1K Followers 396 Following Diagnosed in 2019. I want to create an account where people can exchange thoughts on Parkinsons Disease. Tone will be positive even though we share symptoms.Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.GorgonGoddess_The �.. @Avng_Medusa
1K Followers 1K Following a trivial glimpse * intellectually curious & difficult to shame * your ego is not on my agenda * she/her/I AMannie🇺🇦💙💛.. @annieconmonkey
690 Followers 593 Following proud mum of 2 rugby players - tramps like us... no fear bubble #parkinsonsMartin Taylor @MartinTaylor9
1K Followers 2K Following Dad, husband, Hearts fan, occasional writer and patient advocate. Likes /RT are not endorsements. https://t.co/9znpM7geSLMatt Eagles ⚒️#CO.. @MattEagles
7K Followers 8K Following Head of Patient Voice @HAVASLYNXEU ⚒lifelong Hammers fan lived with parkinsons for 50 years - judge at the #BurberryBDA's 2023/24HappyHotspur @happyhotspur7
797 Followers 752 Following Husband, Father.Parkinson's Diagnosis 10+years. Love life & Speedway. Very supportive family. Opinions are my own. Retweets are not an endorsement.Michael Okun @MichaelOkun
33K Followers 858 Following National Medical Advisor @parkinsondotorg Author 14 books https://t.co/EJCwDpEIw8 blog Professor @UF @fixelinstitute Associate Editor @JAMANeuro @DBSThinkTankpdmama @elliejfinch
1K Followers 292 Following Food-loving linguist. Mum of two small beings. Dx with Young Onset Parkinson's Disease in 2013 aged 29. DBS Jan 2024.Christian Lambert @clambert112358
572 Followers 296 Following Principal Research Associate & Neurologist at the Functional Imaging Laboratory (UCL) working on computational anatomy, disease phenomics & multiscale methods.Rose Donaldson @RoseDon40584758
80 Followers 107 Following Mother of 3 boys and trying my best to keep Parkinson's at bay. 30 episodes of PD mums musings podcast recorded.Carly Armitage @Carly_LeighA
40 Followers 160 Following 2nd Year Speech & Language Student🗣️ Interested in neurodivergence, stroke, & head & neck cancer 🧠💬😊 #SLT2B #HudUniFiona Eccles @FionaJREccles
383 Followers 570 Following Researcher in psychological impact of neurological conditions. Clinical psychology trainer. Life restricted by ME/CFS. Lover of silence. Twitter novice.Laura Cockram 💙�.. @Lozzaram
1K Followers 1K Following Head of campaigns at Parkinson's UK. I ❤️ movies, TV, travelling, meeting people, silent discos, dancing, driving & giggling. Views expressed my own.K Harris @FUPD666
344 Followers 483 Following Fighting Young Onset Parkinson’s Disease/ middle school teacherAdventures in Parkins.. @ParkinsonsLand
590 Followers 789 Following A webcomic & knockabout buddy tale of one man and his neurodegenerative disease by Matt Verguson -We're all in the gutter but some of us can't find our glasses.Parkinson's Europe �.. @ParkinsonsEU
8K Followers 2K Following 🌷The leading voice for #Parkinson's in Europe since 1992 🌷Supporting the 1.2m Europeans with #Parkinsons and their families 🌷Founder of #WorldParkinsonsDayLost Voice Guy. Book .. @LostVoiceGuy
60K Followers 3K Following AKA Lee Ridley. Comedian with the iPad. Disabled before it was popular. Geordie. First book - ‘I’m Only In It For The Parking’ on sale now. Link in bio.Eddie L0ngterm Gulley @L0ngterm
519 Followers 766 Following Retired Tech Leader, Neuro-divergent Parkie! Medtronic DBS, AT thru-hiker, Desert Storm Veteran. Instagram: @L0ngterm #L0ngtermonthetrail Breathe, Act. Hike On!England Parkinson’s.. @ParkinsonsPride
592 Followers 302 Following Official Twitter account of the England Football Team for people with Parkinson's Disease. Founded 2022 ✉️ [email protected]Joanna Eastough @JCPDPhysio
691 Followers 776 Following Specialist Parkinson's Physio supporting people through ⚽️🧘♀️🏃♀️🎾🤝 WFA PD England Walking Football Physio. Parkinson's Pioneer 🥅🧤⚽️Defeatparkinsons @DrmariaDe
628 Followers 431 Following Influencer, healthcare collaborator, patient and research advocate, retired MDs, author of best seller-Parkinson’Diva and public speakerparkie.tv @TvParkie
269 Followers 114 Following Just a guy in his 40s doing my best to live with PD. Here to share info and listen to others if you need someone to talk to.Shanthipriyasiva @shanthipriyadr
77 Followers 143 Following SAAR FOUNDATION founder (people with Parkinson’s ). consultant ophthalmologist .Yopd warrior.Parkinson’s advocate.abstract artist.Kristine McGregor @KristineMcGreg8
2 Followers 65 FollowingShaimaa El-Jaafary @ShaimaaJafary
558 Followers 627 Following Egyptian neurologist working hard searching for the best care of my patients with neurodegenerative diseases.A/Prof Jane Alty @janealty1
3K Followers 3K Following Academic #Neurologist | Movement & Cognitive Disorders | #AI Digital Biomarkers | Brain Health | from 🇬🇧 #PD #AD #FND #dystonia #tremor #TAS_Test ProjectMichele Callisaya @MicheleCallisa1
891 Followers 1K Following Physiotherapist; A/Prof @ Monash Uni and UTas; Passionate about improving the physical and cognitive health of older people. Living with Parkinson’s DiseaseRichard Nel @richard_nel
241 Followers 220 Following As a military arms dealer I picked up valuable wisdom what I want to share with you to make your comeback stronger than the setback! Outlaw.. #Parkinson’sIan O Brien @eurupian
214 Followers 92 Following Husband & Dad living with Parkinson’s. Reaching the highest elevation point in the EU27 & UK in 28 days!! Have the best family & friends. Optimist & AdventurerSarah @TartanSarah
432 Followers 1K FollowingClaire Bale she/her @Ladybale
2K Followers 2K Following Associate Director of Research @ParkinsonsUK. Parent to 2 small people. All views my own. #Parkinsons #BePartOfResearch #SciComm #PatientEngagement #CommsMartha Rogers @MarthaERogers
147 Followers 2K FollowingParkinson’s Pioneer.. @PDPioneers
259 Followers 139 Following Inclusive & inspiring women's Walking Football Community, for women living with Parkinson's & other neuro conditions. we welcome women of any age or experienceAnete Mateus @bapatnonas
60 Followers 185 FollowingParkLifeSu @ParkLifeSu
440 Followers 371 Following Sue Carr: perambulating with Parkinson's one funky day at a time :)Daniel Corcos @danielmcorcos
91 Followers 186 Following I am a Professor in the Feinberg School of Medicine. My research and teaching focus on improving the quality of life of people with Parkinson’s disease.em @hipsterPD
631 Followers 497 Following A #Millennial recently diagnosed with early onset #Parkinsons at 36. Trying to stay hip while figuring out this new life. #yopdKaren Hill @KarenHill159
8 Followers 73 Following We’re here for a good time, not a long time….live for every moment. Wife, Mum and fighter #PDDaiga Heisters 💙 @DaigaHeisters
879 Followers 995 Following Head of Parkinson's Academy, Neurology Academy. Education is the name of the game. Views expressed are my own.nikki rochnia @nikkirochnia
283 Followers 469 Following Senior lecturer in nursing. University of Huddersfield. All views are my own.Nancy Whalen @KarlaStatze
59 Followers 662 Following Academia, Artist, Writer and Parkinson’s Disease AdvocateJules @journalofjules
12K Followers 7K Following Me Julie, Mum of 3, Welsh 🏴 Shouty, sweary, frizzy hairy. Parenting? Completed it mate.Nik @Nik79918727Nik
5 Followers 16 FollowingEsther Labib-Kiyarash.. @elabibkiyarash
778 Followers 1K Following Dx #YOPD 2023 Ambassador & Advisory Board Member @parkinsondotorg MSHA, CPHQ views are my own #parkinsons #advocatePD Optimist @Alison_Proom
105 Followers 379 Following Cat lover and burgeoning poet and writer. Recent PD diagnosis, living in the moment.Janet Copeland @janbelfast
125 Followers 698 FollowingNick Comer-Calder @endoftheline221
185 Followers 580 Following Drinking wine and whistling away the days writing about my Parkinson's, sex, drugs rock n roll and all the end of the line Tube stationsAndrew Cassy @BoytonBoy
267 Followers 664 Following TT-BT-PD-WC PingPongParkinson player & cycling eco-worrier who wants to help transition the world to a better placeknickersinabunch @awindowlicker
29 Followers 645 Following it’s just me, yarn, beads, books, teacher, YOPDBaron Lane @baronlane
423 Followers 923 Following UX designer and digital artist | PD dx 2017 | past @CapitalOne @TDAmeritrade etc. Humane tech advocate - Help find a cure. https://t.co/T471PTPycmK Ray Chaudhuri @KRayChaudhuri1
3K Followers 714 Following Director Parkinson Centre of Excellence, Professor of Neurology, Movement Disorders at King’s College London. Research Director and EDI lead ARC.Yvette Bordley (she/h.. @webyogi
4K Followers 5K Following Digital marketing geek #naturelover #positivepsychology #yogi #mindfulness #YOPD #parkie #napenthusiast. Views mine all mine.Barbara Salsberg Math.. @SalsbergMathews
634 Followers 636 Following Artist, Educator, Mom, Person with Parkinson's. ‘Parkinson’s can’t stop me from dancing!’Phil Sainter @Phil_Sainter
980 Followers 1K Following Assistant Head of School in Westminster Business School of Applied Management. Dx PD 2021. Dog dad. Views are my own, not my employers.#WorldParkinsonsDay game day in Bilbao. An honour to play with these amazing people and our new friends @ASPARBI
And just like that….the 17hr total drive time seems worth it 😊 Sat outside our vineyard gite with a glass of local red. Bosun the #vizsla doing his guarding routine as usual. 19.30 pm and weather is lovely #luvlyjubbly
Happy #worldparkinsonsday from Monpazier in France
Quite remarkable how much seasons impact my #Parkinsons Spring is my fave. Everything is slightly brighter, slightly warmer ..& slightly more hopeful 🌸🩷 Seem to have a spring in my Parkinson's step ☺️
@JoeGregory100 @annieconmonkey Fantastic afternoon! Thank you for making me feel so welcome, and everyone was so lovely! Already looking forward to 21st of April @ St George’s Park, Burton!
PwP ? - Powered with Parkinson's ( it's a kind of magic ) 🧙🏼⚽ @SportParkinsons @CureParkinsonsT @ParkinsonsUK @PdAvengers #SPWF22 #Parkinsons @miketindall13 @NLPD2019 @NeuroWFW @PennineParkies @PDwarriorBristl @TrcGrg @JohnGregory77 @Jeromenumberten @JimmieGregory2 #NeverGiveUp
Catching up with Ramblings as I wait for the arrival of @thebodycoach 🤣 #parkinsons annieconmonkey.medium.com/ramblings-of-a…
Everybody needs a #Parkinsons buddy to drag them out on a rainy day... this is mine 😁 it can be an isolating condition. '57% of PwP cancel or avoid social situations due to embarrassment about their symptoms..' I even let him win today 🎾😛 parkinsons.org.uk/news/world-par…
@skipthebadnews Honeymoon period between 3-8 years, quite regularly, since late 2022, rarely.
@MartinTaylor9 @skipthebadnews IF I am at a good point in the meds cycle AND I have something engaging to dc THEN yes, I can feel “ normal” (10 yrs Diagnosed). Not usually for the whole day though.
@skipthebadnews No, but I’ve never felt “normal.” This is just another added dimension of eccentric.
@skipthebadnews I feel normal until my meds start to wear off and my hand starts to tremor again as if to say “I’m still here!” 🤪
@skipthebadnews Weird you say that. I've just written a poem about it. I'll post it later.
This week's Ramblings dedicated to an extraordinary life #bethankful annieconmonkey.medium.com/ramblings-of-a…
I was having a chat with @elliejfinch earlier and I spontaneously came up with a tee slogan #parkinsons “it’s a proper diva” I’ve a few others…
@sunsopeningband I couldn’t tell you how many hopeless people with Parkinson’s I’ve met. The first thing I have to do is give them hope before they can make any meaningful progress. Are you not doing the same in your practice?
@buzbyc @plantsbloke Sometimes I am overwhelmed with the need for a nap, it might only be for ten minutes but I suddenly need to sleep sometimes which can be inconvenient 😴
We have our first meet up of 2024 today. Women travelling from far and wide to support each other with #parkinsons and play some footie With thanks to our sponsors @SportParkinsons @thewfauk @ParkinsonsUK #thisgirlcan
@PDPioneers What another great occasion An honour to be a little involved, and a joy to witness. All present are such individual and group inspirations ⚽ Video / more photos to come... @CureParkinsonsT @ParkinsonsEU @malooka_sports @ParkinsonsUK @HerGameToo #Parkinsons