em @hipsterPD
A #Millennial recently diagnosed with early onset #Parkinsons at 36. Trying to stay hip while figuring out this new life. #yopd Joined March 2018-
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Expierencing extreme lightheadedness the past two weeks. Went to doc. blood pressure and blood work all ok. Is this from my meds? Caffeine? Is this just part of #parkinsons
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Last month, I had my 7 year anniversary of being diagnosed with #yopd. I’ve only changed my med dosage twice and most ppl in my life still don’t know. I’m still unsure about sharing my fuss as diagnosis d with them.
@tinselchut Thanks for sharing this! Similar story. I went to my Gen. Doc and straight out asked him if i had PD! He said no, you’re to young and i’ll prove you dont. Many test and months later i was in fact diagnosed with PD.
@elabibkiyarash Thank you! My bad days are getting worse and there seem to be less good days…but I’ll take as many mediocre days as I can!
@elabibkiyarash @onepeloton This is cooler than my basement! LOL
With the help of @onepeloton I’ve been exercising and focusing on getting my heart rate up every day this month. Symptoms and sleep…doing “slightly” better!
em retweeted
"I know Michael J. Fox. Like, I know him pretty damn well. He's funny. He's warm. He's handsome and intensely smart. He also falls a lot. Not just because he has Parkinson's. He falls a lot because he's unafraid to fly." - Ryan Reynolds (@VancityReynolds), MJFF Board member.
em retweeted
Six months of 5-6 days a week of high intensity interval training called the Beat Parkinson's program increased dopamine transporter binding in putamen and nigra of people with Parkinson's! nature.com/articles/s4153…
em retweeted
Nice interview of Nicole Polinski - director of the Preclinical Tools Program at @MichaelJFoxOrg; "The biggest value for researchers is to understand & view the disease through a different lens that may not be as clear without the patient perspective" journals.biologists.com/dmm/article/16…
Parkinson’s plus a newborn…tricky combo.. #parkinsons #yopd
Many reasons for hope!
The 2023 update of the #Parkinsons disease drug therapies in the clinical trial pipeline is now available at @journal_PD - from @InnovationFixer @SueBCal1 @grafaloff @bkfiske @MichaelJFoxOrg & the research team at @CureParkinsonsT content.iospress.com/articles/journ…
Anyone else with #yopd experience stiff neck. I’ve hadva stuff neck for two moths now. Trying a chiropractor AND physical therapy. Also my index finger is stiff and it hurts to stretch it. #Parkinsonsdisease
em retweeted
It’s the 205th New Year since James Parkinson presented his paper on ‘Shaking Pawlsey’, aka #Parkinsons Disease. The years go by. We wait and wait again for the breakthrough that will take this pain, this cruel affliction away. The research is brilliant…the results? We wait…😢
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