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RUN @rareundiagnosed

RUN for those affected with rare/undiagnosed conditions: Raise awareness. Urge insurance companies to reimburse WGS. Network to find answers. #RareUndiagnosed rareundiagnosed.org Salt Lake City, UT Joined July 2014
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Adrian Wojnarowski @wojespn

21 hours ago

The talented folks at the ESPN Daily podcast help share our reporting on Utah Jazz GM Justin Zanik amid a kidney transplant and tremendous family health challenges. @clintonyates leads the way: podcasts.apple.com/us/podcast/esp…

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RUN @rareundiagnosed

a day ago

The Undiagnosed Day campaign seeks to raise awareness among policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in undiagnosed rare diseases and the world of genomics. rareundiagnosed.org/undiagnosedday…

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RUN @rareundiagnosed

2 days ago

Today is Undiagnosed Day! We need to raise awareness that undiagnosed rare disease patients should be recognized as a distinctive population that faces unique circumstances as they seek an accurate diagnosis. #undiagnosedday #undiagnosed Learn More: rareundiagnosed.org/undiagnosedday…

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RUN @rareundiagnosed

2 days ago

April 29th is Undiagnosed Day. Since 80% of undiagnosed diseases have identified genetic origins, it is imperative to raise awareness about the importance of genomics for undiagnosed rare disease patients. #UndiagnosedDay #Genomics To Learn More: rareundiagnosed.org/undiagnosedday…

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Adrian Wojnarowski @wojespn

4 weeks ago

Jazz GM Justin Zanik just completed a successful kidney transplant, coach Will Hardy says.

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Adrian Wojnarowski @wojespn

4 weeks ago

Jazz GM Justin Zanik just completed a successful kidney transplant, coach Will Hardy says.

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Utah Jazz @utahjazz

4 weeks ago

An update on Justin Zanik:

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National Kidney Foundation @nkf

4 weeks ago

In the United States about 600,000 people have PKD, which is the fourth leading cause of kidney failure. We wish @utahjazz general manager Justin Zanik all the best in his transplant journey! usatoday.com/story/sports/n…

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Adrian Wojnarowski @wojespn

4 weeks ago

Reporting on Jazz GM Justin Zanik and his family’s fight with kidney disease for NBA Today

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Utah Jazz @utahjazz

4 weeks ago

Read more: nba.com/jazz/news/we-a…

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Utah Jazz @utahjazz

4 weeks ago

The Utah Jazz send our full support to Jazz GM Justin Zanik as he takes the next step in his treatment plan for polycystic kidney disease (PKD). Learn more about his journey.

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Adrian Wojnarowski @wojespn

4 weeks ago

In kidney failure, Jazz GM Justin Zanik will undergo transplant surgery. His three kids – facing a litany of health issues – will need transplants too. Through it all, Zanik remains Utah’s front office leader. ESPN story on a family and franchise’s fight: espn.com/nba/story/_/id…

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RUN @rareundiagnosed

a month ago

Thank you @RecursionPharma for your continued support of our rare and undiagnosed community! #rarediseaseday #utahrarediseaseday #rarediseaseday2024

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Recursion @RecursionPharma

a month ago

Thank you @RecursionPharma for your continued support of our rare and undiagnosed community! #rarediseaseday #utahrarediseaseday #rarediseaseday2024

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RUN @rareundiagnosed

2 months ago

We had a wonderful evening last night for our Utah Rare Disease Day Gathering. We want to say a special thank you to @RecursionPharma for hosting the event. More to come! #utahrarediseaseday #RareDiseaseDay2024 #RareDiseaseDay (Photos courtesy of Recursion)

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Recursion @RecursionPharma

2 months ago

In recognition of Rare Disease Month, we were honored to have Ricki Jensen and Sarah Galvez, who are both living with rare diseases that we aim to treat, join our All Hands to share their stories with our teams. Thank you, Ricki and Sarah, for spending your afternoon with us.…

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RUN @rareundiagnosed

2 months ago

Thank you to Governor Spencer Cox for making Rare Disease Day official in Utah! It's a day dedicated to raising awareness about rare diseases, the impact on patients & caregivers as well as the need for research and treatments. #UtahRareDiseaseDay #RareDiseaseDay

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RUN @rareundiagnosed

a year ago

To our family and friends as well as the entire #undiagnosed community and undiagnosed rare disease stakeholders, thank you for your continued support, love and prayers. Much Love, Gina, Justin, Ava, Oskar & Lucy #undiagnosedDay #undiagnosedday2023

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RUN @rareundiagnosed

a year ago

“Imagine that you only get three years of good health and they are the three years you don’t really remember because you were too young.” – Ava Thank you @UDNIss & @WilhelmFound for inviting Ava to speak at your #UndiagnosedDay2023 Awareness Webinar! vimeo.com/820352755

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RUN @rareundiagnosed

a year ago

Thank you to Ray @Healthunchaind and everyone at @VibeBio for the opportunity to share about #UndiagnosedDay on their #VibeCast! We discussed the challenges faced by patients and the need to shorten the diagnostic odyssey. #UndiagnosedDay2023 #Undiagnosed youtu.be/R3Qwduk_5xU

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ThinkGenetic, Inc. @ThinkGenetic

a year ago

April 29th is #UndiagnosedDay! Today, we raise awareness for and celebrate individuals and their families who are affected by an undiagnosed disease. #UndiagnosedDay2023

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Ray @ Health Unchained @Healthunchaind

a year ago

What better way to celebrate #UndiagnosedDay than by speaking with the founder of @rareundiagnosed! Check out the latest #VibeCast episode with Gina Zanik and hear how her community is bringing awareness beyond Utah (where it Undiagnosed Day is an official holiday) Link👇

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Vibe Bio @VibeBio

a year ago

What better way to celebrate #UndiagnosedDay than by speaking with the founder of @rareundiagnosed! Check out the latest #VibeCast episode with Gina Zanik and hear how her community is bringing awareness beyond Utah (where it Undiagnosed Day is an official holiday) Link👇

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