post-COVID gemeenschap @postCOVIDbe
De post-COVID gemeenschap werd opgericht door en voor COVID-19 patiënten die na maanden nog steeds kampen met de gevolgen van hun besmetting post-covid.be Belgium Joined March 2021-
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Spike RNA was found in 'late' cases in the heart, colon, skeletal muscle, brain NB: diabetes and obesity were prevalent in this cohort
"Persistence of low-level SARS-CoV-2 RNA was frequently detected across multiple tissue categories among all late cases, despite being undetectable in plasma. Notably, RNA was detected in the brains of all 6 late cases and across most locations evaluated in the brain in 5"
This study performed autopsies on people who had #COVID up to 7 months prior and found even in those with mild/asymptomatic disease evidence of viral RNA in widespread anatomical sites including in the brain researchsquare.com/article/rs-113…
BREAKING: Pre-print finds evidence of VIRUS PERSISTENCE in organ systems throughout the body. Disseminated & persistent virus was found even following mild COVID illness, with virus found months after infection in heart, lymph nodes, eyes, nerves & brain researchsquare.com/article/rs-113…
@DrTedros @ACTAccelerator @MedsPatentPool @g20org "An unknown number live with post-COVID condition, or long-COVID, a condition we are only beginning to understand"-@DrTedros #WHASpecial #COVID19 x.com/who/status/146…
@DrTedros @ACTAccelerator @MedsPatentPool @g20org "An unknown number live with post-COVID condition, or long-COVID, a condition we are only beginning to understand"-@DrTedros #WHASpecial #COVID19 x.com/who/status/146…
Zusammen mit @postCOVIDbe & @LongCovidNL hat sich Long COVID Deutschland in Vertretung von @LongCOVIDEurope mit @WHO_Europe & @hans_kluge getroffen. Eine unserer zentralen Botschaften: #LongCovid ist eine eigene Pandemie. Regierungen, Medizin & Forschung müssen dringend handeln.
Zusammen mit @postCOVIDbe & @LongCovidNL hat sich Long COVID Deutschland in Vertretung von @LongCOVIDEurope mit @WHO_Europe & @hans_kluge getroffen. Eine unserer zentralen Botschaften: #LongCovid ist eine eigene Pandemie. Regierungen, Medizin & Forschung müssen dringend handeln.
We need to raise awareness and better understand #LongCOVID in order to head off the next public health crisis. Join us today at 2pm ET for a discussion on the significant impact of this new syndrome and what we must all do about it. Register: bit.ly/3qEVURV
🚨"This study is scientifically and MATHEMATICALLY wrong."🚨 👉🧵by@ISlovan. To read! x.com/islovan/status… #FlawedJAMAStudy #LongCovid #LongCovidisFact
🚨"This study is scientifically and MATHEMATICALLY wrong."🚨 👉🧵by@ISlovan. To read! x.com/islovan/status… #FlawedJAMAStudy #LongCovid #LongCovidisFact https://t.co/JQrjuZs62s
The largest live, open and free online bibliography on #longcovid! More than 1000 scientific publications listed so far. Please find our work here: 👉tinyurl.com/longcovidresou… @apresj20 @gezmedinger @ahandvanish @DrEricDing @elisaperego78 @WesElyMD @ClaireHastie1 @dianaberrent
The #LongCovid is NOT a belief. ➡️It is caused by #SARSCoV2 and proven by +1000 studies #LongCovidIsCovid #NoFakeScience ➡️"The psychologization of #CovidLong, an easy recipe against medical complexity" Dr.LARCHÉ #apresJ20 #JAMAretract @lemondefr @JAMAInternalMed
Le #CovidLong n'est PAS une croyance. ➡️Il est causé par le #SARSCoV2 et prouvé par +1000 études #LongCovidIsCovid #NoFakeScience ➡️"La psychologisation du #CovidLong, recette facile contre la complexité médicale" Dr.LARCHÉ #apresJ20 #JAMAretract @lemondefr @JAMAInternalMed
Toegang tot een patiëntendossier is nu evident maar mag een patiënt zelf zaken wijzigen in zijn dossier? @postCOVIDbe @institute911 #PatientEmpowerment #PEenjevoeltjebeter #ElkeStapZetJeSamen #SamennaarMorgen
Patiënten niet betuttelen door traag te praten of veel gebaren maken. @postCOVIDbe @institute911 #PatientEmpowerment #PEenjevoeltjebeter #ElkeStapZetJeSamen #SamennaarMorgen
Poorer households facing the #Covid19 crisis are more likely to lose income, sell off productive assets, suffer food insecurity, and lose schooling for children. Download the @WorldBank’s latest #EAPUpdate 👉wrld.bg/I3ch50GqCTD #LongCOVID
The @WHO just released their clinical case #definition of post #COVID19. The three main #symptoms include #fatigue, #shortnessofbreath & #cognitive #dysfunction: who.int/publications-d…. @WHO_Europe #LongCovid #Corona
New research indicates that an overload of various inflammatory molecules, literally "trapped" inside insoluble microscopic blood clots (micro clots), might be the cause of some of the lingering symptoms experienced by individuals with #LongCovid. medicalxpress.com/news/2021-10-e…
We are announcing the official launch of @LongCOVIDEurope (LCE) - the first #European #LongCovid #patient #network. LCE includes >20 patient associations from 17 different countries. View our press release (longcovideurope.org/wp-content/upl…) & visit longcovideurope.org for more info.
Register for @WHO’s next web series on Post COVID-19 Condition (#LongCOVID) focusing on rehabilitation. @DrTedros @DrMikeRyan @diazjv who.int/news-room/even…
Delighted to have hosted people with #longCovid, service planners, implementers, clinical and data experts whilst facilitating sharing @WHO_Europe countries experiences on #rehabilitation after #COVID19. So much we don’t yet know, but it’s vital we share what we do.
‘My life is unrecognisable’ – #LongCovid patients describe struggle to get care Report on today's evidence session - chair of @rcgp admitted that patients know more about #LongCovid than their GPs @DaviesLunt @LereFisher @selkieO @melheightman standard.co.uk/news/uk/people…
Zahra Rouw @ZRouw91534
42 Followers 5K Following
Dascha Eliza @DaschaEliza
36 Followers 52 Following
Lavon Gaslin @GaslLav
39 Followers 5K Following
Eva Loena @eva_loena
48 Followers 341 Following One of the #MillionsMissing Koester herinneringen aan literatuur, IT, sport, avontuurlijke reizen en veel meer
Frau𝕏ausNRW @FrauXausNRW
2K Followers 1K Following MomOf2 mit #LongCovid #MECFS #POTS #SFN - Werde 2024 (vielleicht) gesund ! #UniteToFight2024
Janneke M.L. Kuiper @JannekeKuiper
434 Followers 791 Following Postdoctoral researcher at the Life Sciences & Society Lab, KU Leuven // Former visiting researcher at Columbia University // Science, Medicine & Society
skrds @skrdsimon
18 Followers 342 Following
Sas Willems @SasMECVS
36 Followers 244 Following ME/CVS patient. Wegens heel late diagnose praktisch huisgebonden, en 22/24 in zetel/bed.
Babs @ixabil
858 Followers 1K Following LongCovid, Natuur, geschiedenis, gezin. Zwemmen, wandelen. Ik blok. Mijn tijdlijn hou het respectvol.
Gert Jan Draaisma @DraaismaGert
4 Followers 42 Following
CRMRS @CRMRSMUSIC
2 Followers 13 Following
Myoflame-19 @Myoflame19
105 Followers 44 Following The Institute for Experimental and Translational Cardiovascular Imaging is dedicated to translational clinical research of cardiovascular imaging biomarkers.
Chantal Bindels @jochamide
134 Followers 486 Following
Tabea Kloos @tabeakls
99 Followers 417 Following Clinical Psychologist | Pain Research | Post-COVID Rehabilitation | PhD
Lange Covid-pasienter.. @pwlcNorway
242 Followers 1K Following Pasient-sentrert fellesskapsplattform for langtidssyke Covid-pasienter i Norge. #longcovid #healthequity #healthjustice #dataprivacy. Del av @CareConnectlc
Joris_Baas @baas_joris
244 Followers 469 Following
Jo-Jo @postcovid_jojo
42 Followers 93 Following Severe MECFs after Covid Infection / schwere MECFs nach Corona Infektion 🤧🍀✌🏼 #postcovid #mecfs Gesundheit ist das größte Geschenk 24 Jahre alt
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Long COVID Project @LongCOVID_HE
357 Followers 538 Following HE Project aiming to understand the mechanisms behind the long-term effects of a COVID-19 infection. Funded by the European Union.
Wiebke Dettmering @Dettmeri1Wiebke
10 Followers 69 Following
Fewtrella @Fewtrella1
2K Followers 5K Following views my own #LongCovid #POTS #Dysautonomia #Cogcom @GivingVoiceUK winner Advocating for Cognitive Communication Disorder Post Covid
Chrissie P. @Kuestengirly
2K Followers 2K Following #FQAD mit Gefolge: MECFS, MCAS, SFN. Meine Lieben sind geblieben: Mann, Hunde, Bücher, Meer, Musik, Natur, Humor, Filme, Espresso #DieWeltIstBunt, #WirSindMehr
Donny Monsie @DonnyMonsibais
720 Followers 3K Following My best friend was born in a manger. Married to a Gorgeous Woman. Caught Covid in Oct. 2021 survived the ventilator now fighting #LongCovid
Pascal030 @Pascalgrootveld
976 Followers 1K Following voormalig Orthopedagoog-Generalist i.o (former special educationalist/psychologist). Voorzitter vereniging @longcovidnl [email protected]
Berenice Jimenez @deberebeer
20 Followers 34 Following PhD student @VUBrussel and @UZBrussel researching nutrition and metabolism in long COVID, M. Sc., RD
Catherine Naughton @catherinenaugh
2K Followers 912 Following tweeting mainly about my professional interests, views are my own, working @myedf
Martine Middelburg @MartineM1972
197 Followers 326 Following Long Covid/Post Covid syndroom ~ 12-11-2021 Hobbyist Phoneographer & Poet. Nature & Animal lover. Creative soul. My dog Seff. 🖤
Jantina Huizenga @Jantina
95 Followers 157 Following PhD in DGBL, also conducted research into media literacy and assessment and worked freelance for Technika10. Currently teacher at HvA.
🌬️AirSchools �.. @AirSchools
166 Followers 364 Following Safe air in schools! ¡Aire seguro en los colegios! De l'air pur à l'école ! Veilige lucht in scholen! Sichere Luft in Schulen!
MaricelVet @Bumbles_ar
570 Followers 1K Following Medica Veterinaria Especialista en Clínica de Animales Pequeños
Wen 2.0 @longcovidnu
3K Followers 5K Following Positief ingesteld.Leven met LongCovid. Via hier volg ik lotgenoten en actuele ontwikkelingen rondom longcovid. #Plukdedag🍀
Mel @8019Mel
10 Followers 223 Following
Ineke van Dijk @I_vanDijk
98 Followers 466 Following Schilder in eigen studio. Projectleider bij Nieuwe Veste. Huis-tuin-en-keuken-chef. Trotse tante. Wandelaar.
Stichting Long COVID @StLongCOVID
1K Followers 76 Following Foundation raising funds for biomedical Long COVID research in The Netherlands. Launch July 1, 2022 #LongCovid #LongCovidResearch
YenIjzerhardt @IjzerhardtYen
289 Followers 1K Following Vriendelijke fitte vijftiger met een tikje venijn in de staart. Mijn vrouw lijdt aan #LongCovid sinds mrt 2020.
Silvestre @VsLongcovid
521 Followers 385 Following Enfermo de Long Covid desde hace +3 años. Escritor de 2058. ¿Cómo obtenerlo? Aqui: https://t.co/j2kITRc8fy España🇪🇸
Rien de Böck @riendebock
2K Followers 2K Following Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English. @LongCovidNL.
Reinier ter Beke @terbeke
848 Followers 2K Following Nieuws en sportvolger op twitter. Cyber security. Twello. Schaatsen. #longcovid
Tony Martín @Tonymartincasti
335 Followers 2K Following English teacher. A natural survivor, alive and kicking after 2 kidney transplants. Highly grateful to all the medical staff who helped me shape as a person.
Abraham @AbrahamAubry
2K Followers 4K Following Civil Engineer-Architect. Urban Planner. Passionate about design, architecture, art and science.
AlleBurgers @AlleBurgers
3K Followers 5K Following Onze missie is om de verspreiding van Covid-19 te beëindigen door internationale kennis, compassie en actie.
anass @anass_18
14 Followers 238 Following
Judith Van Bebber @JudithBebber
8 Followers 118 Following Lifestyle Coach, lichaamsgericht therapeute, Emmett therapie, Littekenbehandeling, gastdocente eetstoornissen
MS @roteiro2
147 Followers 2K Following
Long COVID Ireland (L.. @longcovidirl
3K Followers 2K Following Support Group for Irelands #LongCOVID patients! #FBLC Founded June 2020
Long Covid Chile Ofic.. @LongCovidChile
982 Followers 799 Following Centro Referencia Covid Persistente Chile / Afección que se presenta a post infección viral de COVID-19. 👨🏻💻 #longcovid #covidpersistentechile
COVID-19 Persistente .. @CovidPersist_UY
294 Followers 61 Following Dar visibilidad al #CovidPersistente. @COVID19persist1 @CovidSolidarit1 @long_covid @Covid19Valencia @covid_madrid @CovidFamilias @covideuskal @CP
Ian Ricksecker 🇺�.. @IanRicksecker
15K Followers 2K Following Independent journalist. The forces of authoritarianism rely on rhetorical fallacies, distraction, whataboutism, and the firehose of falsehood.
Long Covid Chile Ofic.. @LongCovidChile
982 Followers 799 Following Centro Referencia Covid Persistente Chile / Afección que se presenta a post infección viral de COVID-19. 👨🏻💻 #longcovid #covidpersistentechile
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
chantalbritt.bsky.soc.. @ChantalBritt
4K Followers 4K Following @bfh_hesb @LongCovidCH @LongCovidKinder @EnovatNet #PPI #ScienceCom #ProVaxx #Globukalypse ex @Swiss3RCC @SCAHTorg @ESCMID @SAKK_ch @swissinfo @Bloomberg
Long Covid ROMANIA @LongCovidRo
271 Followers 54 Following
Vicky van der Togt @Vickyvdtogt
7K Followers 1K Following Director of development at @ResearchAidNet 🌐 | Facilitator @PandemicAid_Net | Long Covid research | Spread hope, it's infectious
Long COVID Europe (LC.. @LongCOVIDEurope
4K Followers 86 Following Long COVID Europe (LCE) is the European network of Long COVID patient organisations. LCE focuses on recognition, research, and rehabilitation of #LongCovid.
Long COVID Deutschlan.. @LongDeutschland
6K Followers 378 Following Bundesweite Initiative für die Belange von #LongCovid-Betroffenen. Aktiv für Aufklärung, Versorgung, Forschung. Long COVID Germany. Member of @LongCOVIDEurope.
Maria Van Kerkhove @mvankerkhove
119K Followers 597 Following Infectious Disease Epidemiologist; COVID-19 Technical Lead, Director ai Epidemic & Pandemic Preparedness & Prevention, WHO, WHE, Mom of 2. Opinions my own
Satish Mishra @Satish_Mishra_
770 Followers 453 Following Head of Global Programmes @_ATscale, The Global Partnership for Assistive Technology (Hosted by UNOPS) - personal views
Justine Gosling @Justine_Gosling
3K Followers 1K Following ❄️ Polar expeditions 🌍 Travel journalist 👩🏻💻 @WHO_Europe 👩🏻🎓PhD student in health systems in conflict and disasters
UGent @ Work @UGentAtWork
2K Followers 59 Following UGent @ Work brengt 29 professoren uit allerlei disciplines @UGent bij elkaar die onderzoek rond arbeid leiden. Hogere doel: evidence-based arbeidsmarktbeleid.
Jet Roz @JetRoz
3K Followers 1K Following Art Historian and former curator | Life on hold due to Long Covid | Feminist | Sorry for the typo's, brainfog slowing the cogs 😶🌫️
David Lee, MD @DaveLeeERMD
10K Followers 80 Following Clinician-scientist, emergency physician, studies risk factors of chronic disease, advocate of health not more health care, opinions all my own.
Karine Moykens @KarineMoykens
1K Followers 295 Following secretaris-generaal departement Welzijn,Volksgezondheid&Gezin, incl VIPA, gedeleg best ag. gegevensdeling, geboeid door mensen die positief in het leven staan
RIZIV @RIZIV_INAMI
3K Followers 287 Following Rijksinstituut voor ziekte- en invaliditeitsverzekering. Account FR @INAMI_RIZIV
Departement Zorg @ZorgVlaanderen
6K Followers 110 Following Samenwerken voor een zorgzame en gezonde samenleving.
PetitieLongCOVIDNL @PetitieLongCOV
75 Followers 70 Following Oproep om erkenning, gecoördineerd onderzoek en behandeling langdurige COVID. Teken nu:
Catherine Fonck @catherinefonck
18K Followers 1K Following Députée fédérale Humaniste @LesEngages_be, chef de groupe à la Chambre. Médecin spécialiste en médecine interne et néphrologie. Hainaut Belgique.
Sophie Rohonyi @SophieRohonyi
5K Followers 1K Following 🏛️ Députée fédérale DéFI 🚺 Présidente du Conseil des femmes francophones de Belgique 🇧🇪 Conseillère communale et de police
Long Covid BR 🇧�.. @longcovidbr
345 Followers 239 Following Grupo de Pesquisa em Síndrome Pós Covid-19 no Brasil | Research Group in Post COVID-19 Syndrom or Long COVID-19
Office for National S.. @ONS
355K Followers 997 Following The UK's largest independent producer of official statistics and the recognised national statistical institute of the UK. Contact https://t.co/FZIZy3JtgU
Gina Assaf @GinaAssaf
2K Followers 2K Following Design/Research/Strategy - Tech for Social & Global Impact. Founder & Managing Director @digital_obi. Co-running #longCovid @patientled research. MHCI @cmuhcii.
LongCovidMN @LongCovid_MN
515 Followers 31 Following Sharing long covid science and support for survivors in Minnesota and beyond
LongCovidNZ @LongCovidNZ
2K Followers 332 Following Sharing awareness of #LongCovid #LongCovidNZ #ResearchLongCovid #MECFS Research crowdfund campaign: https://t.co/FSIBGOMxyH
COVID-19 Persistente .. @CovidPersist_UY
294 Followers 61 Following Dar visibilidad al #CovidPersistente. @COVID19persist1 @CovidSolidarit1 @long_covid @Covid19Valencia @covid_madrid @CovidFamilias @covideuskal @CP
Svin Deneckere @SvinDeneckere
1K Followers 2K Following Directeur Vlaams Instituut voor Kwaliteit van Zorg #VIKZ @Zorgkwaliteit - Docent Modellen van Zorgorganisatie @KULeuven
IN4CARE @In4Care
2K Followers 3K Following Wij zijn met +250 leden uw partner bij de realisatie van innovaties in zorg en welzijn. #getconnected
Fiona Lowenstein @fi_lowenstein
9K Followers 1K Following mostly off this site, find me on IG/my website editor, THE LONG COVID SURVIVAL GUIDE journo🖊 NYT, Vox, Teen Vogue, etc. formerly @itsbodypolitic 💛 they/them
LongCovid ACTS(Autono.. @longcovidspain
7K Followers 946 Following Plataforma de la alianza de asociaciones y colectivos autonómic@s de #LongCovid(#Spain). Trabajamos junto a @REICOP @SEMG_ES. # ZeroCovid
Long COVID Physio @LongCOVIDPhysio
27K Followers 1K Following #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
Koen Van den Heede @Koen_VDH
338 Followers 129 Following Expert Health Services Research - KCE @KCEfgov @KU_Leuven / passion for cycling
Herman GOOSSENS @ProfHGoossens
12K Followers 127 Following Professor of Medical Microbiology at the @UAntwerpen. Coordinator of @RECOVER_EUROPE, @PREPARE_EUROPE, @ValueDx, @ECRAID. Founder of the @EAAD_EU.
Ramses Temmerman @RamsesTemmerman
568 Followers 417 Following Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Activist for more biomedical research for post-infectious #MEcfs & #LongCovid.
Sandra VRijs @santweetandyou
11 Followers 78 Following
Tedros Adhanom Ghebre.. @DrTedros
2.0M Followers 2K Following Director-General of the World Health Organization. Retweets are not endorsements
Zorgnet-Icuro @ZorgnetIcuro
7K Followers 674 Following Netwerkorganisatie die initiatieven verenigt uit de social profit: algemene ziekenhuizen, voorzieningen uit de geestelijke gezondheidszorg en ouderenzorg.
Koen Lowet @KoenLowet
1K Followers 483 Following Strategic policy expert Mental Health CM - MC - Committed citizen - Soccer dad - Passionate about running and LEGO - Fear is the mind killer
VPP vzw @VPPvzw
2K Followers 223 Following Het Vlaams Patiëntenplatform vertegenwoordigt meer dan honderd patiëntenverenigingen en ijvert voor toegankelijke zorg op maat van de patiënt en zijn omgeving.
BVAS @bvastweets
3K Followers 2K Following Officiële account van de Belgische Vereniging van Artsensyndicaten (#BVAS), het grootste artsensyndicaat van België.
De Specialist @specialistkrant
3K Followers 424 Following De Specialist (het tweewekelijkse magazine van RMN) is dé bron van socioprofessionele en medische informatie van en voor de medische specialisten
Medi-Sfeer @MediSfeer
2K Followers 601 Following Het weekblad voor de Belgische Huisarts. Aussi en FR @MediSphereHebdoLong Covid Europe’s representatives say they want to see more patient focused research, and longer term follow-up to ensure that clinics have had a positive impact on patients ... There is also a need for improved services for children with long covid bmj.com/content/376/bm…
This study performed autopsies on people who had #COVID up to 7 months prior and found even in those with mild/asymptomatic disease evidence of viral RNA in widespread anatomical sites including in the brain researchsquare.com/article/rs-113…
BREAKING: Pre-print finds evidence of VIRUS PERSISTENCE in organ systems throughout the body. Disseminated & persistent virus was found even following mild COVID illness, with virus found months after infection in heart, lymph nodes, eyes, nerves & brain researchsquare.com/article/rs-113…
@RichardLehman1 @ShamilHaroon No patient involvement How on earth in this day and age can a bunch of doctors think it's remotely ok to develop a patient-reported symptom measure with NO patient involvement? Or if there has been patient involvement, why haven't they mentioned it?
Even geleden dat ik nog een grafiek van het effectief reproductiegetal in België had gepost. Het goede nieuws: op basis van cases & hospitalisaties kom ik (voor nieuwe infecties vandaag) uit op 0.84 [0.72-0.97] & 0.84 [0.73-0.96]. We zijn de Delta piek voorbij.
🚨"This study is scientifically and MATHEMATICALLY wrong."🚨 👉🧵by@ISlovan. To read! x.com/islovan/status… #FlawedJAMAStudy #LongCovid #LongCovidisFact
On french TV, some journalists and quack doctors rely on the @JAMAInternalMed study for the connections between actual and imagined long Covid symptoms, and accept its conclusions. This study is scientifically and MATHEMATICALLY unsound. #FlawedJAMAStudy
🚨"Cette étude est scientifiquement et MATHÉMATIQUEMENT fausse."🚨 👉🧵de @ISlovan. A lire! x.com/islovan/status… #FlawedJAMAStudy #apresJ20 #CovidLong #DocTocToc #LongCovidisFact
Il pourrait être utile de relayer ces éléments auprès des journalistes et médecins qui sont susceptibles de prendre les conclusions de l'étude comme un résultat solide. Il n'y a qu'en France que cette étude est prise au sérieux... #FlawedJAMAStudy #LongCovid #ApresJ20 @apresj20
Nous répondrons avec des 👉faits et de 👉l'analyse scientifique🔎face à 1 étude reconnue internationalement biaisée et un flot dévastateur d’opinions inexactes! 🚨Vous trouverez + bas le post de @ISlovan à LIRE & PARTAGER largement⏬ #apresJ20 #CovidLong #LongCovidisFact
Mon nouveau meilleur ami, quand j’arrive à tenir assise. Un nouvel arrêt maladie. Ma sérologie a toujours été négative. Mon PCR +, mes hypométabolismes cérébraux et mes symptômes sont bien sûr psychosomatiques #apresJ20 @JAMAInternalMed @lemondefr #CovidLong @leQdM @24hPujadas
The largest live, open and free online bibliography on #longcovid! More than 1000 scientific publications listed so far. Please find our work here: 👉tinyurl.com/longcovidresou… @apresj20 @gezmedinger @ahandvanish @DrEricDing @elisaperego78 @WesElyMD @ClaireHastie1 @dianaberrent
En commission Santé @LaChambreBE, débat d’actualité ce matin sur le rapport du @KCEfgov sur le #CovidLong. Comme président de la commission et député, j’ai insisté auprès du ministre Vandenbroucke pour qu'il prenne d’urgence des mesures pour ces nombreux patients. @postCOVIDbe
Toegang tot een patiëntendossier is nu evident maar mag een patiënt zelf zaken wijzigen in zijn dossier? @postCOVIDbe @institute911 #PatientEmpowerment #PEenjevoeltjebeter #ElkeStapZetJeSamen #SamennaarMorgen
Patiënten niet betuttelen door traag te praten of veel gebaren maken. @postCOVIDbe @institute911 #PatientEmpowerment #PEenjevoeltjebeter #ElkeStapZetJeSamen #SamennaarMorgen
@LongCOVIDEurope @postCOVIDbe @LongCovidNL @apresj20 @LongDeutschland @GreeceLck @LongCovidItalia @LongCovidCH @long_covid @WHO_Europe Congratulations on establishing @LongCOVIDEurope
New case definition of #LongCOVID announced today by @WHO reflecting the impact on functioning in day to day life (disability) and episodic nature (fluctuating or relapse) #GlobalPT who.int/publications/i…
Delighted to have hosted people with #longCovid, service planners, implementers, clinical and data experts whilst facilitating sharing @WHO_Europe countries experiences on #rehabilitation after #COVID19. So much we don’t yet know, but it’s vital we share what we do.
The @WHO just released their clinical case #definition of post #COVID19. The three main #symptoms include #fatigue, #shortnessofbreath & #cognitive #dysfunction: who.int/publications-d…. @WHO_Europe #LongCovid #Corona
New research indicates that an overload of various inflammatory molecules, literally "trapped" inside insoluble microscopic blood clots (micro clots), might be the cause of some of the lingering symptoms experienced by individuals with #LongCovid. medicalxpress.com/news/2021-10-e…
We are announcing the official launch of @LongCOVIDEurope (LCE) - the first #European #LongCovid #patient #network. LCE includes >20 patient associations from 17 different countries. View our press release (longcovideurope.org/wp-content/upl…) & visit longcovideurope.org for more info.
'Jongeren lopen reëel risico op long covid, ook na milde infectie' nos.nl/l/2388817
Our study explaining the pathophysiology of acute COVID has been published by ERJ, the flagship scientific journal of the European Respiratory Society @ERSpublications. Here, we describe how severe COVID-19 is NOT a viral pneumonia, but a post-viral autoimmune attack of the lung.
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