jeroen @jsandreoli

Burnet: 'Consequences of COVID-19 linger five years on' 'COVID-19 continues to have ongoing impacts, including the burden of Post-Acute Sequelae of COVID-19 (PASC) or long COVID, which currently has no cure.' burnet.edu.au/knowledge-and-…

Long COVID Severity Linked to White Blood Cell Count healthday.com/health-news/in…

„Mama, das wird mein Totenbett“: Long Covid – Elternpaar kämpft um Tochter #MECFS (Paywall) mopo.de/hamburg/mama-d…

Healio: “Study: Multiple SARS-CoV-2 infections increase risk for long COVID” Nearly 85% of people with long COVID had experienced multiple SARS-CoV-2 infections healio.com/news/infectiou…

UWV WIL AAN BED GEBONDEN #ME PATIËNTEN LATEN WERKEN 👉Dat bericht haalde precies 1 jaar geleden het NOS journaal ✅het rapport met verhalen van ME patiënten over onkunde, vernedering, trauma en onrecht ✅ik sprak de hoop uit dat ‘het goede’ in het verschiet ligt voor deze patiënten en dat UWV eindelijk - na vele jaren - daar een serieuze en concrete bijdrage aan gaat leveren ✅mét zichtbare steun en liefst onder toezicht van SZW en de Tweede Kamer ✅UWV zei 'dat het met de geweigerde patiënten in gesprek wilde ' ✅daar is tot op heden nog altijd niets van zichtbaar ✅en als het zo is dat er achter de schermen wel beweging is... ✅... dan is het toch een kleine moeite om daar onderhand eens tussentijds verslag van te doen? ✅ waar heb je als instantie anders dan al die woordvoerders en communicatiemedewerkers voor? 'gehoord, gezien, geholpen' toch? link naar item in NOS journaal 👉youtu.be/rUgjatw3LQU?si…

jim faas 🍀 @JimFaas

3 years ago

UWV WIL AAN BED GEBONDEN #ME PATIËNTEN LATEN WERKEN LET OP ⚠️ VANDAAG⚠️ NOS online, radio en tv-journaal ✅ de (on)menselijke maat van het UWV ✅ verhalen van #ME #CVS patiënten over onkunde, vernedering, trauma en onrecht ✅ zet je schrap, het zijn ten hemel schreiende

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our proteomic long covid kids study is now out, proving the real nature of the disease and closing the lockdown narrative, also opening to a diagnostic test the backstage of this study including the pubblication process is all detailed in my book 📕➡️tinyurl.com/4tsvhwat 1/

Tonight @ 7pm, I will be joining Anne Vroegindeweij & @AnilvanderZee in a discussion about "including the Voices of Humans who Cannot Advocate for Themselves in the Discourse about #LongCovid, ME/CFS and Comparable Conditions" - part of the Long Covid Conversations 1/3

The Hill: “Viral sicknesses rise amid ‘quad-demic’ in US” The number of people that have caught COVID-19, influenza or Respiratory syncytial virus (RSV), along with norovirus, has gone up, CDC said in the new Friday update.  thehill.com/policy/healthc…

Long-Covid-Forscher: „Können die Krankheit im MRT sichtbar machen“ (Paywall) abendblatt.de/hamburg/eimsbu…

Lees dit. In NL wordt onder 'long covid' alleen de ME/CVS-achtige variant verstaan, en zelfs dat wordt slechts mondjesmaat erkend. Bij geen enkele hartaandoening lijkt men aan Sars-CoV-2 als mogelijke oorzaak te denken. Lees men geen internat. literatuur, of is dat doelbewust?

Alan Barnard @alanbarnard1

2 years ago

This article is from the American Heart Association. It explains, in an easy-to-read, quick way, how any Covid illness can cause a subsequent heart attack or stroke. It means that even though Covid presents as similar to a cold/flu, it has consequences... heart.org/en/news/2025/0…

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American Heart Association: 'How the virus behind COVID-19 can harm your blood vessels and your heart' 'It started as a respiratory illness...it quickly became apparent that SARS-CoV-2, the virus that causes COVID-19, was so much more' heart.org/en/news/2025/0…

Parents were told that #covid did not affect children badly, but thousands now have #longcovid. We urge @UKLabour to act immediately to protect children in schools by implementing #cleanair protocols, as well as doing much more to help those affected.

"There has been a lot of discussion about whether #ME & #LongCOVID are the same. RECOVER has helped us understand that ME is a subset, likely a severe subset, of the much larger Long COVID group". #pwME #MEdTwitter #MEcfs batemanhornecenter.org/covid-19-trigg…

The Guardian have documented a year in my life living with #LongCovid. Please watch this short documentary to learn what it's like living with this debilitating disease and why we need urgent treatments. theguardian.com/society/video/…

Die Arbeit im ⁦@BMG_Bund⁩ geht weiter, Wahlkampf ist nicht alles. Heute Gespräch mit Prof. Wirth von Mitodicure zu MDC002. Der Wirkstoff ist einer der wichtigen Hoffnungsträger für die Behandlung von #LongCovid. Ich unterstütze bei der Beschaffung von Risikokapital.

SARS-CoV-2 is not a textbook virus. Antibodies are suppose to wane over time after an infection is fully cleared. Here, the group with #LongCovid continues to have an antibody response up to 1000 days laters, while in the control it wanes, suggesting viral persistence. 1/2

“The rise in ME/CFS cases is a wake-up call for the medical community.” “Now is the time to act, to educate, and to provide the compassionate care that can transform lives. Together, we can turn the tide for those living with ME/CFS….”

Billy Hanlon @bhanlon15

2 years ago

‘COVID-19 Triggers ME/CFS’ by Suzanne D. Vernon, PhD of BHC: “Through the National Institutes of Health’s RECOVER initiative, we had an unprecedented opportunity to study the long-term health impacts of COVID-19, including its role in triggering ME/CFS” batemanhornecenter.org/covid-19-trigg…

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Theo-Bert van tv-programma Binnenstebuiten komt als geroepen, want door #LongCovid lukt het Myrthe niet om hier zelf mee aan de slag te gaan. Goed dat de ziekte op deze manier meer aandacht krijgt in de media! binnenstebuiten.kro-ncrv.nl/wonen/video/th…

'COVID-19 Linked to Faster Kidney Decline, Swedish Study Warns' 'The research team, led by Dr. Viyaasan Mahalingasivam and colleagues, examined data from 134,565 individuals with COVID-19 and 35,987 with pneumonia...' scienceblog.com/552682/covid-1…

"A hospital porter who joined the NHS following a military career said he felt better protected serving in Iraq than working during the pandemic" Healthcare workers with #LongCovid had their lives, finances and housing 'decimated' after infection at work context.news/socioeconomic-…