Okay a follow up to this tweet: After doing some more research and talking to more ppl with CCI I decided to buy an at home cervical traction device to *VERY safely* see if traction improves any symptoms. Lo and behold IT DID!!!! As soon as I did the traction my POTS symptoms lessened and my HR dropped by almost 30bpm. And you guessed it, as soon as I carefully released the traction, my hr shot right back up. I think this is really big!!! Now to try and compile data to convince my doctor to order the imaging to see if it is CCI.
Okay a follow up to this tweet: After doing some more research and talking to more ppl with CCI I decided to buy an at home cervical traction device to *VERY safely* see if traction improves any symptoms. Lo and behold IT DID!!!! As soon as I did the traction my POTS symptoms lessened and my HR dropped by almost 30bpm. And you guessed it, as soon as I carefully released the traction, my hr shot right back up. I think this is really big!!! Now to try and compile data to convince my doctor to order the imaging to see if it is CCI.
@fcknsyd Just make sure they do the proper imaging on it, apparently it can’t be seen when laying down on MRI, you have to be standing, or x rays of you moving
@ThePOTSPostman Yes! Thank you. I think I need a supine MRI with flexion. But I don't think supine MRIs exist in Canada. So I might have to find someplace in Michigan that does it. Sigh
@fcknsyd @ThePOTSPostman FYI, I recently asked Dr. David Kaufman in Seattle (who diagnoses CCI) what imaging Canadians can get. He said a regular supine MRI of the cervical spine, no contrast, is enough. And then he told me not trust everything I read on the internet ;) Glad you found a clue!