Parkython @parkython
Parkython is an initiative to catalyze the development of better technology solutions for People living with Parkinson’s (PwP). parkython.com Planet Earth Joined January 2021-
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Maybe you have a DBS yourself and would like to improve your configurations. Or you're considering how DBS might help your Parkinson's symptoms and lifestyle one day. Or you're just biotech curious. The salon will be an interesting example of patient empowerment for many.
3. A history of DBS and its evolution throughout time – Frey et al (2022). Past, Present, and Future of Deep Brain Stimulation: Hardware, Software, Imaging, Physiology and Novel Approaches. Frontiers in Neurology 13:825178. doi.org/10.3389/fneur.…
On improving your Deep Brain Stimulation settings... Join us on Sat, February 18 at 12pm PST for a virtual chat with Prof. Madeleine Lowery, @MarkMcAuley7, & other folks with DBS about what goes on after the initial implant surgery. Sign up: us06web.zoom.us/meeting/regist…
12/ Finally, we saw a brain implant study for PD out of University Hospital, Grenoble. Near-infrared waves are emitted directly into the substantia nigra pars compacta (SNpc) to assess the effect of light therapy on motor and non-motor function. clinicaltrials.gov/ct2/show/NCT04…
11/ @BIOFLEXLaser, discussed in The Brain's Way of Healing, is running a study with @NeuroCatch to quantify the use of its laser protocol for concussion symptoms. neurocatch.com/2022/03/15/neu…
1/ This is a thread recapping what we learned about photobiomodulation for brains in our recent book club meeting. Full recording here: youtu.be/Skk2PjJbZlY?t=5
Our next book club meeting is on Chapter 4 of "The Brain's Way of Healing" by Norman Doidge. It's all about photobiomodulation – this means lights, lasers, and lamps. Join us next Saturday, Nov 12 at 1pm PDT. Sign up at us06web.zoom.us/meeting/regist…
In case you missed it, our first book club meeting about the Portable Neuromodulation Stimulator (PoNS) device was a blast. youtu.be/tVBoApgJ3Hs
2/2 If you haven't had time to pick up "The Brain's Way of Healing" by Norman Doidge, fear not. You can check out this FDA approval announcement for footnotes on the therapy. fda.gov/news-events/pr…
1/2 It's not too late to sign up for our book club meeting this Sat, Oct 15 at 1:00 PM PDT about the PoNS device. We'll talk to PD and TBI patients that have used the therapy as well as the electrical engineer that designed it, Kurt Kaczmarek. Sign up: lnkd.in/gsGgcGMV
Prof Jane Alty @janealty1
3K Followers 4K Following Academic #Neurologist | Movement & Cognitive Disorders | #AI Digital Biomarkers | Brain Health | 🇬🇧 🇦🇺#PD #AD #FND #dystonia #tremor #TAS_Test Project
UK Parkinson’s Dise... @UK_PD_CSG
479 Followers 527 Following Developing & supporting #Parkinsons clinical research across the UK & increasing research opportunities for people with Parkinson's. Funded by @CureParkinsonsT.
Grenoble D’abord @grenobledabord
1K Followers 4K Following 🏛️Collectif citoyen sur Grenoble et son agglomération. // La vraie droite grenobloise 🇫🇷
em @hipsterPD
579 Followers 454 Following A #Millennial recently diagnosed with early onset #Parkinsons at 36. Trying to stay hip while figuring out this new life. #yopd
Adventures in Parkins... @ParkinsonsLand
512 Followers 687 Following A webcomic & knockabout buddy tale of one man and his neurodegenerative disease by Matt Verguson -We're all in the gutter but some of us can't find our glasses.
John Zells @ZellsJohn
272 Followers 791 Following Battling Parkinson's Disease. 2009 DX'd YOPD at the age of 32, 2019 DBS recipient. Sports fan everything Miami 🐬🔥. 🐾 & 🌮 lover, amateur gardener 🥗
Polliemath @margueritejeune
195 Followers 437 Following a varied life : #yopd : #meningioma : #shunt : #drawersoff : #mastermind : physics, art, words
Veerle Aertsen @VAertsen
362 Followers 709 Following Eurordis alumna, Eupati fellow. YOPD patient advocate. Mum. 2nd chance in life thanks 2 Medtronic.
Kathleen Kiddo @KathleenKiddo
39 Followers 18 Following PLEASE FOLLOW @ohkathleenkiddo for recent updates to work.
Brian Lowe @MeAndPD
887 Followers 316 Following Late 60s male currently living in London. Interests include complementary and alternative medicine and healing practices for Parkinson's
Brian Wallach @bsw5020
142K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
Jennifer Goldman, MD,... @JenGoldmanMD
2K Followers 1K Following Parkinson’s & Movement Disorders Neurologist | Consultant | Speaker | Dedicated to finding new ways to improve the lives of people with movement disorders
Mark McAuley @MarkMcAuley7
53 Followers 41 Following
Richelle Flanagan �... @RichelleFlan
6K Followers 5K Following Family, Friends, Dietitian, Coeliac/Parkinson’s/ADHD advocate, Life too precious not to smell the🌹Past President INDI; WPC Ambassador Alumni. Own Views.
Carlie Ostrom @rlietrom
154 Followers 358 Following Neuro activist. FNCE @wharton / TBI @pennmedicine / rehab @abilitylab / postbacc @uwmadison @vemugantilab / founder The Possibility Center
Hasini Weerathunge @Hasinirw
846 Followers 2K Following Michigan Pioneer Fellow, Postdoc @ChangStutterLab @umichmedicine #Neuroscientist #MotorSpeechDisorders @BUCollegeofENG @SteppLab @ENTC_UoM 🇱🇰
Helen Matthews @HelenMatthewsQ
840 Followers 317 Following
martin ostrowski @drmartyo
509 Followers 570 Following join me on the upside. Science, health, sustainable careers, social justice, silver linings.
Rui Couto @ruicouto
25 Followers 31 Following
AlisonD @alison_aldred
109 Followers 3K Following Socio-Historical Reader of the Atlantic World PublicHealth and Modernity
Birgitt Schuele (She/... @SchueleLab
1K Followers 4K Following Making a difference for Parkinson's disease research. My research improves patient care by unraveling the causes of neurodegeneration. 🌈🏃🏻♀️🧑🔬
Mark Davies @MRDavies1968
217 Followers 801 Following PwP & loving life to the full. F1 & rugby fan. Harley rider, married to Louise with great kids (Not kids any longer, sadly). but turned into great people.
Kevin Donnelly @ktdonnelly
4K Followers 4K Following Better health through knowledge and data enabled by health IT to help people avoid disease improve healthspan. #digitalhealth #precisiononcology
Elke Warmerdam @ElkeWarmerdam
159 Followers 219 Following Human Movement Scientist. Analysing mobility during fracture healing at Saarland university.
Rickety Warrior 🦋 @RicketyWarrior
1K Followers 3K Following 60 year old Parkinson's Warrior diagnosed 2018. Parkinson's advocate and volunteer. Motivational Parkinson's speaker nationally and on the global stage. 🌷 🦝
Fujitsu Research @fujitsulabs
2K Followers 2K Following We aspire to put people first and integrate information and communications technology into our lives to solve the challenges our customers and society face.
Robert L. Read @RobertLeeRead
723 Followers 397 Following Head Coach of Public Invention (@pubinvention). Public Inventor. Esperanto speaker. Free-libre open source software, hardware, inventions. He/him.
kevinkrejci @kevinkrejci
1K Followers 3K Following Outsmarting Parkinson's with tech, data, exercise, nutrition, peer power, humor, mindfulness & positive visualization. @WorldPDCongress @fujitsulabs
John Dean MA CCC-SLP @johnmdean123
1K Followers 2K Following Parkinson's specialist, speech language pathologist, entrepreneur, working with people who have Parkinson's to develop tools for #Parkinson's
Haim D. Nesser, PT, D... @DrHaimNesser
115 Followers 140 Following Founder & Neuro PT @ Propel Rehab; Guest Lecturer @ MU; Vice Chair @ Balance & Falls SIG, APTA Geriatrics; Vice Chair @ Geri SIG, APTA New Jersey
LSVT Global @LSVTGlobal
2K Followers 97 Following Providing world-class training in LSVT LOUD® and LSVT BIG® for Parkinson’s disease to speech, physical, and occupational therapists worldwide.
LSVT Loud @LSVTLoudPH
6 Followers 1 Following Advocating for evidence-based voice treatment for Filipinos with Parkinson's disease
Veerle Aertsen @VAertsen
362 Followers 709 Following Eurordis alumna, Eupati fellow. YOPD patient advocate. Mum. 2nd chance in life thanks 2 Medtronic.
Kathleen Kiddo @KathleenKiddo
39 Followers 18 Following PLEASE FOLLOW @ohkathleenkiddo for recent updates to work.
A/Prof Ingrid Hopper @ingrid_hopper
154 Followers 85 Following Consultant physician - clinical pharmacology, general medicine, heart failure. Researcher in drugs and therapeutics, cardiovascular disease and healthy ageing.
Adriano Aguzzi @AdrianoAguzzi
26K Followers 1K Following
Synapticure @synapticure
4K Followers 477 Following Personalized virtual neurology care for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's
Chedder @chedderjc
196 Followers 2K Following #leafsfan #jaysfan. Hockey coach.. #farmcountry. diagnosed with Parkinson’s at 37
Scaredy-Cat-Brain Gir... @ScaredyCatBrain
15 Followers 104 Following Atlantic Mag called me “long time Silicon Valley branding exec turned neuroscience researcher.”Habits+Neuroscience of Cortisol +Dopamine. https://t.co/rEkE1SZzP6
inGAIT project @inGAIT_CP
116 Followers 128 Following #Motivation: to improve the quality of life of individuals with movement disorders #Ambition: to extend the use of novel technologies to daily-life activities
Me and My Tremor @NevilleJTencer
178 Followers 794 Following environmentalist, techie, photographer, foodie, wine connoisseur, world traveler, author, global citizen, and now person with parkinson's
Mariana Moscovich @MoscovichM
131 Followers 276 Following Autora do Livro Descobrindo a Doença de Parkinson Neurologista CRM25083 RQE18651 Consultas online especializada para todo Brasil
RxStemCells @RxStemCells
8 Followers 108 Following RxStemCells is a cutting edge biotech company that specializes in developing and manufacturing stem-cell based products and medical treatment
Baron Lane @baronlane
392 Followers 894 Following UX and digital artist | PD dx 2017 🌹 | past @CapitalOne @TDAmeritrade etc. Humane tech advocate - Help find a cure. https://t.co/NMAlnmS0Fv
Parkinson's Ambassado... @PD_Ambassadors
307 Followers 843 Following A community of Ambassadors and Advocates helping connect patients and their families to resources and support!
MYB❤️T @PconciergeAllen
940 Followers 2K Following Humaniod Robotics enthusiast, living with Parkinson’s, gallbladder cancer diagnosis 2024. Nanna to Jace diagnosed with Cystic Fibrosis 💙Dog lover 🐶♿️
Handstand for Parkins... @christinejeya
2K Followers 2K Following Alumni Parkinson Congress Ambassador, #yopd, advocate, speaker, researcher, healthpromotor, Youtuber, gymnast, wife, mother, blessed by prayer, future TEDx
Parkinson's Resource ... @ParkinsonsPro
2K Followers 2K Following We are a 501(c)(3) non-profit charitable organization that provides group and individual support to those making the journey through Parkinson’s.
Beat PD @BeatPDWA
392 Followers 352 Following Helping people battle #Parkinsons via one-stop shopping for #holistic #health tools.
Russ Bradford @PconciergeRuss
680 Followers 1K Following An experienced Parkinson’s Advocate Volunteer. Dedicated to improving the Lives of those living with Parkinson’s. Public Speaker, & Panelist.
karl robb @asoftvoicepd
2K Followers 3K Following Author | Blogger | Creator | Advocate living with Parkinson's Disease for over 30 years https://t.co/TbA0hPIkYz
em @hipsterPD
579 Followers 454 Following A #Millennial recently diagnosed with early onset #Parkinsons at 36. Trying to stay hip while figuring out this new life. #yopd
Andrew Butler 💙�... @AndySambut
1K Followers 2K Following All Views My Own. Worldwide Parkinson’s Disease Advocate. Board Member Of Parkinson’s Europe. https://t.co/8vyg9Ykqaz
Spotlight YOPD @SpotlightYOPD
2K Followers 2K Following The UK charity with global reach spotlighting Young Onset Parkinson's because it's a different rare condition. Around 10K YOPDers in UK. #YOPD
Parkinson's Movement @PDMovement
6K Followers 842 Following By people with Parkinson's, for people with Parkinson's, shaping Parkinson's research. An initiative of The Cure Parkinson's Trust @CureParkinsonsT
Claudia Trenkwalder @ctrenkwalder1
1K Followers 81 Following movement disorder clinician and researcher - still enthusiastic to see patients and study Parkinsonism and sleep
Angelo Antonini @angelo_antonini
1K Followers 208 Following Parkinson and Movement Disorders Unit - Neurology Clinic Padua University of Padua https://t.co/mGybVRjb0v
Patrik Brundin MD PhD @BrundinPatrik
4K Followers 870 Following MD PhD, Therapeutic Area Leader for Movement disorders at @Roche Expert on #Parkinson and #Huntington disease. Views expressed here are my own.
Journal of Parkinson'... @journal_PD
6K Followers 238 Following Dedicated to expediting our understanding & improving treatments of PD | Co-Editors-in-Chief: Bas Bloem and Lorraine Kalia
Kunath Lab @KunathLab
1K Followers 995 Following Find me on BlueSky please: @kunathlab.bsky.social At the University of Edinburgh. Focussed on understanding and treating Parkinson's.
Parkinson & Movement ... @PMDAlliance
2K Followers 436 Following With on-demand education and local events, our programs meet people where they are with the promise: there’s a place for you here.
michaeljfox.org @MichaelJFoxOrg
94K Followers 2K Following The Michael J. Fox Foundation is dedicated to finding better treatments and, ultimately, a cure for Parkinson’s disease. Social Info: https://t.co/jN2BqHCali
Cure Parkinson's @CureParkinsonsT
22K Followers 2K Following We’re here for the cure. Cure Parkinson’s is working with urgency to find new treatments to slow, stop and reverse Parkinson’s.
K Ray Chaudhuri @KRayChaudhuri1
3K Followers 678 Following Director Parkinson Centre of Excellence, Professor of Neurology, Movement Disorders at King’s College London. Research Director and EDI lead ARC.
The Science of Parkin... @ScienceofPD
11K Followers 249 Following Personal account of the Director of Research at @CureParkinsonsT - All views my own - Kiwi - Kia kaha - 侘寂
Kailash Bhatia, @kailashbhatia
7K Followers 2K Following Professor of Clinical Neurology, Queen Square, UCL; Founding editor MDCP;Chairman MSA Trust UK; Opinions my own
Bas Bloem @basbloem
14K Followers 919 Following Professor Neurology @radboudumc | Director Center of Expertise for #Parkinson & Movement Disorders | Board @ParkinsonNet | Editor in Chief @journal_PD
FamilyandPets @Family_and_Pets
244 Followers 33 Following Your Headquarters for Parenting Advice, Family Fun, and all things Pets
Mark McAuley @MarkMcAuley7
53 Followers 41 Following
Carlie Ostrom @rlietrom
154 Followers 358 Following Neuro activist. FNCE @wharton / TBI @pennmedicine / rehab @abilitylab / postbacc @uwmadison @vemugantilab / founder The Possibility Center
Helen Matthews @HelenMatthewsQ
840 Followers 317 Following
Birgitt Schuele (She/... @SchueleLab
1K Followers 4K Following Making a difference for Parkinson's disease research. My research improves patient care by unraveling the causes of neurodegeneration. 🌈🏃🏻♀️🧑🔬
Alberto J Espay @AlbertoEspay
10K Followers 602 Following #Neurology professor @uofcincy, advocate of precision medicine in neurodegeneration, author #BrainFables. More active on LinkedIn.
Dave deBronkart @ePatientDave
35K Followers 3K Following @ePatientDave.bsky.social Participatory Med. Past: OpenNotes adv bd, HL7 #PatientsOnFHIR co-chair, Mayo visiting prof. #HeForShe, #AntiRacist
Krembil Brain Institu... @KBI_UHN
6K Followers 2K Following Krembil Brain Institute is dedicated to advancing research and clinical care for those living with diseases and disorders of the brain and spine.




