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Global ARCH @globalarchorg

The Global Alliance of Rheumatic and Congenital Hearts is an alliance of organizations that speak out for CHD and RHD patients global-arch.org Joined April 2018
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Global ARCH retweeted
DVervoort94 Profile Picture

Dominique Vervoort @DVervoort94

2 days ago

Next month, I'll be running a 77km ❤️ in Geneva during #WHA77 as fundraiser @globalarchorg. #CHD affects 1 in 100 live births & 40+ million people live with #RHD–Global ARCH unites patients & families 🌐 for a 🫶 future. Consider supporting: give.global-arch.org/fundraiser/543… #AATS2024

globalarchorg Profile Picture

Global ARCH @globalarchorg

2 days ago

Next month, I'll be running a 77km ❤️ in Geneva during #WHA77 as fundraiser @globalarchorg. #CHD affects 1 in 100 live births & 40+ million people live with #RHD–Global ARCH unites patients & families 🌐 for a 🫶 future. Consider supporting: give.global-arch.org/fundraiser/543… #AATS2024 https://t.co/j5Bpwi9l3P

globalarchorg Profile Picture

Global ARCH @globalarchorg

2 days ago

Dust off your running shoes and exercise your way onto our world map to make a global impact! Join us to create Hearts Around the World and help us improve the lives of patients living with congenital and rheumatic heart disease. #CHD #RHD. More info: bit.ly/3Wr9190

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Global ARCH @globalarchorg

3 days ago

A heart condition prepared me for starting menopause in my 30s, by @Leigh_KC open.substack.com/pub/theheartdi… @ZipperSisters @ACHA_Heart @ISACHD @ECHDOHeart

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Global ARCH @globalarchorg

5 days ago

For #CHD patient-specific #heartfailure info pls read & share this. PDF in our Resources (global-arch.org/resources/) & Blog (global-arch.org/blog/) with translate app. #Providers, please share with your patients. Big ❤️ to @Leigh_KC @CachNetwork @ACHA_Heart @ISACHD @ECHDOHeart

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Global ARCH @globalarchorg

2 weeks ago

Report by @AdditionalVent on the Disproportionate economic burden of complex CHD shows that in the US the average lifetime burden is $2.2 million per patient - 14x more than congestive HF. Economic burden on country is $74B! Great initiative! Read more additionalventures.org/news/the-dispr…

Global ARCH retweeted
jilliannec Profile Picture

𝐉𝐈𝐋𝐋𝐈𝐀𝐍𝐍𝐄 𝐂𝐎𝐃𝐄, 𝐏𝐇.𝐃 🍁☘️🌻🧡 @jilliannec

2 weeks ago

A cardiac event isn't just a medical crisis—it's a profound emotional and psychological event. Research shows that cardiac-induced PTSD increases the risk of subsequent events by 53%. Copatients also suffer, with 35% showing PTSD symptoms post-event. #HeartHealth #PTSD /3

Global ARCH retweeted
jilliannec Profile Picture

𝐉𝐈𝐋𝐋𝐈𝐀𝐍𝐍𝐄 𝐂𝐎𝐃𝐄, 𝐏𝐇.𝐃 🍁☘️🌻🧡 @jilliannec

2 weeks ago

Proud to have participated in this critical @AHAScience @CircAHA Patient-Centered Adult CV Care Statement; co-authored the #patient and #copatient perspective with @LGlaucomflecken cc @HeartLifeCanada @SCC_CCS @CanHFSociety @UBCEducation /1

DrMarthaGulati Profile Picture

Dr. Martha Gulati ♥️🫀❤️‍🩹🇨🇦 @DrMarthaGulati

3 weeks ago

Proud to have participated in this critical @AHAScience @CircAHA Patient-Centered Adult CV Care Statement; co-authored the #patient and #copatient perspective with @LGlaucomflecken cc @HeartLifeCanada @SCC_CCS @CanHFSociety @UBCEducation /1 https://t.co/S114ukMblB

Global ARCH retweeted
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Reach @ReachRHD

2 weeks ago

The first PEN Plus Africa conference is just around the corner! For those who would like to join virtually, you can register here - shorturl.at/JLM79. The Heart Health Meetup is on 24th April at 17h30 EAT, sign up to receive the meeting link here - shorturl.at/kyC34

WHOAFRO Profile Picture

WHO African Region @WHOAFRO

3 weeks ago

The first PEN Plus Africa conference is just around the corner! For those who would like to join virtually, you can register here - shorturl.at/JLM79. The Heart Health Meetup is on 24th April at 17h30 EAT, sign up to receive the meeting link here - shorturl.at/kyC34

Global ARCH retweeted
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CanadianFontan @CanadianFontan

3 weeks ago

"The strongest hearts have scars" - anonymous. Cheers to strong Fontan patients and families! 💪❤️ Learn more about the Fontan circulation and life with a Fontan at our 3rd annual Fontan Education Day on Zoom. Register now at: fontaneducationday2024.eventbrite.com

globalarchorg Profile Picture

Global ARCH @globalarchorg

3 weeks ago

A very important message from the @WHO about knowing, and exercising, your rights. Global ARCH is thrilled to see “My Health, My Right” as this year’s theme. #CHD #RHD youtu.be/MgM_s01G0Lg?fe…

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Global ARCH @globalarchorg

4 weeks ago

A really interesting and important look at how our medical records are stored (or not) and what it might mean as we age in the system. Thank you to @DrLizaMorton for making us aware of this! Please share.

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Dr Liza Morton @DrLizaMorton

4 weeks ago

A really interesting and important look at how our medical records are stored (or not) and what it might mean as we age in the system. Thank you to @DrLizaMorton for making us aware of this! Please share.

globalarchorg Profile Picture

Global ARCH @globalarchorg

4 weeks ago

Join us May 27 @ 8:30 a.m. CEST to discuss resources that are needed to serve children born with congenital anomalies around the globe. A great line-up! @CHeartLink @miraclefeet @operationsmile @ifsbh @theG4Alliance @HopkinsMedicine Register: bit.ly/4axwola #GlobalHealth

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Global ARCH @globalarchorg

4 weeks ago

Last month we co-hosted a landmark webinar for #WorldBDay about congenital anomalies & the importance of building a common voice. Thanks to our partners and patient speakers @operationsmile @miraclefeet @WHO @CDCgov @CHeartLink @ifsbh ❤️. Read more here bit.ly/49dQdgo

globalarchorg Profile Picture

Global ARCH @globalarchorg

a month ago

Congratulations to the others, including Global ARCH Board member @GomanjuAnu for this outstanding #PEN-Plus Heart article! #CHD #RHD #globalhealth globalheartjournal.com/articles/10.53…

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Global ARCH @globalarchorg

a month ago

Interesting that #CHD patients with mild heart defects were more likely to be "pre-frail" and also those from middle-income countries compared to high-income countries. Great to see research on this population!

DrPetraJenkins1 Profile Picture

Dr Petra Jenkins @DrPetraJenkins1

a month ago

Interesting that #CHD patients with mild heart defects were more likely to be "pre-frail" and also those from middle-income countries compared to high-income countries. Great to see research on this population!

Global ARCH retweeted
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CJC Journals @CJCJournals

a month ago

A new study design for the Women@Heart Nova Scotia Health Pilot Study highlights both the importance and the need for community-based peer support for women living with heart disease across Canada 🇨🇦 Read more: cjcopen.ca/article/S2589-… #HerHeartMatters #CJCO

Global ARCH retweeted
worldheartfed Profile Picture

World Heart Federation @worldheartfed

a month ago

📣 Applications are open for TWO grant projects focused on #RheumaticHeartDisease! The grants of 20,000 USD each, generously provided by @EdwardsLifesci, will support local initiatives based on our #ColoursToSaveHearts 🖍️ programme. Apply by 31 March: worldheart.org/colours-to-sav…

Global ARCH retweeted
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ECHDO @ECHDOHeart

2 months ago

We have some great talks and presentations over the next two days.💗 Have a look at our agenda for 2024😎 #ECHDOAGM2024 #CHD #Community

globalarchorg Profile Picture

Global ARCH @globalarchorg

2 months ago

Global Alliance for Rheumatic and Congenital Hearts president @VerstappenAmy speaking about the mental health aspects of living with #CHD and #RHD at @ECHDOHeart in Milan. A topic that is often overlooked in congenital and rheumatic heart care. ❤️ Go Amy!

globalarchorg Profile Picture

Global ARCH @globalarchorg

2 months ago

Our inimitable president @VerstappenAmy presenting about @globalarchorg at the European Pediatric & Congenital Cardiology meeting in Milan. Speaking about #patientrights. #CHD

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