Zipper Sisters @ZipperSisters
Sisterhood of Women with Congenital Heart Defects We are 1 in 100! #CHD #ACHD awareness. Patient first. Established 2012 Joined April 2020-
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For #CHD patient-specific #heartfailure info pls read & share this. PDF in our Resources (global-arch.org/resources/) & Blog (global-arch.org/blog/) with translate app. #Providers, please share with your patients. Big ❤️ to @Leigh_KC @CachNetwork @ACHA_Heart @ISACHD @ECHDOHeart
Patients, providers, and researchers are uniting to improve future quality of life for people with #ACHD. Please click here to learn more about our efforts and join them! bit.ly/3CIIWa7
Gaps in #ACHD care are common. e.g. new patient seen recently had surgery as a child, last seen 30 years ago! Working full time and sent to me for his murmur and "valve issues." Diagnosis: tetralogy of Fallot! Have you seen your #ACHD doc recently? #CHDCare4Life @ACHA_Heart
A great argument for the need of research #ACHD women's health. Pregnancy isn't the only obstacle in our lifespan. We need a serious conversation about this! #CHD
Have you voted yet in the ACHD Research Rumble? Help us identify the project ideas that you consider most crucial to improving life with CHD! Vote now: allourideas.org/ACHD-CHI-study…
About 7.8% of CHD patients, or roughly one in 13, will develop heart failure, versus 1.1% in the general population, per a 2022 study. Hospitalizations are on the rise, and it's the leading cause of death. bit.ly/chd-heartfailu…
Heart failure in CHD patients is different from HF in people with acquired heart disease. For one thing, it shows up much younger—at an average age of about 40 years old vs. about 66 in the general population. That means doctors might miss it. bit.ly/chd-heartfailu…
“Heart failure” sounds like a death sentence, but it’s not. It is, however, affecting more people with congenital heart disease, and it shows up differently for us. Here’s what you need to know. 🧵bit.ly/chd-heartfailu… #CHD #CHDAwareness #cardiotwitter #heartfailure
Today is National Donate Life Blue & Green Day! 💙💚 We love seeing this incredible #DonateLife community honoring donors & sharing gratitude for the gift of life. Thank you to everyone sharing your blue & green colors to the national photo contest here: donatelife.net/how-you-can-he…
Our team is engaging registry participants, researchers, and #CHD care providers to answer key questions around improving mental health, health care transitions, and overall quality of life. Join us: bit.ly/3CIIWa7
An outstanding document, covering so many areas of patient-researcher disconnect in experience and priorities. I hope researchers, particularly, take the time to read and consider the recommendations. Patients have spoken and need to be heard for research to be useful & relevant.
An outstanding document, covering so many areas of patient-researcher disconnect in experience and priorities. I hope researchers, particularly, take the time to read and consider the recommendations. Patients have spoken and need to be heard for research to be useful & relevant.
This is a critical situation! We hear from patients every day that are struggling to find care, keep care, stay in care, accommodate the necessities to travel for care, etc. #ACHD #CHD
@patientlibrary invited me to write this piece for their latest publication. I can’t get my childhood health records back but hope by raising this more widely change will come… #patientrights #advocacy #healthcare Access the full publication here: patientlibrary.net/cgi-bin/downlo…
I saw a patient with complex cyanotic congenital heart disease who was told as a child that her only chance was waiting for a heart-lung transplant……..she just completed her university undergraduate degree! #inspiring #ACHD
Your voice powers our work — please help us plan future research by voting on the projects you consider crucial to the future of your care and life with #ACHD. It’s our goal to identify our community’s top priorities, and we need your help! Vote here: allourideas.org/ACHD-CHI-study…
@VUMChealth focused on Advanced Therapies for ACHD! Team based care within @ashshah @BrianLimaMD and beyond @AriCedars @drelisabradley @sasha_opo @ACHA_Heart @WilcoxHeart Discoveries in Medicine - Stoking Successful Heart Replacement in Adults with CHD discoveries.vanderbilthealth.com/2024/03/stokin…
Dr Liza Morton @DrLizaMorton
4K Followers 3K Following Counselling Psychologist | Lecturer @GcuPsychology | co-author Healing Hearts & Minds @OxUniPress | Healthcare Campaigner | Personal opinion | ‘Leeza’ ❤️
Congenital Heart Init.. @ACHD_CHI
2K Followers 418 Following Patients, providers and researchers passionate about improving the lives of adults living with congenital heart defects through a patient-powered registry.
Shelagh Ross @shelagh_ross
529 Followers 628 Following Writer/editor, mom, CHD patient and advocate ❤️, and lover of all things furry and funny. Co-founder of @cchaforlife, @Globalarchorg and @FindACHD
ACHA @ACHA_Heart
6K Followers 2K Following Our mission: To empower the #CHD community by advancing access to resources and specialized care that improve patient-centered outcomes. #CHDCare4Life
The Children's Heart .. @TheCHF
6K Followers 558 Following Advancing the diagnosis, treatment, and prevention of congenital heart defects (#CHDs) by funding the most promising research.
Fred Wu, MD 🫀 吳�.. @FredWuMD
8K Followers 2K Following I take care of adolescents & adults with congenital heart disease. #MedPeds #ACHD @BostonChildrens @BrighamWomens. Clinics in Boston, Providence, & Lebanon, NH.
Ali N Zaidi, MD @AliZaidiMD
3K Followers 448 Following Section Head, Mount Sinai Adult Congenital Heart Disease Center
Tracy Livecchi @TracyLivecchi
375 Followers 411 Following Clinical Social Worker, psychotherapist, consultant, writer, mental health advocate, born with a congenital heart condition
Dr. Nadine Kasparian @NKasparian
7K Followers 6K Following Professor of Pediatrics | Director, Heart & Mind Wellbeing Center @CincyChildrens | Co-Vice Chair @CardiacNeuro | 2018-19 Harkness Fellow @harvardmed
Somerville Heart Foun.. @HeartSomerville
2K Followers 1K Following ❤️ We work with, support and campaign for young people and adults born with a heart condition. ❤️ #UK #CHD #ACHD ❤️ 🤝Account managed Mon-Fri.
Alexander Vd Bruaene @alexvdbruaene
968 Followers 637 Following Cardiologist, father, husband. Passionate about #ACHD #Heartfailure #Fontan @UZLeuven @KU_Leuven. Personal views
Philip Moons @MoonsPhilip
5K Followers 4K Following Professor of Healthcare and Nursing Science @KU_Leuven|@goteborgsuni|@UCTHealthSci|Editor in Chief Eur J Cardiovasc Nurs @editorEJCN|https://t.co/H8vazsiBSr
Michelle Steltzer @mmsteltz
1K Followers 3K Following CPNP-AC/PC and sibling impacted by CHD. Employed by Lurie/Willis Potts Heart Center. Healing CHD hearts together, one heart at a time. My tweets are my own.
Maggie Simpson @m4ggiesimpson
4K Followers 5K Following 🏴🫀nurse #FESC #FHFA | #HeartFailure I #ACHD I #CardioObstetrics I #WomensHeartHealth I 3/5 #MedStudent I ⚽️✈️🎸I own views
Bistra Zheleva 🫀�.. @bzheleva
2K Followers 4K Following Global advocacy for access to better #CHD & #RHD care🫀• at @CHeartLink • Forever figuring out life • children are amazing ❤️•
Dr. Robert Elder @robeldermd
2K Followers 2K Following Pediatric and adult congenital cardiologist @yaleACHD @yalePediHeart @YaleMed @YNHH. PD for #pedcard and #ACHD. Advocate for kids, adults and public health.
Carolyn Thomas ☮️ @HeartSisters
5K Followers 860 Following Author of "A Woman's Guide to Living With Heart Disease" @JHUPress. Speaker. Jargon translator. Mayo Clinic-trained 🫀patient activist. Zack & Rosie's Baba.
Katia Bravo, MD, FACC @Bravo__MD
2K Followers 2K Following ACHD cardiologist @MayoClinicCV. Mother. Feminist. Passionate about medical education, reducing disparities & HF/tx. 🇵🇪
Tony Pastor, MD @DrTonyPastor
3K Followers 990 Following Pediatric and Adult Congenital Cardiologist @YaleMed @YNHH | Advanced 🫀Imaging | 🏳️🌈 (he/him) Opinions are my own.
Alexander (Sasha) Opo.. @sasha_opo
2K Followers 2K Following Cardiologist #ACHD #PulmonaryHypertension @CincyACHD @CincyKidsHearts @CincyChildrens; Personal views, not medical advice, RT are not endorsements
haya khaled @hayakhaled3029
49 Followers 560 Following
Charis 💋 @CharisTracey941
9 Followers 491 Following Seеking рleasure аnd еxcitemеnt with likе-minded individuals
Dr-Mo7amed S. EL-shaf.. @mo7amed_shaf3y
436 Followers 3K Following
Emory Women's Heart @emorywomenheart
3K Followers 4K Following Assessing CVD in women with thru education & personal care Call 404-778-7777 Like us on FB @EmoryWomenHeart
PANHELLENIC HEART DIS.. @PanSyngene21013
31 Followers 209 Following
Dr Pakyto @DPakyto
134 Followers 989 Following Since the Time of John the Baptist, the Kingdom of Heaven Suffers Violence and Only the Violent Take it Away...
Jenson. @jgmaldonadoch
470 Followers 5K Following Cardiólogo. El que no cree en milagros no es realista.
Lindsay @Lindsay99043262
258 Followers 3K Following
ERN GUARD-Heart @ERNGuardHeart
594 Followers 216 Following ERN GUARD-Heart is part of the European Reference Networks for rare or low-prevalence disease and focuses on rare and complex diseases of the heart. @AMC_nl
Ferdosul Hoque @ferdos75
16 Followers 143 Following
Dave White @_Dave_W
302 Followers 750 Following Exercise Physiologist PhD @ Children’s Mercy, congenital heart disease and physical activity mixing clinic and research; science advocate; travel and explore
Lisa Steuby @LisaSteuby
27 Followers 355 Following You always have options. You are powerful beyond measure. Boldly step into your uncertain and indefinite surroundings with your certain and definite dream.
Ahmed Ashraf @AhmedAs58449212
41 Followers 706 Following
Alberto Carrillo @BetoCarr7
53 Followers 495 Following
Ayman Naguib @AymanNaguib13
493 Followers 2K Following Interventional Cardiology Fellow @ National University Heart Centre, Singapore Innovation Enthusiastic💡💖 Views my own
CACH Network @CachNetwork
229 Followers 96 Following Canadian Adult Congenital Heart Network - a network of adult congenital heart professionals in Canada, serving adults living with CHD.
Lei Lani Michel @leilanimichel_
17 Followers 189 Following 🖋️🩵Living with congenital heart disease & post-stroke writing. Into data analytics, language & rhetoric, technology grant writer, & memes. 🐊Cajun mama.
Jonathan Kochav, MD @JKochav
169 Followers 294 Following ACHD Cardiologist @ColumbiaCardio | via Cardiology and ACHD fellowship @ColumbiaCardio, IM residency @MGHMedicine and @DukeMedSchool | Interests in CMR and ACHD
Miranda C @MirandaCColes
299 Followers 760 Following Living in Worcester with SteveO, francophile, fan of #parkrun, occasional baker, petrolhead and typist for @moggymainecoon
momo @momocoh
13 Followers 312 Following
Jane Gordon @Scuba_Jane
261 Followers 1K Following
SheyenneasaurusRex @SheyenneMiller2
36 Followers 313 Following Lifetime Girl Scout, Cancer Survivor, Cardiac Songographer in Training, 🩻R.T.(R) 🩻 BS in Radiologic Sciences ☢️ SheyenneasaurusRex On Twitch🎮
Suzan Bianchi @suzanbianchi
1K Followers 865 Following Writer. Online content specialist. Media junkie.
Dante Lucas S. Souza @dantelssouza
332 Followers 371 Following PGY-3 General Surgery Resident @TriHealth | Former Prelim at @UCirvine and @MayoClinic 👨🏻⚕️🇺🇸 |MD graduate @UFCSPA 🇧🇷 | Opinions are my own
Made with Heart @mwhwebsites
5 Followers 19 Following Made with Heart LLC serves companies of all sizes with digital solutions. We are also looking to raise awareness about congenital heart defects.
rushi_kalathiya @Rushi_Kalathiya
7 Followers 27 Following
SafePartum @SafePartum
726 Followers 530 Following Obstetric Anesthesiologists. 👩🏾⚕️ Maternal & Neonatal Health Educators. 📖 Labor & Delivery Safety Consultants.🩺💉 No medical/clinical advice.
Luc Mertens @LucMertens8
512 Followers 675 Following Pediatric Cardiologist, Sickkids Toronto, Echocardiography. Interest in literature, music and philosophy. Love running and fitness in free time.
Jennifer Kagan (forli.. @forlittlekeira
12K Followers 2K Following 🇨🇦 mom & palliative care MD | 4 yr old daughter killed by her father | #KeirasLaw| Advocate for Domestic Violence survivors & children
Carmen Gentry @FrankenHeart21
56 Followers 433 Following I’m just a woman with #CHD, happily married and have a 5 furbabies!
KirkSchuhmacher @KirkSchuhm34825
89 Followers 2K Following
Francesco Bianchini @bianchinifra92
3K Followers 4K Following MD - Cardiologist. Interventional Cardiology Fellow. Università Cattolica del Sacro Cuore, Rome, Italy 🇮🇹
A Twist of Fate-ATS (.. @atwistoffateats
2 Followers 74 Following A Twist of Fate-ATS is the only 501c3/patient group in the world for arterial tortuosity syndrome. We support the patient/family, clinicians, and scientists.
Aly Sherif Hassaballa.. @shaloush5
500 Followers 1K Following Consultant and Faculty Lecturer of Cardiothoracic Surgery @MedicineShams. #CTsurgery #Surgtwitter
Paula McFarland @PaulaMc98052197
1 Followers 8 Following
Ardan Bakul @ArdanBakul16333
227 Followers 2K Following
Advanced Heart and Va.. @advancedheartnm
156 Followers 766 Following
NagendraPrasad @NagendraPr09
56 Followers 433 Following
annalia polo @AnnaliaPolo
0 Followers 24 Following
Dr Sanjeev Kumar Chau.. @Skchaudhary333
640 Followers 4K Following MD Medicine, DM Cardiology, Consultant Interventional Cardiologist
Dr Liza Morton @DrLizaMorton
4K Followers 3K Following Counselling Psychologist | Lecturer @GcuPsychology | co-author Healing Hearts & Minds @OxUniPress | Healthcare Campaigner | Personal opinion | ‘Leeza’ ❤️
Congenital Heart Init.. @ACHD_CHI
2K Followers 418 Following Patients, providers and researchers passionate about improving the lives of adults living with congenital heart defects through a patient-powered registry.
Shelagh Ross @shelagh_ross
529 Followers 628 Following Writer/editor, mom, CHD patient and advocate ❤️, and lover of all things furry and funny. Co-founder of @cchaforlife, @Globalarchorg and @FindACHD
ACHA @ACHA_Heart
6K Followers 2K Following Our mission: To empower the #CHD community by advancing access to resources and specialized care that improve patient-centered outcomes. #CHDCare4Life
The Children's Heart .. @TheCHF
6K Followers 558 Following Advancing the diagnosis, treatment, and prevention of congenital heart defects (#CHDs) by funding the most promising research.
Fred Wu, MD 🫀 吳�.. @FredWuMD
8K Followers 2K Following I take care of adolescents & adults with congenital heart disease. #MedPeds #ACHD @BostonChildrens @BrighamWomens. Clinics in Boston, Providence, & Lebanon, NH.
Ali N Zaidi, MD @AliZaidiMD
3K Followers 448 Following Section Head, Mount Sinai Adult Congenital Heart Disease Center
Tracy Livecchi @TracyLivecchi
375 Followers 411 Following Clinical Social Worker, psychotherapist, consultant, writer, mental health advocate, born with a congenital heart condition
Dr. Nadine Kasparian @NKasparian
7K Followers 6K Following Professor of Pediatrics | Director, Heart & Mind Wellbeing Center @CincyChildrens | Co-Vice Chair @CardiacNeuro | 2018-19 Harkness Fellow @harvardmed
Somerville Heart Foun.. @HeartSomerville
2K Followers 1K Following ❤️ We work with, support and campaign for young people and adults born with a heart condition. ❤️ #UK #CHD #ACHD ❤️ 🤝Account managed Mon-Fri.
Conquering CHD @conqueringchd
4K Followers 194 Following Creating visibility and empowering all impacted by CHD through awareness, knowledge, community, and research.
Alexander Vd Bruaene @alexvdbruaene
968 Followers 637 Following Cardiologist, father, husband. Passionate about #ACHD #Heartfailure #Fontan @UZLeuven @KU_Leuven. Personal views
Philip Moons @MoonsPhilip
5K Followers 4K Following Professor of Healthcare and Nursing Science @KU_Leuven|@goteborgsuni|@UCTHealthSci|Editor in Chief Eur J Cardiovasc Nurs @editorEJCN|https://t.co/H8vazsiBSr
Dr Petra Jenkins @DrPetraJenkins1
901 Followers 443 Following ACHD Cardiologist & ACHD PHT Lead #Fontan , ACHD rep CHD CRG & NCHDA- Doggie Mamma, Yogi and Wifey. All views my own
Michelle Steltzer @mmsteltz
1K Followers 3K Following CPNP-AC/PC and sibling impacted by CHD. Employed by Lurie/Willis Potts Heart Center. Healing CHD hearts together, one heart at a time. My tweets are my own.
Maggie Simpson @m4ggiesimpson
4K Followers 5K Following 🏴🫀nurse #FESC #FHFA | #HeartFailure I #ACHD I #CardioObstetrics I #WomensHeartHealth I 3/5 #MedStudent I ⚽️✈️🎸I own views
Bistra Zheleva 🫀�.. @bzheleva
2K Followers 4K Following Global advocacy for access to better #CHD & #RHD care🫀• at @CHeartLink • Forever figuring out life • children are amazing ❤️•
Dr. Robert Elder @robeldermd
2K Followers 2K Following Pediatric and adult congenital cardiologist @yaleACHD @yalePediHeart @YaleMed @YNHH. PD for #pedcard and #ACHD. Advocate for kids, adults and public health.
Carolyn Thomas ☮️ @HeartSisters
5K Followers 860 Following Author of "A Woman's Guide to Living With Heart Disease" @JHUPress. Speaker. Jargon translator. Mayo Clinic-trained 🫀patient activist. Zack & Rosie's Baba.
Katia Bravo, MD, FACC @Bravo__MD
2K Followers 2K Following ACHD cardiologist @MayoClinicCV. Mother. Feminist. Passionate about medical education, reducing disparities & HF/tx. 🇵🇪
Pediatric/congenital .. @CHD_education
2K Followers 57 Following I retweet didactic educational content for pediatric and congenital heart disease #CHD (webinars, podcasts, and tweetorials).
Luc Mertens @LucMertens8
512 Followers 675 Following Pediatric Cardiologist, Sickkids Toronto, Echocardiography. Interest in literature, music and philosophy. Love running and fitness in free time.
Ryan A Moore MD @ramooremd
1K Followers 980 Following Kids ❤️ Dr. & Congenital Heart Difference Advocate! Imaging Enthusiast & Healthcare Gamer. @CincyChildrens @CincyKidsHeart #Heartpedia #HanktheHeart
Ollie Hinkle Heart Fo.. @theohhf
135 Followers 168 Following Ollie Hinkle Heart Foundation (OHHF) is committed to addressing the unmet needs of heart families while transforming the future of pediatric heart care.
Dr Leo @DrPWave
498 Followers 507 Following Born with congenital heart disease / Non-Invasive EP Fellow @ Lurie / Passionate about kids with CHD playing sports / Thoughts my own.
Beth @b_gootee
32 Followers 29 Following ACHD patient. ❤️🩹 Cat mom. Visitor of wineries & bookstores. Dodgers/Packers/Boilers. Ally 🏳️🌈🏳️⚧️ (She/Her)
Jef Van den Eynde @JefVandenEynde
782 Followers 2K Following Internal Medicine Resident & Researcher @KU_Leuven | @HopkinsMedicine, #BAEF, @lindaunobel alumnus | #Cardiology #CHD #ACHD #HF #CardioTwitter #MedTwitter
Ryan Byrne @ryandbyrne1
110 Followers 219 Following Husband, dad, pediatric and adult congenital heart disease cardiologist, @TCHheartcenter, @TCH_adultCHD
Bryan Nicolalde, MD. @bryannicolalde1
1K Followers 5K Following MD. Pgy1- IM Norwalk Hospital Yale University Program/Nuvance Health. Researcher 👨⚕️💊 Runner /Cardiology aspirant . Ecuadorian 🇪🇨
Mark J Schuuring @mjschuuring
2K Followers 4K Following Cardiologist (M.D Ph.D. FESC FEACVI FHFA) #CVImaging #HeartFailure #digital #eHealth #AI @ziekenhuisMST
Dr. Samaa Akhtar @AkhtarSamaa
224 Followers 638 Following Physician-Scientist| @GlobalCardiac' 22| @ParisWHOSim| Health and kindness for all
Ishita Datta, MD 🇮.. @dr_ishita282
376 Followers 338 Following Pediatric Cardiology fellow @childrensLA. Proud MedPeds grad @dmcwaynemedpeds. Global health. Clinical research.
Keila Lopez MD, MPH �.. @DrKeilaLopez
2K Followers 1K Following Pedi cardiologist, imager, Mom, #firstgen, Health Equity Researcher, Chicagophile, she/her/hers. Views are my own| Retweets don't imply endorsements
WCPCCS2023 @8thWCPCCS2023
767 Followers 12 Following the 8th World Congress of Pediatric Cardiology and Cardiac Surgery will take place in Washington DC, USA in August 27th - September 1, 2023.
International Symposi.. @ACHDSymposium
18 Followers 43 Following International Symposium on Adult Congenital Heart Disease 2024 Skamania, Washington (May 29-June 1) 2025 Toronto, Ontario 2026 Cincinnati, Ohio
Bo Marshall @whmarshv
482 Followers 413 Following Married to @ljhassen. #girldad (x 2). Cardiologist specializing in ACHD. Graduate of @OSUMedPedsRes and @OSUCVMFellows (twice)
American Journal of C.. @AmJCardio
775 Followers 972 Following Official account of the American Journal of Cardiology, a premier journal focused on the diagnosis and treatment of cardiovascular disease. RT =/ endorsement.
Donate Life America @DonateLife
14K Followers 2K Following National non-profit organization committed to increasing the number of donated organs, eye and tissue available to save and heal lives. #DonateLife
Care & Respond @CareAndRespond
116 Followers 583 Following Create a health passport and engage friends & family support when most needed. Developed in partnership with the NHS.
Louise Coats @LouiseCoats7
311 Followers 882 Following ACHD clinical academic @NewcastleHosps @UniofNewcastle Interested in understanding what matters.
CardioPedBrasil @cardiopedbrasil
38 Followers 119 Following Cardiologia e Cirurgia Cardiovascular Pediátrica do Hospital da Criança e Maternidade - HCM - Funfarme - Famerp
Heartfelt Dreams Foun.. @HeartfeltLtd
43 Followers 94 Following Dedicated to providing emotional, educational, and financial support to congenital heart defect patients and medical professionals who care for these patients
Jodi E Smith @JodiLemacks
228 Followers 158 Following Director of Strategic Alliances at WomenHeart. Board Member for the Alliance for Unitive Justice.
🧬🎵🫶BSBCarter.. @LittleBear_1985
3K Followers 3K Following #NoonanSyndrome #ACHD #HiddenDisabilities👩🏼🦯🌻 #MentalHealth💚 #90sBabe🛼 #GoodVibes #BSB30🫶 #OGBSBGirl 🧬 #OGNickCarterGirl #KTBSPA #BSBx9 #NickCarterx2
Benoit Bruneau @benoitbruneau
9K Followers 2K Following Cardiovascular disease researcher, developmental biologist, and Oakland resident. Je cherche a comprendre.
King Of Hearts @KingofheartNfts
5K Followers 4K Following Music producer. 25% of all sales donated to @american_heart . #Doodlegenics #farmacyfantoms 🫀 @KOHmusicfan
Ayesha Salahuddin, MD.. @ASalahuddin_MD
160 Followers 210 Following Adult congenital heart disease | Echocardiography | cardio- Ob @UCSF
Stone @stone__jess
155 Followers 361 Following CHD Advocate/Survivor. Battery powered. 🔋Check out my partner's awesome art @openheartart_ and my redbubble of CHD items! pronouns: they/them
RMUR @tororojo11
216 Followers 446 Following
Josh Kurtz MD @jkurtz02
643 Followers 555 Following Pediatric and Adult Congenital Interventional Cardiologist @nortonchildrens, Assistant Professor Pediatrics @uoflpeds #pedscards #CHD #meded opinions = my own
Jennifer Weiner @jp_taylor0120
312 Followers 362 Following Outside my day job I'm a Traveler, ACHDer/Advocate, Justice/Politics Enthusiast, Amateur Artist, and Wanna-be Writer. ☮️🇺🇸🇺🇦🏳️🌈☮️
Tom and Kat Hansen @TomandKatHansen
136 Followers 278 Following ❤️CHD Parents📖Authors🎙Podcast Hosts🎤Speakers
Cyanoticchic 💙 @Cyanoticshiksa
69 Followers 254 Following CHD warrior 💙 Horse lover 🐎 Ophthalmology 4 life 👁 Be Still ✝️
Children's Heart Fede.. @CHFed
2K Followers 1K Following The Children’s Heart Federation (CHF) is the leading national charity championing children with heart conditions. https://t.co/VlS5zVT9AA
Michael Bykhovsky, MD @MikeByke
177 Followers 850 Following Georgia Born, UGA Raised. Med-Peds/Peds Cardiology Certified. Stanford ACHD Graduate. PGY-Done! Attending w/ WACH @ Children's National. Views my own, probably.
Leigh Kamping-Carder @Leigh_KC
4K Followers 820 Following Head of Newsletters at @WSJ. Formerly: WSJ's Future of Everything, @WSJRealEstate, @bricku, @trdny, @law360. Writes The Heart Dialogues newsletter.
Global Care Force @volunteergcf
321 Followers 659 Following Global Care Force partners with organizations serving people in need.
Dr. Corinne Smorra @corinnesmorra
22 Followers 102 Following Doctor of Social Work, Psychotherapist, and Professor
Michelle Keir @MichelleKeirCA
264 Followers 531 Following Mom. Calgarian. ACHD Cardiologist at Libin Cardiovascular Institute. Opinions are my own.
Agnes Koczo @AkoczoAgnes
691 Followers 466 Following T32 post doc/Cardiologist @PittCardiology, former UPMC/Pitt fellow, passionate about care for high risk cardiac/ACHD in pregnancy. All learning is food : )
British Adult Congeni.. @theBACCNA
1K Followers 974 Following The British Adult Congenital Cardiac Nurses Association promotes the professional development of #ACHD nurses through education & sharing of good practice
Faraz Alizadeh @FAlizadehMD
1K Followers 3K Following Pediatric Cardiology Fellow @BostonChildrens | Health equity, cardiology & crit care | He/Him | Views = my own
JINAL GADA @JINALGADA5
21 Followers 93 Following Pediatric Cardiology Fellow 🫀 Pediatrician. Join me to build a world of #healthytinyhearts
Nikita Garg, MD @NikitaGargMD
79 Followers 315 Following Medical School @LadyHardingeMedicalCollege Pediatrics residency @siusom Cardiology fellowship @childrensdmc
Beth Adams @BethAdamsDO
8 Followers 42 Following
Kelly Scriven, MD @drkellyscriven
3K Followers 670 Following pediatric otolaryngologist, among other things @uofsc 🐔 & georgetown hoya 🎓views = my own.
Anatomy and Physiology exam done and passed. My heart team should be pleased that I scored exemplary on the cardiovascular system. 😊❤️🩹 @ZipperSisters @stephencookmd
At Riley today for my heart appointments. Hoping everything is still good. I miss my heart buddy. 😞@ZipperSisters
We are excited to announce our plan for FON and @NPCQIC to merge as one organization, called Single Ventricle Outcomes NEtwork, or SV-ONE, beginning July 2025! This means one mission and vision, and streamlined DUA and fee processes for our member care centers! #NPCFONVLS
My former general cardiologist ran Boston today. Congrats on finishing, Dr. Kareti! #BostonMarathon2024
Excited to discuss utilization of Spoke-Hub model to expand care to #ACHD patients at #ACC24 #ACCCVT @SWFLChildrens @leehealthheart
@ZipperSisters Glad this is of interest!! We are working on the final manuscript now, hoping to publish soon, will definitely share once the results are available.
“I have a rescue. I give them this and it has proven to extend lives of those in danger from cancer, renal failure, and God knows! This was Foxy Loxy. He recovered and I could love him for 2 more years❣️ I have other kitties' who had similar recoveries through CID. ❣️- Mat
The biggest "b.s." in medicine: "you may feel a poke," "you'll feel a pinch and a burn," "this may cause some discomfort." Let's talk about the trauma this has caused #CHD #ACHD kids, many who were given ZERO pain medication through open heart surgeries. medpagetoday.com/opinion/faustf…
What a special week visiting #ACHD teams @MFT_MRI @acc_MRI and @LHCHFT super proud 🫶 of everyone for providing outstanding #EndOfLifeCare as two separate families graciously say 🙏 Thank You to you all @farrinav @DrPetraJenkins1 @laurajole @lhchcharity @MFT_Charity
Inadvertent photo fail !!! Might make it my new profile pic !
Had a fantastic and inspiring weekend at #ACC2024, delving into some great talks on #ACHD and #CardioOB and presenting the initial results from our projects. 20% of CHD patients in our series have a uterine anomaly — implications for gyn&OB. more to come soon! @JACCJournals
That was cool. Thanks @IndianaOwned for the shirt & glasses!
@achdoctmoe @JACCJournals @ACCinTouch @ACHA_Heart I'm sorry to say that I think the conclusion about reduced HF admission rate is overstated and shouldn't factor into our current decision-making about whether to start an SGLT2i in ACHD patients. (In full disclosure, I do support SGLT2i use in ACHD patients with HF.)
Prioritize your mental wellness @DrJenniferCo_Vu @AliZaidiMD #ACHD @ACCinTouch everyone should have a professional coach#ACC24
@ZipperSisters It’s so sad to see numbers remain so stagnant over a 10-year period. The number of ACHD patients is only growing and there has to be action of moving the needle forward on increasing the workforce.
First-time Attendee! 🤗 🫀ACC.24 Beyond happy to be here! #ACC2024
It is an honor to work with so many LGBTQ+ professionals and allies! Thanks for your support. #ACC2024 was a game-changer this year for sexual and gender minorities. #LGBTQ @melsulistio @BrototoD @DrJMieres @MelvinEchols9 @HFnursemaghee @TeeMDMPH @DrTonyPastor
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