Okay a follow up to this tweet: After doing some more research and talking to more ppl with CCI I decided to buy an at home cervical traction device to *VERY safely* see if traction improves any symptoms. Lo and behold IT DID!!!! As soon as I did the traction my POTS symptoms lessened and my HR dropped by almost 30bpm. And you guessed it, as soon as I carefully released the traction, my hr shot right back up. I think this is really big!!! Now to try and compile data to convince my doctor to order the imaging to see if it is CCI.
Okay a follow up to this tweet: After doing some more research and talking to more ppl with CCI I decided to buy an at home cervical traction device to *VERY safely* see if traction improves any symptoms. Lo and behold IT DID!!!! As soon as I did the traction my POTS symptoms lessened and my HR dropped by almost 30bpm. And you guessed it, as soon as I carefully released the traction, my hr shot right back up. I think this is really big!!! Now to try and compile data to convince my doctor to order the imaging to see if it is CCI.
@fcknsyd Just make sure they do the proper imaging on it, apparently it can’t be seen when laying down on MRI, you have to be standing, or x rays of you moving
@ThePOTSPostman Yes! Thank you. I think I need a supine MRI with flexion. But I don't think supine MRIs exist in Canada. So I might have to find someplace in Michigan that does it. Sigh
@fcknsyd @ThePOTSPostman MRI with flexion and extension can still miss it because you can’t flex or extend your neck enough within the confines of an MRI.
@DrRebeccaRyan @ThePOTSPostman Oh I see. So how do I ensure it doesn't get missed? I'll probably be paying out of pocket so can't afford to get it redone a bunch of times. Thanks for this info
@fcknsyd @DrRebeccaRyan @ThePOTSPostman I saw that you mentioned possibly coming to Michigan for an MRI. I was unable to find anyplace to get an upright MRI here in Michigan and instead had to go to Illinois, just outside of Chicago, to get one. If you want any info, just let me know 🙂
@fcknsyd @DrRebeccaRyan @ThePOTSPostman Positional/Standup MRI welcomebackclinic.com/upright-mri.htm fonar.com/position-imagi… standupmrilocations.com uprightopenmri.ubc.ca torontosun.com/2016/10/13/ver… "The general consensus was that a standing MRI diagnosed about 20% of lesions missed by horizontal tests." x.com/gronnet/status…
@fcknsyd @DrRebeccaRyan @ThePOTSPostman Positional/Standup MRI welcomebackclinic.com/upright-mri.htm fonar.com/position-imagi… standupmrilocations.com uprightopenmri.ubc.ca torontosun.com/2016/10/13/ver… "The general consensus was that a standing MRI diagnosed about 20% of lesions missed by horizontal tests." x.com/gronnet/status…
@fcknsyd @ThePOTSPostman Need digital motion xray but not sure if or where this is available. Otherwise assessment by a physio trained in hyper mobility and CCI.