Search results for #SYNGAP1
Arrived in Liverpool for the #SYNGAP1 abseil tomorrow @LFC Anfield Stadium. Exciting!!!! If you'd like to support SYNGAP1 research, then you can donate here: gofundme.com/f/syngap1resea… Thank you. @PWCentre @SarahSc16211066 @DavidDavisMP
Haciendo difusión 🔊 de #CADASIL en la jornada organizada por @HospitalSantPau, junto con @CADASIL_Gen, @Epi_SantPau y otras asociaciones como la de #SYNGAP1 ⚡️ #JuntosPorUnaCura
Drug Repurposing is coming for #SYNGAP1! In our very first Drug Repurpose update, we look at N-acetyl-L-leucine (NALL). Syngap.Fund/NALL24 @ClementYChow
Listen to the latest #SYNGAP10 episode with @JMGraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at Syngap.fund/10 podbean.com/eas/pb-mi5b5-1… #SYNGAP1
@hanspschlecht @IpsenGroup @Skyhawk_Tx Dear @Skyhawk_Tx please let us know if we can brief you on what an exciting target #SYNGAP1 would be for your company.
"You don't have to apologize for your child ever ... you don't have to expect them to be anything but how amazing they are!" Ep 28 of #Syngap1Stories! Available at Syngap.Fund/Stories or wherever you listen to podcasts. #Syngap1 #Syngap1StoriesHope
Time's running short! Please take 10-15 min. before the end of April to complete this survey for families living with rare epilepsy! Your participation makes a difference! Syngap.Fund/QOL24 #SYNGAP1 #Epilepsy #RareDisease 💙💜💚 Thank you @ucb_news!
Excited to join this phenomenal program & be mentored by remarkable #patientadvocacy executives. Thank you @fastercures/@MilkenInstitute for this opportunity to learn and become a more effective leader for the @cureSYNGAP1 (SRF) & board member of @combined_brain. #SYNGAP1
Excited to join this phenomenal program & be mentored by remarkable #patientadvocacy executives. Thank you @fastercures/@MilkenInstitute for this opportunity to learn and become a more effective leader for the @cureSYNGAP1 (SRF) & board member of @combined_brain. #SYNGAP1
I'm doing this with @DavidDavisMP! If you have some pennies you can spare to help with #SYNGAP1 research @PWCentre, we'd be so grateful. Help us understand and lessen the effects of this rare genetic condition. gofundme.com/f/syngap1resea… @SarahSc16211066
I'm doing this with @DavidDavisMP! If you have some pennies you can spare to help with #SYNGAP1 research @PWCentre, we'd be so grateful. Help us understand and lessen the effects of this rare genetic condition. gofundme.com/f/syngap1resea… @SarahSc16211066
In case you missed the premiere, #ConnectionIsEverything is on #YouTube! YouTube.com/cureSYNGAP1 Details - Syngap.Fund/Jaxon #SYNGAP1
Less than a week to go before we #SprintForSyngap! Create your team ... Donate ... Help us find a cure! #EveryDollarMatters #SYNGAP1 #SprintForOurKids #EveryStepCounts Syngap.Fund/Sprint24
¡Nuevo episodio de podcast! Episodio 14 - Diana Ramirez y Su Hija Luhana Desde Perú Syngap.Fund/Cafe #SYNGAP1 #CafeSYNGAP1 @VickyAArteaga
WE'RE SO EXCITED!!! Sprint is one week away, but there's still time to create your team. Remember, every dollar makes a difference, so sign up today and join the fun! #SprintForSyngap! #SYNGAP1 #SprintForOurKids #EveryStepCounts Syngap.Fund/Sprint24
I've just sponsored @DavidDavisMP on @gofundme who is abseiling to fund research into rare disease, #SYNGAP1 If you can, please donate at gofund.me/c53c31d5 If not, please share the fundraiser and help spread the word.
Let's all #Scramble4Syngap! Register, donate, or sponsor at Syngap.Fund/Scramble. #SYNGAP1 #CureSyngap #Golf #GreerGolf
SYNGAP @SYNGAP1
16 Followers 6 Following
SYNGAP1 Global Networ.. @SyngapNetwork
3K Followers 3K Following Global #SYNGAP1 @cureSYNGAP1 🇺🇸🇬🇧🇪🇺 @Syngap1A 🇦🇷 @SyngapAus 🇦🇺 @OSyngap1 🇨🇦🇫🇷 @syngap1Germany 🇩🇪🇦🇹@syngap1italia 🇮🇹 & 🇪🇸🇮🇳🇯🇵🇸🇪🇨🇭
Ashley S. Evans @SYNGAP1mom
5K Followers 5K Following Investor Francisco Partners Board @payscale @thisisgslate @litmos @SourceScrub @ZoomInfo Alum @OneCarlyle & @MorganStanley Founder @cureSYNGAP1 #SYNGAP1 🧬
SynGAP Research Fund .. @cureSYNGAP1
10K Followers 6K Following #SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 https://t.co/4UJNF5bKTl https://t.co/pjCrzqlbV7 🎙
SYNGAP1 Foundation �.. @Syngap1Fnd
3K Followers 3K Following First & Lrg Org Securing $40M #SYNGAP1/ $12.6B in public funds for brain disease research, USA 100% 501c3 focus SYNGAP1 & related overlapping neuro disorders.
overcome syngap1 @OSyngap1
50 Followers 10 Following Organization to support families and fund research
Syngap1_Polska @Syngap1_Polska
14 Followers 16 Following Szerzenie informacji i zwiększanie świadomości na temat ultrarzadkiej mutacji Syngap1
Les sourires de Jade .. @pireddaalexand3
13 Followers 3 Following Maman de ma princesse Jade atteinte d'une maladie genetique rare (SYNGAP 1)
Roslane BENCHARIF @Ros_Bencharif
10K Followers 106 Following #Tech, #digital & #marketing #strategy professional, passionate about helping other #entrepreneurs and #knowledge sharing in general. #SYNGAP1 dad, full of hope
Syngap1.argentina @Syngap1A
71 Followers 37 Following Cuenta de difusión sobre Syngap1 en Argentina 🇦🇷
Syngap1 Italia @Syngap1Italia
34 Followers 21 Following Community italiana dei familiari, terapisti, personale medico, sostenitori e amici delle persone affette da Syngap1.
V Sinha | SYNGAP1 Rar.. @vaib_sinha
82 Followers 119 Following
Jess Fares @Cure_Cole
2K Followers 2K Following Mom to Cole, diagnosed with #SYNGAP1. Working hard with @curesyngap1 to improve lives of those with #epilepsy #SIB #autism #hypotonia #ID and their families!
Syngap1 @bSynGAP
4 Followers 0 Following
SYNGAP1 Patient Regis.. @Syngap1Registry
3 Followers 13 Following The #SYNGAP1 Patient Registry serves to provide a convenient online platform for patients or their legally authorized representative to report cases of SYNGAP1.
Marta Dahiya, MD @SRFMartaMD
2K Followers 2K Following SYNGAP1 mother, physician & advocate working hard to #cureSYNGAP. Co-chair of the Board: @cureSYNGAP1 501c3. #SynGAP #loveaSyngapian
Sandy Smith @sandysmith317
3K Followers 2K Following #RareDisease #SYNGAP1 auntie. Working for a cure with @cureSyngap1. Healthcare IT professional. Micah 6:8 💜#epilepsy💙#autism💚#id
Kali Worth @WorthKali
1K Followers 1K Following Nurse turned rare disease mom to a #SYNGAP1 kiddo. @cureSYNGAP1 volunteer. Budding HR professional
Beata Tarasiuk @beatasyngap1
1K Followers 1K Following SynGAP1 Mom @curesyngap1 #syngap1 volunteer at SRF
Suzanne Jones @Suzannevjones
2K Followers 2K Following Mother and #Syngap1 advocate working with SRF (Syngap Research Fund) to @cureSyngap1
SYNGAP1 UK @SYNGAP1_UK
3 Followers 0 Following
Peter Halliburton @phalliburton
3K Followers 2K Following Raising $$ for #SYNGAP1 gene therapy 🧬 // @cureSYNGAP1 501(c)(3) Board // Carter & Presley’s Dad // @lindsayhalli 💜 // @cyberark Channel
Gonzalo Bermejo @gbermejomodino
889 Followers 1K Following Padre de Carlota #discapacidad Presidente Asociación #SYNGAP1 España Coach Ejecutivo y Personal #coachingfamilias 👨👩👧👦
hans p schlecht @hanspschlecht
370 Followers 473 Following #SynGAP1 Papa, Husband, ID and drug dev doc, Science fanboy, #RareDisease Advocate alongside @cureSYNGAP1, Music fan... here to help so just ask *views=my own*
SYNGAP1 Foundation �.. @Syngap1T
0 Followers 128 Following Web3 Social 🏈 🏀 ⚾ Platform building on @flow_blockchain 📈 Insights, Odds, ⭐⭐⭐⭐⭐ Picks 🗝 Free to Play Games 🧨 Win $FLOW Home of @TheFellasNFT 🌹🔪 #WFB
Syngap1 España @Syngap1ES
0 Followers 1 Following