I and @sabrevaya are so excited to be apart of @NIH Rare Disease Day. If you have not yet registered click the link below. Today, 350 million people around the world suffer from a rare disease. Too often these diseases are ignored. It is time to change that. #RDDNIH
I and @sabrevaya are so excited to be apart of @NIH Rare Disease Day. If you have not yet registered click the link below. Today, 350 million people around the world suffer from a rare disease. Too often these diseases are ignored. It is time to change that. #RDDNIH
@bsw5020 @sabrevaya @NIH I’m speaking earlier in the day at the event and was just BEYOND excited to realize you would be there too! I’ve loved following your advocacy and way of using your story and voice for much needed change to our rare community. ❤️ can’t wait to listen!
@bsw5020 @sabrevaya @NIH Truly honored to have you and Sandra part of this incredible panel. Can’t wait!!