Amy Silverstein, author @ajsilverstein16
Author of SICK GIRL and MY GLORY WAS I HAD SUCH FRIENDS (soon to be limited TV series). Heart tx 1988 & 2014 amysilverstein.com East coast (and some west) Joined December 2021-
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Our beautiful, amazing, spectacular Amy passed away peacefully in her sleep on May 5th, 2023. We will be maintaining this account to provide updates on developments in transplantation and for further information on Amy's writings and upcoming tv show.
Thank you WBUR On Point for sharing some of my story & highlighting key points in our broken organ donation system. A special thank you to Jen Erickson and Senator Elizabeth Warren for speaking up in support of organ donation reform. #MedTwitter #kidney wbur.org/onpoint/2023/0…
Guys we should all get involved here - This should also work for the UK - if you haven’t seen Amy’s story and recent heartbreaking words take a look 💔 xx
Guys we should all get involved here - This should also work for the UK - if you haven’t seen Amy’s story and recent heartbreaking words take a look 💔 xx
@Halpingal @LeilaniRGraham @ajsilverstein16 Great to see the article being shared & recognized at tx meetings. I hope the message is being discussed in a context to inspire better days. I hope the meetings share Silverstein’s mission, to find new methods of preventing these statistics from happening.
Listen...
Worry a little bit every day and in a lifetime you will lose a couple of years. If something is wrong, fix it if you can. But train yourself not to worry: Worry never fixes anything.
@mhm5443 @ajsilverstein16 It's this "be thankful" attitude that stifles improvement. In no other patient population would such side effects be tolerated. It's possible to be both grateful and still advocate for improvement.
I am so grateful to @ajsilverstein16 for what she has done. She has shined a beam of light onto the rot which has creeped into our field. I promise to try and do better for her.
I am so grateful to @ajsilverstein16 for what she has done. She has shined a beam of light onto the rot which has creeped into our field. I promise to try and do better for her.
@mhm5443 @ajsilverstein16 they’re not “much better than before.” what drugs are you referring to specifically, the improved ones? she wrote this for the benefit of all transplant patients, to advocate for a better quality of life for us. nothing about this is “whiny” or incompatible with gratitude.
And this is why spoke up. If we let this silence us, transplant life and survival will continue as it has for decades. I welcome all viewpoints. But I will not be silenced by them. #truthintransplant
And this is why spoke up. If we let this silence us, transplant life and survival will continue as it has for decades. I welcome all viewpoints. But I will not be silenced by them. #truthintransplant
@ajsilverstein16 Amy, The dialogue and awareness you have stoked is just another gift you have bestowed upon us. You’re an important writer and a remarkable person. ❤️ Lizzie’s little sister.
NY Times, Letters to the Editor: Aftermath://www.nytimes.com/2023/04/29/opinion/letters/organ-transplants.html?smid=tw-share Truths nytimes.com/2023/04/29/opi…
To those asking how to help bring attention to the urgent need for focus and funding for safer, more effective transplant drugs, the first step is demanding action and attention from the largest org of transplant professionals. State your transplant truth: myast.org/form/contact
Transplant Nurses are the core of organ transplantation - they are central to the success of every program and every patients. Thank you for all you do!
Transplant Nurses are the core of organ transplantation - they are central to the success of every program and every patients. Thank you for all you do!
@ajsilverstein16 @4_kidney @gratefull080504 I'm a semantics-sensitive person and I have to agree with Amy here. Part of the conundrum of transplant is that it is growing so much more commonplace thanks to advances in surgical and clinical treatments. It becomes that much more urgent to better long term outcomes as the pt.
@ajsilverstein16 @4_kidney @gratefull080504 population grows. Transplant is one of the highest forms of humanity and altruism; self-sacrificing in particular for living donors. I hesitate to speak of it with divine connotation. I feel it further contributes to the narrative that transplant is currative.
@ajsilverstein16 Thank you so much for reminding people that tx is not a cure and that the actual surgery is just the first step in a lifelong battle. I've told my husband repeatedly that it's the drugs that are the true obstacle, but he just can't digest that. Maybe he is afraid to.
I just viewed @ajsilverstein16 beautiful video on @CBSSunday Her commentary was so eloquent, balanced, and honest. I hope the @US_FDA @AST_info were listening because our collective patient voice will no longer be silent. Thank you @ajsilverstein16 for your advocacy
I just viewed @ajsilverstein16 beautiful video on @CBSSunday Her commentary was so eloquent, balanced, and honest. I hope the @US_FDA @AST_info were listening because our collective patient voice will no longer be silent. Thank you @ajsilverstein16 for your advocacy
My request is that all members of the #transplanttwitter community view @ajsilverstein16 balanced discussion on gratitude + the need for #innovation in #transplantation Thank you @ajsilverstein16
My request is that all members of the #transplanttwitter community view @ajsilverstein16 balanced discussion on gratitude + the need for #innovation in #transplantation Thank you @ajsilverstein16
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Thank you WBUR On Point for sharing some of my story & highlighting key points in our broken organ donation system. A special thank you to Jen Erickson and Senator Elizabeth Warren for speaking up in support of organ donation reform. #MedTwitter #kidney wbur.org/onpoint/2023/0…
I admire @ajsilverstein16 speaking out about the immunosuppressive fallout of even the most successful transplant —and why we haven't made progress in years.
How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: myast.org/form/contact
Amy Silverstein advocates for advancing research tied to organ transplantation medicine in order to make meaningful improvements to the existing transplant drug regimen. cbsnews.com/news/amy-silve… via @CBSSunday
Guys we should all get involved here - This should also work for the UK - if you haven’t seen Amy’s story and recent heartbreaking words take a look 💔 xx
How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: myast.org/form/contact
@Halpingal @LeilaniRGraham @ajsilverstein16 Great to see the article being shared & recognized at tx meetings. I hope the message is being discussed in a context to inspire better days. I hope the meetings share Silverstein’s mission, to find new methods of preventing these statistics from happening.
One last plea from our very own @ajsilverstein16 - let’s honor her legacy. To our patients “Speak your truth” as Amy asks of us. 🙏🏼🙏🏼🙏🏼 @AST_info
How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: myast.org/form/contact
The message from @ajsilverstein16 is already being shared at #transplant meetings #IST2023 #immunosuppression #transplant
Listen...
How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: myast.org/form/contact
Congratulations to the brilliant @abe_verghese , whose absolutely gorgeous novel, The Covenant of Water, was chosen today by @Oprah as the 101st pick by @Oprahsbookclub ! 🙌🏾🎉🎊
After suffering severe brain damage, the Campbell family honored Andrew's wishes to donate his organs, saving two lives. Since then, they have encouraged nearly a thousand other people to register as organ donors. ow.ly/yzeb50O0W3h @anne_baldridge @newscentermaine
“The operation was running long so we let the med student close”
Things that are often done for no reason: ➡️Urine culture for someone with a clear non-urinary source of sepsis ➡️Refusing to de-escalate antibiotics according to culture results ➡️Post-op continuation of antibiotic prophylaxis What else? #IDtwitter #MedTwitter
MIT AI algorithms aim to revolutionize organ transplant system | ow.ly/caRn50NJojk #transplantation #transplant
“My parents said after I had my transplant, I went from not walking to playing, laughing & running. They never heard me laugh until I got my new heart...I am so grateful for my donor who I call my 'heart hero.' – Paisley💙💚 #AAPIHeritageMonth #DonateLife @AMAT1ORG
@LetLiveLLC @ManuVarma This discussion so heavily evokes @ajsilverstein16's op Ed and the idea that transplant should evolve to meet the needs and desires of its current and future population. Even more evidence that these discussions should be happening in real time with all stakeholders present.
so better treatments are likely sitting at the local pharmacy but we don’t know... We’ve got to fix this broken system.
…but because the current transplant drugs are old, cheap, & generic, companies are disincentivized from running trials of new, more expensive drugs as their treatments may not be covered & transplant trials are generally longer & more expensive than other diseases…
The previous CBS link I tweeted is no longer working, so I'm re-sharing this. My apologies for the flurry of self-promotional tweets!
.@Oprah has selected "The Covenant of Water" as her latest @Oprahsbookclub pick — which she says is one of her top three books of all time. Author @abe_verghese shares how he weaved the story together, and why he "didn't really believe" it was Oprah, telling him about the pick.
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