Irene Tuffrey-Wijne @TuffreyWijne
Professor of Intellectual Disability and Palliative Care. Let’s talk about dying, death, bereavement and intellectual/learning disability. tuffrey-wijne.com London, England Joined October 2012-
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GLITZ AT THE RITZ! There was a Research Team from Kingston Awarded for super Inclusion So we went to Ritz For a nice bit of glitz And tea, cake and scones with fresh cream on! ❤️ Poem by Leon & Sarah about today’s amazing team celebration @KingstonUni
It’s been exhilarating to move so swiftly from having a great idea to sitting in a recording studio @KingstonUni, and a joy to eavesdrop Richard @RKeaganBull conversations with his guests over a cuppa. Soon you can hear it too. Read my blog and watch this space!
It’s been exhilarating to move so swiftly from having a great idea to sitting in a recording studio @KingstonUni, and a joy to eavesdrop Richard @RKeaganBull conversations with his guests over a cuppa. Soon you can hear it too. Read my blog and watch this space!
Really looking forward to presenting at this Workshop on 24th April with @phoebemooney10 @TuffreyWijne and others on closing the gap in End of Life Care for People with Learning Disabilities! Places are limited so do sign up especially if you work in SElondon and Croydon
Really looking forward to presenting at this Workshop on 24th April with @phoebemooney10 @TuffreyWijne and others on closing the gap in End of Life Care for People with Learning Disabilities! Places are limited so do sign up especially if you work in SElondon and Croydon
If you missed this last Friday: watch it! It’s the most wonderful, moving, joyous, authentic and respectful interview I’ve seen in years. How wonderful to have such positive representation at a prime time TV slot! Thank you Michael and all the interviewers! @BBCOne more please!
If you missed this last Friday: watch it! It’s the most wonderful, moving, joyous, authentic and respectful interview I’ve seen in years. How wonderful to have such positive representation at a prime time TV slot! Thank you Michael and all the interviewers! @BBCOne more please!
We had fun yesterday talking on @ClareFuller17 podcast about Advance Care Planning! We love talking together, even about death and dying… there’s often laughter as well as occasional lumps in throats (You can listen to it in June) @KingstonUni @VictStuProject
‘It is sometimes like we don’t exist. It is important to talk to the person with a learning disability first. 👇1 min read, by 3 of my colleagues @RKeaganBull @ding_jonny
‘It is sometimes like we don’t exist. It is important to talk to the person with a learning disability first. 👇1 min read, by 3 of my colleagues @RKeaganBull @ding_jonny
Getting ready for next week’s start of our research course for people with learning disabilities. Looking forward to meeting 8 new students @KingstonUni @VictStuProject @NIHRinvolvement
Come, meet, listen, learn! ⬇️. We’re really looking forward to this event
Come, meet, listen, learn! ⬇️. We’re really looking forward to this event
20 June: Your chance to meet us all and be INSPIRED by amazing speakers! This is an unusual & inclusive conference full of people who think outside the box @MeetMacIntyre @DimensionsUK @mencap_charity @LearningDisEng @hospiceuk @MarieCurieEOLC @macmillancancer @VODGmembership
20 June: Your chance to meet us all and be INSPIRED by amazing speakers! This is an unusual & inclusive conference full of people who think outside the box @MeetMacIntyre @DimensionsUK @mencap_charity @LearningDisEng @hospiceuk @MarieCurieEOLC @macmillancancer @VODGmembership
Another afternoon in the podcast recording studio. Kathy Curtis (Dean) & @ClaireThurgate (head of @NursingKingston) having a Cuppa Tea with Richard @RKeaganBull @KingstonUni
Endings are never easy but we celebrated our colleagues in style, stopping to think about their unique gifts and contributions - very moving. We haven’t seen the last of them: still some celebrations planned, and we hope to call on David’s advice in the future
Endings are never easy but we celebrated our colleagues in style, stopping to think about their unique gifts and contributions - very moving. We haven’t seen the last of them: still some celebrations planned, and we hope to call on David’s advice in the future
Today is the anniversary of my brother Joe's totally preventable death. Every year around 1,200 people with LD and autism die premature deaths in 2022/23 42% of all the reported deaths of people with a learning disability were avoidable.
Today is the anniversary of my brother Joe's totally preventable death. Every year around 1,200 people with LD and autism die premature deaths in 2022/23 42% of all the reported deaths of people with a learning disability were avoidable.
Want to know what our new resources for end-of-life care planning with people with learning disabilities are like?🔎@MWilding5 has had a chat with @Furniss8Rachel (both from @MeetMacIntyre) about using the resources. See what they think in today's blog 👇 victoriaandstuart.com/post/58-in-con…
This! “You assume that I can’t hit harder, so I don’t hit harder”
Normal day in the office, getting ready for our next Zoom meeting @KingstonUni @VictStuProject @MeetMacIntyre @NicolaP321
Application accepted! We’ll be in touch! I had the honour of the first cup of podcast tea and it was an absolute delight ☕️
Application accepted! We’ll be in touch! I had the honour of the first cup of podcast tea and it was an absolute delight ☕️
Have you ever thought about what researchers actually do on a normal workday? 💭 In today's blog, @AndreaBruun takes you through her workday. You get to know more about what it is like to be a project manager and what happens behind the scene 👇 victoriaandstuart.com/post/57-a-work…
Exhilarating afternoon discovering the recording studios @KingstonUni. A new venture with the wonderful Richard @RKeaganBull Watch this space! @astravolemova @ding_jonny @GerardW68 @ThurgateClaire @VictStuProject @AliveLeder
This l nteresting @LastDaysoflifeR @TuffreyWijne Social, psychological, spiritual& physical health trajectories at the end of life are important in planning person centred care. People with learning disabilities also want good person centred care in their last months
This l nteresting @LastDaysoflifeR @TuffreyWijne Social, psychological, spiritual& physical health trajectories at the end of life are important in planning person centred care. People with learning disabilities also want good person centred care in their last months
📚 To celebrate the official launch of our Book Club in a Box project, creating 300 new Book Clubs, we're giving away ebook The Book Club with discount code BOOKCLUB24! 🥰 Learn what makes Book Clubs special. Please share with anyone interested 👇 bit.ly/48LJHNN
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28K Followers 634 Following Award-winning actor, writer and activist: Line of Duty, Hamlet, A Life Worth Living. Football fan. #TommyJessopGoesToHollywood
Inclusive Researcher .. @fe_researcher
225 Followers 395 Following PhD researcher in inclusive and participatory research design within a Further Education context. Teacher-trainer. Folk artist. Songwriter and musician.
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173 Followers 207 Following Treated for breast cancer aged 35. Flat Friends Chair of Trustees. Flatter Fashion founder. Social Worker. She/Her. Vegan
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470 Followers 1K Following PhD, Knowledge Translation in Healthcare for People with Intellectual and Developmental Disabilities @SurreyPlaceON
Learning Disabilities.. @LearningMet
2K Followers 355 Following We do research with people with learning disabilities, autistic people, and their families. We are committed to social justice and more equal research practice.
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550 Followers 784 Following Research Associate on @VictStuProject 🌻 @MCPCRD @UCL PhD in prognostication in hospice MDTs 🏛 @DanTIN_grammar at @AarhusUni 📍 Conversation Analysis 💬she/her
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451 Followers 370 Following learning disability clinical nurse specialist working in palliative care ✨ member of the specialist advisory group for the PCPLD Network 😊
Hugh Nelson @bishopstgermans
1K Followers 448 Following Learning from Jesus how to love God and neighbour more tomorrow than today. Often getting it wrong. Bishop of St Germans and Bishop to the Armed Forces
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745 Followers 323 Following
Beth Britton @bethyb1886
10K Followers 2K Following Passionate about #Ageing #Health #SocialCare #Dementia. Award-winning Content Creator; Author of D4Dementia; Consultant; Trainer & Mentor; Campaigner & Speaker.
Flatter Fashion @Flatterfashion
511 Followers 165 Following Living flat after double mastectomy without recon. Sharing tips on what flatters single-flat and double-flat body shapes. Flat Friends UK Trustee. #Outflat 2020
John Casson @JohnCassonUK
1.0M Followers 427 Following National Leader @LArcheUK Ex-Ambassador. #COYH #RedSox https://t.co/4Ny2Dmqoyw
Critical Publishing @CriticalPub
3K Followers 4K Following We provide learning materials that help people in vocational professions become the best students and professionals they can be. Tweets by Di & Richard
Paul Payne @shoutoutpaul
105 Followers 49 Following I work on Self Advocacy and Co-Production at MacIntyre https://t.co/GUqU8D9DIF
Learning from Lives a.. @AliveLeder
738 Followers 111 Following Our team aims to help improve healthcare for people with a learning disability and/or autism. We're from KCL and share work with researchers from UCLan + KU.
Sophie Craven @SophieCraven19
189 Followers 620 Following RNLD and Lecturer in Learning Disability Nursing at Kingston University She/her Passionate about achieving equity for people with learning disabilities VMO
EOL Essentials @EOLessentials
3K Followers 3K Following Get the skills and knowledge you need to provide high quality end-of-life care. Funded by Australian Department of Health and Aged Care, at Flinders University
nic mckenzie @nicmckenzie5
28 Followers 68 Following I work with people with learning disability, and supporters, to find better ways of doing things - research, evaluation, policy, training, coaching. (she/her)
Adrienne Betteley @AdrienneBettel3
670 Followers 1K Following Strategic Adviser for End of Life Care at Macmillan Cancer Support and Co-Chair of the National Ambitions Partnership for Palliative and End of Life Care.
Liz Tilley @liz_tilley24
403 Followers 175 Following Senior lecturer & researcher at the OU. Tweeting about learning disability, health & social care, inclusive research and history. All views are my own
Ruwani Ampegama @RuwaniHysinth
50 Followers 79 Following I love sharing my experiences and knowledge and learning from others. I rely on faith, hope and love in living life to the full, appreciating every momentSoooo excited at the next #LD and #EOLC project coming out of @KingstonUni and @TuffreyWijne and many others (supported by @NIHRresearch ) . Such an incredible project!!
@TuffreyWijne @KingstonUni @AndreaBruun @ding_jonny @beckyanderson_1 @jogiles72 @RKeaganBull @GerardW68 @VictStuProject @AliveLeder @astravolemova @NursingKingston #Oliverscampaign You all absolutely deserve that wonderful experience
@TuffreyWijne @KingstonUni @AndreaBruun @ding_jonny @beckyanderson_1 @jogiles72 @RKeaganBull @GerardW68 @VictStuProject @AliveLeder @astravolemova @NursingKingston So very well deserved! Congratulations to you all xx
@TuffreyWijne @KingstonUni @AndreaBruun @ding_jonny @beckyanderson_1 @jogiles72 @RKeaganBull @VictStuProject @AliveLeder @astravolemova @NursingKingston Such a wonderful day. Beaming all the way home 🙂
@TuffreyWijne @KingstonUni @AndreaBruun @ding_jonny @beckyanderson_1 @jogiles72 @RKeaganBull @GerardW68 @VictStuProject @AliveLeder @astravolemova @NursingKingston #Oliverscampaign Huge congratulations, the Ritz is a wonderful experience
The most joyful day with a truly inspirational group of people 🙂
GLITZ AT THE RITZ! There was a Research Team from Kingston Awarded for super Inclusion So we went to Ritz For a nice bit of glitz And tea, cake and scones with fresh cream on! ❤️ Poem by Leon & Sarah about today’s amazing team celebration @KingstonUni
Such a lovely group of people. Best chat show format I've seen too. We need more from the assembly
If you missed this last Friday: watch it! It’s the most wonderful, moving, joyous, authentic and respectful interview I’ve seen in years. How wonderful to have such positive representation at a prime time TV slot! Thank you Michael and all the interviewers! @BBCOne more please!
Yes. This was wonderful and a breath of fresh air!
If you missed this last Friday: watch it! It’s the most wonderful, moving, joyous, authentic and respectful interview I’ve seen in years. How wonderful to have such positive representation at a prime time TV slot! Thank you Michael and all the interviewers! @BBCOne more please!
@TuffreyWijne @BBCOne I watched this and he was so gentle and patient. The young man had such a good question too!
@TuffreyWijne And we learned so much about the person. Favourite Disney film and not partial to bats, but more importantly, real decency, respect and warmth......
@TuffreyWijne @BBCOne Agreed - this was the most wonderful blend of candour, sensitivity and freshness in filmed interviewing that I've ever been lucky enough to witness. Thank you to all. @BBCOne are there more of these planned?
Really looking forward to presenting at this Workshop on 24th April with @phoebemooney10 @TuffreyWijne and others on closing the gap in End of Life Care for People with Learning Disabilities! Places are limited so do sign up especially if you work in SElondon and Croydon
If you work in SE London (and Croydon) we are holding a learning disability and palliative care workshop at @stchCARE @SueMarsden6 Sign up below 👇🏽 stchristophers.org.uk/course/closing…
I’m wiped out with a virus right now but just want to say how wonderful it is to see the fantastic and really moving responses to #TheAssembly last night. I feel very lucky to have been a part of it.
#AdvanceCarePlanning - a serious business?! What a super conversation with you and the A Team. Great to learn more about the @VictStuProject
We had fun yesterday talking on @ClareFuller17 podcast about Advance Care Planning! We love talking together, even about death and dying… there’s often laughter as well as occasional lumps in throats (You can listen to it in June) @KingstonUni @VictStuProject
Come, meet, listen, learn! ⬇️. We’re really looking forward to this event
Come, meet, listen, learn! 20 June conference: Our colleagues and advisors with a learning disability will present the new toolkit for end of life care planning. Lots of amazing speakers. Book now! Registration open 👉bit.ly/4aozRCs
Come, meet, listen, learn! 20 June conference: Our colleagues and advisors with a learning disability will present the new toolkit for end of life care planning. Lots of amazing speakers. Book now! Registration open 👉bit.ly/4aozRCs
And what a contribution David and Sarah have made to @VictStuProject !
We said a huge THANK YOU to David Jeffrey and Sarah Gibson whose time on our project had come to an end. They have been ⭐️⭐️⭐️⭐️⭐️
@TuffreyWijne @beverleyfs1 Love this and particularly the note that reads “Faces his fear and does it anyway” Bravo David 👏
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