TTP Network @TTP_Network
Patient Support Group. Registered Charity. Supporting patients, families and professionals dealing with Thrombotic Thrombocytopenic Purpura in UK and Eire. ttpnetwork.org.uk England, United Kingdom Joined January 2014-
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TTP Network retweeted
Patient Partnership Week is back for 2026! Together patients, professionals and policymakers will explore a simple but powerful idea: healthcare works best when patients are treated as partners. Take a look and sign up, more to follow! #PPW2026 buff.ly/qanvAGs
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TTP Network retweeted
I'm fundraising for the @TTP_Network ❣️ Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving #TTP #TTPNETWORK justgiving.com/page/matty-jac…
Less than 1 week to go! Matty Jackson & Nicola McSorley Orford are taking on #LondonMarathonMyWay on April 26th in support of TTPNetwork. Two inspiring stories. One important cause. Support them 👇 Matty: justgiving.com/page/matty-jac… Nicola: justgiving.com/page/nicola-mc… #TTP #Rare
On behalf of the TTPNetwork trustees, huge congratulations to Jo for her award of the British Empire Medal. ttpnetwork.org.uk/news/founder-o…
It's Back! The TTPNetwork Christmas Fundraiser 2025 @ttp_network visufund.com/ttpnetwork-chr… via @visufund
It’s #TrusteeWeek! 💙 We’re celebrating the incredible team guiding TTPNetwork with passion, expertise & lived experience. Their dedication helps ensure no one facing TTP feels alone. Meet our trustees 👉 ttpnetwork.org.uk/about-us #ThankATrustee #PatientAdvocacy
We’re so excited to be part of @GoVoOfficial - the new volunteering platform connecting people with amazing opportunities. You can now easily browse, filter, and sign up for volunteer roles like being a Trustee directly on GoVo. Get volunteering at GoVo.org
Bridgathon 2025 has started. Supporting the UCL TTP Education & Research Fund. Donate here: justgiving.com/page/ttpwalk20…
Are you a patient with iTTP? Would you like to take part in research on the Psychological Impact of iTTP? read more here: liveuclac-my.sharepoint.com/personal/ucjum… take part here: forms.cloud.microsoft/pages/response…
The 2025 TTPNetwork Patient event is happening soon. Get your ticket here: buytickets.at/ttpnetwork/156… Learn more about TTP, meet others with cTTP and iTTP and their families. Have fun! Plus refreshments and lunch included.
Tom is raising funds for TTPNetwork. Support him here: justgiving.com/page/tomkellet…
Missed the last post? no need to worry - send an e-card and support TTPNetwork at the same time! dontsendmeacard.com/ecards/chariti… #DontSendMeACard #Christmas2024
As Christmas approaches we are offering two opportunities to support TTPNetwork. Send an e-card or pick a penguin! dontsendmeacard.com/ecards/chariti… visufund.com/ttpnetwork-chr…
Today we celebrate International Day of Charity. Thank you for all of your support, enabling us to continue our work.
Don't forget to take your TTP Travel letter, translated into the language you need: ttpnetwork.org.uk/resources/trav…
Are you planning a trip abroad? Take a look at the Your Travel and Health website yourtravelandhealth.com Lots of tips about what to pack, where to put your medications and travel insurance for a pre-existing condition &more.
Get your Voice Heard - sphinxonline.com/surveyserver/s…
Are you a TTP Patient? Would you like to know more about relapses? join us for our free webinar: buytickets.at/ttpnetwork/131…
Make your voice heard: take the new Rare Barometer survey on the impact of rare diseases on everyday life! To make your voice heard & share your experience, take the survey by clicking here, before 8 September: tiny.cc/RB_DailyLifedis @eurordis
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Professor Beverley Hu... @bhwords
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Sam Bristow @SamGABristow
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Pridhi V. Baghla♥�... @VPridhi
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HaemSTAR 💙 @HaemSTAR_UK
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ERM @Owner_X429
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