Dominik @Resarius
. Joined April 2014-
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#MECFS lässt Menschen aus ihren Leben verschwinden, auch ohne zu töten. Was das bedeutet, lernt man mit den Jahren: Kontakte werden weniger, eigene Erinnerungen an das Leben draußen älter. Man wird mehr & mehr vergessen. Und man ist sich all dessen bewusst. #MEawarenesshour
Understanding myalgic encephalomyelitis/chronic fatigue syndrome—an elusive condition that often follows an infection and shares many similarities with #LongCovid—could improve long #COVID19 research, argues a new #SciencePerspective. fcld.ly/k8m0yhv
Today is one of those days where I feel like I am barely existing. Like if you looked at me you would see through me. Transparent. A ghost. A shell. I feel like my body is fighting just to exist. This is one of those days you just want to pass so you can move on to better days.
The degree of restraint you have to exercise when living with #MECFS is mindboggling--on how small a scale this needs to be applied and how large the consequences. There is never a free lunch, you'll always end up paying--it's just a question of how much and for how long.
With this illness, you don't just loose your health. You also loose everything you'd planned and hoped for. You watch everyone live a full live, have a family&career, while you lie there, clock ticking, the years passing by, without any change, feeling miserable. #MEAwarenessHour
Plumbers are here fixing something in the shower in my bathroom. My sanctuary of rules and routines and procedures is being brutally violated! It’s amazing how sensitive we are to the smallest glimpses of the real world and how we must isolate ourselves from it just to get by.
When you lose someone close to you, but due to M.E. you can't pay ur respect in person. You do not just lose that person, and a very last memory you could've created together. It's also a reminder of that you've lost just another part of many of ur former self. #MEawarenesshour
🆕 #SIGNforMECFS-Updates! Am Montag, 14. Februar 2022, ist im Bundestag um 13:00 Uhr eine einstündige Ausschussanhörung zu unserer #MECFS-Petition geplant. Die Veranstaltung wird live übertragen. Wir werden über die weiteren Einzelheiten, auch zum Kudoboard, noch informieren!
If you get #MECFS, one thing is for sure: your life as you know it is over. That’s why we must fund biomedical research for treatments and a cure.
I miss my life. #MEawarenesshour
✉ ✍ Das Team #SIGNforMECFS hat eine Petition zu ME/CFS gestartet. Die Petition läuft bis zum 09.11. und benötigt 50.000 Unterschriften für eine Anhörung im Bundestag. hier unterzeichnen: epetitionen.bundestag.de/petitionen/_20… Hintergrundinfos: signformecfs.de/?fbclid=IwAR3u… #MECFS #LongCOVID
"One of the worst things about ME/CFS is that the majority of the suffering goes on behind closed doors. It's often an invisible illness meaning only those closest to the individual suffering have even a possibility of understanding what it's really like."
You don't see us bed-bound, struggling to move, or stumbling over words. You don't see us choosing between brushing teeth or a shower because some days we don't have the energy for both. You see us at our best when we have rested for days or weeks to be able to see you.
#ENDmecfs2021 ♥️✊🏻
Happy 25th birthday to the Playstation 1. And happy birth to my patreon for the PSX FPGA Project : patreon.com/laxer3a Here is the appetizer... #misterfpga #playstation1 #fpga
Our Kickstarter page is live now! Please help us make R-Type Final 2 a reality! Let's embark on a journey to strike down the Bydo Empire together! We're looking forward to having you join forces. #rtype #rtypefinal2 kickstarter.com/projects/granz…
.@StephenAtHome's mini-adventure with @matthewmercer for #RedNoseDay turned out to be a heartwarming epic that bards of Wildemount will sing about for centuries to come! See it for yourself at youtu.be/3658C2y4LlA. And donate now at critrole.com/rednoseday. Do it #ForEric!
The #MEAction Network (@MEActNet) reports on this week's historic parliamentary debate on ME/CFS. Read the recap and watch video of the debate here: bit.ly/2RkfMVj
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Official TFE @3FieldsEnt
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61K Followers 4K Following Welcome to the official #GuitarHero Twitter | #GuitarHeroLive is AVAILABLE NOW | ESRB: TEEN | Lyrics. Online Interactions, Music Streams and Downloads Not Rated
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745 Followers 7 Following Think you know Yamaha Guitars? Think again.
















