Recordati Rare Diseases @RecordatiD
At Recordati Rare Diseases, we focus on the few - those affected by rare diseases. Social media guidelines: https://t.co/PEjh3QzOIW recordatirarediseases.com Puteaux, France Joined April 2020-
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Cushing’s Syndrome is a rare and underestimated condition mainly caused by an overproduction of cortisol. What is cortisol? Cortisol is an hormone playing a key role in regulating various body functions and its excess can significantly affect physical and mental health. What…
Recognising Cushing's syndrome is a challenge, and it is crucial for physicians to identify patients and guide them onto an appropriate care pathway. Cushing syndrome is rare and manifests itself through muscle weakness, early bruising, unexplained weight gain, moon face,…
April 8th: #CushingsAwarenessDay🌟 Today marks Cushing's Awareness Day in honor of Dr Harvey Cushing's birthday and his discovery of this disease. This day is dedicated to raising awareness about this rare disease, which affects over 40 patients per million and often takes…
At #RecordatiRareDiseases, we believe in the power of unity to make a difference in the lives of those facing rare diseases. To celebrate the Rare Disease Day, we are delighted to host a special presentation by @ImagineforMargo , a remarkable patient association dedicated to…
The Recordati Rare Diseases LATAM team met together for its 2024 Kick Off Meeting under the theme “Stronger Together” and to reflect on the successes of 2023 and how we continued the momentum into 2024. It was inspiring to see this fast growing and highly motivated team actively…
In Recordati Rare Diseases, we are 650 employees around the world providing treatments for more than 20 disorders. We are proud to support the Rare Disease Day held by @eurordis on February the 29th and are all committed to helping patients affected by rare diseases.…
Recordati Rare Diseases is proud to show our commitment to making a difference in the lives of patients affected by rare diseases, and recognise the Rare Disease Day by @eurordis on February the 29th. #FocusedOnTheFew #RareDiseaseDay #UnlockingTheFullPotentialOfLife
At RRD, our success is grounded in our people. Corinne Porry, Human Resources Director EMEA, is committed to shaping a culture of personal development that prepares our people for their next professional challenge, “we believe in investing in every colleague by providing the…
Recordati Rare Diseases kicked-off 2024 with its EMEA Annual Conference bringing together colleagues from across the region to exchange with HCPs toward helping to unlock the full potential of the patients lives we serve. “I am proud to lead the #RecordatiRareDiseases EMEA…
Huge congratulations to our teams and colleagues for multiple wins this past week. Recordati Rare Diseases won the award for ‘Patient-Centricity’ for the THISCUSHING campaign at the 2023 PMEA awards (See here: lnkd.in/eg-cN56b) and was highly commended in the ‘Company of…
How do acromegaly patients and their relatives deal living with a rare disease? Martin shares with us his daily life as a patient, his struggles and emotions. #AcromegalyWithoutFilter Awareness campaign linkedin.com/feed/update/ur…
Rare disease patients usually never forget the date of their diagnosis. Being able to put words to their condition is a relief. Also, it may be psychologically difficult to deal with when understanding what the future might hold1. Learn more about Martin's experience, an…
Very excited that Recordati Rare Diseases is a finalist in two 2023 PMEA award categories – the ‘Company of the Year ‘award and award for ‘Patient-Centricity’ for our THISCUSHING campaign. At Recordati Rare Diseases, we’ve always been focused on the few, and we are very proud…
Very excited that Recordati Rare Diseases is a finalist in two 2023 PMEA award categories – the ‘Company of the Year ‘award and award for ‘Patient-Centricity’ for our THISCUSHING campaign. At Recordati Rare Diseases, we’ve always been focused on the few, and we are very proud…
«Why can’t I explain these headaches? Why do I no longer fit into these sandals? Why do I not play the piano as well as I used to?» ... Living with undiagnosed acromegaly may have considerable consequences for patients' quality of life. Because of its slow progression some…
Are you a healthcare professional and curious about care of #Cystinosis patients? Join our satellite symposium and participate in the expert discussion with Prof Jun Oh, Prof Detlef Bockenhauer, Dr Yael Boworitz and Dr Hong Liang Saturday 30 september from 12.45 to 13.45! #ESPN
Alvaro Hermida @Info_Rares
2K Followers 1K Following Specialist on Metabolic Diseases and always looking on the bright side of life.
The Journal of Inheri.. @JIMD_Editors
3K Followers 877 Following The JIMD is the official journal of the Society for the Study of Inborn Errors of Metabolism (SSIEM). Podcasts at https://t.co/QZggmJr9Of
ACIMET | Asociación .. @ACIMET_MMA
651 Followers 1K Following Asociación de afectados y familiares con acidemia metilmalonica. #Enfermedadrara #metabólica #genética 🧬. 1/60.000 nacidos 👶 48 casos. 🗺️https://t.co/hxtLUmdb9P
Pedro Lendinez #Enfer.. @pelendinez
5K Followers 2K Following #EnfermedadesRaras #MasVisibles. ¿Te sumas? ¡Juntos llegaremos más lejos! Opiniones personales.
Dra A. García-Cazorl.. @AGarciaCazorla
2K Followers 2K Following Child Neurologist and Researcher Neurometabolism-Synaptic Metabolism Lab. Director of Research in #Neuropediatrics @SJDbarcelona_es Prof at UB. Tweets my own
HCU Network America @HCUAmerica
696 Followers 983 Following The mission of HCU Network America is to help patients with #Homocystinuria and related disorders manage their disease and to find a cure. #HCUNetworkAmerica
Recordati Rare Diseas.. @RecordatiRareES
4K Followers 1K Following En Recordati Rare Diseases nos centramos en una minoría: los afectados por las #EnfermedadesRaras (poco frecuentes, minoritarias) #FocusedOnTheFew
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
The Pituitary Foundat.. @Pituitary_org
8K Followers 5K Following Supporting anyone affected by pituitary conditions through helplines, support groups, and events. Join #TeamPituitary to raise essential funds
NeuroendocrinoSEEN @NeuroendocrinoS
3K Followers 701 Following Área de Conocimiento de Neuroendocrinología de la @sociedadSEEN
asGLUTdiece 🧬 @asglutdiece
602 Followers 2K Following Asociación de familias que pretende promover y divulgar entre hospitales, centros de investigación, terapeutas, afectados y familiares la enfermedad de #GLUT1
FEDER | Enfermedades .. @FEDER_ONG
39K Followers 8K Following 👉🏻 Somos la esperanza de 3 millones de personas con #enfermedadesraras 🍀 Representamos a 418 organizaciones de pacientes y a 1.546 patologías poco frecuentes
Familias GA @GA1Familia
577 Followers 923 Following Asociación sin ánimo de lucro de familiares, amigos y pacientes con Aciduria glutárica tipo I y 2
European Society of E.. @ESEndocrinology
14K Followers 410 Following The European Society of Endocrinology, the voice for endocrinology. At the centre of Europe's endocrine community.
Encarna Guillén @encarna_guillen
7K Followers 4K Following Pediatra, Genetista Clínica @AreaUnoArrixaca @murciasalud @UMU @IMIB @CIBERER @AEGHgenetica #RareDiseases
Metabolicos.es @Metabolicos_es
1K Followers 538 Following Federación Española de Enfermedades Metabólicas Hereditarias. Pensando en Metabólico desde 1990
AECOM, Enfermedades R.. @Aecom_EIM
629 Followers 270 Following AECOM. Asociación Española mutiprofesional dedicada a las Enfermedades Metabólicas Hereditarias (EIM). 🩺🧬Integrada en la Sociedad Europea de EIM (SSIEM)
Marta Araujo-Castro, .. @Marta_Araujo_C
2K Followers 1K Following Endocrinologist of the Ramón y Cajal Hospital, Madrid. Spain. Coordinator of the Neuroendocrinology Unit. I'm focus on pituitary and adrenal diseases.
Jose Ramon Padin @JoseRPadin
496 Followers 1K Following Divulgación y Comunicación Digital sobre Enfermedades Raras y Medicamentos Huérfanos. Trabajo en @RecordatiRareEs Mis opiniones son exclusivamente personales.
febrararas @febrararas
166 Followers 19 Following Federação das Associações de Pessoas com Doenças Raras
JORGE FERNANDEZ @drjorfer
965 Followers 5K Following Especialista en Endocrinologia,Diabetes y Medicina IInterna. INCMNSZ.Brigham and Women Hospital.Maestría Ciencias Médicas.
Simon Cory-Wright @simoncorywright
14 Followers 35 Following
Amr Wahba @AmrWahbaMD
130 Followers 547 Following Endocrinology Fellow @UIOWA | Instructor in Clinical Medicine, Autonomic Dysfunction Center @VUMChealth | IM @MeharryMedical |•Tweets ≠ medical advice•
Bhl @Vidaendocrino
190 Followers 807 Following Especialista de Endocrinología y Enfermedades Metabólicas HMUCA-UCV
olys diaz @olysdiaz
0 Followers 5 Following
Dra Katherine Tomedes.. @kterinedlourdes
836 Followers 3K Following Endocrinólogo 👩🏻✍️ Para los q no perdemos la fe, lo mejor esta por venir 🙏
Amanda Long @AmandaLong56877
0 Followers 5 Following
Mark Kupferschmitt @MC_Oppersmith
14 Followers 31 Following
Ivana Badnjarević @IBadnjarevic
30 Followers 116 Following
AMEND @AmendInfo
1K Followers 593 Following AMEND provides information and support services to families with multiple endocrine neoplasia and associated disorders and annually funds research projects.
Dra. Paola A. Cubides @PaolaCubidesGen
29 Followers 223 Following Pediatric neurologist. My greatest passion is to explore the mysteries of neurometabolic disorders and neurogenetics.🧠🧬
갈비맨 @dykim0064783
487 Followers 1K Following
Omarwalid Noorzada @ONoorzada
32 Followers 243 Following Epidemiologist | Fulbright Scholar | MD | MPH. Views my own.
Jane Johnson @JaneJohns89758
0 Followers 45 Following
Elya Minasyan @elminasyan
287 Followers 897 Following
Richard Hines @rebinfla20
192 Followers 1K Following “I believe that man will not merely endure: he will prevail. William Faulkner”
Kiora Pharmaceuticals @KioraPharma
1K Followers 787 Following (NASDAQ: KPRX) Clinical development-stage pharmaceutical company focusing on novel therapeutics for treatment of orphan retinal diseases with high unmet need.
Mj Balaguer @mjose_balaguer
61 Followers 601 Following
ZeMet Clinical @zemetclinical
0 Followers 9 Following Unidad médica de atención especializada y humanizada para niños con enfermedades raras
Achalasia Action @AchalasiaAction
375 Followers 264 Following Support & information to those affected by the rare swallowing condition Achalasia; promoting knowledge amongst healthcare professionals: https://t.co/J4tckNMLqA
NR @NRdtw03
75 Followers 111 Following
Regulink @regulink
49 Followers 220 Following Regulink provides specialist consulting and support services in all areas of regulatory affairs for companies operating in the pharmaceutical sector.
Gillian Sapia RN @GillianHSapia
1K Followers 2K Following Rare Disease mom. Legislative Advocate and Activist. I post rare disease bills from Congress and Senate. Ask Congress to cosponsor current bills. Ask me how?!
Pat Reubens @PatReubens
23 Followers 83 Following
Lauren Rollit @lauren_rollit
113 Followers 1K Following MA Public History candidate @CU_History, alum @JSchool_CU & @HUMSCarleton. Views my own. she/her 🏳️🌈
خالدية @khaldia_a
127 Followers 887 Following
Enf. Huérfanas @EHuerfanasCo
665 Followers 213 Following -ENHU- se constituye como una instancia interinstitucional, abierta a mejorar la perspectiva y calidad de vida de las personas con algún diagnóstico de EH Col.
kaiao @kaizhao312777
9 Followers 116 Following 轻中度 医疗行业 ✨180 130只混圈不谈 （腿控）X男X未成年 私信带自我介绍 Switch感情身材控csj最好同城
Melo Thoughts: Future.. @MeloThoughtsAI
142 Followers 936 Following Unraveling the mysteries of tomorrow, today #digitalhealth #AI #undiagnosed #chronicillness #emergingtech #precisionmedicine
B&B @Bladeandbarrel
809 Followers 5K Following guns knives and drugs Parody investor account. Do not take me serious.
製薬Prince Vegeta �.. @CherryVegetable
509 Followers 477 Following 製薬界隈中心に、時事等なんでもつぶやきます。 MS→外資系製薬会社MR→本社勤務→転職による束の間のニート満喫→外資系製薬本社 （でも英語できない、全部中途半端） リアルでは周りから順風満帆と思われてますが、かなり深い闇を抱えてます。 @惑星ベジータ→北海道→東京→北海道→東京→惑星ベジータ→東京
carllimarck @carllimarck
880 Followers 2K Following The will to win, the desire to succeed, the urge to reach your full potential... these are the keys that will unlock the door to personal excellence.
Nola @toashyez13707
317 Followers 5K Following See the world on the road, and get to know yourself on the way!
CRISPRKing @CRISPRKING
747 Followers 4K Following Editing genes, one CRISPR at a time. The future is not written; it's engineered. Builder personality.
Adelqui @AdelquiSM
89 Followers 384 Following
BMEH Bicentennial Con.. @BirminghamMEH
4 Followers 45 Following Birmingham Midland Eye Hospital - 200 years Bicentennial Scientic Conference 7-8 December 2023
ENEA @ENEAssoc
525 Followers 37 Following
Vedika Pharmaceutical.. @Vedika_Pharma
2 Followers 19 Following we're dealing with Chronic Therapy medicine. Rare diseases, HIV HEPATITIS CANCER NEPHROLOGY UROLOGY RHUMATOLOGY etc contact us [email protected]
Amanda Potts @AmandaPotts
182 Followers 675 Following Neurology PA-C @middlesexCT dog mom, nature and hiking enthusiast, fitness+yoga, country+EDM, former dancer +artist living with persistent Cushing's Disease
Guillermo Reyes @gmoazteca
23 Followers 290 Following
LTC_Study @LTC_Study
132 Followers 267 Following Living with a long-term condition can be tough. We are here to better understand it. Help us by joining our research opportunity.
infectious diseases 2.. @Diseases2024
292 Followers 2K Following We are happy to welcome you to the official website of 2nd Global Meet on Infectious congress on March 12, 2024 as a Webinar.
Grover @Setheb146085
381 Followers 5K Following See the world on the road, and get to know yourself on the way!
Juan Cruz Almada Ares @almada_ares
24 Followers 406 Following ~Public intellectual. ~Neofilic polivalent. ~Doubtful.
Thay, Nara? @CortThatai
113 Followers 346 Following
The Journal of Inheri.. @JIMD_Editors
3K Followers 877 Following The JIMD is the official journal of the Society for the Study of Inborn Errors of Metabolism (SSIEM). Podcasts at https://t.co/QZggmJr9Of
Pedro Lendinez #Enfer.. @pelendinez
5K Followers 2K Following #EnfermedadesRaras #MasVisibles. ¿Te sumas? ¡Juntos llegaremos más lejos! Opiniones personales.
Dra A. García-Cazorl.. @AGarciaCazorla
2K Followers 2K Following Child Neurologist and Researcher Neurometabolism-Synaptic Metabolism Lab. Director of Research in #Neuropediatrics @SJDbarcelona_es Prof at UB. Tweets my own
HCU Network America @HCUAmerica
696 Followers 983 Following The mission of HCU Network America is to help patients with #Homocystinuria and related disorders manage their disease and to find a cure. #HCUNetworkAmerica
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
The Pituitary Foundat.. @Pituitary_org
8K Followers 5K Following Supporting anyone affected by pituitary conditions through helplines, support groups, and events. Join #TeamPituitary to raise essential funds
NeuroendocrinoSEEN @NeuroendocrinoS
3K Followers 701 Following Área de Conocimiento de Neuroendocrinología de la @sociedadSEEN
asGLUTdiece 🧬 @asglutdiece
602 Followers 2K Following Asociación de familias que pretende promover y divulgar entre hospitales, centros de investigación, terapeutas, afectados y familiares la enfermedad de #GLUT1
FEDER | Enfermedades .. @FEDER_ONG
39K Followers 8K Following 👉🏻 Somos la esperanza de 3 millones de personas con #enfermedadesraras 🍀 Representamos a 418 organizaciones de pacientes y a 1.546 patologías poco frecuentes
Familias GA @GA1Familia
577 Followers 923 Following Asociación sin ánimo de lucro de familiares, amigos y pacientes con Aciduria glutárica tipo I y 2
European Society of E.. @ESEndocrinology
14K Followers 410 Following The European Society of Endocrinology, the voice for endocrinology. At the centre of Europe's endocrine community.
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
EPNS @EPNSnews
3K Followers 3K Following European Paediatric Neurology Society (EPNS): a society for physicians, health professionals, scientists and students with an interest in Child Neurology.
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Jose Ramon Padin @JoseRPadin
496 Followers 1K Following Divulgación y Comunicación Digital sobre Enfermedades Raras y Medicamentos Huérfanos. Trabajo en @RecordatiRareEs Mis opiniones son exclusivamente personales.
Pituitary Society @PituitarySoc
2K Followers 116 Following Raising pituitary diseases awareness. RTs, shares, likes NOT endorsement! Cannot offer direct patients' medical advice, patients should consult their providers
Imagine for Margo @ImagineforMargo
6K Followers 768 Following Aide la recherche contre le cancer des enfants en France et en Europe. Association organisatrice des courses Enfants sans Cancer. #gofightwin #enfantssanscancer
Publer @publer
46K Followers 158 Following Your ultimate social media management platform 💚 Plan, Schedule, Collaborate, Analyse & Report Explore Publer for free: https://t.co/0HhKEaZa4Q
AcromegalyCanada @AcromegalyCAN
102 Followers 80 Following Acromegaly Canada works to raise awareness through education while providing a network of support for patients and their families across Canada.
Endocrine Oncology @EndoOncology
1K Followers 706 Following An #OpenAccess, peer-reviewed journal from @Soc_Endo & @bioscientifica. Publishing research & reviews on hormone-related cancer & cancers of #endocrine organs.
Acromégales APS @acro_aps
120 Followers 120 Following Association des patients atteints d'acromégalie https://t.co/2MshDtrLy6 #acromegalie #raredesease #maladierare #patientsassoc #Acromegaly #hormonedecroissance
Pauline Swindells @doodledame
162 Followers 443 Following Christian with 2 children, 4 grandchildren, 1 labradoodle Run Cushing's UK group on FB for people wanting to know about Cushing's, now SAI. Bereavement care
OMaR Malattie Rare @OssMalattieRare
7K Followers 978 Following Osservatorio Malattie Rare è la prima agenzia giornalistica dedicata al mondo delle #malattierare, dei #tumori rari e dei #farmaciorfani.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
EYRC @ENEA_Young
963 Followers 1K Following The ENEA Young Researchers Committee (EYRC) is a subcommittee of the European Neuroendocrine Association (ENEA)
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Finding that elusive .. @RareDiseaseDxRx
2K Followers 4K Following RareMDx contains 6964 signs/symptoms with descriptive characteristics. Physicians' selection of S/S expedites DDx process for 3754 different rare diseases.
ENEA @ENEAssoc
525 Followers 37 Following
Night Owl @Hyperpara1
45 Followers 121 Following
L. Bas Sibeijn @Bas_Sibeijn
10 Followers 52 Following
fortun @fortun34769722
1 Followers 22 Following
N D @NouraDrici
6 Followers 18 Following
D Badiuk ACROMEGALY @dbadiuk16
255 Followers 653 Following President/Founder/Director of the Vancouver Acromegaly Support Group. Ambassador of Canada for Acromegaly. President and Founder of Acromegaly Canada.
Niki Karavitaki @Karavitaki_Niki
3K Followers 497 Following Endocrinologist. Passionate about Pituitary gland - tries to understand it with her research for the benefit of patients. Loves Crete.
Acromegaly Community @AcroCommunity
1K Followers 1K Following Please visit our website at https://t.co/T0gLxcf98w. Membership, info & support always free!
LymphomaAction @LymphomaAction
10K Followers 6K Following We're the UK’s only charity dedicated to lymphoma - the most common blood cancer. We're here to inform, support and connect.
IPNA Ped Nephrology @IPNA_PedNeph
4K Followers 665 Following Our mission is to lead the global efforts to enhance the care for all children with kidney disease through advocacy, education, training and research.
Course des Héros @coursedesheros
2K Followers 2K Following Faites grandir une cause à grands pas! Participez à l’un des plus grands événements caritatifs de France!
Basri Gülbakan @basrig
163 Followers 2K Following Doç.Dr. Hacettepe Üniversitesi @hacettepe1967, Çocuk Sağlığı Enstitüsü, Çocuk Metabolizma Lab., || Alumnus: @UF, @ETH
MME @MMEAdvisors
103 Followers 668 Following MME is a global leader in the development of value-based strategies and market research for health care goods and services.
menosRaras @MenosRaras
888 Followers 2K Following Divulgando para hacerlas #menosRaras #EnfermedadesRaras
Mudskipper @MudskipperBiz
65 Followers 88 Following An independent global healthcare communications agency that thinks outside the pond. Mudskipper is an @AMICULUM_global agency.
Organic Acidemia Asn @OrganicAcidemia
963 Followers 1K Following The Organic Acidemia Assn, our mission is to support families, share awareness of organic acid disorders, fund research for better treatments & advocate NBS.
Romuald Coutard @CoutardRom
31 Followers 132 Following
Outrigger Cold Brew C.. @outriggercoldbr
5K Followers 4K Following Cold Brewing the Aloha Spirit HI-CA-MI-NC-ATX 🦮🛶 A proud sponsor of the Charge the Wave podcast 🧋🌊
Bianca Albanese @DrBAlbanese
405 Followers 649 Following Biomedical Engineer | PhD | Injury Prevention Researcher | PKU | PKU Advocate | ~All views are my own ~ Instagram: https://t.co/jcME7oD3Qf
Fred Tronel @FredTronel
1 Followers 23 Following
PROS Foundation @PROS_Foundation
253 Followers 227 Following
Angelea @angelea_kuipers
80 Followers 208 Following Aspiring genetic counselor seeking to explore topics of genetics, counseling, & patient advocacy by connecting with others. Let's chat! #gcchat
Fiori Bocaj @Fiorib3
26 Followers 120 Following 🩺Pediatrician. Department of Pediatric Neurology. PhD student, Congenital disorders of glycosylation (CDG)
SCN1B @b_scn1
992 Followers 5K Following Sodium channel 🧬 Epilepsy 🧬 Scn1b news & awareness 🧬 Sharing and re-tweeting SCN1B info 🧬
elix @elix89903264
3 Followers 52 Following
BioAscent @BioAscent
469 Followers 436 Following A truly integrated drug discovery service: medicinal & computational chemistry, in vitro biosciences, DMPK, compound management and a diverse screening library.
🔴 NEWS - L'@HeklaTour, joyau de @ParisLaDefense séduit un troisième locataire ! Le groupe pharmaceutique Recordati, représenté en France par ses deux sociétés, les Laboratoires BOUCHARA RECORDATI et @RecordatiD, va transférer son siège social France au 7e étage.
✌WEBINAR✌️ 𝑨𝒗𝒂𝒏𝒄𝒆𝒔 𝒆𝒏 𝒆𝒍 𝒕𝒓𝒂𝒕𝒂𝒎𝒊𝒆𝒏𝒕𝒐 𝒅𝒆𝒍 𝑺𝒊́𝒏𝒅𝒓𝒐𝒎𝒆 𝒅𝒆 𝑪𝒖𝒔𝒉𝒊𝒏𝒈 📅Jueves 17 de Noviembre 🕠17:30h - 19:00h 👇𝗥𝗘𝗚𝗜𝗦𝗧𝗥𝗔𝗧𝗘👇 bit.ly/3DmWN6j Ponentes: @danielendocrino @Pilarlvarez17 #JoseMaríaRecio
The Cuteneous Lymphoma Foundation and Recordati Rare Diseases are delighted to invite you, healthcare professionals, to EORTC end-of-congress Patient Seminar on Saturday 16th October from 14:30 to 17:30. Register here - For HCPs only: tinyurl.com/fpfyb9r
1st day of ESPN 2021! With the Working Group Meetings @EspnYpnn
On #Cushing awareness day, we provide a clinical update about the Cushing’s syndrome in webinars. ow.ly/q69150EiL8J #endocrine #RareDisease Orphan #Medicine @HraPharma @RecordatiD @EMA_News @EU_Health @EP_Environment @eurordis
There is also another session happening in the SfE Theatre at 12:15. Join to learn about optimising acromegaly patient outcomes from @RecordatiD and @AnitaLivia4958. #SfEBESOnline
A massive thank you to all our sponsors for helping to make #SfEBESOnline possible. Make sure you visit them at their virtual stands to say hello and find out more about what they do. @HraPharma @Pfizer_UK @IpsenGroup @novonordisk @RecordatiD @thermofisher
Interested in #cushing's ? @RecordatiD are sponsoring an SfE Theatre session at 12.15pmm on pasireotide in the treatment of Cushing’s syndrome and disease & a new option in the management of Cushing’s syndrome. #SfEBESOnline
🍀 Queremos dar las gracias a @RecordatiD por su apoyo a nuestra XI Escuela de Formación CREER-FEDER 🔸 Con su compromiso han contribuido a la creación de un espacio para favorecer el empoderamiento y el crecimiento.
Don’t miss the upcoming #eECE2020 ‘Guideline Sessions’ led by our own Deputy Editor Professor Olaf Dekkers. If you’re interested in the latest clinical guidelines, see the guideline collection published by EJE - ow.ly/YH1g50BhOox
La #cistinosis nefropática se trata de una enfermedad hereditaria de baja prevalencia causada por el acúmulo del aminoácido cistina en el riñón, lo que provoca un deterioro progresivo de este órgano. #366DiasdeEERR #masvisibles #AvancesEIM
#Cystinosis may lead to various organ complications, including the eyes & could cause a decrease in visual acuity, photophobia and in severe cases, blindness. It is crucial for cystinosis patients to have a regular follow-up with their ophthalmologist & to be properly treated
For those attending #RDDS , much thanks to @GlobalGenes @CuresWithinReach Goldman Philanthropic Partnerships @MDBRide4Rare @HorizonNews @RecordatiD and Judy Hirsch Foundation. Don't forget to vote!
Today 5 clinical #repurposing trials vie for $50K at CureAccelerator Live! for #RareDiseases representing @ChildrensPhila @StanfordMed @UCDavisHealth @UCIrvineHealth @umichmedicine during @GlobalGenes #RDDS bit.ly/cwrcalrare2020
Did you know? 6-8 percent of the EU population suffer from a #RareDisease ? We have much work with greater #partnership across the #EU @irene Norstedt, Director DGRi @EU_Commission #patientengagement #cocreation
¿Conoces la Recordati Rare Diseases Foundation? via @RecordatiD Advancing knowledge in #rarediseases: independent, professional education and training. @NoInvisibles @aepediatria @RRD_Foundation @AGarciaCazorla @seghnp @DrIsidroVitoria @RecordatiRare @CasenRecordati
New courses will come next year! It is very likely that neurometabolism will become an universal approach in the study and treatment of many neurological disorders. Don't miss this exciting course! @RRD_Foundation
Neurometabolic diseases: “it’s all in the brain” - postponed to spring 2021 Barcelona, Spain, NEW DATES TO BE CONFIRMED. rrd-foundation.org/en/course/neur… @AGarciaCazorla @senep_es @seneurologia
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