RareBoost @RareDiseasesIBG
The RareBoost ERA Chairs project at IBG is on a mission to revolutionize the research and understanding of rare and undiagnosed diseases. rareboost.ibg.edu.tr Izmir, Turkey Joined July 2020-
Tweets234
-
Followers127
-
Following44
-
Likes46
BellaSwift @KUf59mvTf24FoU
15 Followers 2K Following
İBG @ibgmerkezi
10 Followers 68 Following Izmir Biomedicine and Genome Center İzmir Biyotıp ve Genom Merkezi
Elif Bilge Kiriş @bilge_kiris
13 Followers 211 Following Med Student | Ege University Faculty of Medicine
ERN ReCONNET 🇪🇺 @ern_reconnet
3K Followers 889 Following 🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
envilife_prisma @Envilife_Prisma
18 Followers 146 Following This project was supported by the Science Fund of the Republic of Serbia Grant No 7335
Begüm Erdoğan Utz @BegumErdogan
264 Followers 334 Following Product manager at a biotech start up. Vanderbilt Uni PhD. Mom of 4 👶👶🐕🐕🦺.🇹🇷🇺🇸🇫🇮
gokcekenar @goksu_kemer
67 Followers 484 Following Rheumatologist, Dokuz Eylul University School of Medicine, Izmir, Turkey
Ugur Ozbek @drugurozbek
68 Followers 166 Following Medical Geneticist, Rare Diseases, Molecular Hematology, Hereditary Cancers
Pelin Ulca @pelinulca
945 Followers 1K Following Fotografçı, Operasever, Dijital dünyadaki destekçiniz.
Cripples Unite @UniteCrips
14 Followers 397 Following
REPO4EU @REPO4EU
322 Followers 499 Following The #HorizonEU initiative building a global platform for #DrugRepurposing powered by #AI | Collaboration & knowledge transfer for #NetworkMedicine 💊
Genc Lab on Neurodege.. @ibggenclab
34 Followers 121 Following Prof. Dr. Sermin Genc's lab @ibgcenter @universitemDEU #Microglia #Inflammasome #Neuroinflammation #Neurodegeneration #Exosome #Nrf2
ERN TransplantChild @TransplantChild
736 Followers 406 Following European Reference Network on transplantation in children
المدرب علي �.. @nash050708
608 Followers 2K Following مدرب تنمية قدرات إعلامية وإدارية وحقوقية وبيئية، مدرب مدربين ، محلل احتياجات تدريبية استشاري مؤسسي وتسويق . Personal and Corporate Lifestyle Trainer
Widening Research @WideningR
6 Followers 55 Following PO working on EU research, “Widening Participation and Spreading Excellence” programme Opinions are on my own Retweet does not mean endorsement
yellowhead @TayfunCinleti
0 Followers 1K Following
Ozan Özışık @OzisikOzan
94 Followers 159 Following Researcher in bioinformatics, mostly network biology Inserm U976 HIPI
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
Eray @kushikaf
34 Followers 397 Following
Serhan Turunç @Serhan_Turunc
33 Followers 604 Following
Rare Diseases @RareDiseases23
54 Followers 466 Following We welcome you to "6th International Conference on Rare Diseases" which is going to be scheduled on February 20-21, 2023 Amsterdam, Netherlands.
👌🏻🙆🏻�.. @syhpaleht
2 Followers 334 Following
Rob Digital Marketing @rgraymarketing
717 Followers 3K Following 25 years marketing. 18 years social media + digital marketing. Views are personal.
Sude Güneş @sudegunes09
11 Followers 578 Following Polymer Science and Engineering Graduate Student at IZTECH, BSc in Bioengineering
Ozlemakgundogan @ozlemakgundogan
8 Followers 110 Following
Duygu Sağ @_duygusag_
121 Followers 33 Following Associate Prof./ DEU, iBG 🔬Immunologist #forwomeninscience
Franca Damptey @FrancaObaapa
60 Followers 215 Following Christian. Wife. Mother. Registered Mental Health Nurse. Ghanaian.
Cakan Zebrafish Model.. @CakanLab
220 Followers 341 Following Industrial R&D Program Zebrafish Models Research Group🧬🧫🧪🐟 Izmir Biomedicine and Genome Center Izmir/Turkey
Benjamin Arthur @bencees1
260 Followers 2K Following I'm a Planner (Urban&Policy) and OHSE Professional. Friend of the Environment and Natural Reserves, and I love kids. Husband, Father and Christian.
Se4All @Se4All1
404 Followers 2K Following The Se4All action will be focused on optimizing the concentration and bioavailability of Se in milk and dairy products.
Bora Tastan @boratastan13
230 Followers 584 Following Postdoctoral Researcher @lcsb_uni_lu #EMBOFellow Previously @ibgcenter , @iyteedutr #Microglia #Inflammasome #Neuroimmunology 🔬🧪🧬
Ozlem Yayıcı Köken.. @oyk60336441
139 Followers 364 Following Alaz’ın annesi💙,Pediatrist🐣, Çocuk Nöroloğu🧠,Tibbi Genetik Doktora Ögrencisi🧩; Mum of Alaz, Pediatrician, Child Neurologist, PhD student at Medical Genetics
Beliz OZUT @belizozut
105 Followers 232 Following
Seyit Kale / Kale Lab @KaleLabBiophys
272 Followers 586 Following Research Group Leader @ibgcenter Lecturer @izmkatipcelebi | chromatin, epigenetics, immunotherapies, rare diseases | high-performance computing & stat phys
EATRIS @EatrisEric
3K Followers 2K Following The European Research Infrastructure for Translational Medicine #EU_RI. Supporting research communities translate scientific discoveries into #patient benefit.
Bengisu Dönmez @bengisuudonmez
782 Followers 2K Following Biochemistry and Molecular Biology, MSc | Acibadem University
Çetin AKIN @cetinakin
598 Followers 800 Following
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
ERN TransplantChild @TransplantChild
736 Followers 406 Following European Reference Network on transplantation in children
_ERNRITA @_ERNRITA
1K Followers 898 Following ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe
Screen4Care @Screen4Care
325 Followers 124 Following Accelerating Diagnosis for Rare Disease Patients Through Genetic Newborn Screening and Artificial Intelligence
YavuzOktay-IBG @ibgnomx
528 Followers 776 Following
ICORD @ICORD_RARE
130 Followers 88 Following ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs
ERN ReCONNET 🇪🇺 @ern_reconnet
3K Followers 889 Following 🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
Gerhard Wingender @WingenderG
65 Followers 62 Following Curious immunologist; interested in weird cells and how to make the world smarter, healthier, and happier.
Sarkaç @sarkac_org
25K Followers 581 Following @BilimAkademisi'nin popüler bilim yayını - https://t.co/pI7wztuoj0 #meraklısınabilim #sarkaç #sarkaçpodcast
Oktay Lab @NeuroGenomicsL
122 Followers 73 Following The overarching goal is the elucidation of mechanisms leading from genomic variation to diseases of the human nervous system. PI: Yavuz Oktay @ibgnomx
Prof. Dr. Ahmet Yozga.. @ayozgatligil
2K Followers 334 Following Sanayi ve Teknoloji Bakan Yardımcısı/ Deputy Minister of Industry and Technology
ERN EuroBloodNet @ERNEuroBloodNet
2K Followers 412 Following ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases
ACURARE @ACURARE1
460 Followers 227 Following Acıbadem Üniversitesi Nadir Hastalıklar ve Yetim İlaçlar Uygulama ve Araştırma Merkezi
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
RareConnect @RareConnect
19K Followers 5K Following 🌐Connecting #raredisease patients globally at https://t.co/v6rTTK0X6I. 💻Website help at @RareConnectSup.
Wellcome Sanger Insti.. @sangerinstitute
74K Followers 2K Following We are a world leader in genomics research. We apply and explore genomic technologies to advance the understanding of biology and improve health 🧬
SETD 5 @SETD_5
83 Followers 476 Following SETD 5 Microdeletion Syndrome Critical Region. Intellectual & Physical Disability. Genetic Protein Coding on DNA/RNA affecting Human Brain & Chromosomes.
Finding that elusive .. @RareDiseaseDxRx
2K Followers 4K Following RareMDx contains 6964 signs/symptoms with descriptive characteristics. Physicians' selection of S/S expedites DDx process for 3754 different rare diseases.
Fmf hastalığı-BEFE.. @fmfgrubu
1K Followers 2K Following Ailevi Akdeniz Ateşi (fmf) hastalarını bilgilendirme amacı ile kurulmuş BEFEMDER Derneği’nin çevrimiçi platformudur.
Beyond the Diagnosis @BeyondtheDx
9K Followers 5K Following Beyond the Diagnosis unites art and science to inspire research and innovation of treatments for people living with rare and neglected diseases.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
European Commission @EU_Commission
1.9M Followers 598 Following News and information from the European Commission. Social media and data protection policy: https://t.co/Gz53Net1PO
EUScience&Innovation�.. @EUScienceInnov
134K Followers 863 Following Official account of DG Research & Innovation @EU_Commission, managing @HorizonEU & implementing the EU Commission's R&I strategy. Follow also @lemaitre_eu
Horizon Europe🇪�.. @HorizonEU
181K Followers 2K Following Official DG Research & Innovation account for EU's #HorizonEU research & innovation programme Follow @EUScienceInnov & @lemaitre_eu
Jale Şahin @JSAHIN_
111 Followers 112 Following
EJP RD - European Joi.. @EJPRareDiseases
4K Followers 2K Following #EJPRD - European Joint Programme on Rare Diseases | RTs shares likes ≠ endorsement
RareDiseaseNurseNetwo.. @NurseRare
251 Followers 66 Following Helping nurses and clinicians connect in the Rare Disease environment
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Gulcin Gumus @gulcingumus1
597 Followers 618 Following Molecular biologist and geneticist & Research and Policy Senior Manager @eurordis Rare Diseases Europe #genomics #diagnosis #newbornscreening #patientadvocacy
Nadir Hastalıklar @nadiRare
173 Followers 73 Following Nadir genetik hastalıklar bilgilendirme platformu
ACU Nadir Hastalıkla.. @acunadir19
526 Followers 103 Following Acıbadem Üniversitesi'nin gönüllü öğrencilerinden oluşan bir öğrenci kulübüyüz. Instagram: acurareclub
Nadir Hastalıklar A�.. @NadirHasAg
1K Followers 52 Following Nadir Hasta Derneklerinin bir araya gelmesiyle oluşturulan Ağ / #nadirizveiçinizdeyiz #nadirhastalıklargünü #nadirinfarkındaol
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
RareDiseaseFdn @rarediseasefdn
9K Followers 517 Following Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
Rare Disease UK @rarediseaseuk
22K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
PSR Orphan Experts (n.. @PSRorphan
5K Followers 3K Following We’ve moved! PSR Orphan Experts is now Ergomed. To stay updated on future news, please follow us on the Ergomed Twitter page at https://t.co/mWUAHD63Iq
Rare Diseases Ireland @RareDiseasesIE
4K Followers 1K Following Equitable access to healthcare and opportunity for all! RDI - advocating for equitable access for the 300,000 people in Ireland living with rare diseases.
Rare Disease Policy @RareDiseasesEU
4K Followers 962 Following @RareDiseasesEU is currently managed by Victoria Hedley, RD Policy Manager @ Newcastle University (formerly account 4 RD-ACTION & EUCERD JA). Views now my own
Medics4RareDiseases @M4RareDiseases
5K Followers 2K Following Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRare
Rare Diseases Clinica.. @rarediseasesnet
8K Followers 507 Following NIH-funded network fostering collaborative research among 20 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
BBMRI_Tr @BbmriTr
130 Followers 62 Following The Turkish node of the European Biobanking and Biomolecular Resources Research Infrastructure Avrupa Biyobanka ve Biyomoleküler Kaynaklar Platformu TürkiyeWe're lighting up Ireland for #RareDiseaaeDay on February 29th
Rare Disease Day is 1 month away! 📣 Join the movement: #LightUpForRare and #ShareYourColours! Download our materials available in multiple languages to maximise our global impact: rarediseaseday.org/downloads/ Quote tweet this and tell us what you're doing for Rare Disease Day!
"Dünyada yaklaşık 350 milyon bireyin, ülkemizde ise 5 milyon civarında hastanın nadir bir hastalığa sahip olduğu tahmin ediliyor." #nadirhastalıklargünü @SevgiBB_PhD sarkac.org/2021/11/nadir-… via @sarkac_org
Yayındayızzz 🎉 Klibimizi de yayınlamak için 28.02.2022 tarihini büyük bir heyecan içinde bekliyorduk ve o farkındalık oluşturan gün geldi🥳 Klibimizin tamamına aşağıdaki linkten ulaşabilirsiniz ⬇️ youtu.be/cJpK4oyfguQ @ACURARE1 #nadirmüzik #nadirmuzik #nadirinfarkındayız
Medical geneticist and rare disease advocate, @genedocrare, recently discussed the importance of developing new ways to diagnose and treat #RareDiseases. Read the full article now at @thehill: bit.ly/3dfKfAX
At 9 months old, Palden was diagnosed with spinal muscular atrophy. At the time, hers was the first and only known case in Bhutan. Now aged 12, Palden is a determined, strong and ambitious girl who inspires her family & friends every day. Read her story: l.eurordis.org/seKE
Nobel Ödüllü Bilim İnsanı Prof. Dr. Aziz Sancar öncülüğünde ilk defa gerçekleştirilecek Prof. Dr. Aziz Sancar Burs Programı ile araştırmacılarımızı desteklemeye devam ediyoruz!🌟 Geleceğimizin bilim insanları için değerli hocamızın izinde ilerliyoruz. tubitak.gov.tr/tr/haber/prof-…
Submit your abstract on ethical, legal and social issues of Artificial Intelligence in biobanking by 16 Nov 2021. bit.ly/30AO8gP #ELSI #AI #governance #AI #biobanking #EthicsofAI #BBMRI_ELSI
DEADLINE Extension! Submit your abstract on ethical, legal and social issues of Artificial Intelligence in biobanking 📅16 Nov 2021 bit.ly/30AO8gP #ELSI #AI #governance #AI #biobanking #EthicsofAI #BBMRI_ELSI
Search the Directory here: directory.biobankinguk.org #biobanking
Need samples for your #research? Our Directory can help you find relevant existing collections 🧪🧫 - potentially saving you time and money 😀 Search the Directory here: directory.biobankinguk.org #biobanking #ECRChat #PHDChat #AcademicChatter
September is Tay-Sachs Awareness Month. Meet Cora, lovingly painted by Lori Jeremiah. Cora lost her battle to Tay-Sachs in May of 2017. Cora was born into a loving family and is remembered for her bubbly and sweet personality. #taysachs #RareDisease
I am speaking at ESCF - European Sickle Cell Disease Summit 2021. Please checkout the details of my talk at: whova.com/xems/apis/open…
“How far would you go for your child?” Barefoot, @brannigan001 asks the crowd gathered outside of @jacksonlab this morning. #HopeForHasti #RareDiseases #TogetherWeAreStrong
@BbmriTr "Rare Diseases Task Force" group met to discuss the best way to share knowledge, increase awareness and collaborate on #rarediseases #biobanking #biobanks
Çocuk Metabolizma Hastalıkları Akademisi’nin her yıl Mart ayında düzenlediği sempozyum serisi, bu yıl pandemi sebeiyle 15-16 Ekim 2021 tarihinde uzaktan erişimli olarak yapılacak. Program ve kayıt için cmak.org.tr #nadirhastalıklar #sempozyum #çocuklukhastalıkları
Training #course on “Quality assurance, variant interpretation and data management in the NGS diagnostics era” #RareDisease #RareDiseases October 27 –29, 2021
3rd Training #Course “Quality assurance, variant interpretation and data management in the NGS diagnostics era” October 27 –29, 2021 organised by @istsupsan endorsed by @ICORD_RARE @eshgsociety @eurogentest @UDNIss @SIGU_97 Info and registration ➡️ejprarediseases.org/event/quality-…
#Biobanking Knowledge and Practical Skills Delivered Through E-learning-based Master's Program - by Gabriele Hartl, Christine Mitchell, Macheiner Tanja, Brigitte Jaksa, Berthold Huppertz and Karine Sargsyan, MD, at @MedUniGraz
#Biobanking Knowledge and Practical Skills Delivered Through E-learning-based Master's Program - by Gabriele Hartl, Christine Mitchell, Macheiner Tanja, Brigitte Jaksa, Berthold Huppertz and Karine Sargsyan, MD, at @MedUniGraz biobanking.com/biobanking-kno…
Check out our Marketing & Engagement Manager, Blayne, rocking her @_nicegenes hat! We are proud to partner w/ Nice Genes, who donates their net profits to #ScientificResearch & #PatientSupport organizations like us Shop now to #Donate to Findacure! 👉 nicegenes.co
👩🔬As scientists sometimes we focus too much on publishing & every now and then we need to be reminded of why we do what we do. For those who need a reminder, today is Undiagnosed Children's Day.More than 65000 children are born in Europe each year with an Undiagnosed condition.
"What is more dangerous?" #sciencecommunication #scicommtalkseries #MCAA #MCAAIT #anticovidvaccine #scicomm #vaccine #vaccination #CovidVaccine (This work was realized within MCAA Italy Chapter Science Communication talk series)
📢 NEW! The official #RareDiseaseDay video is out NOW 🎉Watch the 6 real life stories and be inspired to join the 2021 campaign. 👥 Share this post with your followers using this hashtag #RareDiseaseDay
@eurordis Yenidoğan Taraması Çalışma Grubu olarak yayımladığımız "Yenidoğan Taraması için 11 temel ilke" isimli belgeye aşağıdaki linkten ulaşabilirsiniz👣🩸 👉eurordis.org/newbornscreeni… #yenidogantaramasi #nadirhastaliklar
Yeni doğan tarama için 11 temel ilke @eurordis tarafından yayımlandı. 👇🏻👇🏻🧬 #yenidoğantarama #newbornscreening
Trends for United States
You might like
