RARE Science @RARE_Science

We are a nonprofit research organization accelerating therapeutic solutions for patients and fostering research collaboration in the rare disease community. Rarescience.org San Diego, CA Joined March 2014

Tweets

463
Followers

1K
Following

216
Likes

381

Rare Genomics @RareGenomics

9 years ago

Thanks to our friends @RARE_Science for donating #RAREBears to 13 children who received free clinical whole genome sequencing from RGI!

1 5 22 0 0

View Details

RARE Science @RARE_Science

9 years ago

Help our #boyscout earn is #Eagle! Partnering 2 build a global outreach program 4 #EDS, sending 1000 #RAREBears home rarescience.org/donate/

1 8 16 0 0

View Details

RARE Science @RARE_Science

9 years ago

Our goal is to send 1000 #RAREBears home this June! #Donate today to help w/ shipping &bring smiles around the world gofundme.com/SendARareBear

0 3 6 0 0

View Details

RARE Science @RARE_Science

9 years ago

Take a look into what life is like for children living with #EhlersDanlosSyndrome #awareness #dazzletogether x.com/TheEDSociety/s…

The Ehlers-Danlos Society @TheEDSociety

9 years ago

When I Asked 25 Kids With Ehlers-Danlos Syndrome What Their Lives Are Like ow.ly/sMVl30bUVm1

0 27 29 0 0

0 0 4 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

Check out ehlers-danlos.com for more info #DazzleTogether

1 30 25 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

But you don't look sick! Check out ehlers-danlos.com for more information. #DazzleTogether

1 59 56 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

Ehlers-Danlos patients often have GI comorbidities Learn more at bit.ly/2qQiQ2q #DazzleTogether

3 35 41 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

Check out ehlers-danlos.com for more info #DazzleTogether

0 21 36 0 0

View Details

RARE Science @RARE_Science

9 years ago

This is what #RAREScience is all about! Finding connections and, from there, cures. #ehlersdanlosawareness #raredisease #nonprofit x.com/TheEDSociety/s…

The Ehlers-Danlos Society @TheEDSociety

9 years ago

Diagnosis delays are a huge problem for patients with EDS. Check out ehlers-danlos.com for more information. #DazzleTogether

2 43 51 0 0

0 4 7 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

Why do hypermobility spectrum disorders affect people differently? Check out ehlers-danlos.com for more information. #DazzleTogether

2 36 37 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

If many forms of EDS are collagen disorders, can we take collagen supplements? Go to ehlers-danlos.com for more info. #DazzleTogether

2 36 39 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

What is Vascular Ehlers-Danlos Syndrome? Check out ehlers-danlos.com for more information. #DazzleTogether

1 32 21 0 0

View Details

RARE Science @RARE_Science

9 years ago

May is #EhlersDanlosSyndrome Awareness Month! Check out some cool facts and #dazzletogether. #awareness #ehlersdanlosawareness #nonprofit x.com/TheEDSociety/s…

The Ehlers-Danlos Society @TheEDSociety

9 years ago

What are the most common forms of EDS? Check out ehlers-danlos.com for more information! #DazzleTogether

0 53 44 0 0

0 1 2 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

What are the Hypermobile Spectrum Disorders? Check out ehlers-danlos.com for more information! #DazzleTogether

0 50 36 0 0

View Details

The Ehlers-Danlos Society @TheEDSociety

9 years ago

What are the Ehlers-Danlos syndromes? Check out ehlers-danlos.com for more information! #DazzleTogether

0 53 49 0 0

View Details

RARE Science @RARE_Science

9 years ago

ICYMI: We had our bear match for @IFF_FOXG1 last Sunday and bears are on their way home! #awareness #RAREBearArmy #donate #FOXG1syndrome x.com/Jimmay82/statu…

The Ehlers-Danlos Society @TheEDSociety

9 years ago

What are the most common forms of EDS? Check out ehlers-danlos.com for more information! #DazzleTogether

0 53 44 0 0

0 1 1 0 0

View Details

Repositive.io @repositiveio

9 years ago

If we could lower barrier to access to data we could make a real difference to #rare #diseases - Christina Water at #BioDataWest

0 4 4 0 0

View Details

RARE Science @RARE_Science

9 years ago

We're so happy to see the #RAREBears have made themselves at home with #warriors Dylon, Ethan… instagram.com/p/BTX0eICFDDO/

0 0 3 0 0

View Details

Manuel Corpas @manuelcorpas

9 years ago

#biodatawest @RARE_Science can help gather info by combining similar diseases - they even have an app that collects info from patients

0 3 4 0 0

View Details

Manuel Corpas @manuelcorpas

9 years ago

#biodatawest @RARE_Science - giving hope to patients

1 1 2 0 0

View Details

Digital magazine giving a voice to those affected by rare conditions and the charities that support them.

Contact us: hello@rarerevolutionmagazine.com

RARE Revolution Magaz... @RareRevolutionM

12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]

Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Beacon for Rare Disea... @RareBeacon

12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

Effie Parks @OnceUponAGene

7K Followers 4K Following Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

Stephanie Fischer @RarePOV

7K Followers 5K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.

Global Genes @GlobalGenes

29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare

Cambridge Rare Diseas... @camraredisease

8K Followers 6K Following Improving outcomes for those living with rare conditions. Also find us at: https://t.co/kZWskP9Ojj

CheckRare @CheckRare

3K Followers 2K Following Leading publisher and learning platform focused on rare diseases. Rare Diseases Are Our Focus, Expertise, and Passion.

Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.

EveryLife Foundation @EveryLifeOrg

7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.

Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health

Abby Turnwald (she/he... @PedsGCAbby

972 Followers 991 Following Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health

MPS Society UK is the only registered charity providing professional support to those affected by MPS, Fabry and related diseases.

MPS Society UK, here ... @MPSSocietyUK

2K Followers 1K Following MPS Society UK is the only registered charity providing professional support to those affected by MPS, Fabry and related diseases.

Best Science & Medicine #Podcast Award Winner 🧬
•
#GeneticCounselor @KiraDineen Interviews #Genetic Experts
•
#DNA #Scicomm #GeneChat

DNA Today: A Genetics... @DNATodayPodcast

4K Followers 4K Following Best Science & Medicine #Podcast Award Winner 🧬 • #GeneticCounselor @KiraDineen Interviews #Genetic Experts • #DNA #Scicomm #GeneChat

National Society of Genetic Counselors (NSGC) is the leading voice, authority and advocate for the genetic counseling profession. RT does not equal endorsement.

Genetic Counselors @GeneticCouns

15K Followers 583 Following National Society of Genetic Counselors (NSGC) is the leading voice, authority and advocate for the genetic counseling profession. RT does not equal endorsement.

We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.

Rare Patient Voice @rarepatientvoic

2K Followers 3K Following We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.

Professor of Genetics @ Newcastle University | Rare Disease Researcher & ECM Biologist | Yorkshire Cricket & Psychedelic Rock | Also @Dterritorials

Michael Briggs 🔬�... @MD_Briggs

3K Followers 3K Following Professor of Genetics @ Newcastle University | Rare Disease Researcher & ECM Biologist | Yorkshire Cricket & Psychedelic Rock | Also @Dterritorials

'Alström Syndrome is a rare genetic condition affecting every organ in the body. ASUK provides support & guidance for those affected.' Tweets by Catherine Lewis

Alström Syndrome UK @AS_UK

2K Followers 5K Following 'Alström Syndrome is a rare genetic condition affecting every organ in the body. ASUK provides support & guidance for those affected.' Tweets by Catherine Lewis

Patient Worthy @PatientWorthy

8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.

The European Rare Diseases Research Alliance.

Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.

ERDERA @ERDERA_org

4K Followers 2K Following The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.

dazzle4rare @dazzle4rare

1K Followers 1K Following Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5

Same but Different create thought-provoking exhibitions that stimulate conversation, change attitudes and empower individuals.

SamebutDifferent @SBDRareProject

2K Followers 3K Following Same but Different create thought-provoking exhibitions that stimulate conversation, change attitudes and empower individuals.

Rareminds @RaremindsUK

854 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…

We're building the AI-powered tools patients deserve. One place for all records + intelligent insights. Engineering healthcare's future. Join our mission.

citizen.health @CitizenHealthX

10 Followers 69 Following We're building the AI-powered tools patients deserve. One place for all records + intelligent insights. Engineering healthcare's future. Join our mission.

chris turpin @raytheus

11 Followers 101 Following

Lindsey @Lindseyniccolee

0 Followers 6 Following

WinniJuliet @O1tFy746Ix93SR

64 Followers 7K Following

Rwandan citizen, Psychiatrist.
C.A.S. in Forensic psychiatry
C.A.S in Law, forensic sciences § forensic medicine
Geneva University Hospitals/Switzerland

Alfred Ngirababyeyi @ANgirababyeyi

3K Followers 7K Following Rwandan citizen, Psychiatrist. C.A.S. in Forensic psychiatry C.A.S in Law, forensic sciences § forensic medicine Geneva University Hospitals/Switzerland

Rernesto Vazquezp @VazquezpV88606

0 Followers 23 Following

Dawn Lynes @DawnLynes1

59 Followers 130 Following

Donna Holdsworth @donna290471

9 Followers 94 Following

Veronica @VeronTron2002

0 Followers 32 Following

Frankie21 ☮️  @frankie6921

127 Followers 1K Following She/Her

Deborah Costa @deborahhcostamm

5 Followers 240 Following mãe do Davi, autista com alteração genética rara #CACNA1C

Sheytaez @sheytaez37857

62 Followers 3K Following

us_Kylie_ @us_kylie46780

15 Followers 973 Following

Anita Davies @ADavies22991

0 Followers 8 Following

Maddie Haller (she/he... @mhaller11

60 Followers 65 Following Endpoint Development and Strategy Manager at Ultragenyx

Ashley N. DeLorge @derpydarroh

129 Followers 3K Following

Jason Noga @JayThomasNoga

539 Followers 3K Following #Biopharma marketing professional. Lover of aged bourbon and fine denim.

Henrietta @Natese14614

59 Followers 2K Following "I'm always up for a good adventure."

Bob McBride @BobMcBr42050005

16 Followers 94 Following DMD Father End Duchenne

Helping investigators find funding for their research projects and raising the research hum level at Cedars-Sinai Guerin Children's.

Lito Rodriguez @LitoRodriguezLA

11 Followers 49 Following Helping investigators find funding for their research projects and raising the research hum level at Cedars-Sinai Guerin Children's.

Angelica Aguero @NWpophuntress

195 Followers 288 Following Toy collector and convention enthusiast! Follow me on Instagram! @nwpophuntress

Rafael @_RafaelSierra

6 Followers 15 Following Medical Affairs Leader for Interested in #RareDiseases #Neurology #Liver #Hepatology #Bone

clairebear @ceo_afp

226 Followers 888 Following Co-founder and CEO of Claire. Making Doctors Great Again.

Bloom Science is a clinical-stage, central nervous system (CNS) company developing novel therapeutics through the #GutBrainAxis for neurological diseases.

Bloom Science @BloomScience

163 Followers 333 Following Bloom Science is a clinical-stage, central nervous system (CNS) company developing novel therapeutics through the #GutBrainAxis for neurological diseases.

Laura Palmer @LauraPalmer712

608 Followers 748 Following Language Arts teacher, parent of 3, lover of reading and running, epilepsy and rare disease mom.

Alayna Ricketts @alayna11d6

137 Followers 244 Following I have nothing witty to say...don't judge me XU Class of 2018

Kelli McIntosh @Kelli_McIntosh1

16 Followers 58 Following

Creating intuitive/trance state art. Abstract/modern/expressionism/action art or commercial art. Narcoleptic dreamer

Vavrosky Art @VavroskyArt

2K Followers 1K Following Creating intuitive/trance state art. Abstract/modern/expressionism/action art or commercial art. Narcoleptic dreamer

PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for patients with rare disease

PTC Therapeutics @PTCBio

2K Followers 293 Following PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for patients with rare disease

Valerie @canadabiologist

67 Followers 147 Following McGill genetic counselling & UBC biology alumni

https://t.co/BwnwLmJD2S

Working toward finding a cure for daughter's rare, random, ruinous genetic condition called CDKL5. One step at time.

Jainu Jogani @jainu11

557 Followers 575 Following https://t.co/BwnwLmJD2S Working toward finding a cure for daughter's rare, random, ruinous genetic condition called CDKL5. One step at time.

Kimberly Aldinger, Ph... @kaaldinger

1K Followers 895 Following Bluesky or LinkedIn | app deleted

Kristy DiLoreto @KristyDiLoreto

110 Followers 185 Following Cardiovascular and Research Genetic Counselor at Geisinger • CWRU & Penn State BBH Alum • views are my own

Kim Ventarola @Kim_Ventarola

123 Followers 251 Following Wife, Mom of 2 beautiful boys, Special Educator, Advocate, Co-founder and President of the Malan Syndrome Foundation

Kim @kim_gaiser1

2 Followers 274 Following

Vivien Truong @VivsGenes

63 Followers 95 Following #firstgenacademic, genetics enthusiast, and GC student. UofG MSc 2022 ➡️ UofM Genetic Counselling 2024

Just a girl living in this world trying to make the best of it while still smiling. Be good to each other...that's what this world needs. #Gastroparesis warrior

Buttercupei @bourgoin_sarah

42 Followers 449 Following Just a girl living in this world trying to make the best of it while still smiling. Be good to each other...that's what this world needs. #Gastroparesis warrior

Adam Maly @Mailman7401

12 Followers 113 Following

Angela @14allmy4boys

10 Followers 74 Following Mom 💙💙💙💙 Nonna 💙🩷

$Neurofibromatosis\Schwannomatosis Bot-Looking to spread new publications, news, & social media (reddit\twitter). Welcome comments\suggestions to @DrezBoston$

NF Bot @NFBot2

750 Followers 2K Following Neurofibromatosis\Schwannomatosis Bot-Looking to spread new publications, news, & social media (reddit\twitter). Welcome comments\suggestions to @DrezBoston

LaTasha @latashaagail

261 Followers 640 Following

Ashley @AshleyKitrell

74 Followers 250 Following Co-RL for FiA Omaha•Life is better when you're laughing•

Jason Wacker @jcwacker

103 Followers 785 Following President | WCC Roofing Co.

Ultra-Rare Disease Warrior 🧬 Familial Chylomicronaemia Syndrome (affects 1 in 1 million) | Healing Out Loud | Founder of @ShwariOfficial

SoniyaFit @SoniyaFit

4K Followers 2K Following Ultra-Rare Disease Warrior 🧬 Familial Chylomicronaemia Syndrome (affects 1 in 1 million) | Healing Out Loud | Founder of @ShwariOfficial

@Mamabearforrare Just your average Mama making the world more inclusive by sharing stories about my child with Jordan’s Syndrome.

MamaBearforRare @MamaBearforRare

628 Followers 1K Following @Mamabearforrare Just your average Mama making the world more inclusive by sharing stories about my child with Jordan’s Syndrome.

Juarez Ruby @_RubyJay

1 Followers 84 Following

@UniofNewcastle Centre of Excellence for Rare Disease works with @NewcastleHosps @NHIPartners & more, to constitute a 'Newcastle RD' community(Tweets V.Hedley)

NCL_RareDisease @NCL_RareDisease

597 Followers 812 Following @UniofNewcastle Centre of Excellence for Rare Disease works with @NewcastleHosps @NHIPartners & more, to constitute a 'Newcastle RD' community(Tweets V.Hedley)

28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay

Rare Disease Day @rarediseaseday

42K Followers 3K Following 28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay

Beacon for Rare Disea... @RareBeacon

12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Stephanie Fischer @RarePOV

7K Followers 5K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.

An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.

EURORDIS-Rare Disease... @eurordis

31K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.

Global Genes @GlobalGenes

29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare

Cambridge Rare Diseas... @camraredisease

8K Followers 6K Following Improving outcomes for those living with rare conditions. Also find us at: https://t.co/kZWskP9Ojj

EveryLife Foundation @EveryLifeOrg

7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.

Ethan Perlstein 1-to-... @eperlste

19K Followers 2K Following ceo @1000cures, ceo @PerlaraPBC (w16 @ycombinator), founder @epalrestat

#NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py

National Organization... @RareDiseases

40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py

Yoni - יוני @Primary_Immune

48K Followers 27K Following Proud Jew. Proud Israeli. Immigrated to Israel from USA. הודו לה' כי טוב כי לעולם חסדו offline every Shabbat

Alström Syndrome UK @AS_UK

2K Followers 5K Following 'Alström Syndrome is a rare genetic condition affecting every organ in the body. ASUK provides support & guidance for those affected.' Tweets by Catherine Lewis

National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.

Genetic Alliance UK @GeneticAll_UK

15K Followers 2K Following National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.

A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!

RDLA @RareAdvocates

6K Followers 2K Following A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!

SWAN UK (syndromes without a name) is run by @GeneticAll_UK, offering support and information to families of children with undiagnosed genetic conditions.

SWAN UK (syndromes wi... @SWAN_UK

8K Followers 4K Following SWAN UK (syndromes without a name) is run by @GeneticAll_UK, offering support and information to families of children with undiagnosed genetic conditions.

MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.

Muscular Dystrophy As... @MDAorg

20K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.

The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

LGS Foundation @LGS_Foundation

2K Followers 394 Following The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

HopeKnowsNoBoundary @HopeKnowsNo

11 Followers 52 Following

We are dedicated to providing resources and information to families and professionals who care for children with special needs

SNRFofSD @sdspecialneeds

83 Followers 75 Following We are dedicated to providing resources and information to families and professionals who care for children with special needs

Vision of Children @VOC_Foundation

1K Followers 2K Following Dedicated to finding a #cure for childhood #blindness! #FundResearchFindCures

An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.

EDS Awareness @EDSawareness1

10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.

Ehlers-Danlos Support... @ehlersdanlosuk

18K Followers 10K Following *This account is no longer active. See pinned post for how to find EDS UK and access support.*

Making health about people: When we ask how you’re doing, we actually want to know! Download our free app to join a community that gets it ✨

The Mighty @TheMightySite

49K Followers 2K Following Making health about people: When we ask how you’re doing, we actually want to know! Download our free app to join a community that gets it ✨

Thermo Fisher Scientific Inc. is the world leader in serving science. Our mission is to enable our customers to make the world healthier, cleaner and safer.

Thermo Fisher @thermofisher

65K Followers 656 Following Thermo Fisher Scientific Inc. is the world leader in serving science. Our mission is to enable our customers to make the world healthier, cleaner and safer.

It's easy to earn cash, gift cards, and rewards when you shop, search, share, watch videos, or complete offers & surveys with Perk!

Perk @GetPerk

7K Followers 629 Following It's easy to earn cash, gift cards, and rewards when you shop, search, share, watch videos, or complete offers & surveys with Perk!

We raise awareness of #epilepsy and #SUDEP and help parents and caregivers to protect their loved ones and reduce the risks associated with #seizures.

Danny Did Foundation @DannyDidOrg

3K Followers 2K Following We raise awareness of #epilepsy and #SUDEP and help parents and caregivers to protect their loved ones and reduce the risks associated with #seizures.

CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.

CURE Epilepsy @CureEpilepsy

19K Followers 1K Following CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.

We support research and education for professionals working towards a world without epilepsy. RTs ≠ endorsements. Also @amepilepsysoc.bsky.social.

American Epilepsy Soc... @AmEpilepsySoc

15K Followers 780 Following We support research and education for professionals working towards a world without epilepsy. RTs ≠ endorsements. Also @amepilepsysoc.bsky.social.

American Academy of P... @AmerAcadPeds

133K Followers 497 Following Dedicated to the health, safety and well-being of infants, children, adolescents and young adults.

A national non-profit working through advocacy, research and education to ensure optimal care for children living w/neurologic conditions #ChildNeurology

Child Neurology Found... @Child_Neurology

25K Followers 16K Following A national non-profit working through advocacy, research and education to ensure optimal care for children living w/neurologic conditions #ChildNeurology

Fujifilm Cellular Dynamics manufactures biologically relevant human cells derived from induced pluripotent stem cells.

Fujifilm Cellular Dyn... @CellDynamics

1K Followers 246 Following Fujifilm Cellular Dynamics manufactures biologically relevant human cells derived from induced pluripotent stem cells.

This account has moved to a new home! Follow us @big4bio for the latest San Diego #LifeScience news, insightful analysis, events, and more.

Big4Bio:San Diego @big4bioSD

2K Followers 1K Following This account has moved to a new home! Follow us @big4bio for the latest San Diego #LifeScience news, insightful analysis, events, and more.

The Quilt Show.com @TheQuiltShow

3K Followers 9 Following Quilters Alex Anderson and Ricky Tims keep you up to date with artists, techniques, tutorials, and quilts and more quilts. Watch their Brand New Epsiodes!

Accelerating world class science to deliver transformative regenerative medicine treatments in an equitable manner to a diverse California and world

California Institute ... @CIRMnews

15K Followers 522 Following Accelerating world class science to deliver transformative regenerative medicine treatments in an equitable manner to a diverse California and world

Your guide to Events, Restaurants, and Best Places to Enjoy #NorthCounty #SanDiego. Del Mar, Solana Beach, Encinitas, Carlsbad, Oceanside, Vista, San Marcos...

Your North County @YourNorthCounty

3K Followers 2K Following Your guide to Events, Restaurants, and Best Places to Enjoy #NorthCounty #SanDiego. Del Mar, Solana Beach, Encinitas, Carlsbad, Oceanside, Vista, San Marcos...

CryptoSiteList @CryptoSiteList

4K Followers 4K Following #Bitcoin #bitcoinfaucet #crypto #cryptogame #cryptocurrency

Illumina @illumina

96K Followers 8K Following Dedicated to advancing human health by unlocking the power of the #genome. 🧬

2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)

Rare Disease Day US @RareDayUS

7K Followers 987 Following 2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)

PR Group @SyneosDSS

1K Followers 360 Following

Author, rep’d Northbank Talent. Published by Joffe Books & Storm Books: The Raven’s Mark 'The most assured crime debut I have ever read.' Lisa Jewell ♥️

Christie J. Newport -... @christienewport

3K Followers 5K Following Author, rep’d Northbank Talent. Published by Joffe Books & Storm Books: The Raven’s Mark 'The most assured crime debut I have ever read.' Lisa Jewell ♥️

anasbabi @anasbabi2015

567 Followers 2K Following ASOCIACIÓN NACIONAL DE AFECTADOS SÍNDROME DE BARDET-BIELD Y CILIOPATIAS

PURASyndrome @PURASyndrome

538 Followers 818 Following Raising awareness of #PURAsyndrome to further research and support individuals with this #RareDisease

The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm

Orphanet @Orphanet

6K Followers 587 Following The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm

Rare Disorders Kenya @RareDiseaseKE

846 Followers 144 Following United Voice for the Kenyan Rare Disease Community! #PatientDriven #RareDiseaseKE

Rare Opportunities in Primary Care is committed to improving the quality of primary care for people living with rare diseases.

Rare Opportunities @RarePrimaryCare

428 Followers 892 Following Rare Opportunities in Primary Care is committed to improving the quality of primary care for people living with rare diseases.

Maternal Infant Child & Youth Research Network: Catalyzing research in maternal/child health, clinical trials, ethics, rare diseases & data standards

MICYRN @micyrn

2K Followers 1K Following Maternal Infant Child & Youth Research Network: Catalyzing research in maternal/child health, clinical trials, ethics, rare diseases & data standards

Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research.
https://t.co/qWTTVoKeyL

RareDiseaseFdn @rarediseasefdn

8K Followers 489 Following Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL

The Founder is Sika. She's a marketer, fundraiser, and works at Travere. She's her Sister's sister. Views shared here are her own.

Shine Light @shineonrare

824 Followers 737 Following The Founder is Sika. She's a marketer, fundraiser, and works at Travere. She's her Sister's sister. Views shared here are her own.

MANY VOICES. ONE MISSION. A user-generated short-film about the inspiring people in the rare disease community — Rare in Common.

Rare In Common @RareInCommon

846 Followers 451 Following MANY VOICES. ONE MISSION. A user-generated short-film about the inspiring people in the rare disease community — Rare in Common.

We are bringing Newborn Testing into the 21st Century. Using genetic sequencing, our test is ideal as a reflex for abnormal NBS or as a supplement to the screen

Baby Genes Inc @BabyGenesInc

1K Followers 1K Following We are bringing Newborn Testing into the 21st Century. Using genetic sequencing, our test is ideal as a reflex for abnormal NBS or as a supplement to the screen

We’ve moved! PSR Orphan Experts is now Ergomed. To stay updated on future news, please follow us on the Ergomed Twitter page at https://t.co/mWUAHD63Iq

PSR Orphan Experts (n... @PSRorphan

5K Followers 3K Following We’ve moved! PSR Orphan Experts is now Ergomed. To stay updated on future news, please follow us on the Ergomed Twitter page at https://t.co/mWUAHD63Iq

dhbepilepsy @dhbepilepsy

652 Followers 256 Following ...Epilepsy will not stop me... ...celebrate life... ...enjoy the experience...

Help us spread the word and find a cure for this rare genetic, neurological syndrome . For more info visit our website below

FOXG1UK @FOXG1UK

190 Followers 198 Following Help us spread the word and find a cure for this rare genetic, neurological syndrome . For more info visit our website below

Quilt Alliance @QuiltAlliance

2K Followers 187 Following Quilt Alliance--documenting, preserving and sharing the stories of quilts and quiltmakers

A leader in cancer research, the Knight Cancer Institute provides individually-tailored, compassionate care for patients, from diagnosis through survivorship.

OHSU Knight Cancer In... @OHSUKnight

6K Followers 3K Following A leader in cancer research, the Knight Cancer Institute provides individually-tailored, compassionate care for patients, from diagnosis through survivorship.

Master Story Alchemist.
Book and writing coach.
Creator of The Story House STUDIO https://t.co/oGQv3Sxyr2 and FOUNDATION masterclass

Patti M Hall @PattiMHall

2K Followers 3K Following Master Story Alchemist. Book and writing coach. Creator of The Story House STUDIO https://t.co/oGQv3Sxyr2 and FOUNDATION masterclass

Quilt Festival @QuiltFestival

13K Followers 277 Following International Quilt Festival in Houston. #QuiltFestival

An R&D driven, AI-powered biopharma company committed to improving lives. For U.S. residents only. Interactions must comply with terms: https://t.co/D3HnfO1Ymt

Sanofi US @SanofiUS

79K Followers 5K Following An R&D driven, AI-powered biopharma company committed to improving lives. For U.S. residents only. Interactions must comply with terms: https://t.co/D3HnfO1Ymt

The UK's biggest pattern house. Featuring all your favourite brands under one roof. Let us inspire your next sewing adventure... 👗👚👖✂

Simplicity McCalls UK @SimpMcCalls

15K Followers 3K Following The UK's biggest pattern house. Featuring all your favourite brands under one roof. Let us inspire your next sewing adventure... 👗👚👖✂

Fairfield World @FairfieldWorld

489 Followers 569 Following Poly-fil® Brand Products from Fairfield. Providing batting, pillows, fiber, foam, interlinings and craft materials to crafters and sewers for over 80 years.

Over two decades of experience in healthcare and a proven track record of developing new lines of revenue by building networks and business connections

Tamara StClaire @drstclaire

4K Followers 2K Following Over two decades of experience in healthcare and a proven track record of developing new lines of revenue by building networks and business connections

Wallpaper, fabric and home decor supporting indie artists 🎨
Each order is made just for you ✨
Discover your next favorite design ⬇️

Spoonflower @Spoonflower

33K Followers 3K Following Wallpaper, fabric and home decor supporting indie artists 🎨 Each order is made just for you ✨ Discover your next favorite design ⬇️