Rare In Common @RareInCommon
MANY VOICES. ONE MISSION. A user-generated short-film about the inspiring people in the rare disease community — Rare in Common. rareincommon.com Cambridge, MA Joined February 2015-
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Bella, pictured here with her service dog and loving companion, George, was diagnosed with Morquio A syndrome as a little girl. “I grew up with it, so I don’t know what it’s like to not have it.” Read more about Bella and her journey at Facesofrare.com #FacesOfRare
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Diane lived through questions and mysterious symptoms for decades and now she has dedicated herself to helping others to avoid the uncertainty she faced for so much of her life. Now diagnosed with familial chylomicronemia syndrome. Learn more at facesofrare.com #ActionFCS
Christian recognizes the importance of seeing past the label of a rare disease and encourages others to do the same. “Rare diseases shouldn’t really define who people are." Read about Christian’s story with hemophilia A at FacesOfRare.com #FacesOfRare
Arista shares a lot with her twin sister, Arielle, including a diagnosis of hereditary angioedema (HAE). She remains positive: “I think the best part of the journey is having each other.” Hear more about Arista’s and Arielle’s stories. At FacesofRare.com #FacesOfRare
Francesca has overcome a lot in the face of and in spite of a diagnosis of familial partial lipodystrophy (FPLD). Her advice to others in the same shoes? Remember that you are truly unique–1 out of millions!–and that’s special. Read more at facesofrare.com #FacesOfRare
Did you make it to Boston City Hall Plaza on Rare Disease Day? If you missed it, don’t worry. You can still meet these incredible people who face rare diseases every day. Read their stories on facesofrare.com. #FacesOfRare
Learn more about our #FacesofRare campaign, including last night’s event at @CityHallBoston and about patient Arista Lee via @BostonGlobe bit.ly/2NDGOGW
It’s Rare Disease Day! Today we celebrate the brave people who face rare diseases every single day. Visit City Hall Plaza today starting at 6:00 to meet all the #FacesOfRare!
Tomorrow is the big day! Can you tell Francesca has been looking forward to Rare Disease Day? Read her story at facesofrare.com and come visit us at Boston City Hall Plaza at 6:00 PM tomorrow! #FacesOfRare
Have plans for Thursday (2/28)? You should! Come check out an initiative in honor of Rare Disease Day at Boston City Hall Plaza at 6:00 PM. Want to learn more? Check out our new LIVE site at facesofrare.com. Link in profile. #FacesOfRare
Christian poses for the Rare Disease Day photoshoot. Want to learn more about his story? Check it out at facesofrare.com AND come see the big event at Boston City Hall Plaza on Thursday, February 28. The fun starts at 6:00! #FacesOfRare #RDD
Check out Bella and George! We had so much fun capturing their pictures and story. The #FacesOfRare website is launching next week. Get ready to be inspired! And join us at Boston City Hall Plaza at 6:00 on 2/28.
Amazing photoshoot. Amazing day. Here, Diane poses for the camera. Something truly special is coming for #RDD. Will you be joining us and Diane at City Hall Plaza on Thursday, February 28 at 6:00 PM? #FacesOfRare
#TBT to Arista behind the scenes at the shoot. Join us to see what all the fuss is about at Boston City Hall Plaza on Thursday, February 28 at 6:00 PM! #RDD #FacesOfRare
Rare Disease Day is celebrated on the last day of February each year. Why? Because February 29 is RARE! This year it’s being celebrated on February 28 and something big is coming. Come check it out! #FacesOfRare
Rare In Common retweeted
Nous sommes heureux d'annoncer que #RareInCommon est maintenant disponible avec des sous-titres en Français! bit.ly/2pC0IZi
Rare In Common retweeted
We are happy to announce that #RareInCommon will now be available with French subtitles! @RareInCommon bit.ly/2pC0IZi
We are happy to announce that #RareInCommon will now be available with French subtitles! bit.ly/2pC0IZi
Nous sommes heureux d'annoncer que #RareInCommon est maintenant disponible avec des sous-titres en Français! bit.ly/2pC0IZi
Rare In Common retweeted
¡Estamos muy emocionados en anunciar que #RareInCommon estará disponible con subtítulos en español! @RareInCommon bit.ly/RICspn
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