Living With Ankylosing Spondylitis @LiveWithAS
The official twitter feed of the support group Living With Ankylosing Spondylitis. Missouri, USA Joined May 2018-
Tweets28
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Followers65
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Following21
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Likes21
World Autoimmune Arthritis Day nationaltoday.com/world-autoimmu… via @NatlToday
National Barrier Awareness Day nationaltoday.com/national-barri… via @natltoday
Do you remember when you joined Twitter? I do! #MyTwitterAnniversary
I'm so tired of having to choose "retired" as my employment status when surveys don't include 'disabled'. It literally directly relates to employment demographic data.
#RheumTwitter for #ACR21 @chriswincup @kristenyoung @Nellziade And these amazing folks: @spondylitis @CreakyJoints @Looms4Lupus @teamfibro @chroniceileen @BeingCharisBlog @DawnMGibson @MataJuanamata @UnxpctdAdvocate @estelamata
Body Hack #37,937: If you're super impoverished & receive health coverage with very low prescription copays (like $1.20 per), tell your body to aquire seborrheic dermatitis so you'll be prescribed shampoo in perpetuity. Ta-da, you no longer have to pay much for good shampoo.
Ankylosing spondylitis desperation and recovery patient story youtu.be/-VbYGbvFqCo
I'm helping lead 2 chats this week! #SpondyChat: tomorrow, Sept. 29, 3 PM PST. @spondylitis represents folks living with spondylitis, a disease that's caused me pain since I was a kid. Join @DawnMGibson, @speakingabtpain, @spondylitis & me tomorrow! Image desc.: 2nd-4th tweets
Are you living with #chronicpain or love someone who is? Join @spondylitis, @speakingabtpain, @DawnMGibson, & @beingcharisblog on September 29 at 3pm Pacific for a #SpondyChat. Connect with others and join the conversation! September is #PainAwarenessMonth
Check out our latest #AXSChat Podcast with @speakingabtpain, @DawnMGibson and @BeingCharisBlog " at buzzsprout.com/719037/9254008…
.@national_pain has been encouraging the chronic pain community to share real pain experiences & stories throughout the month of September, Pain Awareness Month, using the hashtag #RealPainStories. Have you shared yours yet? Have you read what others have shared? Please do.
Every time a politician says "pandemic of the unvaccinated" a kitten dies
A friend was recently diagnosed with #AnkylosingSpondylitis hoping some of my favorite advocates can help point me in the direction of additional resources and blogs for her!! @BeingCharisBlog @DawnMGibson
I would bet that Crip Camp wins and there’s no ramp. #Oscars
@BeingCharisBlog @frbrian You always look so strong 💪🏼 Thanks for representing us the way you do!
Look at my driveway & my old garage. Image: @frbrian
That's a rhetorical question. Here's why: Image: a partial loaf of bread next to a silvery grey chalice on earthy cloth in front of a black background beingcharis.com/2019/06/22/abl…
Disabled people deserve, demand and require $2,000+ recurring monthly survival checks.
The people deserve, demand and require $2,000 recurring monthly survival checks.
Jedi Mastering Chronic Illness youtube.com/channel/UCHbLr… via @YouTube
Distraction while you doom scroll. #WhoWoreItSweater #CripQueer Image: @frbrian, styling by me
If your committee was created to advance diversity, who have you forgotten & why is it disabled people?
AS Resource Hub @ASResourceHub
6 Followers 26 Following Diagnosed with AS in 2016 • Curating practical resources on diet, movement & daily life with AxSpA. No hype. Real tools that help.
Aysna Mardkers @AysnaMardkers
0 Followers 36 Following
Michael Kolis @MichaelKolis
1 Followers 64 Following
Suraj Chaudhari @drsurajchaudhar
24 Followers 354 Following
GreenCape Health @GreencapeH82297
0 Followers 252 Following GreenCape Health helps patients with serious chronic diseases record and share symptom activity with their care team.
Val Ryan @gonecrazytoo
451 Followers 416 Following
‽/ACatNamedElon @ACatNamedElon
212 Followers 2K Following 29F AuDHD #ankylosingspondylitis chronic illness warrior, hip hop and Rocket's are my thing #SpaceX #Switchfoot #NF #KnoxHill #Ren #TomMcDonald #RipCHARLIE
Dr. Sian Zena Holt @DrSianZenaHolt
39 Followers 132 Following Qualitative Research / Intervention Development Wife of husband with AxSpA. - Interests: Pain communication, support and advocacy, during and after diagnosis.
Roaming Reporter @ReporterView
13 Followers 426 Following Pro-संविधान | with The Times Media - travel to unravel dimensions of life | ex-The Tribune, Hindustan Times |
ankylosis.in @ankylosis_in
3 Followers 19 Following Follow https://t.co/6dcrX3NMTp on Twitter. We provide support and resources to patients suffering from Ankylosing Spondylitis and other related inflammatory conditions.
Jani @Jan93482937
1K Followers 3K Following Amateur photographer, love taking photos of nature 🦋🐝🪴🌼, trees,flowers. photography is a passion 📸. Wife, Mother, Grandmother.🙏. No DM at all.
mvspondylitis @mvspondylitis
1 Followers 41 Following
KaJensen @KaJensen2
15 Followers 1K Following
Sandra Whitlock 💙 @Sandyw61
166 Followers 197 Following ❤Love family & all of creation Lifetime of Nursing NHS Childrens & Adult Pall Care. Trustee for JHT MoHo travel is current career of choice. Opinions my own
Stephanie Phippen @stph018
3 Followers 265 Following
Abdo Gafar @abdo_abdogafar
15 Followers 328 Following
Mrityunjay Pandey @Mrityun98157033
7 Followers 234 Following # Hindustani everyone has a weakness but I Am not everyone
Alejandra Cease @d2563a84ddab477
0 Followers 62 Following
Clara @Claraspark12
0 Followers 120 Following
Turn.off.AS @TurnoffAs
26 Followers 53 Following Ankylosing Spondylitis patient without pain, without medication. After years of suffering I found the off-switch for my AS. Now I’m in remission forever.
🇵🇸🇿🇦 @FibroFly
2K Followers 3K Following
gordo @gordofirpark
1K Followers 4K Following
Kimberly Iraci @kimmeri19
12 Followers 588 Following
chronicforarthritis @chronicforarth1
11 Followers 56 Following I have been diagnosed with AS and PSC. Mindfulness and meditation keep me grounded and yoga keeps me moving.
Gil @gillian52011155
12 Followers 175 Following physical therapist with love of Star Wars and movies in general. guitar, music and life. #ankylosingspondylitis
Char @LoveCharAlways
0 Followers 37 Following
Saira @mylifeofAS
126 Followers 470 Following Mostly about how I stopped #AnkylosingSpondylitis in its tracks by limiting starch and dairy. Check out the super helpful NSD forum here:
astromech teapot gobl... @AgenderIroh
2K Followers 3K Following gay communist bog witch with creaky bones. just queer stuff and mutual aid.
Paul McEwen 🇺🇦 @rudeboysoundz
294 Followers 999 Following ❤️ Dundee United Chelsea Dundee Sporting Club ❤️ Superstar Tradesman/Ska DJ
My Life With Ankylosi... @ankyspondman
737 Followers 1K Following Vlog about my experiences with Ankylosing spondylitis & helping raise awareness of the disease and symptoms. #ankylosingspondylitis #epilepsy #spoonie
Rebecca Bencomo @rebeccabencomo
2 Followers 8 Following
Sue Main @susannemain
1K Followers 3K Following Writing autobio about growing up with pain/hip dysplasia. Have a PhD about creativity & life with chronic physical pain.
Chairman AL @allanbrooks65
76 Followers 524 Following Photoshop artist/Video editor, gamer, healer of the blues, ex-media techie minion to Shadow Cat. #AnkylosingSpondylitis Warrior. PSN: Chairman_AL
Shadow Cat @shadowcatdubai
4K Followers 5K Following I'm Shadow Cat, Trekkie, the Arabian Mau Bin Kitty rescue from Dubai & I moved back to UK with my personal minion AL & mom These are my musings.
Kristen Ray @K63338440
0 Followers 135 Following Spondyloarthritis Support Group Founder, Co-leader and Advocate, interest in Ankylosing Spondylitis
John Rice @CoachJohnRice
4K Followers 2K Following Where sin abounds, His grace abounds more -Romans 5:20. believer/husband/father/Coach @ Marshall ISD. GO MAVS!
Shelby @ShellyM17172924
527 Followers 965 Following If you think I’m far right it’s because you are on the far left ! Hates snowflakes and political correctness. I’m English. Not British. 🇬🇧
Brangela @missamnugent
603 Followers 1K Following FAMILY and FRIENDS ❤, MUSIC 🎶, RS 👄👅, DOGS 🐕 and LUFC MOT 💙💛🤍
greg ramsden @greg100000
49 Followers 1K Following hi im greg from sheffield ,england,run my own plumbing business.xx
Paul McEwen 🇺🇦 @rudeboysoundz
294 Followers 999 Following ❤️ Dundee United Chelsea Dundee Sporting Club ❤️ Superstar Tradesman/Ska DJ
Chairman AL @allanbrooks65
76 Followers 524 Following Photoshop artist/Video editor, gamer, healer of the blues, ex-media techie minion to Shadow Cat. #AnkylosingSpondylitis Warrior. PSN: Chairman_AL
TexasDad @ZACHARYSDAD
137 Followers 336 Following I AM A DAD of 5 awesome boys!🤠I have Ankylosing Spondylitis but living my best life👍 XBOX Ambassador and Insider. 3 Million Achievement Club member!
Turn.off.AS @TurnoffAs
26 Followers 53 Following Ankylosing Spondylitis patient without pain, without medication. After years of suffering I found the off-switch for my AS. Now I’m in remission forever.
Kimberly Iraci @kimmeri19
12 Followers 588 Following
Shadow Cat @shadowcatdubai
4K Followers 5K Following I'm Shadow Cat, Trekkie, the Arabian Mau Bin Kitty rescue from Dubai & I moved back to UK with my personal minion AL & mom These are my musings.
gordo @gordofirpark
1K Followers 4K Following
chronicforarthritis @chronicforarth1
11 Followers 56 Following I have been diagnosed with AS and PSC. Mindfulness and meditation keep me grounded and yoga keeps me moving.
Gil @gillian52011155
12 Followers 175 Following physical therapist with love of Star Wars and movies in general. guitar, music and life. #ankylosingspondylitis
Saira @mylifeofAS
126 Followers 470 Following Mostly about how I stopped #AnkylosingSpondylitis in its tracks by limiting starch and dairy. Check out the super helpful NSD forum here:
astromech teapot gobl... @AgenderIroh
2K Followers 3K Following gay communist bog witch with creaky bones. just queer stuff and mutual aid.
My Life With Ankylosi... @ankyspondman
737 Followers 1K Following Vlog about my experiences with Ankylosing spondylitis & helping raise awareness of the disease and symptoms. #ankylosingspondylitis #epilepsy #spoonie
Charis Hill | they/th... @BeingCharisBlog
36K Followers 2K Following Here for now. On other apps under the same or similar handle. Views are my own.
John Rice @CoachJohnRice
4K Followers 2K Following Where sin abounds, His grace abounds more -Romans 5:20. believer/husband/father/Coach @ Marshall ISD. GO MAVS!
















