Guðjón Sigurðsson @Gaui_mnd
Iceland Joined March 2011-
Tweets13K
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Followers817
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Following1K
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Likes22K
ABA Members Who Inspire - After an ALS diagnosis, Brian Wallach fights for a cure: "This is our closing argument for our lives." ow.ly/WjEX50MFJuv #ABA #memberswhoinspire @juliannehill @ABAesq @iamalsorg @bsw5020
Biogen, Ionis ALS therapy set for March FDA AdCom meeting (NASDAQ:BIIB) | Seeking Alpha seekingalpha.com/news/3926722-b…
We must find a way to get rid of using humans as placebo. In rare terminal diseases like #ALS it is inhumane.
Starting the week with the acceptance of our manuscript to Nature Gene Therapy! We are coming after you ALS We are coming.. Please support the Ozdinler Lab.
brb crying because Ms. Jacobs, my second grade teacher, showed up to surprise me at our monthly town hall and kept a note I wrote her over 20 years ago 😭😭
26 years ago this morning we lost Mom to the stinking ALS. Every time ALS Land resists change, I need to remember how outrageous it is that people continue to lose loved ones today.
@alsnewstoday For clarity, this is only 8 people, open label. Almost all open label ALS trials that attempt to assess disease progression show slowing. NfL is intriguing but very underpowered. I like C1q as a target based on Ben Barres/Shane Liddelow/etc. work but this needs tempering please.
This finger pad charges your phone or watch with your sweat. （World Economic Forum）
"I was sitting in the meeting with the director of adult social care and she said 'Katie, you're a carer'. Up until that point I thought I was just a pretty good wife” – @WillowKaty, a teacher for twenty years before her husband was diagnosed with #MND.... bbc.co.uk/news/disabilit…
Day 532 asking: @US_FDA to use flexible regulatory pathways with @BrainstormCell’s #NurOwn for #ALS. & @FDACDERDirector @POTUS @VP @DrCaliff_FDA to act urgently. #everypointmatters so that my mom, a #PLWALS, can meet my kids, not just my dog. There remains an unmet need here.
With ALS you start with a determination to fight. Then it progresses. Taking away who you are. Piece by piece. And then it takes you. ALS Is an awful disease. Here’s to ending it. Good night moon.
This is my husband. He tells terrible dad jokes. I love him so much. Please #EndALS
Project Relate NOW available on Android Play Store -free! Relate learns how people with dysarthria talk & captions their speech. Come to a free online session: how to set Relate up, what the reality is, problems & opportunities, so you can set expectations with clients. Pls shr
It’s Friday, I’m in love.
This from an amazing group of ALS gene carriers should be required viewing for every neurology resident in the world. Thanks, @Jeanc9orf72
I’m dying of ALS…but not today! I’m living with ALS…today! I have grieved for what ALS has taken from me, but not today! I celebrate what ALS has not taken…today! I’m dying from ALS…BUT NOT TODAY!! TJO
My dream is coming real 🥰💜🇮🇸 3/3 Me backing out of my car. @ALSMNDAlliance @alsadvocacy @BVirgo1 @pjgreen @iamalsorg @saritaapril
My dream is coming real 🥰💜🇮🇸 2/3 Me using and learning.
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Mandi @RunningMama0522
2K Followers 1K Following
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 910 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Deb Paust @PaustDeb
1K Followers 727 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Becky Mourey @becky_mourey
634 Followers 318 Following Wife, mom, musician, lover of life, living with and fighting to end ALS.
alsHATER @HaterAls
1K Followers 968 Following als hater MM lover Impossible is an option One woman army
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Livia Dethomasis @DethomasLi
70 Followers 5K Following
Linn Carrales @carral_lin
48 Followers 5K Following
Randa Blassingame @RanBlassingam
3 Followers 171 Following
Sloane Vossen @SloaVos
74 Followers 5K Following
Kyong Shala @KyongShala47562
63 Followers 5K Following
Fallon Dundee @fall_dun
46 Followers 5K Following
Tu Fedler @TFedler14175
84 Followers 5K Following
Carolynn Vanhorn @VanhoCarol
101 Followers 5K Following
Sherry Hach @SherrHach
35 Followers 5K Following
Jasmine Quarto @JasmQuar
64 Followers 5K Following
Maria Caulley @CaulleMar
80 Followers 5K Following
Adelaide Moroz @mor_adelaid
65 Followers 5K Following
Nila Tator @nila_tat
68 Followers 5K Following
Kam Breitenbach @KamBreitenbac
79 Followers 5K Following
Enriqueta Schwebke @ESchweb
42 Followers 5K Following
Mikayla Adamiak @MikaAdamiak
56 Followers 5K Following
Rosa Mansker @mansk_ro
69 Followers 5K Following
Dia Lehoullier @d_lehoull
41 Followers 5K Following
Diann Ripplinger @DRipplinge2971
18 Followers 3K Following
Arleen Herzbrun @AHerzbru
20 Followers 3K Following
Charles Tyon @char_tyon
45 Followers 5K Following
Aurelia Muskthel @MusktAureli
31 Followers 5K Following
Charmain Fisger @fis_charm
45 Followers 5K Following
Tonie Lovell @lovel_toni
41 Followers 5K Following
Iona Lamarta @iona_lamart
52 Followers 5K Following
Tiana Grube @TianaG264
44 Followers 5K Following
Brielle Kreb @BrielleKre72323
20 Followers 5K Following
Sparkle Muldrow @MuldrowSpark
66 Followers 5K Following
Loothe @Loothe179357
25 Followers 353 Following
Rachel @rachel_MND
317 Followers 686 Following East Midlands Area Support Coordinator for @mndassoc interested in Health Psychology, Forest Bathing, carers support & volunteering
mary smith @marysmith8274
37 Followers 778 Following I have Yorkie puppies looking for a good home to adopt them can’t be able to look after them cause they are to much let know if you’re interested in adopting
Mind Over MND. @mindovermnd
114 Followers 171 Following
ALS ONE @alsone_official
961 Followers 635 Following Our world leaders in ALS research & care have united 2 advance critical research towards a cure while improving the qual of life of individuals living w/ALS now
All is Well: Lessons @AllsWell333
617 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
Geoff @Gebinh1
15K Followers 13K Following MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
Jen DiMartino @JennyDiMar
119 Followers 196 Following Executive Director ALS ONE @alsone_official My tweets • My thoughts
Asta Gretars @astagretars
435 Followers 797 Following
Katie Gade @Laura1986Gade
12 Followers 83 Following
Maris🜃 @Mariska27311463
186 Followers 2K Following Mother - teacher - art ❤ - Liquid D&B - #TeamLH44 - Lewis Hamilton - #selfhealers - Jamiroquai - F1 - #neurodivergent - rescue dog owner - Star Trek🖖- 🇳🇱🇮🇸
DocTruactive❄☃️.. @Truactive
11K Followers 11K Following I am a disabled retired physician living with ALS. Love westies and detest Trump. #AdoptDontShop #Resist #BLM #IStandWithUkraine #EndALS
Cruley Alexa @cruleyalexa1996
2K Followers 5K Following Student, mentor, housekeeper, social media enthusiast, coffee lover, foodie, women's rights advocate, disability rights advocate, autism patient
President of Iceland @PresidentlSL
19 Followers 89 Following Guòni Th. Jóhannesson, President of Iceland 🇮🇸 For international audience in English. Fylgiò forests á: https://t.co/QsZWACVzVT
masunga @khan_obwago
658 Followers 5K Following
Alice's Angle @AlicesAngle2
2K Followers 5K Following 50 years CB JOE TV AND Appliance. ..New Castle, Delaware ... from nobody to somebody.
OY @oonayounger
87 Followers 268 Following
Josh Pardini @CoachJPardini
7K Followers 4K Following Believer |Romans 5:3-5| Assistant Director of Athletics @falconssports | Former OC @LCFalconsFB 2010-2021 | 2019 NJCAA Runner-Up | FITFO Trained
Ruth Curley 🌻🇺�.. @rcurley6
5K Followers 5K Following Lost cousin to ALS in 2009. #BlueCrew #RainbowMafia #MMIW #SlavaUkraini Rt AKA 7/2017 Liberal #WokeMob #🟦 🚫DMS #ThankYouTG #RIPTG
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Sarah Nauser @SarahNauser
12K Followers 518 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
Mandi @RunningMama0522
2K Followers 1K Following
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 910 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
Deb Paust @PaustDeb
1K Followers 727 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Maris🜃 @Mariska27311463
186 Followers 2K Following Mother - teacher - art ❤ - Liquid D&B - #TeamLH44 - Lewis Hamilton - #selfhealers - Jamiroquai - F1 - #neurodivergent - rescue dog owner - Star Trek🖖- 🇳🇱🇮🇸
Darryl Borsato @BorsatoDarryl
1K Followers 1K Following ALS Fighter, proud husband and SOD-1 Mutant #FuckALS #WorldStrongestALSPatient ALS Action Canada board member / ALS Society of BC Advocacy Committee member
Cruley Alexa @cruleyalexa1996
2K Followers 5K Following Student, mentor, housekeeper, social media enthusiast, coffee lover, foodie, women's rights advocate, disability rights advocate, autism patient
Kristin Sif Sigurdar @KristinSifSig
115 Followers 308 Following
Brynja @brynhjor
86 Followers 566 Following
Maria Tereza Fleury �.. @tfleurym
158 Followers 661 Following
Birgitt Schuele (She/.. @SchueleLab
1K Followers 4K Following Making a difference for Parkinson's disease research. My research improves patient care by unraveling the causes of neurodegeneration. 🌈🏃🏻♀️🧑🔬
Alice's Angle @AlicesAngle2
2K Followers 5K Following 50 years CB JOE TV AND Appliance. ..New Castle, Delaware ... from nobody to somebody.
OY @oonayounger
87 Followers 268 Following
Chris Gette @ChrisGette
114 Followers 365 Following
Josh Pardini @CoachJPardini
7K Followers 4K Following Believer |Romans 5:3-5| Assistant Director of Athletics @falconssports | Former OC @LCFalconsFB 2010-2021 | 2019 NJCAA Runner-Up | FITFO Trained
Frank Gunn @frankgunnphoto
8K Followers 1K Following Free from blue check. Just a guy with some cameras covering the Canadian experience. You should see what I can do with a hammer! Views are very much my own.
Janette Kiepke @JanetteKiepke
56 Followers 207 Following
Sutter Health @SutterHealth
13K Followers 870 Following An integrated system delivering accessible, innovative, high-quality, and life-saving healthcare when people need it most.
UC Irvine @UCIrvine
73K Followers 597 Following The official account of the University of California, Irvine. 🐜🍽💙💛 #UCIPride
Cedars-Sinai @CedarsSinai
34K Followers 3K Following Global leader in patient-focused care & innovative treatments. Ranked a "Best Hospital" by U.S. News 8 years in a row. Shaping medicine’s future @CedarsSinaiMed
sigrun M D @sigrun6108
158 Followers 3K Following
Tahir KALKAN (VEFA) @tahirkalkanurfa
10K Followers 7K Following 20.02.2023....∞ #Als hastalığı kişisel değil toplumsaldır...! (T.K)
Kari Stefansson @KariStefans
408 Followers 1 Following
Grandma Vickie💜�.. @VickieW47132882
333 Followers 282 Following Retired educator Mother of two awesome children, and grandma to three beautiful granddaughters. No lists or direct messages.
AliceBruns/@AliceSBru.. @AdvocateAlice
579 Followers 2K Following Sociologist/MPA CSULB/Loyola Fellow #Blue4ever #SpinaBifida/Spanish w a little Portugués/I find the positive in just about everything☀️
Alon Ben-Noon @NoonAlon
1K Followers 3K Following Leading NeuroSense Therapeutics (Nasdaq: $NRSN), a Clinical stage Biotech company, accelerating therapies for ALS and Neurodegenerative diseases.
Center for Medicare A.. @CMAorg
5K Followers 2K Following A national nonpartisan, nonprofit law organization working to advance access to #healthequity, comprehensive #Medicare, and quality #healthcare.
Ramp up Iceland @rampur
3K Followers 6 Following Building 1500 ramps in Iceland in 4 years (1000 done to date!). @iamharaldur is my mom
Anna Jóna @AnnaJona
6K Followers 2 Following I am a restaurant + bar in Reykjavik. @iamharaldur is my son.
Dr. Patrizia Cavazzon.. @FDACDERDirector
3K Followers 57 Following Official Twitter account for the Director of FDA’s Center for Drug Evaluation and Research (CDER). Privacy Policy - https://t.co/gtX3WXfzSG
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
Heilaheill @heilaheill
29 Followers 58 Following
Jim Mourey @JimMourey
379 Followers 240 Following Husband of a strong amazing woman who fought ALS, father of 2 wonderful adult kids and advocate of ALS awareness
sharon stone @sharonsimonston
77 Followers 26 Following
CaptainDiversity @jeffreyWkatz
166 Followers 643 Following I am listening. Keeping all living things around me safe. #HealthcareDataScientist #ColumbiaUniversityMedical 😷
Mashkawizii @NISHwmn
700 Followers 2K Following Anishinaabe kwe, #ALSWarrior Advocate V4-2Stroke kickstarter at heart,Yogi, guzzler of Green Tea, 997 C4 summer shifter, living with ALS/C9orf72
VJ Neurology @VJNeurology
22K Followers 576 Following The Video Journal of Neurology is dedicated to providing up-to-date information and international expertise about #Neurology. #Headache #Epilepsy #MS #ALS
Joao Pereira @jdpereira
6K Followers 5K Following Interested in neurodegeneration, deep learning, organoids and iPSCs! Also mentoring and science careers! Scientific Director iPSC NeuroCore Yale University
S Lo @slotk3
110 Followers 289 Following Retired. Management at Southern California Edison. Owner of a titanium spine, C3 thru L3. Luv the outdoors, reading, writing, sports, and politics.
Mitze Klingenberg BSN.. @klink52
509 Followers 608 Following Advocate for people with ALS. BSN, RN. Spent career in psychiatric nursing.
Ed Orinstein @Ed_O_68bsu
139 Followers 315 Following
Neil Gottlieb @Neil_Gottlieb
2K Followers 2K Following #USATF Masters Distance Athlete. Dad, WJ HS Varsity Girls Soccer Coach, MBA, Abbott WMM 6 Star, #ArizonaWildcats, #BostonMarathon Race Captain. #SigEp #GoPackGo
JC @JC75408607
563 Followers 457 Following Diagnosed with ALS 3/30/22. Living life day by day while I try and process this journey.
Sunny1 @cliz487
436 Followers 1K Following Waiting for "the middle" to get us out of both ditches. Libertarian. Pro life, America first, and lover of our constitution. No DM's or trains.
Chelsea E Macpherson,.. @ChelseaMacDPT
625 Followers 854 Following 🇨🇦 Doctor of Physical Therapy, specializing in #AdultNeurorehabilitation for #MovementDisorders and #NeuromuscularDisorders. PhD Candidate @ColumbiaABA Members Who Inspire - After an ALS diagnosis, Brian Wallach fights for a cure: "This is our closing argument for our lives." ow.ly/WjEX50MFJuv #ABA #memberswhoinspire @juliannehill @ABAesq @iamalsorg @bsw5020
Taste test for some of the cocktails at @AnnaJona. Making sure the non alcoholic drinks are as special as the alcoholic ones.
Day 534 asking: @US_FDA to use flexible regulatory pathways with @BrainstormCell’s #NurOwn for #ALS. & @FDACDERDirector @POTUS @VP @DrCaliff_FDA to act urgently. #everypointmatters so that my mom, a #PLWALS, can meet my kids, not just my dog. There remains an unmet need here.
Biogen, Ionis ALS therapy set for March FDA AdCom meeting (NASDAQ:BIIB) | Seeking Alpha seekingalpha.com/news/3926722-b…
#TeamAmylyx enjoyed connecting with peers and honoring those who have contributed greatly to the #ALS community at @alsagoldenwest's annual Champions for Cures and Care event in San Francisco.
We must find a way to get rid of using humans as placebo. In rare terminal diseases like #ALS it is inhumane.
Starting the week with the acceptance of our manuscript to Nature Gene Therapy! We are coming after you ALS We are coming.. Please support the Ozdinler Lab.
@bsw5020 @sabrevaya I saw this quote this morning and immediately thought of you. Living for each moment is the gift you have given so many. Hoping happiness surrounds you today😊❤️
ALS happens in kids as well. This little Turkish girl has ALS and she received a perfect report card! Who is going to congratulate her? @Haydi_Ahbap @ahbap_insanlik
brb crying because Ms. Jacobs, my second grade teacher, showed up to surprise me at our monthly town hall and kept a note I wrote her over 20 years ago 😭😭
26 years ago this morning we lost Mom to the stinking ALS. Every time ALS Land resists change, I need to remember how outrageous it is that people continue to lose loved ones today.
@alsnewstoday For clarity, this is only 8 people, open label. Almost all open label ALS trials that attempt to assess disease progression show slowing. NfL is intriguing but very underpowered. I like C1q as a target based on Ben Barres/Shane Liddelow/etc. work but this needs tempering please.
This finger pad charges your phone or watch with your sweat. （World Economic Forum）
"I was sitting in the meeting with the director of adult social care and she said 'Katie, you're a carer'. Up until that point I thought I was just a pretty good wife” – @WillowKaty, a teacher for twenty years before her husband was diagnosed with #MND.... bbc.co.uk/news/disabilit…
Day 532 asking: @US_FDA to use flexible regulatory pathways with @BrainstormCell’s #NurOwn for #ALS. & @FDACDERDirector @POTUS @VP @DrCaliff_FDA to act urgently. #everypointmatters so that my mom, a #PLWALS, can meet my kids, not just my dog. There remains an unmet need here.
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